| We asked Dr. Alex Rae-Grant, CMSC website's Project Leader for Neurology, to share his expertise and views about this article "The Liberation Treatment: A whole new approach to MS". Here is his reply: And people who are known to have blockage of the veins draining the brain (Cortical vein thrombosis) don't get MS. Pathological studies of MS patients have never suggested this. But on the other hand, it's probably good for us to have an open mind, especially when there are new ideas that can be tested, and possibly ones that have a therapeutic option. 1. It will be important for other centers to independently confirm or refute the ultrasound and or venographic findings of Zamboni et al. This work is beginning at the present time. Adequate care in selecting age and sex matched controls and making sure the tests are not biased will be key. 2. It will be important to understand, if this finding is true, what proportion of the MS population may have such problems. Many in the MS field have felt there are more than one disease within our population; even if 20% of our patients have a venous insufficiency problem, this would be revolutionary. 3. Any therapeutic claims need to have an unbiased methodology to prove benefit. We know that the placebo effect is strong in MS particularly when we are talking about symptoms and not measurable aspects of the disease such as MRI. A randomized trial of therapy in people shown to have such 'stenoses' would be both ethical and necessary before potentially hundreds of thousands of people are subjected to invasive procedures with measurable risk. The work of Zamboni et al deserves a long, hard, look; it would be wrong to either clamber on board the bus, or to dismiss this out of hand. source: mscare.org |
| Last Updated ( Wednesday, 25 November 2009 ) |
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Tuesday, December 1, 2009
Questions and Answers about the "Liberation Treatment" on 'CCSVI' in Multiple Sclerosis?
Information provided by Cherie C. Binns RN BS MSCN
Q&A on the "Liberation Treatment" from mscare.org?
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3 comments:
50 years of MS research have yielded NOTHING as to real management, cause or cure for MS. It cannot even be decided if it is one disease or many. Dr. Zamboni's research is not out of left-field, as suggested. Dr. F. Alfons Schelling in 1981 investigated MS causes & consequences and came to the same conclusion; that MS is a vascular disorder. He was roundly ignored. CCSVI, its time has come.
I agree that the general population of MS patients should not be jumping on board the CCSVI train until there is independent proof of its causal relationship and a safe and effective treatment procedure developed.
However, for a small subset of the MS population, of which I am a member, we have progressed so far and/or so quickly that we may need to make a decision about CCSVI before all the information comes in.
For some of us, too much patience and prudence will have a very predictable and disastrous result.
I personally think that the research makes perfect sense. Think about it a pregnant woman goes into remission. Why? I was always told it was because of a hormone that was released that could not be identified.
Pregnancy makes veins and vessels expand, could that be why it goes away during the pregancy. I think it makes perfect sense.
I follow these reports of treatment just like every other MS patient in the world and I have never had hope, until now.
Why try to contain this hope, this is an awful debilitating illness, if this is a possible cure, why shouldn't there be trials, why can't people try it.
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