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ABOUT this BLOG and How to use it
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Tuesday, March 31, 2009
MS Views and News: Multiple Sclerosis Resource Links
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Multiple Sclerosis:ENERGY CONSERVATION TECHNIQUES
Shmoozin' with Susan --- march 31, 2009My last article addressed fatigue and I referred to energy conservation techniques as important methods in managing fatigue. Although I submitted an article January of 2007, I have provided additional information and recommendations in the continuation of what we can do in dealing with the effects of fatigue.
Energy conservation techniques are ways to use energy more wisely, more efficiently. They are important actions to help limit and/or avoid fatigue. It is important to be proactive and incorporate techniques and strategies in your daily lifestyle to help manage the things you want and need to do.
Prioritize
Accept the fact that you can’t do everything even though you thought you could before. If you, or others around you, have expectations that exceed your abilities, then it’s time to reset those expectations. You need to take care of the necessary obligations related to home, work, even within the community and do what is required regarding those obligations. You want to take care of the tasks that are urgent, time sensitive or essential to your responsibilities. Concentrate on the things that must be done and consider it an additional benefit if you’re able to do a little more.
Continue to read this very helpful article, by clicking here.
Please return to this page to leave a comment, suggestion or question, for Susan or other readers.
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The HISTORY of Multiple Sclerosis - A Journey thru Time
THIS IS SO COOL,,
This journey through the history of MS reveals both successes and failures in research, diagnosis and treatments over the years. It depicts fate and illustrates the firm intention to better understand and conquer this mysterious disease.
>>>>> CLICK here <<<>
Plays with sound
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Let others whom you know, who are affected by MS, know of this MS blog and provide them with this registration link, so that in the future, they too, can have access to information that we provide, at MS Views and News, Inc..
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This journey through the history of MS reveals both successes and failures in research, diagnosis and treatments over the years. It depicts fate and illustrates the firm intention to better understand and conquer this mysterious disease.
>>>>> CLICK here <<<>
Plays with sound
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Let others whom you know, who are affected by MS, know of this MS blog and provide them with this registration link, so that in the future, they too, can have access to information that we provide, at MS Views and News, Inc..
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MSRefugees.com is a unique on-line community
March 31, 2009
MSRefugees.com is a unique on-line community for people whom MS has touched in some way. The name originated back three years ago when a drug company suddenly decided to drop the interactive site which displaced many of the current members. Trent Spencer, the founder, decided to create the Refugee site so members could continue to congregate for counsel, compassion and camaraderie.
................. VISIT: MS Refugees.com
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Have a Question, Comment or information for others? If so, please use the post comment link found below. Your name and email address would be appreciated but is not necessary unless you want a response from others. Thank You
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MSRefugees.com is a unique on-line community for people whom MS has touched in some way. The name originated back three years ago when a drug company suddenly decided to drop the interactive site which displaced many of the current members. Trent Spencer, the founder, decided to create the Refugee site so members could continue to congregate for counsel, compassion and camaraderie.
What makes the site unique from other on-line MS communities is the very popular Discussion Board which includes such features as breaking news on MS, current research, intimacy topics, photos and a real time chat room available 24 hours a day. Also included is a section for discussing actual past and future gatherings in different parts of the country where members actually meet in person.
All are welcome to visit and join the site. But be forewarned, you just might end up staying for awhile and make some new friends in the process.
................. VISIT: MS Refugees.com
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Have a Question, Comment or information for others? If so, please use the post comment link found below. Your name and email address would be appreciated but is not necessary unless you want a response from others. Thank You
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Genzyme and Bayer HealthCare Enter New Strategic Agreement over CAMPATH
Genzyme Assumes Primary Responsibility for the Development and Commercialization of Alemtuzumab for Multiple Sclerosis
Acquires Bayer’s Hematologic Oncology Portfolio
First of Two Alemtuzumab MS Phase 3 Trials Completes Enrollment
- Tuesday March 31, 2009, 8:00 am EDT
CAMBRIDGE, Mass.--(BUSINESS WIRE)--Genzyme Corporation announced today that it has entered into an agreement to acquire the worldwide rights to Campath® (alemtuzumab) from Bayer HealthCare, giving Genzyme primary responsibility for the development and commercialization of this potential break-though treatment for multiple sclerosis (MS). Bayer will continue to fund a portion of alemtuzumab’s development in MS and will retain an option to co-promote the product in MS upon approval. In addition, Genzyme will assume sole responsibility for worldwide sales and marketing for Campath in B-cell chronic lymphocytic leukemia (CLL), where it is indicated for use as a single agent in first-line and previously-treated patients with this disease. Bayer will retain the right to develop and commercialize alemtuzumab in solid organ transplant indications.
The agreement further expands Genzyme’s hematologic oncology commercial presence beyond Campath through the addition of Fludara® (fludarabine) and Leukine® (sargramostim), and provides an opportunity to integrate members of Bayer’s experienced commercial team for all three drugs into Genzyme’s global operations. Genzyme will acquire a new, Seattle-area Leukine manufacturing facility for $75 to $100 million and hire the plant’s operating personnel following FDA plant approval, which is expected in 2010.
Continue reading from Yahoo Finance
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Have a Question, Comment or information for others? If so, please use the post comment link found below. Your name and email address would be appreciated but is not necessary unless you want a response from others. Thank You
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MS Foundation Teleconferences available on CD
If you missed out on the MSF’s National MS Education and Awareness Month teleconference series, it’s not too late. Recordings of the teleconferences are available on CD. To request a copy of But You Don’t Look Sick: Talking with Your Kids About MS, with Dr. Paula K. Rauch, or Keeping Connected: Real World Advice for Couples Coping with Chronic Illness with Dr. Fred Foley, email support@msfocus.org.
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Información en Español sobre la esclerosis múltiple (EM)
Información en Español
Bienvenidos a este su centro de información sobre la esclerosis múltiple (EM).
Aquà hallará información sobre diagnóstico y tratamientos, manejo de sÃntomas y asuntos laborales, asà como información para cuidadores y niños. También hallará transmisiones educativas a través de la Internet, libros y enlaces a otros sitios educativos en la Internet.
información en español
Bridging the Gap to Multiple Sclerosis Resources
MS Views and News, Inc., is dedicated to the global collection and distribution of current information concerning Multiple Sclerosis. In collaboration with other organizations, MS Views and News uses state-of-the-art communication channels to provide information for those affected by, or interested, in MS.
Register at our website to receive our weekly published MS e-Newsletter, known as "Stu's Views and MS Related News".
While visiting the MS Views and News website, use the Resource section to view web-links of most globally known MS organizations. You will also find MS facts, available in many different languages
Take time to review our MS Blog.
Then, please share this valuable source for MS information with all whom you know, affected by Multiple Sclerosis
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Multiple sclerosis may lead to lower cancer risk
information provided by M.Ortiz-Kerr- in South Florida
(Help to provide articles that can be shared with others. If you find a new MS Article or storyline that is not already (recently) posted to this blog, please send the information to me and include a web address (url) Link to the article.
Thank You )
March 30, 2009
(Help to provide articles that can be shared with others. If you find a new MS Article or storyline that is not already (recently) posted to this blog, please send the information to me and include a web address (url) Link to the article.
Thank You )
March 30, 2009
LONDON (Reuters) - People with multiple sclerosis may have a lower risk of cancer, possibly because of lifestyle changes they make after they are diagnosed with the neurological condition, researchers said on Monday.
An analysis of the medical records of more than 20,000 people with multiple sclerosis showed that patients had a 10 percent lower risk of cancer over 35 years than people without MS.
"We speculate that the lower risk for cancer among people with MS could be a result of lifestyle changes or treatment following diagnosis," Shahram Bahmanyar of Sweden's Karolinksa Institute, who led the study, said in a statement.
The effect was more pronounced among women, who are more prone to MS, an incurable condition that affects more than 1 million people worldwide.
MS can cause mild symptoms in some people and permanent disability in others. Symptoms may include numbness or weakness in one or more limbs, partial or complete loss of vision, tingling or pain, electric-shock sensation with certain head movements, tremors and an unsteady gait.
Bahmanyar and colleagues, who published their findings in the journal Neurology, compared the records of the men and women with MS with those of more than 200,000 people without the disease over 35 years.
They also analyzed records of parents of people with MS to see if there was a genetic link, but found no overall increased or decreased risk among parents.
The findings suggested MS patients are more likely to be diagnosed with certain cancers such as brain or bladder tumors, which the researchers said may happen because these patients are being examined more often than other people.
"The increase in brain tumor diagnoses may be due to brain inflammation, but this finding may not reflect a real increase in cancer risk, as there is some evidence that more frequent neurological investigations in these patients mean that brain tumors are more likely to be found sooner," Bahmanyar said.
(Reporting by Michael Kahn, editing by Maggie Fox, Tim Pearce)
============================================(4) steps to protect your computer
Source: MICROSOFT
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Information provided to you by: Stuart Schlossman
Have you any tips to share with the global community?
If so, send to me for review and posting.
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Step 1. Keep your firewall turned on
 | What is a firewall? A firewall helps protect your computer from hackers who might try to delete information, crash your computer, or even steal your passwords or credit card numbers. Make sure your firewall is always turned on. |
| • | How to turn on your firewall |
| • | How to choose a firewall |
| • | Learn more about firewalls for your operating system |
Step 2. Keep your operating system up-to-date
 | What are operating system updates? High priority updates are critical to the security and reliability of your computer. They offer the latest protection against malicious online activities. Microsoft provides new updates, as necessary, on the second Tuesday of the month. |
| • | How to update your operating system |
| • | Microsoft security updates: Frequently asked questions |
| • | Learn about using Microsoft Update |
| • | Go to Microsoft Update |
Step 3. Use updated antivirus software
 | What is antivirus software? Viruses and spyware are two kinds of usually malicious software that you need to protect your computer against. You need antivirus technology to help prevent viruses, and you need to keep it regularly updated. |
| • | How to get antivirus software |
| • | Get regular antivirus scanning with Windows Live OneCare |
| • | Get a free safety scan |
| • | Learn about viruses |
| • | Learn more about virus protection for your operating system |
Step 4. Use updated antispyware technology
 | What is antispyware software? Viruses and spyware are two kinds of usually malicious software that you need to protect your computer against. You need antispyware technology to help prevent spyware, and you need to keep it regularly updated. |
| • | Get antispyware technology |
| • | Use Windows Defender, free antispyware for Windows XP SP2 |
| • | Learn about spyware |
| • | Learn more about spyware protection for your operating system |
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Information provided to you by: Stuart Schlossman
Have you any tips to share with the global community?
If so, send to me for review and posting.
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For Entertainment, here is a new book: The Dead Man
I encourage people to read this author. His newest:
The Dead Man
Milo Harper wants former FBI agent Jack Davis' help. People in Harper's study of the human brain are starting to die - and dying exactly in the very ways they have dreamed. Harper wants Jack to get to the truth and counter lawsuits aimed at the foundation. But when Jack investigates, the truth explodes: a serial killer is lurking inside one of the most advanced research facilities in the world. For Jack, the case will shatter illusions, raise ghosts, and take him onto both sides of the law - and into the path of a murderer's terrifying rage.
ISBN: 0-7860-2040-7
Kensington/Pinnacle Paperback
Paperback 384 pgs
April 7, 2009, $6.99
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Monday, March 30, 2009
Fampridine-SR (4-aminopyridine) is a new drug in development to help improve walking ability in people with multiple sclerosis
Fampridine-SR ("4-aminopyridine", "4-AP", “fampridine”) is an investigational oral, sustained-release tablet formulation of 4-aminopyridine. In laboratory studies fampridine has been found to improve impulse conduction in nerve fibers in which the insulating layer, called myelin, has been damaged.
Clinical History of Fampridine-SR in Multiple Sclerosis (MS)
Acorda recently completed a Phase 3 clinical study of Fampridine-SR to evaluate its safety and efficacy in improving walking ability in people with all types of MS.
View a video* illustrating Fampridine-SR’s mechanism of action:
Researchers have shown that, contrary to popular belief, most people with spinal cord injury (SCI) do not have severed cords; rather, most have blunt damage to the cord. The great majority of such individuals have some axons within the spinal cord that survive the injury. However, these surviving axons often are damaged and lose part of their myelin, the insulating sheath that permits electrical impulses to be conducted down the axon. Nerve impulses "short circuit" in demyelinated axons, much like electricity in a wire whose insulation is stripped. Thus, even though a demyelinated axon is alive, it cannot transmit motor or sensory impulses. In multiple sclerosis (MS), the myelin is believed to be damaged by the body's own immune system, rather than by physical trauma as in SCI.
Fampridine-SR's major action is to block specialized potassium channels on axons. When an axon is demyelinated after injury, large numbers of these potassium channels are exposed and "leak" potassium ions, causing the axon to "short circuit".
By closing the exposed potassium channels, Fampridine-SR permits the axon to transmit impulses again, even in a demyelinated state.
*Video requires Quicktime to view. Download Quicktime now.
Tell us what you think of this hopeful new medication. Thank You
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Learn about the Multiple Sclerosis Treatment Market: Opportunities for Oral Drugs
NEW YORK--(BUSINESS WIRE)-via Yahoo finance - -Reportlinker.com announces that a new market research report is available in its catalogue.
Multiple Sclerosis Treatment Market: Opportunities for Oral Drugs
http://www.reportlinker.com/p0109873/Multiple-Sclerosis-Treatment-Market-Opportunities-for-Oral-Drugs.html
Only about 36% of Multiple Sclerosis (MS) patients are currently treated with MS drugs, this percentage is expected to increase to 56% by 2014 as new oral MS therapies are launched, which shows bright opportunity for oral drugs in multiple sclerosis market. The injectables market is big but leaves certain side effects which bring the possibility for the oral drugs to succeed. It is expected that oral drugs will bring some ease for the patients. In Canada the prevalence rate of MS is the highest with closely followed by United States which is the second most affected region with increasing death rates of MS patients. Also the prevalence rate in Germany, Norway and Hungary is high. In 2008 the MS treatment market has shown good results despite the slowdown in US and with this success the probability for further growth has increased. .
Please return here to leave your comments. Thank You
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Multiple Sclerosis Treatment Market: Opportunities for Oral Drugs
http://www.reportlinker.com/p0109873/Multiple-Sclerosis-Treatment-Market-Opportunities-for-Oral-Drugs.html
Only about 36% of Multiple Sclerosis (MS) patients are currently treated with MS drugs, this percentage is expected to increase to 56% by 2014 as new oral MS therapies are launched, which shows bright opportunity for oral drugs in multiple sclerosis market. The injectables market is big but leaves certain side effects which bring the possibility for the oral drugs to succeed. It is expected that oral drugs will bring some ease for the patients. In Canada the prevalence rate of MS is the highest with closely followed by United States which is the second most affected region with increasing death rates of MS patients. Also the prevalence rate in Germany, Norway and Hungary is high. In 2008 the MS treatment market has shown good results despite the slowdown in US and with this success the probability for further growth has increased. .
Please return here to leave your comments. Thank You
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Living with MS - an audio presentation
Living with Multiple Sclerosis
Monday, March 30, 2009
Living with Multiple Sclerosis 
In 1945, with very little known about her brother’s debilitating disease, a desperate young woman placed the following classified ad in the New York Times: “Multiple sclerosis. Will anyone recovered from it please communicate with patient.” Now, over half a century later, there is still no cure for MS, but that does not prevent people with the disease from living full, capable lives. Monday we will talk with patients and doctors about the trials of living with MS and how to manage it effectively. So call us with your questions and personal stories.
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Merck Serono: New Phase III Data for Cladribine Tablets to be Presented at the American Academy of Neurology 61st Annual Meeting in April 2009
PRnewswire
GENEVA, Switzerland, March 30 /PRNewswire/ -- Merck Serono, a division of Merck KGaA, Darmstadt, Germany, announced today that the American Academy of Neurology (AAN) has accepted a late-breaking abstract regarding cladribine tablets, its oral investigational treatment of multiple sclerosis, for an oral presentation at the AAN 61st Annual Meeting in Seattle.
The abstract is entitled "Results from the CLARITY study: a Phase III, randomized, double-blind study to evaluate the safety and efficacy of oral cladribine in relapsing-remitting multiple sclerosis". The data is currently scheduled to be presented as a late-breaking oral presentation on April 29, 2009 by the study's principal investigator, Dr Gavin Giovannoni, Institute of Cell and Molecular Science, Barts and The London School of Medicine and Dentistry, London, United Kingdom.
.GENEVA, Switzerland, March 30 /PRNewswire/ -- Merck Serono, a division of Merck KGaA, Darmstadt, Germany, announced today that the American Academy of Neurology (AAN) has accepted a late-breaking abstract regarding cladribine tablets, its oral investigational treatment of multiple sclerosis, for an oral presentation at the AAN 61st Annual Meeting in Seattle.
The abstract is entitled "Results from the CLARITY study: a Phase III, randomized, double-blind study to evaluate the safety and efficacy of oral cladribine in relapsing-remitting multiple sclerosis". The data is currently scheduled to be presented as a late-breaking oral presentation on April 29, 2009 by the study's principal investigator, Dr Gavin Giovannoni, Institute of Cell and Molecular Science, Barts and The London School of Medicine and Dentistry, London, United Kingdom.
Have a Question, Comment or information for others? If so, please use the post comment link found below. Your name and email address would be appreciated but is not necessary unless you want a response from others. Thank You
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Sunday, March 29, 2009
BetaPlus Offers CoPay Assistance for Betaseron Users
As part of its Betaplus patient support program, Bayer will refund a single copay for those who take Betaseron for 11 consecutive months. Under the new benefit, people who send in their prescription receipts for Betaseron will be refunded the copay for their 11th month of use of the drug, up to $500.
The Betaplus program also has other options to save patients money, including monthly co-pay assistance for as long as a person is on Betaseron therapy and specialists who may be able to help obtain insurance coverage of the drug.
The Betaplus program also offers access to MS nurses, email reminders about injection days, one-on-one injection training, and calls from peer mentors.
For more information about the copay refund or other Betaplus programs, call 1-800-788-1467 or visit www.betaseron.com.
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Have a Question, Comment or information for others? If so, please use the post comment link found below. Your name and email address would be appreciated but is not necessary unless you want a response from others. Thank You
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Bayer Offers New Betaferon(R) Titration Pack
Multiple Sclerosis - Bayer Offers New Betaferon(R) Titration Pack
29 Mar 2009 -
Bayer will launch a titration pack for patients with multiple sclerosis (MS) that is specially designed to make it easier for them to start Betaferon® (interferon beta-1b) therapy. From now on, the titration pack will be available in Germany. More European countries will follow in 2009. The four-week pack facilitates a gradual increase in dose as recommended for patients new on Betaferon®.
Betaferon® is a well-established therapy for people starting their MS treatment as early as after the first signs of the condition. Findings from the recent landmark BENEFIT (BEtaferon in Newly Emerging multiple sclerosis For Initial Treatment) trial have shown that gradual dose titration of the medication contributes to a high acceptance of Betaferon® treatment from the start. Delivering Betaferon® in an easy-to-use titration pack for the first four weeks of therapy will simplify the titration process for physicians, MS-nurses and patients.
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29 Mar 2009 -
Bayer will launch a titration pack for patients with multiple sclerosis (MS) that is specially designed to make it easier for them to start Betaferon® (interferon beta-1b) therapy. From now on, the titration pack will be available in Germany. More European countries will follow in 2009. The four-week pack facilitates a gradual increase in dose as recommended for patients new on Betaferon®.
Betaferon® is a well-established therapy for people starting their MS treatment as early as after the first signs of the condition. Findings from the recent landmark BENEFIT (BEtaferon in Newly Emerging multiple sclerosis For Initial Treatment) trial have shown that gradual dose titration of the medication contributes to a high acceptance of Betaferon® treatment from the start. Delivering Betaferon® in an easy-to-use titration pack for the first four weeks of therapy will simplify the titration process for physicians, MS-nurses and patients.
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Exercise My Way by "Ask our MS Nurse"
By: Cherie C. Binns RN BS MSCNIn the fall of 2006, when I first began “Rehab My Way” I could not have imagined how well it would work for me nor could I have fathomed the interest other people with Multiple Sclerosis (MS) or mobility problems would have in what I was doing. As a result of severe osteoporosis in my feet (several non-healed fractures over the period of a year) I was advised that my walking days were over and a motorized chair was recommended by several physicians and physical therapists as a lifestyle change. Water exercise, I was told, would allow me to keep joints active and mobile without stressing the fractures more and might also relieve some of the joint pain I was experiencing from inactivity.
After trying out the public pools that were available in our area, it rapidly became clear that the exhaustion factor and inaccessibility of wet pool decking to someone in a chair or on crutches made them not only unsafe, but impractical for my needs. So we looked for alternatives. Thank goodness the Economic downturn (recession?) had not begun to radically impact our lives at that point and we had more choices to meet this need than we have in today’s economy. We shopped the Internet for various forms of pools or water therapy areas that we might add in the yard or on a deck or porch or in a small addition to the house. Because I have never enjoyed swimming and I literally broke bones doing a flutter kick with my left foot, something like a lap pool or endless pool where one swims against the current did not seem to be the right solution.
To continue reading this story, click here to be redirected to the MS Views and News website. Then scroll down on the page to read "Exercise My Way"Return to this page to leave a comment ? Thank You
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Understanding Adult Stem Cell Therapy
To Help Readers understand why Adult Stem Cell therapy (aka 'Repair' Stem Cell therapy) does NOT have controversial moral & ethical issues, contrary to embryonic stem cell research ~ please take time to read: Stem Cell Basics for a concise primer & read & learn how the most promising stem cell research & treatment does NOT require destruction of human embryos.
OR, visit the website for Adult Stem Cell Therapy
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Have a Question, Comment or information for others? If so, please use the post comment link found below. Your name and email address would be appreciated but is not necessary unless you want a response from others. Thank You
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OR, visit the website for Adult Stem Cell Therapy
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Have a Question, Comment or information for others? If so, please use the post comment link found below. Your name and email address would be appreciated but is not necessary unless you want a response from others. Thank You
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Multiple Sclerosis Symptoms are Variable and Unpredictable
MS Symptoms are Variable and Unpredictable
No two people have exactly the same symptoms, and each person’s symptoms can change or fluctuate over time. One person might experience only one or two of the possible symptoms
Most of these symptoms can be managed very effectively with medication, rehabilitation, and other management strategies. while another person experiences many more. If not yet registered to receive our weekly e-newsletter, "Stu's Views and MS related News", Please click here to opt-in. - thank you
Have a Question, Comment or information for others? If so, please use the post comment link found below. Your name and email address would be appreciated but is not necessary unless you want a response from others. Thank You
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No two people have exactly the same symptoms, and each person’s symptoms can change or fluctuate over time. One person might experience only one or two of the possible symptoms
Most of these symptoms can be managed very effectively with medication, rehabilitation, and other management strategies. while another person experiences many more. If not yet registered to receive our weekly e-newsletter, "Stu's Views and MS related News", Please click here to opt-in. - thank you
Have a Question, Comment or information for others? If so, please use the post comment link found below. Your name and email address would be appreciated but is not necessary unless you want a response from others. Thank You
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From the MS Views and News Library of MS archives: Multiple Sclerosis Symptoms, Exacerbation and more
Various articles pertaining to MS symptoms, relapse and more are available to be read and learned-from.
To view these articles from our Library of MS Archives, Click here .
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Have a Question, Comment or information for others? If so, please use the post comment link found below. Your name and email address would be appreciated but is not necessary unless you want a response from others. Thank You
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To view these articles from our Library of MS Archives, Click here .
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Have a Question, Comment or information for others? If so, please use the post comment link found below. Your name and email address would be appreciated but is not necessary unless you want a response from others. Thank You
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The "Amazing Race" host will bike cross country for MS awareness
The reality show host launches his own adventure: a 40-day bicycle trek from Santa Monica to New York City to benefit the National Multiple Sclerosis Society.
Phil Keoghan, he of the arched eyebrow and host of Emmy Award-winning " The Amazing Race," is a self-acknowledged creature of extremes.
For his day job, the 41-year-old New Zealand native logs more than 400,000 air miles per year, mostly as he crisscrosses the globe with the CBS show's $1-million prize and adventure-hungry contestants. But that's nothing really. He's also putted his way -- some 12,000 golf strokes and 107 miles in all -- across Scotland, set a world record for bungee jumping, eaten a fancy meal atop an erupting volcano and earned a reindeer-racing license in Finland.
Starting today, he's going to be facing another extreme: a 5,000-calorie-per-day diet featuring an afternoon treat he calls a "Philiminator" Shake (a special energy concoction combining whey protein, soy milk, flax seed and peanut butter). He's going to need every ounce to fuel a 40-day, 3,500-mile bicycle ride across America that kicks off today from Santa Monica and, he hopes, will end in New York City by early May, days before the season finale of "The Amazing Race."
For his day job, the 41-year-old New Zealand native logs more than 400,000 air miles per year, mostly as he crisscrosses the globe with the CBS show's $1-million prize and adventure-hungry contestants. But that's nothing really. He's also putted his way -- some 12,000 golf strokes and 107 miles in all -- across Scotland, set a world record for bungee jumping, eaten a fancy meal atop an erupting volcano and earned a reindeer-racing license in Finland.
Starting today, he's going to be facing another extreme: a 5,000-calorie-per-day diet featuring an afternoon treat he calls a "Philiminator" Shake (a special energy concoction combining whey protein, soy milk, flax seed and peanut butter). He's going to need every ounce to fuel a 40-day, 3,500-mile bicycle ride across America that kicks off today from Santa Monica and, he hopes, will end in New York City by early May, days before the season finale of "The Amazing Race."
The bike ride, during which he will cycle up to 100 miles per day, has two major purposes: to promote the reality show and help raise money and awareness for the National Multiple Sclerosis Society. Fans of the show are invited to ride along with him for some of the journey. (See www.philridesacrossamerica.com for details.)
To continue reading, click here to read more for the LA Times
Have a comment? We would love to hear from you. Use the comment link found below. - Thank you
Have a comment? We would love to hear from you. Use the comment link found below. - Thank you
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Medical marijuana bill moves forward in Illinois Senate
Compassionate cannabis? It's being considered.
The national debate over legalizing marijuana for medical use came to the forefront in Illinois yesterday, as state senators advanced a bill on the issue.
Senate Bill 1381, sponsored by Sen. William Haine (D-Alton), and co-sponsored by Sen. Iris Martinez (D-Chicago) and Sen. Jeffrey Schoenberg (D-Evanston), would create the "Compassionate Use of Medical Cannabis Pilot Program," allowing a person diagnosed by a doctor with a "debilitating medical condition" to legally possess marijuana.
The person could be issued an identification card by the Department of Public Health that would allow possession of no more than seven dried cannabis plants or two ounces of dried cannabis, according to the bill.
>> click Here to read more from CHI-TOWN Daily News============================================
"La Voz Nueva" - Has a message (Tiene un mensaje)
Colorado Link to Multiple Sclerosis
posted 3-25-2009
Reporter: Ernest Gurule - La Voz Nueva
Before the end of the week, more than two hundred patients in cities and towns across the United States will be told by their physicians that the cause of the symptoms they’ve been complaining about is MS, multiple sclerosis. In places like Colorado, there will be more patients hearing this diagnosis than in low altitude, warm weather states. And so far, no one knows why.
MS is an inflammatory disease of the central nervous system (CNS), that is, the brain and spinal cord. According to the website MS.org, it is a disease of the “white matter” tissue. The white matter is made up of nerve fibers, which are responsible for transmitting communication signals both internally within the CNS and the nerves supplying the rest of the body. MS causes muscle weakness, a tingling or numbness, loss of balance and blurred or double vision.
In Colorado, the number of MS cases is estimated at around 7,200, a number that could be grossly inaccurate. “When it is diagnosed, doctors don’t have to report it to the health department,” said Diane Williams, President of the National MS Society. Theoretically, the true number of MS patients in the state could be more than fourteen thousand.
The causes of MS are unknown. Researchers say it could be hereditary, environmental or even geographic. It may be as simple as an inherited gene that causes the illness. It may also be connected to a still undetermined environmental factor. And, geography is one of the more puzzling elements to this medical equation.
MS is not uncommon in Scotland, Scandinavian and Northern Europe. On the other hand, MS is rarely found in Africa or Japan. But African-Americans and Japanese-Americans can be victims of this illness. Another curiosity of MS is that its rates decrease dramatically the closer you get to an equatorial climate.
In diagnosing MS, a patient’s medical history is examined. But it may also take a neurological checkup, blood tests, an MRI or even a spinal tap. Research, including four studies that have taken place in Colorado, is making a dent in unraveling the mystery of this illness. “We’ve made the most progress in the last fifteen years,” said Williams. “Specific medications have been developed that can treat or even alter the course of the disease.” In fact, people now can choose between which medicines they want, depending on which works best for them.
But despite the progress that is being made, there are still huge and mysterious questions about MS that doctors are unable to answer. Included among them are why 73 percent of all MS victims in the U.S. are women or why men tend to be diagnosed later but generally have more severe cases.
MS also has a unique unpredictability. Some people, for example, say they can’t tell from day to day or week to week how the disease will affect them. There are some days when they say they’re too weak to get out of bed or even to hold their child. Then there are other times when symptoms go away for weeks or months at a time and then suddenly return.
One thing that MS isn’t is an equal opportunity disease. According to MS researchers, Whites are twice as likely to contract this illness as Latinos or African-Americans. However, with ten thousand new cases of MS expected to hit Americans this year, no one can be entirely worry free about getting it.
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Have a Question, Comment or information for others? If so, please use the post comment link found below. Your name and email address would be appreciated but is not necessary unless you want a response from others. Thank You
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Saturday, March 28, 2009
AMAZING and Hysterical - Entertainment
Many of us remember the Comedy we once lived with late at night......
Here's Johnny (Carson) and Dom Deluise
http://www.youtube.com/watch?v=gRduPZvIm08&NR=1
This is an amzating and very funny video
Enjoy !!!!!!
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Here's Johnny (Carson) and Dom Deluise
http://www.youtube.com/watch?v=gRduPZvIm08&NR=1
This is an amzating and very funny video
Enjoy !!!!!!
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MS Helping Hands - Donor Closet
William L. “Bill” BrayerPresident, MS Helping Hands-MSHH
Director, MSHH Donor Closet
Items usually in inventory include scooters, power chairs, manual wheelchairs, transport chairs, walkers, Rollators, hospital beds, over the bed tables, bathtub transfer benches, shower benches, toilet seat risers and safety frames, grab bars, incontinent pads, lift chairs and much more.
The Donor Closet also accepts medical & mobility items in good condition for recycling.
The items in the Donor Closet are NOT just for people with Multiple Sclerosis, but for others in need as well.
Many who have already frequented the Donor Closet and have remarked “what a GREAT resource” it is.
Have YOU a resource to share with others? If so, write to me, so that I can post to this blog and share with the World. write to: stuartschlosssman@bellsouth.net - Thank You
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Friday, March 27, 2009
The Power of “Powerful Thinking”
"The Power of Postive Thinking"
By: Christine Groth
By: Christine Groth
March 27th, 2009
This article is about cope when you have MS
I was fortunate, I grew up in a family of thinkers where there was always a way to solve a problem. Never were any of us kids emotional- well except for my sisters.
Good thinking skills have allowed me to solve my problems with MS and I’ve realized just how important it is for me to just shut off the world and sit down and relax and most of all THINK.
But I’ve learned there are different types of thinking, and that it’s important for me to take time each and every day and think. We are all good at some ways of thinking but need help in others.
Here is an overview of the types of thinking:
The Big Picture: The ability to think beyond our diagnosis of multiple sclerosis and see the big picture.
Focused Thinking: Removing mental clutter (anxiety, depression) and focusing on the situation at hand.
Creative Thinking: The ability to break out of our box (that which is ms) and explore new ideas and options which could help us.
Realistic Thinking: Based on facts and building a solid foundation to build on.
Strategic thinking: The ability to implement plans,a direction, mission, strategy for tomorrow.
Possibility Thinking: The ability to unleash your enthusiasm and hope to what seems impossible situations.
Reflective Thinking: Revisit the past and look with perspective.
Questioning Popular Thinking: Questioning what everyone else is doing, the popular belief.
Shared Thinking: Sharing your thinking with others to produce compounding results.
Unselfish Thinking: The ability to consider others and their journey with multiple sclerosis.
Bottom Line Thinking: The ability to focus on results.
It’s a real mistake to think that there is only one type of thinking. And if you look at the list above you’ll see that many of these types of thinking play a close hand in multiple sclerosis.
Take this time to look at your self, and see what your strengths are and your weaknesses.
Folks, what are your strength’s and weaknesses when thinking about your disease and multiple sclerosis?
Are you a creative thinker looking for solutions? Do you ask others to share in your thinking to produce larger than life results? Or do you get bogged down with mental clutter and have problems thinking beyond that?
Let us know your thoughts. We want to hear from you!
Visit: conquerMS.com
Message from Stuart :: to Conquer MS - is NOT A cure.. and not intended to be.
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Have a Question, Comment or information for others? If so, please use the post comment link found below. Your name and email address would be appreciated but is not necessary unless you want a response from others. Thank You
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TECHNOLOGY NEWS - No joke in April Fool's Day computer worm
By John D. Sutter
CNN
CNN
(CNN) -- A computer-science detective story is playing out on the Internet as security experts try to hunt down a worm called Conficker C and prevent it from damaging millions of computers on April Fool's Day.
This piece of computer code tells the worm to activate on April 1, 2009, researchers at CA found.
The anti-worm researchers have banded together in a group they call the Conficker Cabal. Members are searching for the malicious software program's author and for ways to do damage control if he or she can't be stopped.
They're motivated in part by a $250,000 bounty from Microsoft and also by what seems to be a sort of Dick Tracy ethic.
"We love catching bad guys," said Alvin Estevez, CEO of Enigma Software Group, which is one of many companies trying to crack Conficker. "We're like former hackers who like to catch other hackers. To us, we get almost a feather in our cap to be able to knock out that worm. We slap each other five when we're killing those infections."
The malicious program already is thought to have infected between 5 million and 10 million computers.
Read More at cnn.com
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Have a Question, Comment or information for others? If so, please use the post comment link found below. Your name and email address would be appreciated but is not necessary unless you want a response from others. Thank You
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Thursday, March 26, 2009
Wheelchair Kamikaze - Broadway and Central Park
A MUST watch video
Here's the link to the new video on YouTube.
http://www.youtube.com/watch?v=RM0GjqwrwHs
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Have a Question, Comment or information for others? If so, please use the post comment link found below. Your name and email address would be appreciated but is not necessary unless you want a response from others. Thank You
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Here's the link to the new video on YouTube.
http://www.youtube.com/watch?v=RM0GjqwrwHs
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Have a Question, Comment or information for others? If so, please use the post comment link found below. Your name and email address would be appreciated but is not necessary unless you want a response from others. Thank You
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BRAVO Study Sites for Laquinimod Clinical Trials
To learn where the Laquinimod Clinical Trial Recruitment Centers are located, click this link: https://www.tevaclinicaltrials.com/patients/StudySiteLocator.aspx?s_mcid=EMMSC09
If interested, the recruitment period for this clinical trial will be ending soon.
So, Act now if you want to participate in this trial for an oral MS Therapy.
To know more of Laquinimod, view the ad found on the MS Views and News website: http://www.msviewsandnews.org
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If interested, the recruitment period for this clinical trial will be ending soon.
So, Act now if you want to participate in this trial for an oral MS Therapy.
To know more of Laquinimod, view the ad found on the MS Views and News website: http://www.msviewsandnews.org
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Diagnosed with MS after the onset of optic neuritis - a patient's story
My name is Robert Groth, and I was diagnosed with MS after having a severe onset of optic neuritis and going blind in one eye. Relieved to find out my blindness had a name called multiple sclerosis I was then told to go home. My diagnosis took place over 19 years ago, when there were no drugs for MS.
If you would like to leave a comment for Robert, I am sure he would appreciate it. Use the comment link just below this story. Thank You
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And like many others I was in denial over my disease.
Until 3 years ago. My ignorance, denial, and “sticking my head” in the sand approach lasted so long. That summer I had gone from a vibrant and confident man hiking over 100 miles at
I like many visited the doctor and they had not much to say except they could up my medication and add an array of others to help with anxiety, and depression.
This was not the answer or solution for me. I have never been a firm believer in taking drugs especially those to fix my head. I do continue to take just one which is called Rebif.
Determined to find solutions that wouldn’t be pills in a bottle. Solutions where I would regain my life and be the same person I was the year before. I wanted desperately to go hiking again in
I prayed to God to lead me the way, to help me find the answers to heal myself and get better. I visited my pastor who blessed me with holy water asking the Lord to heal my sick body and mind.
Two months later the answers arrived, bit by bit, piece by piece.
During this 2 year period I had removed all MS issues. Stress had left my body and I felt wonderful. I wanted to spread the word of what I had learned. Information that was not being spoken of in the community of multiple sclerosis. Patients of multiple sclerosis unfortunately being given their 20 minute consultation and sent home with a script People with MS needed and deserved so much more. They needed a road map to leaving the dark
In November of 2008 my wife and I created Conquer Multiple Sclerosis.com
A blog was created to spread the word of what we had found. That there was a treatment for multiple sclerosis, one that didn’t involve another pill in a bottle.
Our mission is: Turning Disease into Vibrant Health. There is no cure for MS, but with choice and conviction you can go from a 10 in severity to a 3 or 4.
Today I still do suffer from complications of MS, but it no longer controls my life. Each and every month I exceed in skills I couldn’t do 3 years ago. This past weekend I normally would be able to walk 1.5 miles maximum. But instead I completed 2.2 miles. I huge victory for me, that I’m so very proud of.
I want to share with everyone that there are answers and solutions if you “choose”. First you must believe in yourself that you can get well and then you must choose to find it. It is there, I promise you.
Please visit us at http://www.ConquerMS.com Receive a free ebook I’ve written with Dr. Dharma Sing Khalsa on how you can heal MS in Twelve Minutes Per Day.
If you would like to leave a comment for Robert, I am sure he would appreciate it. Use the comment link just below this story. Thank You
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Wednesday, March 25, 2009
Life with Multiple Sclerosis
Life with Multiple Sclerosis
By Julie Stachowiak, Ph.D., About.com Guide to Multiple Sclerosis
Multiple sclerosis (MS) has a profound impact on all parts of your life, including workplace issues, relationships and family, overall well-being and lifestyle choices. Learn some ways to improve and enhance your life with MS, as well as some things you may want to avoid.
Healthy Living with MS
Resources and Organizations
Books for People with MS
For Friends and Family
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Have a Question, Comment or information for others? If so, please use the post comment link found below. Thank You
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By Julie Stachowiak, Ph.D., About.com Guide to Multiple Sclerosis
Multiple sclerosis (MS) has a profound impact on all parts of your life, including workplace issues, relationships and family, overall well-being and lifestyle choices. Learn some ways to improve and enhance your life with MS, as well as some things you may want to avoid.
Healthy Living with MS
Resources and Organizations
Books for People with MS
For Friends and Family
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Have a Question, Comment or information for others? If so, please use the post comment link found below. Thank You
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Can Diet Help Multiple Sclerosis?
source: about.com
Thursday March 19, 2009
There are a lot of so-called "MS Diets" out there that use any number of theories or approaches to managing MS through nutrition. For most of the diets, the evidence is not there (though if the diet is not extreme, there usually is no harm in it). There are certainly some links between MS and other immune-related dietary issues. One of these is gluten intolerance, something I discovered for myself. If I eat gluten, I feel like crap. I was blaming the MS for some of that before, now I know there is another condition involved.
One thing that does make some sense is taking fish oils. The theory here is that the omega-3 fatty acids in the fish oils can help reduce inflammation. Meanwhile, anyone who eats healthy is bound to just feel better. So find some vegetables, eat some salmon and feel (at least a little) better.
Does anyone have a tip or though about diet? Have you discovered a food that makes you feel better or makes you feel terrible?
Tell others, what foods makes you feel good by leaving a comment using the link found just below this blog post. - Thank You
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Thursday March 19, 2009
There are a lot of so-called "MS Diets" out there that use any number of theories or approaches to managing MS through nutrition. For most of the diets, the evidence is not there (though if the diet is not extreme, there usually is no harm in it). There are certainly some links between MS and other immune-related dietary issues. One of these is gluten intolerance, something I discovered for myself. If I eat gluten, I feel like crap. I was blaming the MS for some of that before, now I know there is another condition involved.
One thing that does make some sense is taking fish oils. The theory here is that the omega-3 fatty acids in the fish oils can help reduce inflammation. Meanwhile, anyone who eats healthy is bound to just feel better. So find some vegetables, eat some salmon and feel (at least a little) better.
Does anyone have a tip or though about diet? Have you discovered a food that makes you feel better or makes you feel terrible?
Tell others, what foods makes you feel good by leaving a comment using the link found just below this blog post. - Thank You
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Restless Leg Syndrome
WE MOVE makes every effort to present medical information that is up-to-date and accurate. The material provided has undergone rigorous medical review. Information regarding the authors, editors, publisher, and medical reviewers of this material of the WE MOVE Web site is listed below.
Medical science is constantly changing. Therefore, the authors, editors, and publisher do not warrant that the information in this text is complete, nor are they responsible for omissions or errors in the text or for the results of the use of this information. This information does not replace consultation with a physician. All medical procedures, drug doses, indications, and contraindications should be discussed with your personal physician.
Medical Editor: Joy B. Leffler, NASW, AMIA
Medical Review: Dr. Richard Allen, PhD; Dr. Wayne A. Henning, MD; Dr. Cinthia Comella, MD
>> Click here to view their information files on this Syndrome
Have a Question, Comment or information for others? If so, please use the post comment link found below. Your name and email address would be appreciated but is not necessary unless you want a response from others. Thank You
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Biogen Idec Boosting M.S. Drugs in Late-Stage Tests (Update1)
By Elizabeth Lopatto
March 25 (Bloomberg) -- Biogen Idec Inc. said it has 20 new medicines in advanced human trials, including treatments for multiple sclerosis, cancer and Parkinson’s disease.
At least six of the new medicines have reached the final tests generally required for U.S. marketing clearance, the Cambridge, Massachusetts-based biotechnology company said today in a statement. Biogen will discuss new medicines it’s developing in a meeting today with investors and analysts in Boston.
Biogen, the world’s largest maker of multiple sclerosis drugs, will have two MS medicines in late-stage trials by the end of this year, including a new version of its top-selling Avonex drug and a pill, called BG-12. Avonex, an injectable medicine, generated $2.2 billion last year, accounting for more than half of Biogen’s $4.1 billion in revenue. Its fastest- growing product is the MS drug Tysabri, which produced worldwide sales of $813 million for Biogen and partner Dublin-based Elan Corp.
Click here to read remainder of this Bloomberg Report.
Have a Question, Comment or information for others? If so, please use the post comment link found below. Your name and email address would be appreciated but is not necessary unless you want a response from others. Thank You
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Learn a Language - Expand Your Mind
Information supplied by Grace in Miami:
Click here: BBC - Languages - Homepage expand your mind...learn a new language today
thank you Grace
Click here: BBC - Languages - Homepage expand your mind...learn a new language today
thank you Grace
Marriage Humor
Presented from Carolo, in Miami
Wife: "What are you doing?"
Husband : Nothing.
Wife : "Nothing...? You've been reading our marriage certificate for an hour."
Husband : "I was looking for the expiration date.."
------------ --------- --------- --------- --------- ---------
Wife : "Do you want dinner?"
Husband : "Sure! What are my choices?"
Wife : "Yes and no."
------------ --------- --------- --------- ---------
Wife: "You always carry my photo in your wallet. Why?"
Hubby: "When there is a problem, no matter how impossible, I look at your picture and the problem disappears."
Wife: "You see how miraculous and powerful I am for
Wife: "What are you doing?"
Husband : Nothing.
Wife : "Nothing...? You've been reading our marriage certificate for an hour."
Husband : "I was looking for the expiration date.."
------------ --------- --------- --------- --------- ---------
Wife : "Do you want dinner?"
Husband : "Sure! What are my choices?"
Wife : "Yes and no."
------------ --------- --------- --------- ---------
Wife: "You always carry my photo in your wallet. Why?"
Hubby: "When there is a problem, no matter how impossible, I look at your picture and the problem disappears."
Wife: "You see how miraculous and powerful I am for
you?"
Hubby: "Yes! I see your picture and ask myself what other problem can there be greater than this one?"
.
Hubby: "Yes! I see your picture and ask myself what other problem can there be greater than this one?"
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Tuesday, March 24, 2009
Strategies to Help You Reach Your Goals
| MS LifeLines® eNewsletter - March 2009 Setting goals is an important strategy for success, MS or not," says Gail Hartley, MSN, NP, MSCN. As a nurse practitioner in private and clinical practices, as well as a guest lecturer at The Heuga Center, Gail knows that MS does present some unique challenges, "but it doesn't mean you can't pursue your dreams." She offers several strategies that can help, regardless of where you are in your career or your life. | ||||||||
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| Gail also stresses the importance of setting personal goals. "Don't be so focused on work that you neglect yourself and your family. Recognize that you need balance in your life." Learn more strategies on how to set and achieve goals in your professional and personal life. For more support, call us toll free at 1-877-447-3243, Monday through Friday, 8 AM to 10 PM ET or visit www.mslifelines.com. Want to post a comment? Click the comments link, found below |
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