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Disclaimer: 'MS Views and News' DOES NOT endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.

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CHAMPIONS TACKLING MS - AWARDS Dinner, Honoring Aaron Boster, MD and Jon e. Glaser, DDS - now open for registration. Visit www.events.msvn.org

Wednesday, February 22, 2017

ACTION Alert needed for Patient Protection and Affordable Care Act


                                                                  
  
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Information provided by an MS Advocate

Right now we need help alerting our members of congress about the Patient Protection and Affordable Care Act and how it affects those of us with M.S.  This bill protects people living with MS and other pre-existing conditions, as well as removing lifetime and yearly insurance caps for those hit by sudden and expensive health costs.

One of the protections contained in the legislation is that it bans charging women higher health premiums then men.  It also protects all Americans by limiting out of pocket expenses.  Please contact your members of congress and ask them to keep important protections in place for those of us with MS.  If you don't know who they are you can easily look them up by zip code.  A short personal story can make a difference and every contact counts.  

You can make an even greater impact by calling.
You can contact their offices by calling 202-224-3121
    and pressing “1” for the U.S. Senate and “2” for the House of Representatives.

Tell them not to repeal the ACA unless or until they have something in place that includes the important points discussed above.  

Please take a few moments to help us help ourselves!






MS Views and News is MAKING an IMPACT on those affected by Multiple Sclerosis

Stem Cell Treatment May Halt MS Disability Progression


                                                                  
  
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Observational study finds almost half of patients progression-free at 5 years


by Kate Kneisel 

Contributing Writer, MedPage Today
FEBRUARY 21, 2017

Autologous hematopoietic stem cell transplantation (AHSCT) was associated with long-term attenuation of disability progression in almost half of patients with aggressive, treatment-refractory multiple sclerosis (MS), researchers found.

The long-term observational study of 281 patients with predominantly progressive forms of MS found that 46% of the 239 evaluable patients were free from progression and overall survival was 93% at 5 years, Paolo Muraro, MD, of Imperial College London in England, and colleagues reported online in JAMA Neurology.



The profile of a patient who may benefit from AHSCT for treatment of aggressive MS includes being younger in age, with relapsing forms of MS, a low number of prior immunotherapies, and low or moderate but not severe level of established neurological disability, Muraro told MedPage Today.
"The study results suggest a long-term treatment effect of AHSCT and strengthen the case [presented in a 2012 position paper] for randomized controlled trials of AHSCT against standard care," he added.
Patients in the multicenter study were followed for up to 16 years (mean 6.6 years). Three-quarters of patients had progressive forms of MS, mostly secondary progressive MS (66.2%). Transplant occurred a median of 81 months after MS diagnosis; 61% of patients had received at least 2 MS treatments before transplant. Median EDSS score was 6.5.




MS Views and News is MAKING an IMPACT on those affected by Multiple Sclerosis

Improve Your Strength and Balance With Pilates for MS


                                                                  
  
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Trying Pilates for MS

I’ve written many articles and blog posts about the benefits of exercise for multiple sclerosis (MS), but it occurred to me recently that I don’t actually practice what I preach! I talk the talk but always find excuses not to walk the walk (or stagger the stagger in my case).
I worry about exercise making fatigue worse and being unable to meet all my daily commitments like work and taking care of my children. I also worry about how much I can physically do due to my disabilities.
How can I join an exercise class, for example, when I can’t walk well or stand for long periods? How can I go swimming when heat intolerance makes getting dressed again impossible?
I needed to find something I could do at home on my own terms and at my own pace, so I started to make enquiries about private Pilates lessons.
I’d been talking to a friend with MS a few months ago who’d done a six-week course of Pilates and the results were amazing. She’d managed to get rid of her walking stick as her strength and balance had improved so much. I figured I might be able to improve and either get rid of one of my sticks or at least improve my confidence with two.


MS Views and News is MAKING an IMPACT on those affected by Multiple Sclerosis

Immediate affective responses of gait training in neurological rehabilitation: A randomized crossover trial.


                                                                  
  
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Abstract

OBJECTIVE: To examine the immediate effects of physical therapy and robotic-assisted gait training on affective responses of gait training in neurological rehabilitation.
DESIGN: Randomized crossover trial with blinded observers.
PATIENTS: Sixteen patients with neurological disorders (stroke, traumatic brain injury, spinal cord injury, multiple sclerosis).
METHODS: All patients underwent 2 single treatment sessions: physical therapy and robotic-assisted gait training. Both before and after the treatment sessions, the self-report Mood Survey Scale was used to assess the effects of the treatment on distinct affective states. The subscales of the Mood Survey Scale were tested for pre-post changes and differences in effects between treatments, using non-parametric tests.
RESULTS: Fourteen participants completed the study. Patients showed a significant increase in activation (r = 0.55), elation (r = 0.79), and calmness (r = 0.72), and a significant decrease in anger (r = 0.64) after robotic-assisted gait training compared with physical therapy.
CONCLUSION: Affective responses might be positively influenced by robotic-assisted gait training, which may help to overcome motivational problems during the rehabilitation process in neurological patients.

PMID

 28218343 [PubMed - as supplied by publisher]


SOURCE PAGE


MS Views and News
Providing educational information, resources and services for those affected by MS, globally

The Benefits of Vitamin D


                                                                  
  
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Vitamin D - Wonder Pill or Overkill?

Can one vitamin build stronger bones, help you lose weight, and protect against diabetes, depression, and more? Hopes are high. Get the facts.

Wouldn’t it be great if one vitamin could build stronger bones and protect against diabetes, multiple sclerosis, cancer, heart disease, and depression? Or even help you lose weight? Researchers have high hopes for vitamin D -- which comes from our skin's reaction to sunlight, a few foods, and supplements. Learn the facts in the slides ahead … and see who's at risk for a "D" deficiency.

Vitamin D is critical for strong bones, from infancy into old age. It helps the body absorb calcium from food. In older adults, a daily dose of "D" and calcium helps to prevent fractures and brittle bones. Children need "D” to build strong bones and prevent rickets, a cause of bowed legs, knock knees, and weak bones. Adding the vitamin to milk in the 1930s helped to nearly eliminate rickets.

Read more    (click the arrows on page that opens, to advance the slides)



MS Views and News
Providing educational information, resources and services for those affected by MS, globally

Monday, February 20, 2017

Cladribine Tablets Reduce Brain Atrophy in MS


                                                                  
  
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EMD Serono has recently published Phase 3 clinical data showing that Cladribine tablets reduced the annualized rate of brain volume loss (BVL, brain atrophy) compared to placebo in patients with relapsing-remitting multiple sclerosis (RRMS).
CLARITY was a randomized, double-blind, three-arm, placebo-controlled, multi-center Phase 3 clinical trial (NCT00213135) that evaluated the safety and efficacy of oral Cladribine in 1,326 RRMS patients. The primary endpoint was the assessment of the annualized rate of relapse (ARR) at 96 weeks, and key secondary endpoints included the number of relapse-free patients and the sustained progression of disability.
READ MORE


MS Views and News
Providing educational information, resources and services for those affected by MS, globally

'Brain Fog' - Reasons you may be affected


                                                                  
  
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“Brain fog” isn’t a medical condition. It’s a term used for certain symptoms that can affect your ability to think. You may feel confused or disorganized or find it hard to focus or put your thoughts into words


Many women find it’s harder to remember things during pregnancy. Carrying a baby can change your body in lots of ways, and chemicals released to protect and nourish your baby may bring on memory problems.

This disease affects your central nervous system and can change the way your brain “talks” to the rest of your body. About half the people who have MS have issues with memory, attention, planning, or language. Learning and memory exercises can help, and a therapist can give you new ways to handle the tasks you have trouble with.

Some kinds of drugs -- over-the-counter and prescribed -- can cause brain fog. If you take medicine and notice that your thinking isn’t as clear as it should be or you suddenly can’t remember things, call your doctor. Be sure to let him know all the medications you take.





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Providing educational information, resources and services for those affected by MS, globally
MS Views and News is MAKING an IMPACT on those affected by Multiple Sclerosis

Friday, February 17, 2017

MS and Your Sex Life By R. Morgan Griffin


                                                                  
  
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Keep your sex life exciting, playful, and fun. The key is to take the time to find out what's important to you and your partner.

Know Your Needs

Explore. Your body may feel different than it used to. Get in touch with that, says Rosalind Kalb, PhD, of the National Multiple Sclerosis Society.
Lock the bedroom door, relax, and take 15 minutes to feel every part of your body.
"Figure out what feels good, what doesn't, and what hurts," Kalb says. This isn't about masturbation, although that's good, too. It's about taking stock of what your body feels now.
Share what you've learned. Once you have a sense of what feels good, tell your partner, who may have been nervous or worried about accidentally hurting you.
Reset your relationship. "When you have MS, you and your partner talk a lot about your health," says Cindy Richman of the Multiple Sclerosis Association of America. "You may start to feel more like a patient than a person."
Don't let all the health talk make you less sexual and desirable. To reconnect, set aside times where you agree not to talk about MS.

Be Bold in the Bedroom 

- READ MORE





MS Views and News
Providing educational information, resources and services for those affected by MS, globally
MS Views and News is MAKING an IMPACT on those affected by Multiple Sclerosis

Thursday, February 16, 2017

Learn of TWO Champions, Tackling MS


 
                                                              
  JOIN us on April 22nd to honor two Champions Tackling MS. 

One a MS Neurologist who extends himself for the benefit of his patients and the other a Patient who despite his diagnosis, found a way in which to excel in life.  

Learn more of this event by clicking here: www.champions.msvn.org  

-- if you cannot attend but wish to donate to support MS Views and News for what we do for the MS Community, please donate here

We do to see you register and attend this event which includes, Auctions, Dinner, Live Music, Awards ceremony and more.
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Tuesday, February 14, 2017

Webinar now available for: "Managing Stress in Multiple Sclerosis"


                                                                  
  
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Dear MS Perspectives Subscriber, 

We are pleased to provide you with an important webinar that was just produced in partnership with the International Organization of MS Nurses by an educational grant from Sanofi Genzyme. The program, entitled "Managing Stress in Multiple Sclerosis" was developed based on feedback from readers and runs approximately 30 minutes.

Since MS is in itself a stress-producing condition and since an MS care professional can't manage stress for the patient, an effective program must be adopted and maintained by the individual. There are many non-pharmacologic approaches that have been proven useful for people with MS, and choosing the best one must be an individualized approach. This webinar guides listeners through a clearer understanding of the concept of stress ("What is stress? How does it affect the human body? How can it affect my MS?") along with some tips and resources for finding effective stress-management solutions. We encourage you to view this program and share with family, friends, supports groups and anyone else you believe might benefit from it.

At the end of the program, there is a brief survey. We would greatly appreciate you taking a moment to fill it out. 

Just Click Here to begin the program.

Thank you for your continued readership of MS Perspectives. We hope to bring more important programming to you.


Please send any comments or feedback to info@msperspectives.com

Sincerely yours,
The MS Perspective Team


©2016 Delaware Media Group. All rights reserved.




MS Views and News
Providing educational information, resources and services for those affected by MS, globally