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Disclaimer: 'MS Views and News' DOES NOT endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.

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Saturday, March 14, 2009

“COPAXONE® Approved by the FDA for Patients with a First Clinical Event Suggestive of Multiple Sclerosis”

Re-printed today March 14, 2009 at the request of others who missed this posting when it first printed to this blog:


Information found here provided by: MS Views and News, Inc

Business Wire

March 3, 2009

JERUSALEM - (BUSINESS WIRE) - Teva Pharmaceutical Industries Ltd. (NASDAQ: TEVA), today announced that the U.S. Food and Drug Administration (FDA) has approved an expanded indication for COPAXONE(®) (glatiramer acetate injection) to include the treatment of patients who have experienced a first clinical episode and have magnetic resonance imaging (MRI) features consistent with multiple sclerosis (MS).


The FDA’s approval follows a similar decision by the Medicines and Healthcare Products Regulatory Agency (MHRA) in February 2009 under which 24 EU member states have mutually recognized an expanded label for COPAXONE(® )to include the treatment of patients with clinically isolated syndrome (CIS) suggestive of MS.

» Read More

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100 Fascinating Facts You Never Knew About the Human Brain

Interesting Facts:

The human brain has amazed and baffled people throughout the ages. Some scientists and researchers have devoted their entire lives to learning how the brain works. It is no wonder that people enjoy learning facts about this incredible organ in the human body. Below, you will find 100 facts about the brain including how it works, how it develops, what it controls, how it affects sleep, dreams, and memory, and more, which may be helpful in your quest to earning a CNA. When you finish reading about these fun facts, take this short brainpower quiz and see how much you learned about the human brain.

Physical Attributes

These facts will teach you interesting bits of information about the physical make-up of the human brain.

  1. Weight. The weight of the human brain is about 3 lbs.
  2. Cerebrum. The cerebrum is the largest part of the brain and makes up 85% of the brain’s weight.
  3. Skin. Your skin weighs twice as much as your brain.
  4. Gray matter. The brain’s gray matter is made up of neurons, which gather and transmit signals.
  5. White matter. The white matter is made up of dendrites and axons, which create the network by which neurons send their signals.
  6. Gray and white. Your brain is 60% white matter and 40% gray matter.
  7. Water. The brain is made up of about 75% water.
  8. Neurons. Your brain consists of about 100 billion neurons.
  9. Synapses. There are anywhere from 1,000 to 10,000 synapses for each neuron.
  10. No pain. There are no pain receptors in the brain, so the brain can feel no pain.
  11. Largest brain. While an elephant’s brain is physically larger than a human brain, the human brain is 2% of total body weight (compared to 0.15% of an elephant’s brain), meaning humans have the largest brain to body size.
  12. Blood vessels. There are 100,000 miles of blood vessels in the brain.
  13. Fat. The human brain is the fattest organ in the body and may consists of at least 60% fat.
Continue reading this article by clicking here


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The Need for a Cohesive Nurse Practitioner Licensing System

Source: Nursing Assistant Central

By Courtney Phillips

The profession of Nurse Practitioner originally came about as a result of a shortage of MDs in the 1960s. Since that time, many things have changed, but one thing has not—the ability for a NP to move to another state and expect to be able to work in the same manner as before. Federalism is a wonderful aspect of the government, but one that ultimately falls short when it comes to regulating health care.

This issue may be a divisive one, but the truth of the matter is that NPs all over the United States are subject to completely different sets of rules and regulations from one state to the next. Whereas in one state a NP has full autonomy and can even practice independently, in others they must work in collaboration with an MD, while in others still they work beneath the doctor and must answer to that individual.

As for funding, the stipulations and regulations regarding this aspect of the NP system are something only the initiated can understand fully. Educational requirements also vary from state to state, with some requiring master, while others ask for a few months worth of post RN coursework.

This conundrum brings up various ethical and philosophical points which aren’t answered as easily as at first they seem. Obviously, the NP who moves from one state to another doesn’t change physically or mentally, yet their credentials fall under scrutiny because of discrepancies in the method of certification.

Naturally we don’t want unqualified or under qualified people practicing, which is why there needs to be some sort of baseline mandate in place that each state can adhere to. If health care, money, and insurance can all be so tangled that they are good enough to work for treatment by an NP in one state, they should certainly work in any other state in the same way.

Health care and all of the labyrinthine issues related to our health care system are being drowned out by other concerns for the time being. Let’s hope someone decides to address it eventually. Perhaps then the need for a comprehensive and cohesive nurse practitioner licensing system will finally be addressed.

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Friday, March 13, 2009

Understanding Multiple Sclerosis Fatigue


"Shmoozin' with Susan"
An Occupational Therapist's Perspective

A monthly column that is educational, informative, and entertaining to help understand and manage various topics and situations often encountered.

Susan Dorne is an occupational therapist licensed in the state of Florida, with over 20 years experience. Susan also has MS. Through the years, Susan has been an active volunteer in the MS community for various MS and healthcare organizations. As a healthcare professional and an individual with MS, Susan can validate much of the information that will be shared.

This column is not intended to be a substitute for professional and medical treatment, diagnosis or advice. Any information shared that is of personal interest should be discussed with your physician/healthcare professional.


To Read Susan's Article on Understanding Fatigue, Click here

Then, please return to this page to post any comments you may have or to ask questions for Susan to respond-to.

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OHG - Our Heart Greeting - a place for those with MS to communicate with others

OHG's 'The BuZZ' provides an arena where creativity and giving merge to support, encourage, and celebrate the Ability in disAbility.

A Creative Giving Group for Friends of Multiple Sclerosis (MS)

Click : http://ohgreeting.ning.com/


"BUT YOU DON'T LOOK SICK"

Information provided by Ellen G., in Ft. Lauderdale

Hi Stuart: This was sent to me by one of my MS pen-pal friends and although it is written by someone who has Lupus, it applies to SO many people with chronic diseases....MS especially. I hope you will send it out to your e-list as I think it is a very useful tool for people who find it difficult to explain our MS.... - thanks....Ellen

Well Ellen - Here is one better than just my e-List - it's Now Posted on my MS Blog and will hopefully be clicked and read by thousands - Thank You for sharing - Regards, Stuart

Click link to read:
http://www.butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf
If you cannot read this .pdf file you will need to install the Adobe acrobat reader - which can be found on the lower right of our tool bar menu...

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Thursday, March 12, 2009

Symptoms/Diagnosis of Multiple Sclerosis

By Julie Stachowiak, Ph.D., About.com Guide to Multiple Sclerosis

There are over 50 symptoms that are linked to multiple sclerosis (MS), which are vague and hard to quantify, mimic the symptoms of other diseases, and often come and go. This makes MS a challenging disease to diagnose. While diagnosis is becoming easier with the increased availability of MRIs, definitive diagnosis of MS is still a process that requires time and patience.

Click each title to learn more

  1. Multiple Sclerosis (MS) Basics
  2. Common Symptoms of Multiple Sclerosis (MS)
  3. Mysterious or Rare Symptoms of Multiple Sclerosis
  4. MS Symptoms That Are Often Overlooked or Misdiagnosed
  5. Understanding Your Multiple Sclerosis (MS) Symptoms
  6. Diagnosis of MS
  7. MRIs and Other Tests
  1. Fatigue and MS
  2. Heat Intolerance and MS
  3. Depression and MS
  4. Progressive Multiple Sclerosis
  5. Multiple Sclerosis Relapses, Exacerbations, Flares, Attacks
  6. Symptom Management Tips

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Multiple Sclerosis In Children is being recognized with increasing frequency

Medical News Today
Article Date: 11 Mar 2009

Helen Yates, Chief Executive of MSRC, commenting on this paper said; "Whilst we are always saddened to hear of MS in the very young, it is very important that the medical profession is becoming increasingly aware that the condition DOES exist in children. MSRC is working to provide as many resources as possible for young people with MS and their families"

Introduction

Multiple sclerosis (MS) in children is being recognized with increasing frequency. The first descriptions of MS in children were published by Charcot between 1829 and 1849, though it was not for another 50 years that MS in children was again described in the literature (Hanefeld, 2007). There are now several national programs focused on the research and clinical management of children with MS. Recently, an International Pediatric Multiple Sclerosis Study group was constituted with the goal of fostering collaborative efforts (for more information, email: info@ipmssg.org).

» Read More

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MS Resource Links

At our website (http://www.msviewsandnews.org), use our listings of MS Resource links to instantly link to other MS organizations.

Click here to see our current listing. ( this will be modified in the coming days)


If you are not yet registered to receive our weekly e-newsletter, click this link to register.


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Wednesday, March 11, 2009

Emotional Changes for those with Multiple Sclerosis

In addition to its physical symptoms, MS may have profound emotional consequences. At first, it may be difficult to adjust to the diagnosis of a disorder that is unpredictable, has a fluctuating course, and carries a risk of progressing over time to some level of physical disability. Lack of knowledge about the disease adds to the anxieties commonly experienced by people who are newly diagnosed. In addition to these emotional reactions to the disease, demyelination and damage to nerve fibers in the brain can also result in emotional changes. Some of the medications used in MS—such as corticosteroids—can also have significant effects on the emotions. Some of the emotional changes observed in MS include the following:

-Major depressive episodes as well as less severe depressive symptoms
-Grieving for losses related to the disease
-Stress and reactions to stressful situations
-Generalized distress and anxiety
-Emotional lability or mood swings
-Pseudobulbar Affect - uncontrollable laughing and/or crying
-Inappropriate behavior such as sexual aggressiveness

» Read More

Please return here to leave any comments or ask any questions. Use the comment link found below - thank you


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MS and Your Emotions

The National MS Society and Healthology developed the following video to help you learn more about positive ways to manage the emotional impact of MS.

Watch the video webcast


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Common / Rare or Mysterious / other - SYMPTOMS of Multiple Sclerosis

Common Symptoms of Multiple Sclerosis (MS)

There are over 50 signs and symptoms linked with multiple sclerosis (MS). Your symptoms will vary in their duration, severity and treatment.

Mysterious or Rare Symptoms of Multiple Sclerosis

Some MS symptoms are so strange or vague that doctors routinely misdiagnose them or ignore patients' complaints, leading to frustration and delayed diagnosis. Other symptoms occur infrequently, and doctors are simply not used to seeing them or treating them and patients may not know that they are linked to their MS.

MS Symptoms That Are Often Overlooked or Misdiagnosed

Even after a person is diagnosed with multiple sclerosis (MS), certain symptoms are often not taken seriously or people are told that these problems "could not possibly be related to their MS" - even by their neurologist or treating physician. Be assured that the following are very real symptoms of MS.

Understanding Your Multiple Sclerosis (MS) Symptoms

Multiple sclerosis (MS) has a wide range of symptoms and signs. From cognitive difficulties to problems controlling muscles, MS can have an effect on almost any body system. By knowing the symptoms you can more actively manage your MS.

Don't miss another issue of our weekly MS Related e-Newsletter.

Register by clicking HERE.

source: ms.about.com

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Web Resources for Individuals with Multiple Sclerosis (MS)

MS Views and News provides all affected by Multiple Sclerosis with information to help manage this disease. Use the link found on our homepage to register, to receive our weekly e-Newsletter.


The following official websites of various MS-related organizations provide information, education, and support to individuals with MS, their families, and other interested individuals. Topics include MS research, disease treatments, symptom management, MS center locations, additional resources, and social/community support.

The American Academy of Neurology
www.aan.com

Consortium of Multiple Sclerosis Centers (CMSC)
www.mscare.org or www.narcoms.org

International Organization of Multiple Sclerosis Nurses
www.iomsn.org

Multiple Sclerosis Foundation
www.msfocus.org

National Multiple Sclerosis Society
www.nmss.org

The Heuga Center
www.heuga.org

The Latin American Association for Multiple Sclerosis
www.ulasem.org


The Multiple Sclerosis Resource Centre
www.msrc.co.uk


MS Views and News, Inc.
www.msviewsandnews.org


Have a Question, Comment or information for others? If so, please use the post comment link found below. Your name and email address would be appreciated but is not necessary unless you want a response from others. Thank You
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Phenominal video on Technology - NOT MS related

This video link was provided by Steve Sp.. in Ft. Lauderdale. - Thanks Steve

Fantastic video on the progression of information technology, researched by Karl Fisch, Scott McLeod, and Jeff Bronman, remixed By the way, I did not create this video! Search on the names above if...
This is mind blowing. Watch to the end.
Sony played this video at their executive conference this year.
Caution: It may leave you a little breathless ----



AMAZING NO ?????

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Federal funding for stem cells means new jobs for Michigan

Examiner.com - March 10, 2009

President Barack Obama's executive order restoring federal funding for embryonic stem cell research, coupled with voter approval of Proposal 2 last November, which legalized embryonic stem cell research in Michigan, means that new jobs can come to the state as the research gets under way.

The University of Michigan has already formed an embryonic stem cell research consortium, with other studies being undertaken at Wayne State University. The National Institutes of Health (NIH) has been allocated $10.4 billion under the stimulus program, with much of it likely to go to embryonic stem cell research. Supporters of Proposal 2 have estimated that embryonic stem cell research could create at least 8,000 jobs in a state with the nation’s highest unemployment rate.

Embryonic stem cells, which come from donated leftover embryos at fertility clinics that would otherwise be discarded, are capable of great modification, and may be able to replace damaged, diseased or destroyed cells of all kinds. They have enormous potential for regenerative medicine, tissue engineering and medication testing, possibly to leading to new treatments and cures for a wide range of devastating diseases and conditions, including multiple sclerosis, amyotrophic lateral sclerosis (Lou Gehrig’s disease), Huntington’s disease, Alzheimer’s disease, diabetes, stroke and spinal cord injuries.

Obama's executive order reversed former President George W. Bush's 2001 executive order that restricted federal funds to stem cell lines that had already been created. In the intervening eight years, the U.S. has fallen behind the developed world in stem cell research. Obama has also directed that ideology will no longer trump science when it comes to making federal policy.

It is a win-win situation all the way around. Embryonic stem cell research creates new hope for treatments and cures for millions of Americans, while new jobs will come to Michigan's world class scientific research institutions.





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Tuesday, March 10, 2009

Join Talk MS in March

MS in Balance (SM): your life in full

Join Talk MS in March

for Celebrating MS Awareness Month

Dear ___________

On March 25th, MS In BalanceSM will release a new online video:

Celebrating MS Awareness Month

In just 30 minutes, you can hear MS LifeLines® Ambassadors share personal stories, techniques and tips that keep them motivated and inspired to live well with relapsing MS.

This Talk MS program will feature special guests, including:

MS LifeLines Ambassador Mike
MS LifeLines Ambassador Vickie
MS LifeLines Ambassador Nicole

Don't miss your opportunity to Talk MS!

Join Talk MS on March 25th for your chance to submit a question to Dr. Schapiro, who may answer it in a future event!

register today

When you register, you will receive an email notification when this video is ready for viewing!

Phone registration is no longer available for MS In Balance webevents. Registration is only available online.

P.S. Do you want to learn more about the Peer Connection program?

Join Talk MS for Celebrating MS Awareness Month to learn more!

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Phase II Follow-up Data on BHT-3009 (DNA VACCINE) for Treatment of Multiple Sclerosis

Business Wire
March 09, 2009 07:01 AM Eastern Daylight Time

Bayhill Therapeutics to Present Phase II Follow-up Data on BHT-3009 for Treatment of Multiple Sclerosis


Abstract Accepted for 61st Annual American Academy of Neurology (AAN) Meeting

Survey Protocol Data Demonstrate Reduction in Relapse Rates and Decreases in Brain Lesions

SAN MATEO, Calif.--(BUSINESS WIRE)--Bayhill Therapeutics Inc., a clinical-stage biopharmaceutical company leveraging its proprietary BHT-DNA™ platform to develop novel and targeted autoimmune disease treatments, today announced that an abstract titled “One Year Follow-up Results from a Phase II Trial of the BHT-3009 DNA Vaccine for Multiple Sclerosis,” has been accepted for presentation at the 61st Annual American Academy of Neurology (AAN) meeting, to be held in Seattle, Washington from April 25 through May 2, 2009.

Data in the abstract indicates that BHT-3009 has a durable effect and continues to have a favorable safety profile for up to 12 months following the completion of dosing. BHT-3009 is an antigen-specific plasmid encoding myelin basic protein (MBP) that aims to reprogram the immune system to tolerize to, rather than attack, myelin antigens in the central nervous systems of multiple sclerosis (MS) patients.

» Read More

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Frequency and clinical patterns of multiple sclerosis in Arab countries: a systematic review

summary: In this article the authors investigated clinical characteristics and laboratory findings of people with MS from Arab countries. Though there seemed to be many shared features with people with MS in western countries, there was a high proportion of optic-spinal forms of MS and a low proportion of positive oligoclonal bands, as has been described in Asian countries. Whether these similarities with Asian-type MS are due to similar genetic background or similar environmental characteristics is something that has to be clarified in future studies.

Neurology Department, New Cross Hospital, Wolverhampton, UK.

The susceptibility of various populations to multiple sclerosis (MS) and the clinical patterns of the disease are thought to be different. Nineteen articles related to incidence, prevalence and clinical patterns of MS in Arab populations were identified by keyword searching of Medline and Embase, and review of references in all relevant papers. Data were only available for the Kuwaiti, Jordanian, Libyan, Saudi, Iraqi, Palestinian (including Arabs living in Israel), and Omani populations.

» Read More

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Multiple Sclerosis Research Study To evaluate the safety and tolerability of natalizumab when added to glatiramer acetate

results of a phase 2, randomized, double-blind, placebo-controlled study.
Neurology. 2009 Mar 3;72(9):806-12.

Goodman AD, Rossman H, Bar-Or A, Miller A, Miller DH, Schmierer K, Lublin F, Khan O, Bormann NM, Yang M, Panzara MA, Sandrock AW; GLANCE Investigators. -

Collaborators (55)

Department of Neurology, University of Rochester Medical Center, Rochester, NY 14642, USA. andrew_goodman@urmc.rochester.edu

OBJECTIVE: To evaluate the safety and tolerability of natalizumab when added to glatiramer acetate (GA) in patients with relapsing multiple sclerosis. The primary outcome assessed whether this combination would increase the rate of development of new active lesions on cranial MRI scans vs GA alone.

» Read More.

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Monday, March 9, 2009

For those with Multiple Sclerosis - When Is Solu-Medrol Used

How Doctors Make the Decision to Use Solu-Medrol

By Julie Stachowiak, Ph.D., About.com - Created: March 5, 2009

Many of us with multiple sclerosis, especially relapsing-remitting MS (RRMS), have experienced a course of Solu-Medrol, the high-dose intravenous corticosteroid used to lessen the symptoms of relapses by decreasing inflammation in the central nervous system.

For many people, the effects of Solu-Medrol are just short of miraculous – MS symptoms that were debilitating before the needle was even placed in the vein may be manageable or even gone by the time the first infusion is complete. Certainly by two or three days into the course, the majority of people can report that those symptoms are much better. However, losing the MS symptoms (and the panic that often accompanies them) allows people to shift their attention to the side effects of Solu-Medrol, which can be uncomfortable (to say the least), although not life-threatening.

Click here to be re-directed to original story posted at ms.about.com



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Vellore research centre makes stem cell breakthrough


The Times of India -
9 Mar 2009, 0054 hrs IST, Jaya Menon, TNN

(Information for this article provided by: (MS Peer) Shub S.)

VELLORE: It's a breakthrough that may have the country's medical and scientific community sitting up and taking notice. The Centre for Stem CellResearch at Christian Medical College has succeeded in reprogramming cells drawn from adult mice and making them function like stem cells found in the human embryo.

It has opened a new chapter in stem cell therapy in the country, as the technology can now be applied to generate similar stem cells from adult human cells too. These can be used to study genetic disorders relating to blood, muscle, brain and even diseases like diabetes. The use of embryos to draw stem cells has been the subject of a controversy, and the latest discovery may mean that embryos need not necessarily be used in the process.

''This is an important milestone for India in stem cell research and signifies a paradigm shift in the way diseases can be treated. We will now begin work on human cells to generate disease-specific iPS cells to study hereditary diseases,'' Dr Alok Srivastava, who heads the research centre, said.

''For India, this means once we are able to take this on to human cells also; we will not have to rely on external help for generating models for studying and treating human diseases. With regard to clinical significance, as anywhere else in the world, we need to be very careful not to give an impression to people that this is going into human treatment anytime soon. It could be years before that happens and it will be only after the safety of use of such cells is clearly established,'' he said.

In February, the research centre, supported by the department of biotechnology, ministry of science and technology and CMC, was successful in generating in mice these ''induced pluripotent stem (iPS) cells'' which are similar to embryonic stem cells. Researchers will soon move on to generating similar cells from normal and diseased human cells.

The centre looks primarily at translational research - research that has potential for clinical applications.

Embryonic stem cells have great capacity for self-renewal and are used in regenerative medicine and tissue replacement. The induced pluripotent stem (iPS) cells generated at the research centre may have the same potential, researchers say. India is the fifth country, after Japan, US, China and Britain, to achieve these results.

The iPS technology is relatively new and acknowledged worldwide as the ''ultimate manufacturing process''. Scientists can now use the human skin or other cells like an assembly line to roll off cells that have the ability to adapt themselves to any tissue in the body that requires healing or replenishment.





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