ABOUT this BLOG and How to use it

WELCOME to Stu's Views & MS News, a product of MS Views and News, a Not-for-Profit 501(c3) organization. Founded in 2008. Providing Educational, Information and Resources to those affected by Multiple Sclerosis via live seminars and via the internet.

Key-Note: Our live MS educational seminars average approx 65 people per educational program and SINCE our first program in February 2010, we have hosted more than 90 educational programs in Florida. In 2013 we expanded to Georgia and in 2014 we have expanded further, into Alabama and North Carolina.

Register at our website to receive our globally transmitted Multiple Sclerosis e-newsletter, currently being received in more than (90) Countries.

Visit MS Views and News.org

Scroll to view All the resources found on the left side of this blog. Need to find information, use our 'search by topic' tool.

Be Empowered with MS News and Information

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Friday, August 1, 2014

Link Between Vitamin D Levels and Optic Neuritis Severity

A new, published study of children and adults with MS revealed that individuals with higher vitamin D levels may experience less severe attacks of acute optic neuritis (AON). Younger age, attack severity, and female gender all had an impact on AON recovery. It is estimated that 15 to 20 percent of people with MS experience AON.

Lead author Muhammad Malik, MD, principal investigator Tanua Chitnis, MD, colleagues from the Partners Multiple Sclerosis Center, and fellow researchers studied three groups of patients. The first was composed of 253 adult AON patients and the second was composed of 38 pediatric AON patients; both groups had AON as their initial presenting symptom for MS. The third group was composed of 101 individuals with AON who did not experience AON as their initial symptom. All patients were selected from the Comprehensive Longitudinal Investigation of Multiple Sclerosis at Brigham and Women’s Hospital (CLIMB) Study at the Partners Multiple Sclerosis Center.

Although the authors believe vitamin D plays an important role in AON attack severity, they said that more studies are warranted. This study was published in the journal Neurology.













~~~~~~~~~~~~~~~~~~~~
 Keep CURRENT and up to date, with MS News and Information
Sign-up for emails 
.

WATCH OUR MS EDUCATIONAL VIDEOS by Topic, 

.


Thursday, July 31, 2014

Narcoms Special Survey on Marijuana

NARCOMS is interested in your opinions on marijuana and medical marijuana to treat MS symptoms and we invite you to participate in the  NARCOMS Ancillary Marijuana Survey.

Because this survey asks about use of a drug that is not legal everywhere, we understand that you might be uncomfortable if the answers were in any way linked to your NARCOMS information, so they wont this short survey will be completely anonymous:


We hope that you will consider participating in this study, but as with any research study, the decision to participate is completely up to you.  The survey is open until August 31, 2014. For further details about the study, please refer to the cover page of the survey or the attached letter. Additional information can also be found in the Summer 2014 issue of NARCOMS Now, pages 10-11, http://www.narcoms.org/narcomsnow/). 

Results of the study will be summarized in a future issue of the NARCOMS Now magazine.

Thank you for your time and participation!

Sincerely,


The NARCOMS Team






~~~~~~~~~~~~~~~~~~~~
 Keep CURRENT and up to date, with MS News and Information
Sign-up for emails 
.

WATCH OUR MS EDUCATIONAL VIDEOS by Topic, 

.


Expanded Data on Disability and Cognitive Improvements in Phase II Study in Multiple Sclerosis

Expanded Data on Disability and Cognitive Improvements in Phase II Study of Synthetic Biologics' Trimesta™ in Multiple Sclerosis to be Presented at 2014 Joint ACTRIMS-ECTRIMS Meeting

July 31, 2014

-- Oral Presentation to Include Greater Detail on Clinical Outcomes, Including Significant and Unique Improvements in Cognition --

ROCKVILLE, Md., July 31, 2014 /PRNewswire/ -- Synthetic Biologics, Inc. (nyse mkt:SYN), a biotechnology company developing novel anti-infective biologic and drug candidates targeting specific pathogens that cause serious infections and diseases, announced today that Rhonda Voskuhl, M.D., the lead investigator of the Phase II clinical trial evaluating Trimesta™, the Company's oral product candidate for the treatment of relapsing-remitting multiple sclerosis (MS), is scheduled to present additional clinical outcome data, including more detailed results on cognitive and disability measures. The data will be presented at the 2014 Joint Americas and European Committees for Treatment and Research in Multiple Sclerosis Meeting (ACTRIMS-ECTRIMS) in Boston.

The abstract titled, A Combination Trial of Estriol Plus Glatiramer Acetate in Relapsing-Remitting Multiple Sclerosis: Effects on Disabilities, will be featured in an oral presentation on Friday, September 12, 2014, at 8:39am (ET).

"We are thrilled that Dr. Voskuhl will present additional clinical findings for Trimesta, an oral agent for treating MS in women. The presentation provides further data on the Phase II topline efficacy results reported in April 2014, comparing Trimesta in combination with Copaxone® to Copaxone® alone as an active control arm. The presentation is expected to provide details about the significant clinical outcome measures including relapse rate, disability, and cognition measures evaluated in this compelling trial," stated Jeffrey Riley, Chief Executive Officer of Synthetic Biologics. "If the findings are supported in further studies, Trimesta, either alone or in combination with other MS drugs, could become a leading front-line therapy for women with MS due to its unique and differentiated anti-inflammatory, as well as neuroprotective benefits."


Dr. Voskuhl commented, "The clinically significant improvement in cognitive testing in women taking Trimesta in this Phase II study is of high importance for MS specialists and patients. We believe the differentiated mechanism of action observed with Trimesta presents a new oral opportunity and has the potential to be an ideal added oral therapy to address significant unmet needs for women affected by this progressive, debilitating condition."

Continue reading





~~~~~~~~~~~~~~~~~~~~
 Keep CURRENT and up to date, with MS News and Information
Sign-up for emails 
.

WATCH OUR MS EDUCATIONAL VIDEOS by Topic, 

.


Wednesday, July 30, 2014

For those in South Florida- Review: The 2014 MS Connection - Hurricane Edition

The South Florida MS Connection newsletter is available at the link below.  Please share this information with you group members, family and friends.
Are you prepared for the hurricane season? Download the latest MS Connection newsletter loaded with information and resources to help you prepare for the unpredictable.


http://issuu.com/nmssfls/docs/hurricane_2014_ms_connection-web/1


The National MS Society South Florida Chapter, published the information found above





~~~~~~~~~~~~~~~~~~~~
 Keep CURRENT and up to date, with MS News and Information
Sign-up for emails 
.

WATCH OUR MS EDUCATIONAL VIDEOS by Topic, 

.


Blu Sky "be inspired and inspire - a Video story from an MS patient


Blu Sky "be inspired and inspire others" from Kathleen Wilson on Vimeo.



by: Kathleen Wilson -- posted: 7/29/2014

This video is about my personal struggle with secondary progressive multiple sclerosis. Without a known cause, treatment or cure for progressive MS, I feel that I must take charge of my health destiny, I documented 365 days of what I am doing to remain as healthy as possible, physically, emotionally and spiritually.

This is the first year of three, the second beginning August 1, 2014. I am setting new goals to accomplish more because the first year was surprisingly successful in unexpected ways.
My hope is to hear from others facing similar challenges who may feel out of the mainstream because we are not selected for clinical trials for treatments of any significance.

My focus is to stay as well as I can and await a cure which may or may not occur within my lifetime.


-Stu's Views -- WOW- this video really lit me up to where I just had to post this for you, many of you, to see.. Quite engaging and although this might not work for many, I am hoping that there will be those that truly do get inspired and act on that inspiration.  THANK YOU KATHLEEN!!!!






~~~~~~~~~~~~~~~~~~~~
 Keep CURRENT and up to date, with MS News and Information
Sign-up for emails 
.

WATCH OUR MS EDUCATIONAL VIDEOS by Topic, 

.


But You Look So Good!

Managing specific issues

Common “invisible” MS symptoms  MS symptoms that are hard to see include fatigue, pain, cognitive problems like memory loss or trouble solving problems, weakness, blurred vision,
numbness, prickly or tingling sensations, heat sensitivity, dizziness, balance/ coordination problems, and bladder or bowel problems.

It’s important to recognize that there are medications, therapies, coping strategies, self-help techniques, and self-help groups for these problems.

continue reading here, from the National MS Society




~~~~~~~~~~~~~~~~~~~~
 Keep CURRENT and up to date, with MS News and Information
Sign-up for emails 
.

WATCH OUR MS EDUCATIONAL VIDEOS by Topic, 

.


Monday, July 28, 2014

Life Has a Way of Interrupting Our Plans.


Written by:
Jon Chandnonet                                                 July 27, 2014


Most of us get knocked off our chosen paths at some point. It’s what we do in such moments that determine our fate.

In 1997, I was twenty-seven, a semester away from completing my Master’s Degree at MIT, with a job offer from promising startup Sapient- when I received the diagnosis that would change my life: Multiple-Sclerosis.

MS knocked me down. It almost knocked me out but it didn’t. It motivated me to become more conscious and intentional about life, and put me on the path to VIBRANT living that I otherwise might not have found.

Today, I share with audiences through my blog, speaking, coaching and my recently published book, Shadow Summit, what I’ve learned about the Seven Keys to Vibrant Living: mind, body, spirit, emotions, professional pursuits, financial abundance, and community - to encourage health, hope, harmony and happiness for all that are searching for a more vibrant, fulfilled life.


- See more at: http://jonchandonnet.com/#sthash.xIx0spnQ.dpuf


Other writings by Jon include:

  • The life Planned vs. The Life Waiting
  • What is Spiritual Well Being?
  • My Quest to Run Again
  • Reclaiming a VIBRANT perspective
  • A desire to Tempt Fate Once Again . . .

  • - See more at: http://jonchandonnet.com/#sthash.I8hCuNeb.dpuf





    ~~~~~~~~~~~~~~~~~~~~
     Keep CURRENT and up to date, with MS News and Information
    Sign-up for emails 
    .

    WATCH OUR MS EDUCATIONAL VIDEOS by Topic, 

    .


    A Person Just Like You


    Monday, July 28, 2014


    Written by My Photo
    For better or worse, I’ve learned a lot about handling this disease 







    I cry at sad movies. I need two cups of coffee in the morning. I sleep naked. I believe curiosity doesn’t kill the cat, stupidity does. I like kids who are curious. I scratch if I itch. I know that if you hold down that little lever in the fridge the light goes off. I vote my conscience. I get mildly upset—no, pissed—when someone takes my parking space. I inhaled. I believe no one should salt their food before tasting it. I sew. I think super-heroes don’t exist, but heroes are all around us. I eat leftover pizza for breakfast and enjoy it. I wait until April 14th to do my taxes just for a challenge. I count fat grams. I like a hot kiss on a warm night in a cool part of town. I ate glue in 2nd grade. I like verbs. I always reach around the first milk in the dairy section and grab the one behind it. I wear my emotions on my sleeve…sometimes. I dream big dreams in color.

    Being disabled doesn’t mean being different.

    I’m a person just like you. With feelings, opinions and convictions. Do your part. Help eliminate the barriers facing persons with disabilities. Encourage and invite disabled individuals to your parties and playgrounds. Choose places that are accessible. Let kids ask questions—it’s okay. And please, watch where you park your car.

    You can make a difference.

    I originally wrote this in 1997, 10 years before being diagnosed with multiple sclerosis. A woman, a talented abstract artist, needed help expressing herself—and conveying her experience of using a wheelchair—in print. As an able-bodied 27-year-old writer, I found it empowering and enlightening to approach the challenges of being disabled from such a perspective. For this 2014 edition, only one change was made (for somewhat obvious reasons): I removed the line “I check the pay phone coin return slot even though I know I won’t find a quarter.” Was I destined to be a voice in this community I’ve come to embrace and champion? Signs point to yes.







    ~~~~~~~~~~~~~~~~~~~~
     Keep CURRENT and up to date, with MS News and Information
    Sign-up for emails 
    .

    WATCH OUR MS EDUCATIONAL VIDEOS by Topic, 

    .


    Saturday, July 26, 2014

    Listen to a Multiple Sclerosis Treatment updates interview


    Multiple Sclerosis UnPLUGGED - Blog Talk Radio
    StuMS Radio

    Topic - Treatment Updates
    Date Taped: 07.24.14



    Guest - Brian Steingo, MD
                   



    ~~~~~~~~~~~~~~~~~~~~
     Keep CURRENT and up to date, with MS News and Information
    Sign-up for emails 
    .

    WATCH OUR MS EDUCATIONAL VIDEOS by Topic, 

    .


    Multiple Sclerosis Care Costs Up 60% in 7 Years

    Over the past 7 years, multiple sclerosis (MS) care costs rose 60%, according to research presented by BMC Health Services Research.

    The researchers suggest that even though MS treatment costs are increasing, the costs are driven by common MS sequelae — a condition that is the consequence of a previous disease or injury. From 2006 to 2011, the researchers determined expenses have risen about 60%.

    To reach this conclusion, investigators examined a pharmacoeconomic analysis to derive updated information about MS-related costs and cost drivers related to disease-modifying drugs (DMDs). The proportion of DMDs, they found, was similar in 2011 to that reported in 2004.

    Using data from patients who were diagnosed more than a year prior, the researchers studied pharmacy claims for DMDs. Then, the values were adjusted to 2011 values using the medical care component of the consumer price index (CPI).

    The participants were further divided into subgroups according to their DMD usage (interferon beta-1a intramuscular or subcutaneous, interferon beta-1b, glatiramer, natalizumab) and tested with different categorical markers. The analysis lead researchers to conclude that between 2006 and 2011, after CPI adjustment, inpatient care made up 6% of changes, outpatient care made up 19%, and the majority, 75%, came from DMDs.

    Previous research had shown sequelae contributed heavily to MS care costs. However, in 2004, DMDs represented 73% of the total costs of care, while more recent research has excluded DMDs from analysis.

    Mean expenses for MS care:

    • MS charges overall: $26,520
    • Malaise/fatigue: $39,948
    • Paresthesia: $33,648
    • Depression: $42,831
    • Abnormality of gait: $48,361

    “The increase in DMD charges from 2006 to 2011 in the sample overall may be attributable to an increased number of available DMDs, as well as price inflation among existing DMDs,” the authors conclude. “A surprising finding of the present study is that the proportion of continuously enrolled patients with at least one DMD claim remained constant at about 53-54% from 2006 to 2011. Also surprising is that the DMD use rate estimated in the present study is less than the 58% reported by Prescott et al. for patients treated in 2004.”
     - 

    See more at: http://www.hcplive.com/articles/Multiple-Sclerosis-Care-Costs-Up-60-in-7-Years#sthash.3BAssGHy.dpuf




    ~~~~~~~~~~~~~~~~~~~~

     Keep CURRENT and up to date, with MS News and Information
    Sign-up for emails 
    .

    WATCH OUR MS EDUCATIONAL VIDEOS by Topic, 

    .