AMAZINGLY this makes the news, each time I consent to trying Tysabri and then it (in the past) scared me away from trying it. However, because again this seems to only be happening in Europe, I will and am convinced that I need to, soon begin Tysabri.. - Stuart Schlossman
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Read today's article..
By THOMAS GRYTA
Two more cases of a rare brain infection have emerged in users of the multiple-sclerosis drug Tysabri, sold by Biogen Idec Inc. and Elan PLC, the first such incidences since Biogen stopped updating investors of the situation in July.
At that time, Biogen had confirmed 11 cases of progressive multifocal leukoencephalopathy, or PML, since the drug's relaunch in July 2006; Tysabri was pulled from the U.S. market in 2005 because of PML concerns.
A Biogen spokeswoman said the Cambridge, Mass., biotech company is neither commenting on nor confirming the existence of additional cases as long as the PML rate is consistent with the rate of one-in-1,000 patients implied by the label. The new cases appear to be in line with the label's rate.
CLICK here to finish reading of these new PML cases
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2 comments:
Althought the majority of the cases have happened in Europe, there have been a couple of cases here in the US. Based upon articles I've read of the past week, I believe the longer one is on Tysabri the greater one has the chance of getting PML. Read the story how Tysabri reawakens the JC virus: http://www.forbes.com/feeds/afx/2009/09/09/afx6866948.html
I'm not trying to scare patients who are on the drug or who are considering it. I just want people to make decisions with all known facts.
I had my 20th infusion of Tysabri in May. I'm currently on a drug holiday. I'm really hoping I don't have to go back on it. I'm taking another medication (not the typical CRAB drugs) for my MS now. Only time will tell if it will work. Wish me luck!
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