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Friday, May 22, 2015

TISCH MS -- 18th Annual MS Patient Symposium


  18th Annual MS Patient Symposium


Save the Date:
October 18th, 2015


2014 Symposium
WHEN:

Sunday, October 18th, 2015 
Doors open at 8:30am
Presentations will be from 9:30am - 1:00pm
 


WHERE:
New York Hilton Midtown
1335 Avenue of the Americas
New York, NY 
(between 53rd and 54th Streets)
 


WHY:  
This free educational event will provide information on how to fight fatigue and depression, alternative approaches and radical treatments in MS, in addition to breakthroughs in research and preliminary results from our FDA- approved stem cell trial.
 


We encourage all MS patients, their family members
and caregivers to attend.


We hope to see you there!

 
 


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Researchers find that blocking MCAM molecule could slow progression of multiple sclerosis

May 21, 2015

A drug that could halt the progression of multiple sclerosis may soon be developed thanks to a discovery by a team at the CHUM Research Centre and the University of Montreal. The researchers have identified a molecule called MCAM, and they have shown that blocking this molecule could delay the onset of the disease and significantly slow its progression. These encouraging results from in vitro tests in humans and in vivo tests in mice were published today in the Annals of Neurology. "We believe we have identified the first therapy that will impact the quality of life of people with multiple sclerosis by significantly reducing the disability and the disease's progression," said Dr. Alexandre Prat, lead author of the study, researcher at the CRCHUM, and professor in the Department of Neurosciences at the University of Montreal.

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MSology - Multiple Sclerosis Booklets Essential to Understanding New Medications

New MS Essentials series from MSology provides critical info to people affected by multiple sclerosis (MS)


MONTREAL, QUEBEC--(Marketwired - May 21, 2015) - MSology (www.msology.com) is proud to announce the launch of its MS Essentials series, a collection of free publications available for download by people affected by multiple sclerosis (MS). The first three booklets explain the oral medications - Aubagio (teriflunomide), Gilenya (fingolimod), and Tecfidera (dimethyl fumarate) - that are now used to treat MS.
"There are now 10 medications used to treat MS, including the three oral drugs" explains MSology editor Steven Manners. "Each has its own 'personality' - that mix of benefits, side effects and other issues that define a treatment in a person's mind. Choosing the right therapy, one that works and that is easy enough to take every day, can be a real challenge for people. So we thought it would be helpful to explain why a person needs to treat their MS, explain the pros and cons of each drug, and provide some tips to manage side effects and make treatment choices easier."
The MS Essentials series was developed by MSology in collaboration with a team of MS specialist nurses from across Canada. "The nurses' perspective is part of what is essential about the series," Manners says. "They see people every day facing the same challenges - choosing the best medication for their situation, one that they can keep taking to control their MS. Nurses know the practical realities, and they understand the concerns that people have about medications. So, the booklets are able to address those concerns and explain the issues in a very user-friendly way."
Other publications in the MS Essentials series plan to address Lifestyle Issues (diet, exercise, alternative therapies) and New Research.


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Rebif® (interferon beta-1a) Data at CMSC Annual Meeting Highlights Clinical and MRI Predictors for Long Term Outcomes

ROCKLAND, Mass., May 21, 2015 /PRNewswire/ -- EMD Serono, Inc., the U.S. biopharmaceuticals business of Merck KGaA, Darmstadt, Germany, announced today that data about Rebif® (interferon beta-1a), the company's high-dose, high-frequency interferon beta for relapsing forms of multiple sclerosis, will be presented at the 2015 Annual Meeting of the Consortium of Multiple Sclerosis Centers (CMSC), taking place from May 27-30 in Indianapolis, Indiana.
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EMD Serono.
Data from 11 abstracts to be presented assess the efficacy of Rebif (interferon beta-1a) on MRI and clinical outcomes, and evaluate early predictors of no evidence of disease activity (NEDA) response, among other measures. The data also explores real-world evidence in MS, with analysis of time to first treatment with disease modifying drug as well as trends in treatment adherence among patients treated with self-injectables versus oral therapies.
"EMD Serono continues to evaluate the patient outcomes of Rebif, more specifically the important role it plays in the lives of those living with MS," said Dr. Rick Munschauer, Vice President, Medical Affairs, Neurology and Immunology, EMD Serono. "Our scientific and medical presence at this year's CMSC Annual Meeting is aimed at enhancing the understanding of our product and its effect on key measures in MS to help optimize patient care."







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Are You Stronger Than MS?


Published May 21, 2015
May 27 is World MS Day, and the hashtag #strongerthanMS will be used to raise awareness around the globe.
The theme of this year’s celebration centers around access. Why access? Because each person with multiple sclerosis is affected differently but we all want to feel that we are allowed to do the things we choose and are able to do. Events around the world will focus on the people living with MS and those close to us who help us live our best lives.
But is it just preaching to the choir?
Here in tiny little Ireland, 25 events are planned around the country, and the United States lists 16 (well done, Ireland!). Seminars, self-help groups, coffee mornings, and research initiatives are planned in countries from Yemen and New Zealand to Peru to China.
Will you be doing anything to mark the day?
I personally won’t be attending any events on the 27th, as I begin the second leg of my book release tour. I have, however, given an interview to the local paper and am honored to post theMS & Me blog on World MS Day for the Multiple Sclerosis Society of Ireland. But will anyone outside of the MS community be interested?
The dog chasing his tail of this disease is this:“Is there enough awareness, and is awareness enough?”

I challenge each of us in this year of #strongerthanMS to find someone and bring them into the tent.



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Thursday, May 21, 2015

MS News in Florida -- For Referrals and Resources - Contact the 'MS Views and News' Social Work Navigator


MS Views and News, a charitable organization, is now offering a Free Community Service in the State of Florida for any MS patient needing to speak with a Social Worker. This free service can help you to connect you with correct resources, assistance and much more.





MS Society e-News - MS therapies and new research

Researcher in a lab

Repurposing Successful Therapies to Treat MS

Results from a recent study found that a medication commonly used to prevent seizures in epilepsy may protect nerves in the eye from damage and has the potential to slow the accumulation of disability in people with MS.

Get the News
MRI image

The Latest in MS Research Reported at Annual Meeting of Neurologists

The first results of the myelin repair strategy clinical trial called anti-LINGO and a diet low in saturated fats and high in antioxidants were among the topics presented at the American Academy of Neurology’s Annual Meeting.
Learn More




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Men's Health Issues and Concerns, with Multiple Sclerosis - an MS educational program

A first time learning program -  taking place in Boca Raton, Florida on June 9th - Click here to Register for this event as showing below





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Lights Camera - Take Action on MS - Pittsburgh, Las Vegas and Atlanta

To register for an upcoming event in Pittsburgh, PA or  Las Vegas NV  or Atlanta, GA., with Madeleine Stowe - Click here



Lights, camera, take action on MS
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TV and film actress Madeleine Stowe has joined Genzyme to meet with the MS Community and share her personal connection to MS. Madeleine has been on the road at events across the country, meeting hundreds of community members and sharing what she has learned through the Lights, Camera, Take Action on MS campaign.
Visit TakeActionMS.com to see video highlights from attendees at previous events, who shared how and why they take action, and learn how you can participate.
Madeleine’s excited to connect with more members of the community in Pittsburgh, Las Vegas and Atlanta in the coming months. “I’ve been so inspired by the stories I’ve heard from the MS community - stories of hope, determination, and bravery. I’m looking forward to continuing my tour around the country with Lights, Camera, Take Action on MS to meet more of you.”
A local neurologist as well as a lifestyle expert will join Madeleine at each event to offer tips for helping manage the physical and emotional impacts of the disease.
Did you know many people living with MS may have trouble maintaining energy or staying active? “The key is to find something that fits your personality and that you love doing,” says lifestyle expert Monique Acton, a medical exercise specialist who has been traveling with the campaign. “Sometimes I suggest programs that are a bit more out of the box, such as water-based exercises or Tai Chi. It is important to speak to your doctor before beginning any exercise program.”
Sign up for an event to see Madeleine liveSign up for an event to see Madeleine live
Individuals living with relapsing MS will also join Madeleine to share their perspective and unique experiences, and how they are taking action against their disease. “I armed myself with knowledge and committed to raising awareness and funds to help find a cure,” says Stacey from Corona, CA. “I also take an oral medication called AUBAGIO® (teriflunomide) once a day to help treat my disease.”
Visit AUBAGIO.com to learn more about AUBAGIO, a pill you take once a day for the treatment of relapsing forms of MS.
INDICATION
AUBAGIO® (teriflunomide) is a prescription medicine used to treat relapsing forms of multiple sclerosis (MS).
IMPORTANT SAFETY INFORMATION
DO NOT TAKE AUBAGIO IF YOU:
  • Have severe liver problems. AUBAGIO may cause serious liver problems, which can be life-threatening. Your risk may be higher if you take other medicines that affect your liver. Your healthcare provider should do blood tests to check your liver within 6 months before you start AUBAGIO and monthly for 6 months after starting AUBAGIO. Tell your healthcare provider right away if you develop any of these symptoms of liver problems: nausea, vomiting, stomach pain, loss of appetite, tiredness, yellowing of your skin or whites of your eyes, or dark urine.
  • Take a medicine called leflunomide for rheumatoid arthritis.
  • Are pregnant. AUBAGIO may harm an unborn baby. You should have a pregnancy test before starting AUBAGIO. After stopping AUBAGIO, continue to use effective birth control until you have made sure your blood levels of AUBAGIO are lowered. If you become pregnant while taking AUBAGIO or within 2 years after stopping, tell your healthcare provider right away and enroll in the AUBAGIO Pregnancy Registry at 1-800-745-4447, option 2.
  • Are of childbearing potential and not using effective birth control.
It is not known if AUBAGIO passes into breast milk. Your healthcare provider can help you decide if you should take AUBAGIO or breastfeed — you should not do both at the same time.
If you are a man whose partner plans to become pregnant, you should stop taking AUBAGIO and talk with your healthcare provider about reducing the levels of AUBAGIO in your blood. If your partner does not plan to become pregnant, use effective birth control while taking AUBAGIO.
AUBAGIO may stay in your blood for up to 2 years after you stop taking it. Your healthcare provider can prescribe a medicine that can remove AUBAGIO from your blood quickly.
Before taking AUBAGIO, talk with your healthcare provider if you have: liver or kidney problems; a fever or infection, or if you are unable to fight infections; numbness or tingling in your hands or feet that is different from your MS symptoms; diabetes; serious skin problems when taking other medicines; breathing problems; or high blood pressure. Your healthcare provider will check your blood cell count and TB test before you start AUBAGIO. Talk with your healthcare provider if you take or are planning to take other medicines (especially medicines for treating cancer or controlling your immune system), vaccines, vitamins or herbal supplements.
AUBAGIO may cause serious side effects, including: reduced white blood cell count — this may cause you to have more infections; numbness or tingling in your hands or feet that is different from your MS symptoms; serious skin problems; breathing problems (new or worsening); and high blood pressure.
The most common side effects when taking AUBAGIO include: headache; diarrhea; nausea; hair thinning or loss; and abnormal liver test results. These are not all the side effects of AUBAGIO. Tell your healthcare provider about any side effect that bothers you.
Consult your healthcare provider if you have questions about your health or any medications you may be taking, including AUBAGIO.
You are encouraged to report side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch or call 1-800-FDA-1088.
Please click here for full Prescribing Information, including boxed WARNING and Medication Guide.



Wednesday, May 20, 2015

05.20.15 - a Candid Interview between Stu and Clay Walker


 05.20.15 - morning
Interview between Stuart Schlossman (Stu's Views and MS News / MS Views and News) and CLAY WALKER, noted Country Music Star  - 

  



Stuart Schlossman: What do you recall were your earliest symptoms of MS?

Clay Walker: Five years before I was diagnosed I was working in construction and a box had fallen on my head, I was knocked unconscious for about 10 seconds. When I came to it felt as if I had a pinched nerve going down my right arm and right leg. Five years later I had my first acute attack of MS develop with the exact same symptoms as when I received the head injury, plus double vision. I thought that it was a re-occurrence of the injury from the accident, but unfortunately it was MS.

Stuart Schlossman: What was the process that led to you being diagnosed? What were your symptoms?

Clay Walker: It was pretty immediate. I wanted to find out what was wrong. There was tingling down my arm and leg like an electric buzzer on me. I went in to see the doctor immediately. I also had 8 weeks of facial spasm on the right side of my face. I was concerned I had a tumor. Once we figured out it was MS they put me on steroids to try to reduce swelling.

Stuart Schlossman: I do not know if you are aware, but I am also an MS patient, and have experienced buzzing and actually woke up today with buzzing all over my body! I was diagnosed many years ago as well, but struggled for many years even as a child with MS symptoms, but was not diagnosed until I was 39.

Clay Walker: You know, I have never been interviewed by someone who has MS, the one message that I would like to get out, I have to say when I was diagnosed the prognosis the doctor gave me was very grim. He said I would be in a wheelchair in 4 years and dead in 8 (years). Obviously I have a different doctor now, (laughs) and about three years ago I asked him about that original diagnosis. He said, “the truth was if I was the one who viewed your MRI, I probably would not have given a much different prognosis. But that we started you on the right meds- and that you were a super responder to Copaxone.

Stuart Schlossman: When doing live performances and not feeling well, or having a bad day with symptoms, how do you get through it?

Clay Walker: That’s the beauty of it Stuart. I don’t feel like I have symptoms when I preform. My doctor said it is because of all the endorphins and adrenaline. When I am preforming I don’t feel like I have MS.

Stuart Schlossman: I have the same experience when I am doing my events. In addition to Copaxone, are there any complimentary are alternative therapies techniques that you use?

Clay Walker: I went to see a neuro-physical therapist. Trying to see I f you could reverse damage, she started a protocol to improve things, like stretches for spasticity and it does really work! I also have a history of cancer in my family and there is a drink, a smoothie that I drink 3-4x a week, it was created by someone named Donnie Yance, out of Ashland, Oregon. It is for cancer prevention, but I know that it has anti-inflammatory agents in it.
I have been on Copaxone for 17 years, completely relapse free for 17 years, which is incredible!

Stuart Schlossman: Is there anything else that you would like to talk about?

Clay Walker: Well, I have a new record- a brand new album coming out, so keep with

Stuart Schlossman: I want to spread the word that people can still be active with MS, that there is still life after a diagnosis and that you do not have to become a couch potato.

Clay Walker: No we cannot do that! I am going to go work horses after this, that is what I do… “There is something about the outside of a horse that is good for the inside of a man.”  That’s  a quote from Winston S. Churchill.



Stuart Schlossman: Thank you Clay! This has truly been a pleasure. Keep up all that you do for the MS community. 
I hope that we can do more work like this today and reach many more, living with MS together......


Clay Walker: That really sounds great, looking forward to it, thanks Stuart.




Disclaimer: This interview was held, not to endorse a product, but rather to provide MS Awareness


interview written by Jennifer F.

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for May 27, 2015 - World MS Day - Twitter chat with Clay Walker and Dr. Barry Singer


Teva Neuroscience is teaming up with country music star Clay Walker, who lives with a relapsing form of multiple sclerosis (RMS), and Dr. Barry Singer, Director of The MS Center for Innovations in Care in St. Louis, to host a one-hour live Twitter chat on May 27, 2015. I want to make you aware of this opportunity to raise awareness and celebrate those living with MS, as I felt it would potentially be of interest to you and members of your group. During this interactive Twitter chat, Clay will be answering questions about his RMS journey, and Dr. Singer will be available to address inquiries about the disease state of MS - all with the goal of driving dialogue about living with and managing MS.

Image for the news result


For your constituents who might be interested in this opportunity to further the MS dialogue, I hope you will consider sharing the following details about the event:

· What: World MS Day Twitter chat with Clay Walker and Dr. Barry Singer
· Date: May 27, 2015
· Time: 8:00 – 9:00 p.m. ET


· How to Join: Tweet your questions or comments to Clay (@ClayWalker) or Dr. Singer (@DrBarrySinger), or use the hashtag #MSDialogue


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New therapy could halt multiple sclerosis progress

"We believe we have identified the first therapy that will impact the quality of life of people with multiple sclerosis by significantly reducing the disability and the disease's progression," said Dr. Alexandre Prat, a professor in the Department of Neurosciences at the University of Montreal.
By Stephen Feller   |   May 20, 2015

Multiple sclerosis is the result of lymphocytes penetrating the brain-blood barrier and disrupting the transmission of nerve impulses. Researchers believe they have identified a primary molecule that helps this to happen. Image by Ralwel/Shutterstock

MONTREAL, May 20 (UPI) -- Researchers at the University of Montreal have discovered a treatment that can potentially stop the progression of multiple sclerosis.
The melanoma cell adhesion molecule, or MCAM, was found to be a crucial element in the attacks on the nervous system which slowly incapacitate people with multiple sclerosis. In vitro tests in humans, as well as tests in mice, showed that MCAM can be blocked, delaying onset of the disease and potentially slowing its progress.

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