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Disclaimer:

'MS Views and News' DOES NOT endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.

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Thursday, May 26, 2016

Hebrew University and Aurum Ventures Team to Create a Diagnostic Blood Test for RRMS

                                                                  

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Yissum Research Development Company, an arm of Hebrew University of Jerusalem, has entered into an agreement with Aurum Ventures MKI to develop a diagnostic blood test for relapsing-remitting multiple sclerosis (RRMS) and a range of other diseases, which uses differences in DNA from dying cells found in the blood of sick individuals. DNA molecules are methylated to control the expression of specific genes, and specific methylation patterns exist in various tissues.
Researchers at the Hebrew University recently discovered that when cells start dying, the DNA is released and circulates in the bloodstream. By scanning hundreds of patients with various diseases, as well as healthy control individuals, they were able to identify methylation patterns that are specific for a number of conditions, including RRMS. 


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MS Views and News
Provides educational information, resources and services for those affected by MS
We Believe YOU (the MS Patients and Caregivers) should Be Empowered with Multiple Sclerosis information
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Mary Jordan is fighting multiple sclerosis with dressage, an equestrian sport

                                                                  

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By Victoria Arlen | May 25, 2016



Mary Jordan often has a full day: train to become a Paralympian, and fight multiple sclerosis.

Jordan is hoping to fulfill her dream and qualify for the 2016 Rio Paralymics in dressage, an equestrian sport that resembles a type of "horse ballet," she says. Jordan balances her job at Panera Bread -- splitting time between her home in Maine and a training facility in Florida -- with working to stay fit and perfect her routine in the dressage arena.

She's also using the sport to fight MS, an unpredictable and chronic central nervous system disease that she was diagnosed with in her late 30s. The disease can sometimes leave people immobile for life. Symptoms -- such as blurred vision, loss of coordination and difficulties with mobility -- arrive randomly and last for unpredictable periods of time. On tough days, Jordan says it's dressage that helps her get out of bed.

Jordan grew up caring for her father, who also had MS. And these days, she wears many hats -- she's a mother, a wife, a caretaker for her horse, an athlete and a survivor. Besides fulfilling her dream of competing in the Paralympics, one of her main goals is to show her son that MS doesn't have to debilitate you.

"I'm hardwired now, I won't give up," she says. "I will never give up."

Watch Mary's Video discussion about her Fight to remain Strong by clicking here




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MS Views and News
Provides educational information, resources and services for those affected by MS
We Believe YOU (the MS Patients and Caregivers) should Be Empowered with Multiple Sclerosis information
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Stories of an invisible illness: Multiple Sclerosis

                                                                  

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May 25, 2016


It's estimated that more than 2.3 million people have multiple sclerosis, or MS, worldwide, and about Arkansans 3,000 have it. MS is a chronic, unpredictable disease that targets the nervous system. Today, medical researchers are making progress toward finding a cure.
Just 30 years ago, there were no treatments for MS, while today, even though there is still no cure, there have been breakthroughs in research. There's a new drug that could possibly put someone into remission for good.
However, this is a daily battle of silent symptoms you can't even tell someone has. Channel 7's Stacey Spivey sat down with four women with MS and their doctor, who has changed the way MS is treated in the Natural State.
Four women met at a restaurant in central Arkansas. All are in different walks of life, and some are even strangers, but they all have one thing in common.
"Welcome to the club," Marla Murphy said.
All four women, Murphy, Susan Spivey, Julie Cawthron, and Debbie Broadway, have multiple sclerosis.
Read more and watch their video found here


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MS Views and News
Provides educational information, resources and services for those affected by MS
We Believe YOU (the MS Patients and Caregivers) should Be Empowered with Multiple Sclerosis information
.===================================



HELPING NO-OPTION PATIENTS FIND A VOICE THROUGH STEM CELL LEGISLATION

                                                                  

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 Jennifer Ziegler, Tracy Thompson and SammyJo Wilkinson  May 17, 2016 


Many patients with multiple sclerosis, Parkinson’s, Alzheimer’s, cardiac issues, lung conditions, diabetes and arthritis, among other conditions, have limited treatment options. Typically, they employ underperforming, approved treatment options for their chronic disease or condition, if treatment is available at all. Many patients have tried all approved medical interventions without adequate success and continue to suffer. The lack of success leaves patients feeling hopeless and confused about what to do next. Patients For Stem Cells (PFSC) provides hope and a voice for those that feel they have no voice, no options and no way to regain their quality of life.
A question we get asked all the time is, “Why would regenerative, adult stem cell therapy not be allowed in the U.S.?” In our opinion, the answer boils down to two factors. First, adult stem cells will compete with highly profitable, multi-billion- dollar pharmaceutical interests. Second, the patent landscape around adult stem cells is cloudy, and no one is particularly interested in spending in excess of $1 billion to get a cell drug approved with no patent protection. In our opinion, academia and industry with vested interests in ethically controversial embryonic cells actively attack and discount the efficacy of adult stem cells due to their conflicts of interest—fearing the loss of research grants and patent royalties.
Why do adult stem cells make economic sense? The average care for a chronically ill patient can cost well in excess of $100,000 annually. Many conditions can be treated with stem cells for $20,000 a year, and in some cases, the results can last for years. For orthopedic conditions, like osteoarthritis of the knee, a simple stem cell shot costing under $5,000 can regrow cartilage and prevent, or postpone, the need for knee replacement surgery or knee orthoscopic knee surgery, which can cost up to $50,000 and $30,000, respectively.

Once cellular therapy becomes part of mainstream medicine, these cost savings will help salvage the Medicare budget. Congress is now becoming aware of the benefits in saving and improving lives, with potentially enormous cost savings. In 2016, Senator Mark Kirk (R-Ill.) introduced legislation to make cellular therapy a reality. A reality that will save billions of dollars in the approval process for a stem cell treatment to make it to market and cut the time in half.

A number of our physicians also support adult stem cell therapy being made available to all who need it in the U.S. One of those physicians is Dr. Stanley Jones, Chief Medical Officer of Celltex Therapeutics in Houston, Texas. Dr. Jones, a stem cell patient himself says:



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Disclaimer: 
 'MS Views and News' DOES NOT endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly







5 Reasons You Should Never Assume Someone Doesn’t Have Chronic Pain

                                                                  

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Written by: 
Christina Carrell
Freelance Writer / Copywriter

I was sitting in one of those canvas painting classes, waving a paintbrush back and forth in a very amateur attempt to recreate Monet’s Bridge Over a Pond of Water Lillies (spoiler: as you can see below, I’m not an artist and the end result bore little resemblance to the original).

“You’re lucky you’re young,” casually comments the older woman sitting next to me, “You don’t have to worry about arthritis in your hands.”

I knew it was an innocent comment intended as a lighthearted joke, an attempt to be friendly, or even as a compliment of sorts.
But I also knew how the observation, however well-intentioned it may have been, was wrong at best and hurtful at worst. I knew all too well thatyoung does not mean disease-free, worry-free, or especially pain-free. I knew that pain could strike at any time, and for me, had begun its assault on my body at the ripe age of twenty.
Few would know it to look at me. Certainly the woman in the painting class had no idea about the pain I’ve lived with for the past eight years. So I smiled in response and carried on with my painting, trying my best to ignore the pain and stiffness building up in my arm and hand.
But her comment got me thinking about the assumptions we make about other people. If I could be suffering and still look normal on the outside, what else could other people be silently enduring?

So I’ve compiled these five reasons we should never assume another person isn’t in pain:

Many people with chronic illness look totally normal – Chronic illness doesn’t always come with a walker, a wheelchair, a cane, a cast, a brace, or any other assistive device. Of course, the absence of these items can be both a blessing and a curse. Among people with multiple sclerosis, a whopping 75 percent will never need a wheelchair. But that doesn’t mean they aren’t suffering. 

Continue reading this advocates thoughts by clicking here







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Wednesday, May 25, 2016

Sanofi Genzyme Launches its vs.MS Global Campaign to Address the Physical and Emotional Burden of Multiple Sclerosis

                                                                  
  Sanofi Genzyme Launches its vs.MS Global Campaign to Address the Physical and Emotional Burden of Multiple Sclerosis


  
Cambridge, MA – 25 May, 2016 Sanofi Genzyme, the specialty care global business unit of Sanofi, announced today the launch of vs.MS, a global initiative focused on highlighting and addressing the sometimes debilitating symptoms that accompany MS, as well as their daily impact on people living with and affected by the disease.

This World MS Day, Sanofi Genzyme is putting a call out to the MS community to learn more about the real impact of the disease and to declare themselves vs.MS on the campaign website, www.vs-MS.com.  For each vs.MS declaration, Sanofi Genzyme will make a donation to the Multiple Sclerosis International Federation (MSIF). 

To inform the vs.MS campaign, a global survey was fielded among more than 1,500 people living with relapsing MS (RMS) and their care partners in seven countries: Australia, Canada, France, Italy, Spain, the United Kingdom and the United States.  Results from the survey reveal the physical and emotional toll that RMS patients face on a day-to-day basis.  Additional survey findings are available on the vs.MS website.  Some findings include:

·         More than half of respondents living with RMS find that issues with memory limit their daily activities
·         More than half of respondents living with RMS say their ability to process information has slowed down
·         Nearly half of respondents living with RMS feel limited by depression or anxiety
·         More than half of respondents living RMS feel lonely or isolated because of their RMS
·         Two-thirds of respondents living with RMS say their disease has affected their ability to keep their job
·         More than one-third of respondents feel urinary problems associated with their RMS are a factor in the decisions they make when planning to leave the house
·         More than half of care partner respondents do not discuss their fear of RMS progressing to avoid upsetting the person they care for

As part of our ongoing commitment to improving the lives of people affected by this debilitating disease, we are proud to launch vs.MS,” said Carole Huntsman, Global Multiple Sclerosis Lead, Sanofi Genzyme. The compelling findings from this survey broaden our understanding of the true cognitive and emotional toll that MS takes, and will help guide our efforts to better partner with the community to meet the overall needs of MS patients.”

To arm the MS community with the tools and resources they need to be vs.MS, the campaign website includes videos, educational modules and survey results highlighting the real burden of the disease.

To learn more about vs.MS and view the survey findings, visit www.vs-MS.com and follow along on social media via the campaign hashtag, #vsMS.





About Sanofi
Sanofi, a global healthcare leader, discovers, develops and distributes therapeutic solutions focused on patients' needs. Sanofi is organized into five global business units: Diabetes and Cardiovascular, General Medicines and Emerging Markets, Sanofi Genzyme, Sanofi Pasteur and Merial. Sanofi is listed in Paris (EURONEXT: SAN) and in New York (NYSE: SNY).

Sanofi Genzyme focuses on developing specialty treatments for debilitating diseases that are often difficult to diagnose and treat, providing hope to patients and their families. Learn more at www.sanofigenzyme.com.


Genzyme® is a registered trademark of Genzyme Corporation.  Sanofi® is a registered trademark of Sanofi.  All rights reserved.


Sanofi Forward-Looking Statements
This press release contains forward-looking statements as defined in the Private Securities Litigation Reform Act of 1995, as amended. Forward-looking statements are statements that are not historical facts. These statements include projections and estimates and their underlying assumptions, statements regarding plans, objectives, intentions and expectations with respect to future financial results, events, operations, services, product development and potential, and statements regarding future performance. Forward-looking statements are generally identified by the words “expects”, “anticipates”, “believes”, “intends”, “estimates”, “plans” and similar expressions. Although Sanofi’s management believes that the expectations reflected in such forward-looking statements are reasonable, investors are cautioned that forward-looking information and statements are subject to various risks and uncertainties, many of which are difficult to predict and generally beyond the control of Sanofi, that could cause actual results and developments to differ materially from those expressed in, or implied or projected by, the forward-looking information and statements. These risks and uncertainties include among other things, the uncertainties inherent in research and development, future clinical data and analysis, including post marketing, decisions by regulatory authorities, such as the FDA or the EMA, regarding whether and when to approve any drug, device or biological application that may be filed for any such product candidates as well as their decisions regarding labelling and other matters that could affect the availability or commercial potential of such product candidates, the absence of guarantee that the product candidates if approved will be commercially successful, the future approval and commercial success of therapeutic alternatives, the Group’s ability to benefit from external growth opportunities, trends in exchange rates and prevailing interest rates, the impact of cost containment initiatives and subsequent changes thereto, the average number of shares outstanding as well as those discussed or identified in the public filings with the SEC and the AMF made by Sanofi, including those listed under “Risk Factors” and “Cautionary Statement Regarding Forward-Looking Statements” in Sanofi’s annual report on Form 20-F for the year ended December 31, 2015. Other than as required by applicable law, Sanofi does not undertake any obligation to update or revise any forward-looking information or statements.


Media Contact
Sanofi Genzyme Media Relations
Erin Walsh, +1 (617) 768-6881


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MS Views and News
Provides educational information, resources and services for those affected by MS
We Believe YOU (the MS Patients and Caregivers) should Be Empowered with Multiple Sclerosis information
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World MS Day: Bringing the worldwide multiple sclerosis community together

                                                                  

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Published: May 24, 2016


KARACHI: Five years ago, 46-year-old Amir Nizami woke up one morning with numbness in his right leg and hand. Little did he know he will lose the liberty to move freely for the rest of his life because he was suffering from a neurological disorder called multiple sclerosis (MS).
“I consulted a doctor and recovered in a week but after some time I suffered from another attack,” Nizami recalled, adding that living with MS involves all kinds of challenges. MS is a long-lasting disease that can affect the brain, spinal cord and optic nerves in the eye. It can cause problems with vision, balance, muscle control and other basic body functions
According to Dr Muhammad Wasay, a neurology professor at Aga Khan University Hospital, MS is a progressive disease but disability can be reduced if it is diagnosed and treated at an early stage. The disease mainly affects people between the ages of 15 and 35 years. He said that the disease is not genetic and anyone can suffer from it, however, the causes of MS are unknown. Some of the main symptoms include numbness and tingling in parts of the body, vision problems, balance, mobility issues and slurred speech.
Every year on May 25, World MS Day is observed to create awareness about the disease among the public. This year’s theme is ‘independence,’ which shows how people with MS still carry on with their lives.
Daily life of a patient
Nizami said he cannot balance his body due to the disease, therefore he uses a cane to walk. However, he can still manage to walk, unlike 19-year-old Maimoona, who is wheelchair-bound for the last two years.


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MS Views and News
Provides educational information, resources and services for those affected by MS
We Believe YOU (the MS Patients and Caregivers) should Be Empowered with Multiple Sclerosis information
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MS – the invisible war on emotion

                                                                  

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  • Posted on March 29, 2016
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  • by 

So you have been diagnosed with Multiple Sclerosis. Like every other serious health diagnosis, the news is really hard to take in, especially if you are feeling relatively good.
While some people feel relieved to finally get a name for all their unexplained symptoms and/or years of misdiagnosis, others will start going through the five stages of grief:  denial, anger, bargaining, depression and eventually acceptance.
Mourning takes place throughout many big life changes; we mourn the end of a relationship, the end of a happy era, huge lifestyle changes.We also mourn who and how we used to be. Being told you suffer from a condition that has no cure, that is unpredictable, that could put you in a wheelchair, that will change your life as you know it for ever and which comes with so many symptoms and side effects triggers a mourning state which could last for very long.
Like many other ‘invisible’ conditions, Multiple Sclerosis is sneaky; many of its symptoms are not seen by others and a few more are not even given much attention, although are detrimental to the sufferer. Of those symptoms are the psychological  impact MS has on people and also the emotional problems it brings with it.
Unfortunately, it is understandably difficult for others to comprehend how fatigue, pain, itchiness, body aches, trembling and tingling affect you daily let alone mood swings, depression and emotional ups and downs.
Saying that, you would wish for people in your life who truly care for you and love you to be actively helping, trying to understand and listen more, getting involved in learning and educating themselves  – you are right thinking like that.
With an MS diagnosis also comes loss;  you might lose the ability to do certain sports, to go to work, to think as clearly as before or the loss to control your emotions. Grieving and feelings of sadness could lead to depression which could last for a few days or even turn into clinical depression which lasts for much more and is more unremitting. You might enter an emotional roller-coaster with confusing feelings that will make you more sensitive and prone to bouts of crying or laughing for no particular reason.
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MS and Young Adult-onset Hodgkin Lymphoma May Share Underlying Causes, Study Says

                                                                  

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Previous studies suggested that multiple sclerosis (MS) and Hodgkin lymphoma might share underlying causes, including exposure to microorganisms in childhood, such as Epstein-Barr virus (EBV) infection. In the study “Multiple sclerosis and risk of young-adult-onset Hodgkin lymphoma,” published in the journal Neurology: Neuroimmunology and Neuroinflammation, researchers suggested that common inherited or acquired risks for these conditions do exist.
Hodgkin lymphoma has three age-defined phenotypes, but it was the specific stage ofyoung adult-onset Hodgkin lymphoma (YAHL) that was reported to be associated with a pattern of childhood markers of infectious exposure, and linked to MS.
The research team investigated if MS is associated with YAHL but not with the other Hodgkin lymphoma phenotypes. A cohort of 29,617 Swedish patients with an MS diagnosis (between 1968 and 2012) , and a control group of 296,164 people without MS, were used.
After being adjusted for participants’ age/period, sex, county of residence, and education level, results suggested that the association between MS and YAHL does exist, and most notably in female patients. Specifically, researchers found four patients with YAHL among the MS cohort, and 16 in the non-MS cohort. All four diagnoses of YAHL in MS occurred in women. The researchers, however, noted this may be due to the fact that most MS patients in the cohort were women, or because of sex-specific differences in susceptibility to a risk for both diseases.




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MS Views and News
Provides educational information, resources and services for those affected by MS
We Believe YOU (the MS Patients and Caregivers) should Be Empowered with Multiple Sclerosis information
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Linking Diet and Intestinal Flora with Multiple Sclerosis - Turkey to limit brain inflammation

                                                                  

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Molecules derived from tryptophan, an amino acid found in turkey and other foods are related to the ability to limit inflammation of the brain. 

A new study demonstrates for the first time that diet and microbiota influence this inflammation, key in diseases such as multiple sclerosis.

US – New research from Brigham and Women’s Hospital Boston (USA) suggests that bacteria living in the gut are linked in the activity of brain cells involved in the control of inflammation and neurodegeneration.

By using preclinical models and samples from patients with multiple sclerosis, the team found evidence that dietary changes and intestinal flora can influence astrocyte cell, a type of cerebral and consequently neurodegeneration.
These results, published yesterday in the journal Nature Medicine, may be useful in the development of possible therapeutic targets for diseases related to inflammatory processes, such as multiple sclerosis.
Francisco Quintana, Spanish researcher who led the work, told SINC: “we have demonstrated for the first time that diet and intestinal bacteria collaborate to produce metabolites that travel through the circulation to the central nervous system to regulate inflammation and neurodegeneration.”
Or put another way, the food has some sort of role in the central nervous system through inflammation.  “What we eat influences the ability of intestinal bacteria to produce small molecules, some of which are able to travel to the brain. This opens an unknown area so far. How the intestine controls inflammation of the brain,” he added.
According to the authors, dietary supplements and probiotics may be useful to control processes that contribute to the pathology of neurological diseases. “Our studies were initially focused on multiple sclerosis, but also have implications for other diseases such as Alzheimer’s and Parkinson’s,” said Quintana.
Turkey to limit brain inflammation

Previous research had suggested a link between the intestinal microbiome and inflammation of the brain, but until now was not known how they are related and how diet and microbial products influence this.





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MS Views and News
Provides educational information, resources and services for those affected by MS
We Believe YOU (the MS Patients and Caregivers) should Be Empowered with Multiple Sclerosis information
.===================================