Please visit our MS learning channel on Youtube, which provides hundreds of topics from our education programs, that were video-recorded and archived here: www.youtube.com/msviewsandnews

joomla ecommerce template -- Scroll left side of this blog for needed resources. Also, use our 'search by topic' tool, to find specific information.

Disclaimer: 'MS Views and News' DOES NOT endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.

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CHAMPIONS TACKLING MS - AWARDS Dinner, Honoring Aaron Boster, MD and Jon e. Glaser, DDS - now open for registration. Visit www.events.msvn.org

Saturday, September 13, 2008

Hormones increasingly are shown to affect brain functions, and now they may battle MS symptoms, too

Miller-McCune - Turning Research into Solutions

Sexy Impulses: Treating Multiple Sclerosis with Hormones
By: Lisa Conti | September 09, 2008

When it comes to the brain, hormonal influences are the butt of many tactless jokes and at the heart of Rhonda Voskuhl's seminal findings regarding neurodegenerative disease and protection.

Speeding down the length of the axon, nerve cell impulses, taking a fraction of a second to travel from head to toe, orchestrate choreographed muscle movements. This process is so in sync with our will that most of us can take our ability to walk, see and swallow for granted. But when it breaks down, as it does with the disease multiple sclerosis, unwieldy symptoms emerge.

» Read More

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Living With MS (Lauren's Tysabri Diary) -Includes Tysabri Information Links

Living With MS (Lauren's Tysabri Diary)

You may contact Lauren if you have any further questions about Tysabri, but she asks that you please remember, she's not a doctor, only a Tysabri patient that has been living with MS for 32 plus years... you may contact her via her e-mail address which is:
LGLBGL2003@aol.com

Here is a short biography of Lauren and her fight to overcome the challenges of living with MS:

At the age of 22, Lauren Roberts was a typical young adult, highly athletic, playing in two AAA softball leagues simultaneously and was a swimming enthusiast. After being sidelined with a severe injury and with continuing sensory changes, she was ultimately left with two numb hands and a diagnosis of MS in 1976. "I had to make a decision of whether I was going to wallow in self pity, or live my life to its fullest potential while maintaining a positive attitude as much as possible", she commented.

Being a straight A student in school, she went on to receive her Degree in paralegal studies and became a Certified Paralegal, working in the legal field until 2001, and ultimately retiring due to a variety of new and increasing symptoms. In early 2005, after receiving her first dose of Tysabri, her symptoms started to dramatically improve.

When Tysabri was temporarily removed from the market in March 2005, she states, "I was completely heartbroken and devastated, but determined to become a patient advocate for my own health", testifying before the FDA AC in March 2006 in an effort to bring Tysabri back (along with testimonies of other MS patients), as well as writing a published legal opinion letter about Tysabri. She goes on to state, "Even though I am now in a wheelchair due to a severe relapse that I suffered in mid-2005 when Tysabri was temporarily removed from the market, my reality is that since restarting Tysabri therapy in October 2006, I am experiencing absolutely no side effects whatsoever and I am gaining strength with each infusion I receive. I love the convenience of only having to treat my MS once every 28 days with an infusion instead of having to self-administer a shot, and feel very safe with the Touch protocol in place. I will never lose hope, thanks to Tysabri." She remains relapse free since restarting Tysabri over two years ago, with only slight disease progression.

Her days are now filled with physical therapy exercises, encouraging other MS patients to hold onto their hopes, teaching others to become their own patient advocates, and continuing in her quest to educate as many people as possible about the accurate facts regarding Tysabri, including dispelling Tysabri inaccuracies and calming patient fears. She maintains her positive attitude, and truly believes that having 'A Positive Attitude = Possibilities, whereas having A Negative Attitude = Nothing'. She adds, "I choose to have a positive attitude when living my life with the added challenges of MS. I have MS, but MS does not have me."

Links that you might find of interest regarding Lauren and/or Tysabri:

Lauren's Homepage:
A Lil Bit Of My Personality, But Only A Lil Bit- Giggling
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Washington Legal Foundation (Published Legal Opinion Letter) Re: Tysabri written by Lauren:
WLF Legal Opinion Letter re:: Tysabri
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Short video of How Tysabri Works:
How Tysabri Works
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New and improved Tysabri information:
TYSABRI (Natalizumab)
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There are many, many other links found on the sidebar of her blog, and she is more than happy to try and answer any Tysabri questions that are sent to her via your e-mails.


Leaving comments is a great way to get others involved with the topic. Please feel free to leave your comment(s) for any of the postings found on this blog.

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Friday, September 12, 2008

Financing Your Care

The information found here was obtained from MS Neighborhood a service of CuraScript

-- This is a good site for message boards and to learn-from.


Paying for MS treatment can be a major concern. Learn how insurance and financial assistance programs may be able to help.

Understanding Insurance Plans and Choices
Information about the different types of insurance plans, Medical savings accounts, and supplemental insurance policies.

Government Programs
Information about Medicare, Medicaid and SCHIP programs, social security disability, CHAMPUS and VA benefits, and COBRA.

Financial Assistance Programs
Information about programs that can provide prescription medicines free of charge to patients who meet eligibility criteria.


Leaving comments is a great way to get others involved with the topic. Please feel free to leave your comment(s) for any of the postings found on this blog.
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One-In-Three Multiple Sclerosis Patients Admit They Don’t Like Injecting Their Medication Due to Discomfort, Survey Reveals

Pharma-Live

~ Removing Injection Discomfort and Anxiety Key to Medication
Adherence in Early Stages of Disease ~


TORONTO – Sept. 11, 2008 – According to a recent North American survey, almost all (97 per cent) people living with Multiple Sclerosis (MS) are committed to controlling their lifelong condition by any means necessary.1 Nonetheless, they are faced with significant barriers that may prevent them from adhering to a treatment regimen. For example, the majority of patients (56 per cent) stated at least one barrier about injections that makes them uncomfortable; most often cited was the length of a needle (33 per cent), followed by the thickness (31 per cent).1 In addition, anxiety was the most common negative emotion around injections (61 per cent).

» Read More

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Have you an LDN (Low Dose Naltrexone) story to share?




Editors Note:

So often, I am asked by many of my peers of the efficacy of LDN.
I can only suggest that they contact the LDN organization.

From my Library of MS Archives you can view previous articles that I posted of LDN. To review these articles, please click here.

Now would be the time, for anybody currently using, or having previously used LDN to let others know your viewpoint. - Thank You

Leaving comments is a great way to get others involved with the topic. Please feel free to leave your comment(s) for any of the postings found on this blog.

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A pilot trial of low-dose naltrexone in primary progressive multiple sclerosis.

Institute of Experimental Neurology (INSPE) and Department of Neurology, San Raffaele Scientific Institute, Via Olgettina 58, Milan, Italy; Fondazione Don Carlo Gnocchi, IRCCS, Milan, Italy.

A sixth month phase II multicenter-pilot trial with a low dose of the opiate antagonist Naltrexone (LDN) has been carried out in 40 patients with primary progressive multiple sclerosis (PPMS). The primary end points were safety and tolerability.

Secondary outcomes were efficacy on spasticity, pain, fatigue, depression, and quality of life. Clinical and biochemical evaluations were serially performed. Protein concentration of beta-endorphins (BE) and mRNA levels and allelic variants of the mu-opiod receptor gene (OPRM1) were analyzed. Five dropouts and two major adverse events occurred.

The remaining adverse events did not interfere with daily living. Neurological disability progressed in only one patient. A significant reduction of spasticity was measured at the end of the trial. BE concentration increased during the trial, but no association was found between OPRM1 variants and improvement of spasticity. Our data clearly indicate that LDN is safe and well tolerated in patients with PPMS.

PMID: 18728058 [PubMed - in process]

Source for this article: The Accelerated Cure Project

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The Nat'l MS Society's Sept 18th webcast - Learn Online

MS Learn Online has a wide variety of webcasts on subjects important to you! Topics include:
  • MS: The Basic Facts
  • Treatments
  • Symptom Mangement/Staying Well
  • Exacerbations
  • Progressive MS
  • Research
  • Family Life and Relationships
  • Life Planning and Independence
  • EspaƱol

Click here for our list of webcasts.

If you have a pop-up blocker, you will need to disable it prior to participating in a MS Learn Online webcast.
Upcoming Webcasts
September 18
A Historical Perspective on Disease Management
plus... the new MS Learn Online player!

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Thursday, September 11, 2008

Rituxan Drug warning - New Safety Information

IMPORTANT DRUG WARNING NEW SAFETY INFORMATION



Genentech, Inc. and Biogen Idec, Inc. would like to inform you of important new safety information regarding Rituxan® (rituximab).

A case of progressive multifocal leukoencephalopathy (PML) leading to death has been reported in a patient with rheumatoid arthritis (RA) who received Rituxan in a long-term safety extension clinical study. This is the first reported case of PML in a Rituxan-treated patient with RA of oropharyngeal cancer, which was treated with chemotherapy (a platinum containing regimen) and radiation therapy 9 months prior to the development of PML. The patient had longstanding RA treated with immunosuppressants and a complex medical and rheumatologic history including Sjogren’s syndrome and undetectable complement C4 levels. Treatment for RA included methotrexate, steroids, and a TNF antagonist prior to Rituxan therapy; and methotrexate and steroids during and after Rituxan therapy.

» Read More


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Remembering 9-11-01



> from an MS Peer's Blog (Title found below) <

As we Americans remember
9/11/01 in our own ways, let's remember that our tragedy was felt beyond our borders.

PLEASE read this post by Shauna from Halifax, Canada. It is a moving recollection of the generosity and grace of our neighbors, who had to deal with stranded planes unable to land in the US. As Shauna says, "Halifax became the landing pad for the majority of air travelers on the Eastern seaboard." It is a moving story.
Be warned: you will need a tissue.

Her post is titled simply 9/11.

Thank you, Shauna, from all of us.

The above posting appears on the MS Blog of "A Short in The Cord"


Leave your comment for others to read and express their own

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Wednesday, September 10, 2008

What if we could actually reverse the damage that MS causes

Nat'l MS Society- Targeted Research: Nervous System Repair

What if we could actually reverse the damage that MS causes
, restoring function to those who have been living with the disease for years? MS occurs when the immune system attacks the myelin coating that insulates nerve fibers in the brain and spinal cord; damage to nerve fibers—axons—also occurs, and underlies the progressive disability experienced by people with MS. The Nervous System Repair and Protection Initiative, funded through the Society’s Promise: 2010 Campaign, is bringing the dream of protecting and repairing brain tissue and restoring function within our grasp.

A specially convened National MS Society Task Force determined that the best way to speed up nerve tissue repair is to bring together experts in clinical trials and basic laboratory scientists to form partnerships. These teams could conduct all elements of the study from basic research to planning studies of neuroprotective drugs and repair strategies in people with MS.

» Read More


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How Can Occupational Therapy Help You?

Many people are confused by the word “occupation” when it comes to occupational therapy (OT). When OT is offered as a treatment option, people often respond by saying “I don’t need to find a job”!

Actually, the word “occupation” refers to ‘everyday life activity’. Occupational Therapy (OT) is a healthcare profession that focuses on the performance of the broad range of occupations that make up a person’s life. OT promotes independence by improving skills and teaching alternative ways to help people stay active and enable them to perform the things they what and need to do.

Click here to read the rest of this story as well as about the author

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Now Officially: MS Views and Related News, Inc.

MS Views and Related News" is now to be better known as
MS Views and Related News, Inc.



MS Views and Related News, Inc

Provides Educational Components for Patients and Caregivers

A site created to help the Multiple Sclerosis community



Enter a place where information and knowledge are exchanged for the benefit of persons with MS and their families.

For those new to this page, on our website's homepage, you will find a link to register for our website & weekly e-Newsletter, which is emailed each Thursday.

» Read More


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An Exciting New Class of Future Multiple Sclerosis Treatments

MS Vaccines


(Stuart says : "Two Thumbs-UP on this article")

written by: By Julie Stachowiak, Ph.D., About.com
Updated: August 27, 2008

A vaccine for multiple sclerosis (MS)?
Yes, you read that right. In order to get on board with the notion of an MS vaccine, you are going to have to change your ideas about what vaccines are and bend your brain a little to understand what exactly these experimental vaccines are trying to do. However, once you get a glimpse into the world of how scientists are trying to tweak the immune system and target the nasty T-cells that are causing those of us with MS to tingle, stumble and hurt, I promise you – you will be excited, too.

I might not be ready to utter the word “cure,” but I might start letting it play around in my head occasionally while I keep my eye on these guys as they make their way through clinical trials.

» Read More


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Monday, September 8, 2008

Neural Cells Derived From Human Embryonic Stem Cells Reduce Multiple Sclerosis (MS) Symptoms

Info Contributed by Barbara S. in Delray Beach

Hadassah Hospital Study Shows That Neural Cells Derived From Human Embryonic Stem Cells Reduce Multiple Sclerosis (MS) Symptoms

Monday September 8, 8:56 am ET

The Study Data Is Published in the Scientific Journal of PLoS

EIN KEREM, Israel--(BUSINESS WIRE)--Hadassah University Hospital and Hadasit, the technology transfer company of Hadassah Medical Organization, announced today that scientists at Hadassah University Hospital have discovered a new application for human embryonic stem cells. They have demonstrated for the first time that transplanted neural cells derived from human embryonic stem cells can reduce the clinical symptoms in animals with a form of multiple sclerosis.

» Read More


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