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Monday, February 9, 2009

A Multiple Sclerosis patients' recent battle with Fatigue

I know this guy who has been plagued again with fatigue. Fatigue to the point that it almost hurts to lift his arms, and move his legs. Fatigue that he has not felt in quite some time and now is affecting him cognitively as well.

He awakes each morning feeling like he hasn't slept. He doesn't have the umph or the desire to even get behind the steering wheel of his car. He has felt actual fear that he might hurt himself or others because of the inability to think clearly and the almost constant feeling as if he is in another dimension or on another plane (and I am not referring to an airplane)..

This all started happening several weeks ago, while he was planning a party at his home. A party whose list seemed to keep growing and if he had-had the energy (and finances), he would have invited double the amount of people that he had.

In just under a week before his bash, he began feeling the effects of all the stresses he had placed upon himself.

And the fatigue factor reared its' ugly head from nowhere. Not in a long time had he felt as he was beginning to now feel. The eves leading up to his party were always cut short because of his inability to remain focused.

His party finally came and then ended.. All the hoopla in the planning and it finally happened, then ended just a few hours after it began.... The next day, he thought okay just another day or two and I will regain my energy. Two days post-party then three and then four and yet no end in site for this fatigue that came with a mighty force and has not found it's way to disperse and go away.

Now it being almost two weeks later and still he has problems upon awakening. Doesn't really want to get up in the morning even after a good 8+ hours of sleep and he surely still doesn't want to get behind the steering wheel of his auto until a few hours and a few cups of coffee had been first digested.. Finally feeling capable of getting on the road and then not knowing which way to turn or how to get from point "a" to point "b", a route that he has taken almost every day for the last few years. Confusion and yet he thought he was clear enough to drive...

Then he reminded me of another event that happened to him just a few morning ago..Having showered and washed his hair. Or had he? He couldn't remember, so he climbed back into the shower again, to shower.

And yesterday, he showered and watched his hair, only to leave the shower and while getting dressed, realized he forgot to rinse the shampoo from his hair.... Or how about this very day, when he left to go to the store and when getting from his car, realized that his pants were partially open and his belt was never secured... Now how the heck did that happen...

When will this fatigue go away?


Since his party he has been stressed with being stressed.
Stressed with this sudden onslaught of fatigue.
And of course the fatigue hampered by the stress. Where will it go from here?

His friends and family can't possibly understand what he tries to tell them.
They find him so astute and yet can't understand why he can't comprehend simple instructions...

Again he asks, When will this fatigue go away?

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3 comments:

*sparkle* said...

i understand fatigue that makes your limbs ache! ...and the confusion in the shower! lol! how many times i've washed my hair twice, just in case! ha!ha!

there is a line ~ i'm not sure if it is a fine line ~ but there is a line between "not letting MS rule your world" and "being wise with your resources." People with MS already have balancing issues, but a balancing is necessary when we're facing the fine line... we're always trying to stabilize ~ to find a balance somewhere between moving forward with your life activities despite your MS, and moving foward cautiously, to prevent possible post-costs. I think this person showed this balance when they cut down the guest list ~ making a wise choice to keep the celebration and interaction with loved ones, but accepting the limitations and adjusting.

i think an important factor for peace of mind (health), is to accept the post-costs. when we experience an increase in our symptoms, it isn't because we were wrong to throw a party, but because we have ms.

MS is the culprit. When you hang on the couch for 2 weeks, or get confused behind the wheel, it isn't because you are lazy or aren't trying to focus.... it's because you have MS.

Stuart said...

Sparkle, - Thank you for your comment.
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Anonymous said...

I take 2 Adderalls every morning for the fatique. Provigil is another drug you can try. I hate the fatique too and it always seem to strike at the wrong time.

Kim Diamond
kimbie364@Hotmail.com