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Saturday, July 12, 2008

Birthday Clock - for Entertainment purposes

Provided by: Amy in South Florida

Oh - yes- I tried it too, and My fortune cookie reads:

None of the secrets of success will work unless you do.

Amy says: "This is neat"!

Birthday Clock

It tells you how many hours and how many seconds you have been alive on this earth and when you were probably conceived. How cool is that?
After you finished reading your info, click again and see what the moon looked like the night you were born (who can refute this). Enjoy.


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Friday, July 11, 2008

EMD Serono Raises $150k for MS research

The Patriot Ledger
Posted Jul 11, 2008 @ 10:46 AM
Last update Jul 11, 2008 @ 10:50 AM

EMD Serono Raises $150k for MS research

More than 150 employees of Rockland pharmaceutical company EMD Serono raised nearly $150,000 for multiple sclerosis research late last month by taking part in the National Multiple Sclerosis Society’s 2008 Cape Cod Getaway Bike Ride.

The EMD team, which was joined by Boston Celtics center-forward Brian Scalabrine, made a 150-mile trek from Marina Bay in Quincy to Provincetown on Cape Cod along with 2,000 other riders. All told, the event is expected to have raised $1.5 million for multiple sclerosis research.

Rockland Trust gives $1k to Science Center

» Read More


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Thursday, July 10, 2008

Getting Results: Pediatric MS

Nat'l MS Society - July 2008

Getting Results: Pediatric MS

MS used to be dubbed the “prime of life” disease because doctors thought it only struck in early adulthood.

Wrong. The National MS Society is on a mission to inform the medical and educational communities that MS and related conditions are rare but very real in children and teens, and to make superior care available to them.

According to the Society, there are around 8,000 – 10,000 children and teens with MS in the United States, and an additional 10,000 – 15,000 with related disorders who may go on to receive an MS diagnosis. (No one knows for sure because no definitive MS survey exists, for pediatric or adult patients. There are an estimated 400,000 Americans with MS in total.)

Expanding a model pioneered at the National Pediatric MS Center in Stony Brook, N.Y., the Society has committed $13.5 million as part of its Promise: 2010 campaign to establish a nationwide network of six multidisciplinary Pediatric MS Centers of Excellence. (The other five are in Birmingham, Ala.; Boston, Mass.; Buffalo, N.Y.; Rochester, Minn.; and San Francisco, Calif.)

In so doing, the Society is making great strides in improving diagnosis and care for children with MS and other central nervous system demyelinating disorders from coast to coast. A family may travel hundreds of miles to visit one of the centers. Once there, however, virtually all their medical and psycho-social needs can be addressed under one roof. All sites offer neurology, ophthalmology, neuropsychology and social work.

All children are assessed for help they may need succeeding in school as well. Financial support is available so if a family can’t pay, a center will offer assistance — even for travel and lodging.

“We do a battery of neuropsychology tests and our neuropsychologists follow up with schools and make recommendations and do a lot of advocacy,” said Marianne Doyle, MSW, the social worker with the San Francisco center, which sees patients from as far as Hawaii, Alaska and the Rockies.

“Those kinds of services aren’t normally covered by insurance. They’re exceptionally expensive, and they’re not normally part of care; you have to seek them out.”

Practitioners at the centers say the multidisciplinary approach has caused them to work more collaboratively and productively — with their patients benefiting.

Before the centers launched, it could be more challenging for physicians to communicate the implications of MS to the school and community, said Joe Ackerson, PhD, the neuropsychologist at the Birmingham center.

“I had a case where a child was experiencing difficulties with concentration, memory and fatigue related to her medical condition. But because in between episodes she looked relatively normal and didn’t have any physical signs that were obvious to the casual observer, she was viewed as lazy. So we had to educate the school that, no, it’s not that the child has gotten lazy or is no longer motivated to achieve in school, but there is this underlying condition that looks like laziness because it makes it harder to do the things kids normally do in school,” Ackerson said.

“It really is a team,” added Ann Yeh, MD, pediatric neurologist and co-director of the Buffalo center. “The decisions are always ours as a group. It’s never five different people telling the family five different things.”

The existence of a network of centers with common goals and methods means patients, too, are forging relationships nationwide, said Maria Milazzo, pediatric nurse practitioner at Stony Brook.

“Families no longer feel so alone and report that they are better able to handle what the future may bring,” she said.

As of this writing, the Pediatric MS Centers of Excellence had seen 600 patients — a great achievement for a new health care delivery model. Now, “we want families, pediatricians and pediatric neurologists to know that, if they have a child experiencing confusing neurological symptoms, or if they suspect MS, the network of pediatric MS centers can provide valuable expertise and resources to support families,” said Deborah P. Hertz, MPH, who directs the Centers of Excellence program for the Society.

“The Society has created a unique opportunity and we want families to benefit from the comprehensive services now available.”


Wednesday, July 9, 2008

Multiple sclerosis sufferers getting 'postcode lottery' treatment

By Daily Mail Reporter - in the UK
Last updated at 11:16 PM on 08th July 2008

Multiple sclerosis sufferers are getting poor NHS care five years after a drive to improve treatment, doctors claim.

A postcode lottery means long delays for diagnosis, poor access to rehabilitation and lack of basic care, an audit of services found.

Half of patients with suspected MS wait almost six months to have the diagnosis confirmed, according to a report by the Royal College of Physicians and the MS Trust charity.

It also states that only one in three MS patients is getting help with symptoms that could prevent them becoming disabled.

There are 85,000 sufferers of MS, where the body's immune system attacks itself, in the UK.

It is diagnosed in 50 people in their 20s and 30s each week.

Symptoms range from mild muscle weakness and visual disability to severe deterioration.

Guidelines issued to the NHS in 2003 were designed to eliminate differences across the country but an assessment carried out in hospital and primary care trusts found few improvements.

'It is the inadequacy of symptom management which causes distress, and may worsen disability,' the report said.

Although access to specialist neurological services has improved, the report concluded there were still long delays from GP referral to diagnosis, with 50 per cent of patients waiting longer than 20 weeks.

Professor Ian Gilmore, president of the Royal College of Physicians, said service quality is still low despite guidelines.

He added: 'After five years we are no nearer to commissioning the full range of services that MS patients need and deserve.'

Christine Jones, chief executive of the MS Trust, said MS sufferers getting necessary care is 'a matter of geographical accident'.


What Are the Typical Symptoms of Primary Progressive Multiple Sclerosis?

By Julie Stachowiak, Ph.D.,

Updated: July 4, 2008

The vast majority of patients who end up diagnosed with primary progressive multiple sclerosis (PPMS) begin noticing that they are having problems walking, which gradually gets worse.

However, the first symptoms of some people with PPMS are slowly worsening tremor and problems with balance.

Let’s take a look at these two “presentations” of PPMS:

Worsening Ability to Walk (Spinal Cord Syndrome)

This is by far the most common presentation of symptoms for PPMS, with as many as 80 to 85 percent of patients experiencing these symptoms. Also called progressive myelopathy, these symptoms consist of:

  • An increasingly spastic gait (spastic paraparesis), with the legs stiffening up to cause a limp and/or rhythmic jerkiness
  • Spastic hemiparesis, where there is weakness or inability to move on one side of the body (arms or legs) and/or an inability to hold things on that side
  • Clumsiness, stiffness, dragging legs
  • Exercise-related fatigue, meaning people are not able to walk far without resting
  • Stumbling and falling

In patients that have these types of symptoms, the MRI scans of their brains show few (if any) lesions and few gadolinium-enhancing lesions. However, an MRI scan of their spines will often show a atrophy, which is a result of axon and oligodenrocyte cell loss and injury.

Tremor and Imbalance (Progressive Cerebellar Syndrome)

However, a small minority (up to 10%) of people with PPMS have these types of symptoms, which are characterized by:

  • Severe intention tremor, the inability to perform small movements accurately due to shaking or trembling hands
  • Hypotonia, a loss of muscle tone
  • Problems with balance
  • Incoordination
  • Dysmetria, the lack of ability to coordinate movements, which is exhibited by the person “overshooting” (hypermetria) or “undershooting” (hypometria) the intended position of the hand, arm or leg
  • Dysdiachokinesia, which is the inability to perform rapid, alternating movements
  • Gait ataxia, a staggering way of walking

People with these symptoms are more likely to have abnormal brain MRI scans than people with cerebellar syndrome. These MRIs resemble those of people with SPMS or people that have had RRMS for a long time. PPMS in these people probably is more inflammatory (like SPMS and RRMS), than the PPMS of the people with spinal cord syndrome, which may be more degenerative in nature.

Other Possible Symptoms

While rare, the following symptoms can also be signs of PPMS:

Brainstem Syndrome: 1% of people with PPMS initially experience difficulties with swallowing, hoarseness, dizziness, nausea and vomiting, rapid involuntary movements of the eyes (nystagmus).

Vision Impairment or Loss: 1% of people with PPMS experience progressively worsening vision.

Cognitive Problems: 1% of people with PPMS have initial cognitive dysfunction symptoms, which includes problems with attention span, verbal memory, verbal fluency and spatial reasoning.


Ebers, George C. Natural history of primary progressive multiple sclerosis. Multiple Sclerosis. 2004; 10: S8-S15.

Thompson, Alan. Overview of primary progressive multiple sclerosis (PPMS): similarities and differences from other forms of MS, diagnostic criteria, pros and cons of progressive diagnosis. Multiple Sclerosis. 2004; 10: S2-S7.

Miller DH, Leary SM. Primary-progressive multiple sclerosis. Lancet Neurol. 2007 Oct;6(10):903-12.

Courtney, Susan Wells. Primary-Progressive Multiple Sclerosis: The Less Talked-about Form of MS. The Motivator. (Published by the Multiple Sclerosis Association of America) Winter/Spring 2007; 44-47, 63.


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Baby Boomer Humor

Baby Boomer Humor - offered by Trent S. in Miami

Just click on the words baby boomers
Have sound on!! hilarious!!!

You need to have your sound on for this.
Baby Boomers


Tuesday, July 8, 2008

An MS Patients Update to his Medication Vacation

An MS Patients Update to his Medication Vacation
By: Stuart Schlossman - July 8, 2008

This segment is the fourth and final update to my Hiatus stories which began on April 3rd, 2008

There are many who write or call me asking how I am feeling or how I am doing since my vacation from my much needed MS Medication. Of course at the time of my taking my vacation there must have been great mental confusion or instability that made me question the effectiveness of the medication. So many always asking me how we know that it ( whichever of the ms meds), works or not.

*An MS Story - POST HIATUS ( 3rd story in this series)- written April 15th
*The follow-up OF (the) "My Hiatus" Story .. written April 9th
*My Hiatus from my MS Medication - The Pros and Cons - a valuable lesson learned.... - written April 3rd, 2008

And after what happened to me (read the stories in order of date, if you need to catch-up to present) and what I can attest, is that the medication does work. When asked by doctors why I did this or when it was said that I should have known better, there was no way for me to correctly answer. I guess I became the Guinea pig for all else to learn-from.

It's been almost (3) months now since my last letter concerning that exercise in stupidity (stopping the medication). Sure, many of us have taken breaks or have wanted to take breaks.

» Read More


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New Avonex Copay assistance and Look who is turning 2 !!

July 2, 2008 - There is a new Copay Assistance Program for Avonex through MS Active Support (1-800-456-2255). The monthly copay is only $10 with no annual limit for patients who qualify. For more information, please visit

July 2, 2008 - Guess who is turning 2? Tysabri® (natalizumab) will be on the market for 2 years on July 16th 2008. For more information, please visit


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12-Week Safety Evaluation of Oral CS-0777 in MS Patients.

Info obtained from the Consortium of Multiple Sclerosis Centers

Title: 12-Week Safety Evaluation of Oral CS-0777 in MS Patients.
Lead Investigator: Dr. Timothy Vollmer


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German and Spanish editions of MS in focus on stem cells now available

German and Spanish editions of MS in focus on stem cells now available

Issue 11 of MS in focus is now available to download for free in German and Spanish.

This edition presents a comprehensive picture of what is currently known about stem cells and how the different types may be used in the future of MS research

and treatment.

English editions of all editions of MS in focus are available to download and can be viewed online by clicking here. Subscribe to receive a print copy here.


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Monday, July 7, 2008

A Frog goes in to the bank and.... (humor)

This weeks humor - sent in by Sherry in Ohio
A frog goes into a bank and approaches the teller. He
can see from her nameplate that her name is Patricia Whack.
'Miss Whack, I'd like to get a $30,000 loan to take a holiday.'
Patty looks at the frog in disbelief and asks his name. The frog says his name
is Kermit Jagger, his dad is Mick Jagger, and that it's okay, he knows the bank manager.
Patty explains that he will need to secure the loan with some collateral.
The frog says, 'Sure. I have this,' and produces a tiny porcelain elephant,
about an inch tall, bright pink and perfectly formed.
Very confused, Patty explains that she'll have to consult with the bank
manager and disappears into a back office.
She finds the manager and says, 'There's a frog called Kermit Jagger out there who
claims to know you and wants to borrow $30,000, and he wants to use this as collateral.'
She holds up the tiny pink elephant. 'I mean, what in the world is this?'
The bank manager looks back at her and says...
'It's a knickknack, Patty Whack. Give the frog a loan, His old man's a Rolling Stone.'


If anybody would like me to post their idea of humor, send it to me,
and when possible, I will post it.


Higher dose of MS drug no more efficient - says Teva

Reuters- Yahoo News

Mon Jul 7, 2:47 AM ET

(Reuters) - Teva Pharmaceutical Industries Ltd said data from a late-stage trial showed an increased dose of its multiple sclerosis drug, glatiramer acetate (GA), was not more efficient than an approved lower-dose version of the drug.

Teva was studying the efficacy, safety and tolerability of a 40mg version of GA compared with an approved 20mg version that is sold under the brand name Copaxone.

But the higher dose maintained the favorable safety and tolerability profile of Copaxone, the company, which is evaluating the use of GA for additional indications, said in a statement on Monday.

(Reporting by Pratish Narayanan in Bangalore; Editing by David Holmes)


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Stem Cell Therapy of Multiple Sclerosis: Positive Case Reports
Sunday July 6th, 2008 @ 17:12:02 EST

The use of stem cell therapy for multiple sclerosis has been previously reported in case reports, including from Dr. Simon Slavin's group in Israel.

CLICK : A MUST VIEW Video on this stem cell therapy

In multiple sclerosis the rationale for why stem cell therapy would have beneficial effects derives from observations that some types of stem cells, such as mesenchymal stem cells, are potent stimulators of immune regulatory T cells called "T Regulatory Cells", or back in the old days they were called "T Suppressor Cells". These cells selectively inhibit certain immune responses, while allowing other immune responses to exist. Why this is important is because many scientists believe that multiple sclerosis is an "autoimmune disease", that meaning that the immune system is attacking parts of the body. In the example of multiple sclerosis, the target antigen appears to be myelin basic protein, a protein that lines the nerves and allows for them to properly conduct signals.

In addition to play a role in suppressing inflammatory responses, mesenchymal stem cells are known to produce various factors that are theoretically useful for remyelination, that is, repairing the injured sheath of the nerve.

The video describes two patients that have been treated with stem cell therapy and report positive benefits. Obviously we will not know the scientific validity of these claims until clinical trials are conducted, however, given the relative safety profile demonstrated by Osiris therapeutics for mesenchymal stem cells, these experimental interventions may serve as an ethical source of critically important data on the biology and immunology of stem cell therapy.


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Sunday, July 6, 2008

Breakthroughs Offer Hope to MS Patients

Yahoo News

By Dennis Thompson
HealthDay Reporter
July 6, 2008 - 1:41pm
1 hour, 39 minutes ago

SUNDAY, July 6 (HealthDay News) -- There's no one single way to suffer from multiple sclerosis.
Every patient exhibits different symptoms as the disease gnaws away at the nerve endings in the brain, the spinal cord and even the eyes.

Doctors aren't even sure what causes MS, or what makes one person more likely to get it than another.

"I have a patient who is 6 years old," said Dr. Daniel Kantor, director of the Comprehensive Multiple Sclerosis Center at the University of Florida. "I have a patient who is 71 years old. I have patients from all walks of life, all ages."

But, the recent discovery of a second gene linked to multiple sclerosis -- hailed as a major breakthrough -- is giving researchers hope that they are zeroing in on useful treatments -- and, ultimately, a cure.

» Read More


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