Please visit our MS learning channel on Youtube, which provides hundreds of topics from our education programs, that were video-recorded and archived here: www.youtube.com/msviewsandnews

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Disclaimer: 'MS Views and News' DOES NOT endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.

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Saturday, April 11, 2009

Leading the way in Treatment-based Multiple Sclerosis Research

AN MS Diagnosis can be Frightening...

Right now, there is no cure, but the Myelin Repair Foundation is leading the way to new treatments offering new hope.

Watch this video to see how myelin repair research could help you.

http://myelinrepair.org/hope/

The Myelin Repair Foundation is the only organization exclusively devoted to investigating the way in which the body creates and repairs myelin —one of the most promising approaches to treating MS.



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Friday, April 10, 2009

Lauren's Tysabri Diary




My Tysabri Diary...

Hi everyone,

I just returned home from my 32nd Tysabri infusion, all went well this time as my regular infusion nurse was there, and she got me on the first stick, yay!

It was pretty quiet in there today, and really nothing new to report..., although a friend of mine that just changed over to Kaiser and also receives Tysabri, wanted to know if we can have our infusions together, so we're trying arrange that for next month.


To finish reading this entry and other information
that Lauren writes about, then please click here




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Thursday, April 9, 2009

Genetically Modified stem cells treat autoimmune disease

Source: ABC Science

By: Wendy Zuckerman - ABC

Mice with a human equivalent of multiple sclerosis have been successfully treated using genetically modified stem cells, say a group of Australian researchers.


The work, led by Dr James Chan of Monash University's Centre of Inflammatory Diseases, may lead to the development of a similar technique to treat autoimmune diseases in humans.

» Read More

Lab mouse

After the mice were treated they became completely resistant to the disease, say researchers (Source: iStockphoto)


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JK Rowling Steps Down from MS Society Scotland?

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Posted by: Sue
April 08, 2009, 05:08 PM

There is a new report tonight stating J.K. Rowling has resigned her role as Patron of MS Society Scotland, an organization she has long supported. The Press Association is reporting tonight that JKR is stepping aside from her involvement in the charity due to internal conflicts, and has this quote from the Harry Potter author:

"I have now reluctantly decided that I cannot, in good conscience, continue to be the public face of a charity that is changing beyond recognition from the one with which I have been so proud to be associated."

Readers will recall that Jo has long supported MS Society Scotland, often hosting elaborate fund raising gala events for the charity over the years, and has long worked to help raise funds and awareness of Multiple Sclerosis, the disease that claimed the life of her mother. We are working to learn more on her resignation, and will update with more when we can.

Source: The Leaky Cauldron


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Wednesday, April 8, 2009

If you are a Hoosier and Affected by Multiple Sclerosis? Tell your story

Special to the Tribune-Star
It’s estimated that more than 70,000 Hoosiers are affected by multiple sclerosis, a disease of the central nervous system. Whether you have the disease yourself, or if you have a loved one, friend, co-worker or neighbor with MS, tell your story at www.differentfacesofms.org.

As part of its own economic stimulus plan for MS, the Indiana State chapter has created the Different Faces of MS campaign and Web site to not only tell compelling, personal stories about this disease, but to provide a vehicle for raising funds for research, programs and services. The goal is to generate 10,000 online gifts, while cataloging 500 “Different Faces of MS” stories.

to finish reading click here...



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MULTIPLE SCLEROSIS CENTER OF ATLANTA NAMES NEW CEO

Atlanta - ATLANTA – The Multiple Sclerosis Center of Atlanta (MSCA), a non-profit health center dedicated to the diagnosis, treatment and support of people living with multiple sclerosis (MS), announced R. Terry Smith as the Center’s new chief executive officer. In his new position, Smith now manages all of the Center’s operations and oversees its development programs.

Prior to joining the MSCA, Smith was a 30-year veteran of newspaper publishing. From 1997-2009, he served as president and chief operating officer of the Marietta Daily Journal, Cherokee Tribune and Neighbor Newspapers. He is active in several metro Atlanta community organizations and serves on the boards of Southern Polytechnic State University Foundation in Marietta, Ga., Signature Bank of Georgia and the Multiple Sclerosis Foundation of Georgia.

Additionally, Smith is a past director and officer of the Georgia Press Association and former chair of the University of the South Parents’ Council in Sewanee, Tenn. He was also the founding director and past president of the Hobe Sound Chamber of Commerce in Hobe Sound, Fla. Smith
resides in Kennesaw with his wife, Jackie.

In making the announcement, Dr. William H. Stuart, founder and medical director of the MSCA, said, “Our center, which was formed to advance the availability of new treatments for MS patients in this region, and to provide comprehensive care for every one of our patients, will realize a new level of care with the addition of Terry Smith. His long experience in the newspaper business and his sensitivity to MS patients will allow our center to realize a new level in comprehensive care. Long interested in health care and its equitable delivery, Terry will carry forth our mission and its intended level as a model for the long-term care of all chronic diseases.”


Click here to continue reading from the source that this originated.


Have a comment? We'd love to read what you have to say...
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Tuesday, April 7, 2009

HEAR PERSONAL STORIES FROM OTHER PEOPLE WITH MS

STAY INFORMED ABOUT MULTIPLE SCLEROSIS AND HEAR PERSONAL
STORIES FROM OTHER PEOPLE WITH MS

If you are looking to learn more about MS therapies, the TYSABRI Teleconference and Webinar series may help you make a more informed decision.

Teleconference Series

Dial in to hear TYSABRI patients share their personal experiences—from the impact that TYSABRI has had on their lives to details about their infusion experience.

Webinar Series

Dial in to hear a physician discuss treatment information, such as the importance of starting treatment early, the benefits and potential risks of treatment, and how treatment can have a positive effect on quality of life, as well as to hear a panel of TYSABRI patients share their personal experiences.

In both the TYSABRI Teleconference and Webinar series, you'll also have the opportunity to submit your own questions anonymously to the panel and have them answered live, all in the comfort of your own home.

Dates and times for the 2009 Teleconference and Webinar series are listed below.

Call 1-866-644-8540 10 minutes prior to the start of each teleconference and webinar to enroll.

For the webinars, you will also log in to view the slide presentation for the program. Go to: www.meetingcenter.net, click on "join meeting" and enter the meeting number for the webinar you would like to join.

So mark your calendar, give us a call, and meet us on line.

For a complete listing of MS webinars, teleconferences, and events in your area, visit www.TYSABRI.com.

Have a Question, Comment or information for others? If so, please use the post comment link found below. Your name and email address would be appreciated but is not necessary unless you want a response from others. Thank You

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The Heuga Center for Multiple Sclerosis’ Five-Day CAN DO® Program

The Heuga Center for Multiple Sclerosis’ CAN DO program provides a unique opportunity for people and families living with multiple sclerosis (MS) to interact with 45 MS specialists. In tough economic times these life-changing programs are no less remarkable and perhaps all the more valuable. Given this, The Heuga Center is offering one night's free lodging for those who register by April 8.


The program, taking place in Vail May 13 - 17, focuses on improving the quality of life of people living with MS by answering questions and giving recommendations based on individual assessments and lifestyle goals. CAN DO is an innovative educational and wellness program that teaches participants how to maximize their health and improve their quality of life.


To ensure individualized attention, the CAN DO program is limited to 25 participants with MS. Each participant is encouraged to bring a support partner, often a family member or friend, who may attend the program’s support partner sessions in addition to participating in the numerous workshops and lectures.


Michelle K., a recent CAN DO participant shared her experience. “This program has promoted health and created hope in my life. The CAN DO program gave me new tools. I learned how to better balance the physical, intellectual, emotional, and spiritual dimensions within my MS experience. Additionally through consultations with individual expert team members and interactions with group members, I felt more connected and a greater sense of control. Even though my husband has been supportive and willing to understand MS, he learned much more about MS and how to continue his support for me. I think his experience with other support partners helped him feel not alone.”


The Heuga Center offers three specific heath and wellness programs for people who have multiple sclerosis and their families. The flagship program is the five-day CAN DO program. CAN DO 2 is a two-day follow up, and the JUMPSTART program is a one-day introduction to The Heuga Center’s health and wellness philosophy. All of the Center's programs are based on the philosophy that you can have a chronic condition and have your health. Scholarships are available for CAN DO program participants.


Based in Edwards, Colo., The Heuga Center for Multiple Sclerosis is a nonprofit organization leading the way with comprehensive programs that empower people and families living with multiple sclerosis (MS) to transform and improve their quality of life.

The Heuga Center’s nationally-renowned health and wellness programs are: five-day CAN DO®, two-day CAN DO 2® and one-day JUMPSTART®.

Visit the Web site at www.heuga.org to learn more

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Biogen's stock rises on takeover chatter

Tue Apr 7, 2009 1:41pm EDT

PHILADELPHIA (Reuters) - Shares of Biogen Idec Inc (BIIB.O) were nearly 5 percent higher on Tuesday amid stock market speculation the biotechnology company could be a takeover target, traders said.

Shares of Biogen were up 4.9 percent to $52.05 in afternoon trading on Nasdaq. Biogen's gains countered weakness in the biotech index .BTK, which was down 1.9 percent.

"Biogen Idec is recently up ... on renewed takeover chatter," said Paul Foster, options strategist at theflyonthewall.com.

Biogen decline to comment.

Traders in Europe said there were market rumors that Sanofi-Aventis SA (SASY.PA) could bid at least $75 a share for Biogen. Sanofi could not be immediately reached for comment.

Biogen has been under renewed pressure from billionaire investor Carl Icahn, who plans to nominate his own slate to serve on the biotechnology company's board of directors.

"Biogen is getting a lot of attention again on hopes that Icahn can gain some traction and push it toward a sale," said one trader who declined to be named.

Biogen, which won a previous proxy battle against Icahn, has recommended that its stockholders vote against Icahn's latest proposal.

Icahn previously accused Biogen of deliberately sabotaging an earlier auction of the company because it would not allow potential bidders to talk to its partners, Elan Corp Plc (ELN.I) of Ireland and biotechnology company Genentech Inc.

Biogen, which sells the multiple sclerosis drugs Avonex and Tysabri, and the cancer drug Rituxan, said it conducted a responsible auction, but no buyer was interested in acquiring the company for an acceptable price.

(Reporting by Jessica Hall in Philadelphia, Doris Frankel in Chicago, Bill Berkrot in New York and Quentin Webb in London; Editing by Tim Dobbyn)


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Monday, April 6, 2009

The Myelin Repair Foundation Needs Your Help

Myelin Repair Foundation


Raise $100K for Our Next Clinical Trial

Dear Friend of MRF,

MRF Principal Investigator Steve Miller, Professor of Biomedical Sciences from Northwestern University, has a promising idea for an MS treatment

In multiple sclerosis, the immune system sees myelin proteins as foreign material and attacks them. Recent research indicates that we may be able to "trick" the immune system into believing that the myelin protein is not a foreign material.

Bringing this idea to a clinical trial will help us determine whether this innovative treatment is safe and effective for MS patients.

MRF needs your help to make this clinical trial a reality.

The total cost is over $2 million. However, through collaborations with other funders, the MRF is providing only $200,000 for the trial over the next two years. ($100,000 for the first year and $100,000 for the second year).

Donate today. Help us reach the goal of $100,000 by June 30.

Remember, your contributions to the clinical trial will be matched 100% thanks to another generous donor -- doubling your impact and bringing us straight to the finish line.

Share the news about the potential of this clinical trial to 10 friends and family and help us spread the word.

Thank you for your continued interest and support.

Scott Johnson

Scott Johnson
President
Myelin Repair Foundation
18809 Cox Avenue, Suite 190
Saratoga, CA 95070
www.myelinrepair.org

Notes: This is an early stage clinical trial being conducted in one research institution. All clinical trials patients have already been selected.

If for some reason the clinical trial does not move forward as planned, you can be assured that 100% of your donation will be used to support other myelin repair research conducted by the MRF.

Copyright © 2002-2009 Myelin Repair Foundation. All rights reserved

1-877-TOFIXMS

Best treatment for MS may depend on disease subtype

Source: Huliq.com
Information provided by: Stuart Schlossman of MS Views and News, Inc.

Animal studies by University of Michigan scientists suggest that people who experience the same clinical signs of multiple sclerosis (MS) may have different forms of the disease that require different kinds of treatment.

The results, if borne out in further studies, point to a time when doctors will be able to target specific inflammatory processes in the body and more effectively help MS patients, using available drugs and new ones in the pipeline.

Since the 1990s, the treatment picture has brightened for people with multiple sclerosis in its most common form, relapsing-remitting MS. Beta interferon drugs and glatiramer acetate (marketed as Copaxone) have proved effective at decreasing the attack rate and suppressing inflammatory plaque development in many patients with MS. Yet why the drugs help some patients, but not others, has remained a mystery.

>> READ MORE



Have a comment? Please post using the link found below. Thank You
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Interferon could be key to preventing or treating multiple sclerosis

Source: Huliq News

Multiple sclerosis (MS) results when the body's own defense system attacks nerve fibers in the brain and spinal cord. Now scientists led by John Russell, Ph.D., at Washington University School of Medicine in St. Louis have shown that interferon-gamma plays a deciding role in whether immune cells attack and injure the central nervous system (brain and spinal cord) in mice.

Interferon-gamma is an immune system protein that helps the body defend itself from invaders. In their latest research, which appeared in the October issue of the Journal of Experimental Medicine, the researchers show that interferon-gamma determined whether activated immune cells — previously primed to go after nerve cells — would actually cause nerve damage in experimental mice.

............. >>> READ MORE



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BG-12 significantly reduced brain lesions in multiple sclerosis

Source: Huliq.com

Biogen Idec (NASDAQ: BIIB) today announced the publication of Phase IIb data showing that a 240 mg three-times-daily dose of the company's novel oral compound, BG-12 (BG00012, dimethyl fumarate), reduced the number of new gadolinium enhancing (Gd+) lesions by 69 percent in patients with relapsing-remitting multiple sclerosis (MS) when compared to treatment with placebo (p<0.0001). The data also showed a 53 percent reduction in the mean number of T1-hypointense lesions and a 44 percent reduction in cumulative new Gd+ lesions in patients treated with BG-12 compared to treatment with placebo. The presence of Gd+ lesions is thought to indicate continuing inflammatory activity within the central nervous system. T1-hypointense lesions are associated with significant breakdown and loss of brain tissue. An ad hoc analysis conducted during the study showed a decrease in the likelihood of Gd+ lesions evolving into T1-hypointense lesions (black holes), warranting further clinical study into the potential neuroprotective and anti-inflammatory effects of BG-12. These results have been published in the October 25th issue of The Lancet.

>>> READ MORE
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'Compassion Fatigue' Drains Some Caregivers

Information provided by Karen D. in Coral Springs:

By Todd Neale, Staff Writer, MedPage Today
Published: April 03, 2009
Reviewed by Zalman S. Agus, MD; Emeritus Professor
University of Pennsylvania School of Medicine.
LITTLE FALLS, N.J., April 3 -- Healthcare professionals who care for cancer patients may suffer from compassion fatigue, a condition similar to burnout, researchers found.

Witnessing the pain and suffering of cancer firsthand can affect how nurses, doctors, and others who care for terminally ill patients interact with patients and other people around them, according to Caroline Carney Doebbeling, M.D., of Indiana University School of Medicine and the Regenstrief Institute in Indianapolis, and colleagues.

People who develop compassion fatigue may have depression and anxiety disorders, may distance themselves emotionally from their work, and may be chronically tired, irritable, and bored, Dr. Doebbeling and colleagues reported in a review published in the March issue of the Journal of Health Psychology.

Continue reading from MedPage today

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Sunday, April 5, 2009

A Certain Kind of Beauty - is an altogether beautiful film about frailty and strength,

Movie: A Certain Kind of Beauty
Published Story by Art of the Accelerated Cure Project

I haven't seen this film, but I thought I'd spread the word:

Dan Aronie was a model and aspiring actor when he was diagnosed with a severe and progressive case of Multiple Sclerosis at 23. At an age where most people are just starting their lives, Dan is faced with contemplating an unsure future. With the support of family and friends, what Dan uncovers is a profound and inspiration inner strength - a certain kind of beauty he never knew he had.

You can see the 68 minute documentary online here:




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MS Organizational (and related) Websites

Valuable MS Blogger Sites

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