Provided BY: The Consortium of Multiple Sclerosis Centers
Authored by: Robert Fraser, Ph.D., CRC; Erica Johnson, Ph.D., CRC; Dawn Ehde, Ph.D., Malachy Bishop, Ph.D., CRC
This White Paper represents the consensus of the professionals who comprise the Consortium of Multiple Sclerosis Centers. We encourage your comments, suggestions, or questions. Visit the Consortium at www.mscare.org.
Introduction
Health education and disability management research supports the efficacy of self-management programs related to health outcomes in populations of people with chronic illness. The focus here is on actual patient self-management activity vs. health systems intervention or patient education (Barlow et al., 2002). The central premise behind such programs
is that day-to-day management of chronic illness rests in the hands of the patient, as opposed to medical providers, and wellness management skills are a necessary teaching focus in order to mitigate disability and improve outcomes (Lorig & Holman, 2003).
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