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Thursday, October 15, 2009

Studying Blood flow in MS Patients

Info provided by SammyJo in California

Study Title: Combined Transcranial and Extracranial Venous Doppler evaluation in multiple sclerosis and related diseases (CTEVD study)

Purpose: Evaluating blood flood in MS patients, healthy controls, and controls with other neurological disorders.
This study is to repeat and expand on the Italian study.
Here is an entire history of all the CCSVI studies around the world:
It has been compiled by Marie Rhodes, an RN with SPMS who had the procedure at Standford in May 2009. She is very up to date on this, and I can put you in touch with her.


Stuart, you may wish to call and confirm this account from this post, but I know Dr Coyle (Stonybrook) atteneded Dr Zamboni's CCSVI conference in Italy Sept 2009, along with Dr Elliot Frohman from UTSM MS center. Both are directors of major MS centers, and published researchers. Both were impressed with the evidence from Zamboni's human trial (100 MS, 60 controls) that MS is caused by blocked jugulars, causing blood relfux to the brain, thus blood brain barrier breakage, then secondary autoimmune response to all the tissue damage. My appointment is already set at Stanford for Oct 26-27; if I'm like the 40+ other MS patients that have gone there, my jugulars will be found to be blocked, Dr Michael Dake will insert a stent, and I will finally be able to start recovery from 15 years of MS damage.

Click this link to read another version of this information :



Sharon said...

In addition - Other doctors in U.S. on the scientific committee for Dr. Zamboni

Gary Cutter
Professor of Biostatistics and Head of the Section on Research Methods and Clinical Trials, Birmingham, University of Alabama,

Michael Dake
Chief of Cardiovascular and Interventional Radiology, Stanford University School Of Medicine, Stanford (USA)

E. Mark Haacke
Director of the The Magnetic Resonance Imaging Institute for Biomedical Research, Detroit (USA)

Byung-Boong Lee
Chairman Georgetown University School of Medicine, Washington (USA)

Bianca Weinstock-Guttman
Jacobs Neurological Institute, Buffalo (USA)

Robert Zivadinov
Director of the Buffalo Neuroimaging Analysis Center, New York State University, Buffalo (USA)

Anonymous said...

I have MS, diagnosed 9 years ago and recently had doppler of carotid... No blockage. Happy for my stroke risk but I don't fit in with this study group...