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CHAMPIONS TACKLING MS - AWARDS Dinner, Honoring Aaron Boster, MD and Jon e. Glaser, DDS - now open for registration. Visit www.events.msvn.org
Friday, November 7, 2008
Thursday, November 6, 2008
MS Services - The Way Forward
03 Nov 2008
Multiple Sclerosis (MS) is the most common cause of disability in young adults. People diagnosed with MS need specialist advice and support throughout what is a life long condition. Successful management requires input from both specialist neurology staff within the secondary sector as well as ongoing support from the primary care teams.
World class commissioning for MS is a noble aim, but requires knowledge of a complex process, which is not always readily available to Primary Care Trusts and commissioners. Have a comment or question? Please Post as a comment. - Thank you
Too Much Of A Charge-Switching Enzyme Causes Symptoms Of Multiple Sclerosis And Related Disorders In Mouse Models
06 Nov 2008
A new study highlights the role of a charge-switching enzyme in nervous system deficits characteristic of multiple sclerosis and other related neurological illness.
Multiple sclerosis (MS) is one of several diseases in which myelin - the insulator for electrical signaling in the nervous system - breaks down and causes severe deficits in brain and nerve function. Much like the rubber insulation on an electrical cord, myelin surrounds long projections from the body of a neuron, and allows signals to travel down the cell with speed and efficiency. Patients with MS and other "de-myelinating" diseases therefore suffer deficits in balance, coordination, and movement, as well as sensory disturbances, from the loss of this neuronal insulation.
In an attempt to understand the causes of disease progression, researchers at the Partners MS Center, led by Dr. Rohit Bakshi and his team, have developed new ways to detect gray matter damage.
Have a comment or question? Please Post as a comment. - Thank you
Wednesday, November 5, 2008
A Patient's Testimonial of His own stem cell treatment
If you have had any stem cell treatment or no of anybody who has gone thru this, tell us, tell the world, of your or their experience
Mr. Stepper has been a frequent lecturer on disability law related issues for many advocacy organizations for disabled persons, including the MS Society.
"I will personally handle your case. I will personally return all phone calls. Your case is too important for anything less than the highest quality personal service." Steven M. Stepper, 1555 Palm Beach Lakes Blvd., # 302, W. Palm Beach, FL 33401; phone (561) 615-0098, e-mail email@example.com.
Stuart Schlossman HIGHLY recommends Mr. Stepper
-- He is easy going and understands the frustrations of those with MS...--
A You Tube Video link is found below this narrative
The use of stem cell therapy for multiple sclerosis has been previously reported in case reports, including from Dr. Simon Slavin's group in Israel. In multiple sclerosis the rationale for why stem cell therapy would have beneficial effects derives from observations that some types of stem cells, such as mesenchymal stem cells, are potent stimulators of immune regulatory T cells called "T Regulatory Cells", or back in the old days they were called "T Suppressor Cells". These cells selectively inhibit certain immune responses, while allowing other immune responses to exist. Why this is important is because many scientists believe that multiple sclerosis is an "autoimmune disease", that meaning that the immune system is attacking parts of the body. In the example of multiple sclerosis, the target antigen appears to be myelin basic protein, a protein that lines the nerves and allows for them to properly conduct signals. In addition to play a role in suppressing inflammatory responses, mesenchymal stem cells are known to produce various factors that are theoretically useful for remyelination, that is, repairing the injured sheath of the nerve. The video describes two patients that have been treated with stem cell therapy and report positive benefits. Obviously we will not know the scientific validity of these claims until clinical trials are conducted, however, given the relative safety profile demonstrated by Osiris therapeutics for mesenchymal stem cells, these experimental interventions may serve as an ethical source of critically important data on the biology and immunology of stem cell therapy.
Click to view video
If so, please post a comment so that others can have different perspectives
In the Spotlight from about.com's Julie Stachowiak, Ph.D.
Cognitive Dysfunction as a Symptom of MS
Cognitive dysfunction can impact every part of your life. I think we don't realize how complicated everyday things like driving or grocery shopping are until we have a little "glitch" that makes us aware of problems with cognition.
Read the full article: Cognitive Dysfunction as a Symptom of Multiple Sclerosis
|Facing the Cognitive Challenges of MS |
Jeffrey Gingold gives a fantastic account of what he calls the "mental wheelchair" in his book, Facing the Cognitive Challenges of Multiple Sclerosis. He talks very honestly about his symptoms, as well as his coping techniques (some which worked and some which didn't) as he attempted to hide his diagnosis from colleagues and clients, while working as an attorney.
Read the full review: Facing the Cognitive Challenges of MS
|Depression Can Make Cognitive Dysfunction Worse |
Really, when you are depressed, pretty much everything is worse, including MS symptoms like fatigue and cognitive problems. These three things are so interrelated, that they are often hard to separate on a clinical level. However, the good news is that depression can be treated and this may bring about a marked improvement in fatigue and cognitive dysfunction.
Read the entire article: Depression and Multiple Sclerosis Overview
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Tuesday, November 4, 2008
.Homecare Assistance Grant Program -This program provides direct support for the use of in-home services including personal care, homemaker companion services, physical, occupational, and speech therapy, transportation services and caregiver respite. The MSF’s Temporary Homecare Assistance Program provides short-term custodial care in the home to encourage independence, facilitate management of all health problems related to MS, and improve functional status and quality of life, when possible. This program also helps to maintain caregiver and other family support mechanisms. MSF has provided hundreds of hours of homecare, respite, and therapy services to those of all ages, with limited or fixed incomes.
- Partially funded through a charitable donation from the Bayer Foundation.
MS Views and Related News (MSVRN) welcomes any comments you have on the information we provide. Thank You
Sign the petition below to join the global campaign for the ratification of the United Nations (UN) Convention on the Rights of Persons with Disabilities (the Convention) and the Optional Protocol by your government and the governments of other countries.
Have a comment or question? Please Post as a comment. - Thank you
Monday, November 3, 2008
The info found below, is just one of several podcasts you can listen-in on
Welcome to NeuraPod - the official podcast of Neura.net
We Care, We Call - Would you or someone you know like to receive a friendly call each week, every few days, or once a month? Call 1-888-673-6287 or contact us by e-mail at: firstname.lastname@example.org and sign up to have a volunteer peer counselor call those who want to talk to someone with MS who cares.
Care to comment on the Information provided on this blog? We welcome your thoughts.