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Disclaimer: 'MS Views and News' DOES NOT endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.

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CHAMPIONS TACKLING MS - AWARDS Dinner, Honoring Aaron Boster, MD and Jon e. Glaser, DDS - now open for registration. Visit www.events.msvn.org

Saturday, May 16, 2009

300 neurologists, patients discuss multiple sclerosis in Saudi Arabia

Source: Saudi Gazette
By Farah Mustafa Wadi

JEDDAH – King Abdul Aziz Medical City on Thursday organized a program in connection with the third Multiple Sclerosis Day at the Movenpick Hotel.

As many as 300 local neurologists and a large number of patients attended the event, which focused on recent studies and treatment of multiple sclerosis (MS).

Dr. Hussein Al-Gahtani, a consultant neurologist and professor at King Khalid National Guard Hospital in Jeddah, said that around 100 people were reportedly affected by multiple sclerosis in Jeddah alone.
He explained that the disease was a chronic inflammation that affected the central nervous system.
Al-Gahtani admitted difficulties in finding an appropriate cure for the disease.

However, he said that after six months, new and more effective drugs would be made available here.
Amal Abdul-Rahman, director of the children’s program project who formerly suffered from multiple sclerosis, also spoke. She has designed a website which encourages coordination between MS patients.
Statistics show that multiple sclerosis has spread in the Arab countries including the Kingdom. – SG

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Friday, May 15, 2009

For those with Multiple Sclerosis in Northeast Florida

Dr Daniel Kantor is pleased to announce that he has left the University of Florida & Shands Jacksonville in order to start an organization dedicated to MS patient care, education and research in Ponte Vedra, FL.

His office, called Neurologique, can be reached at (904)834-3007 or info@neurologique.org.

The website is www.neurologique.org .

Neurologique offers academic neurology in a soothing environment and we put the u back in quality


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Thursday, May 14, 2009

In Canada: Five Multiple Sclerosis Research Centres Established

TORONTO, ONTARIO--(Marketwire - May 14, 2009) - In a move intended to significantly accelerate the pace of MS research, the Multiple Sclerosis Society of Canada announced the establishment of five research and training centres involving over 100 established scientists and 250 trainees.

The entities, dubbed endMS Regional Research and Training Centres (RRTC), come less than one year after the MS Society launched a major fundraising initiative to alter the research landscape in Canada.

"The goal of these centres is to boost our capacity to conduct MS research through training of the next generation of MS researchers," says Yves Savoie, president and chief executive officer of the MS Society of Canada.

The five centres are part of the endMS Research and Training Network, a collaboration of MS researchers and trainees across Canada. It is funded entirely by the MS Society of Canada and its goal is to accelerate the pace of discovery so that an end to MS is found as quickly as possible. The establishment of the five RRTCs serves as a key lynchpin in achieving this goal.

To continue reading, please click here.

Then, please return here to leave any comments

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Making use of the resources found at the MS Views and News website

Using our website's links to useful resources can be found by clicking this link, or by using the link found in our resources section found midway down on the left side of this homepage.

Important topics as Alternative therapies can be found. Complimentary alternatives including herbs and vitamins, Yoga, Tai Chi, assistive devices and more can be found when clicking on the Alternatives link.

Other much needed resource link categories re-direct you to globally known MS organizations, Pharmaceutical resources, Symptom Management and much more.

Weekly, this main directory link: "MS Resource Web Links" is updated, in order to continually provide you with information that will help you to better understand and manage Multiple Sclerosis. Aditionally, read the articles from our Occupational Therapist and the MS Nurse.

Inform others who are affected by MS, to let them know what is available to them when using the MS Views and News website.

If not yet receiving our weekly MS e-newsletter, :"Stu's Views and MS Related News", click the link found to the left, to register.

Stu's Views & M.S. News now has a syndicated feed (which livejournal bloggers can add to their friend's list and see daily). http://syndicated.livejournal.com/msviews/ - Use this link to receive our daily postings to our MS blog.

Now too, you can follow me on Facebook.


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There are Four Disease Courses of Multiple Sclerosis

information obtained by Stuart

There are many people diagnosed with SPMS (secondary progressive MS ) and PPMS (Primary Progressive MS).

Have you ever heard the term PRMS ? Progressive-Relapsing MS..
In fact, now known, there are Four Disease Courses of MS . Four disease courses have been identified in MS: Relapsing-Remitting MS (RRMS), Primary Progressive MS (PPMS), Secondary-Progressive MS (SPMS), and Progressive-Relapsing MS (PRMS)

While many often write to me, asking how they can get more information on SPMS and/or PPMS , there really has not been much to publish.

However, for the many who do not know where to seek information on PPMS, SPMS, PRMS, or RRMS, click either of these links that I just provided, which will bring you to the National MS Society's website.

Recently, a person asked me about respiratory problems and PPMS and until I searched this on the MS Society's website, I would not have know that the search would bring me to so many articles. Click here to see what I found at their site.

So much to learn for those that have time to read and search and read some more...

Use the web resources section found at the website of:


To Link and learn almost all there is to know of Multiple Sclerosis

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Please use the post comment link found below.
Thank You
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Wednesday, May 13, 2009

For those affected by Multiple Sclerosis, follow me....

Follow me on Facebook: Stuart Schlossman

or follow me on Twitter: MSViews_andNews


or follow our blog postings using Live Journal


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GREAT News for Dolphin Fans (Not MS related)

THIS news item - Made me SMILE

By ARMANDO SALGUERO
- asalguero@MiamiHerald.com

Jason Taylor is expected to rejoin the Miami Dolphins as early as today.

Dolphins general manager Jeff Ireland and agent Gary Wichard were in negotiations since early Monday morning and the sides are very, very close to announcing a one-year deal.

In negotiating this reunion of the team's all-time sacks leader and the club that drafted him in 1997, Taylor snubbed overtures from a handful of clubs, not the least of which was New England.

Continue to read from the MIAMI HERALD


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IS The Risk Of Cancer Increasing, with New MS Drugs Growing In Popularity

New MS Drugs Growing In Popularity But Are They Increasing The Risk Of Cancer?

May 13, 2009
Current CIHR-funded research: In the first study of its kind, researchers from Canada are examining whether beta-interferon, widely used to treat multiple sclerosis (MS), increases the risk of cancer for MS patients.

"Given the increasing popularity of MS drugs, even a moderate increase in the risk of cancer could translate into a substantial number of new cancer cases," says lead researcher Dr. Helen Tremlett at the University of British Columbia. "Our study will also benefit from its independence from the pharmaceutical industry, which manufactures beta-interferon."

Did you know: Canada has one of the highest rates of MS in the world - as many as 75,000 Canadians have the disease.

Source
Canadian Institutes of Health Research

Article URL: http://www.medicalnewstoday.com/articles/149809.php


Have something to share with others? If so, please use the post comment link found below. Your name and email address would be appreciated but is not necessary unless you want a response from others. Thank You
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Pathway To Reactivate Myelin Repair identified by Researchers

May 13, 2009

UMDNJ researchers have identified a key pathway that could lead to new therapies to repair nerve cells' protective coating stripped away as a result of autoimmune diseases such as Multiple Sclerosis (MS). An article reporting their findings will appear in the May 13 online edition of the Journal of Neuroscience.

Myelin is fatty material that coats and protects the ends of nerve cells. The loss of myelin and myelin-producing cells impairs the ability of nerves to conduct signals. A severe loss may lead to erosion of nerve tissues and result in permanent damage.

"In people with MS that is relapsing-remitting, the body can replace myelin that has been stripped away," explained Teresa L. Wood, Ph.D., the study's lead investigator. "But, after repeated attacks, that process of replacement no longer functions well," she added.

continue to read from Medical News Today


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Low Dose Naltrexone for Multiple Sclerosis - Julie's Journal: Month One

Written By Julie Stachowiak, Ph.D., About.com Guide to Multiple Sclerosis
Tuesday May 12, 2009

Here we are, a full month after starting my personal experiment with low dose naltrexone (LDN) for my relapsing-remitting MS symptoms. I am still taking 3 mg of LDN each night between 9:00 pm and midnight and still on my Copaxone.

Overall, I have to say, I am really, really pleased. No, more than that – I am thrilled. Yes, I am still a person with MS and still feel like one most of the time. However, I continue to have moments where I feel like I don’t have MS at all – it is an amazing feeling of clarity and lightness, without the fatigue and the fuzz and the buzz and the half-second delay before something registers with my brain. I would say that these moments come about every third day for 2 to 5 hours each time. I had forgotten what it was like to feel, well, fine.

Click Here to read Julie's full article.

Please Return to this page if you want to leave a comment or ask a question.

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Tuesday, May 12, 2009

World MS Day update

Women with MS climbing Everest and 165 events in 51 countries – World MS Day update

There are only two weeks until the first World MS Day on 27 May 2009 and excitement is mounting.


Read MORE from the MSIF website


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MS Exacerbation - Causes and Treatments

An exacerbation of MS (also known as a relapse, attack, or flare-up) causes new symptoms or the worsening of old symptoms. It can be very mild or severe enough to interfere with a person’s ability to function at home and at work. No two exacerbations are alike, and symptoms vary from person to person and from one exacerbation to another. For example, the exacerbation might be an episode of optic neuritis (caused by inflammation of the optic nerve that impairs vision) or problems with balance or severe fatigue. Some relapses produce only one symptom (related to inflammation in a single area of the central nervous system) while other relapses causes two or symptoms at the same time (related to inflammation in more than one area of the central nervous system).

To be a true exacerbation, the attack must last at least 24 hours and be separated from the previous attack by at least 30 days. Most exacerbations last from a few days to several weeks or even months.

Continue to read MS Exacerbation, by clicking here.

Source: National MS Society
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Heat & Temperature Sensitivity concerning those with Multiple Sclerosis

Stuart Says: "Like me, I know that many of you, also have this problem"

Heat & Temperature Sensitivity

Many people with MS experience a temporary worsening of their symptoms when the weather is very hot or humid or they run a fever, sunbathe, get overheated from exercise, or take very hot showers or baths. For example, some people notice that their vision becomes blurred when they get overheated—a phenomenon known as Uhthoff's sign. These temporary changes can result from even a very slight elevation in core body temperature (one-quarter to one-half of a degree) because an elevated temperature further impairs the ability of a demyelinated nerve to conduct electrical impulses.

The ‘Hot Bath’ Test Used for Years to Diagnose MS

For many years, the “Hot Bath” test was used to diagnose MS. A person suspected of having MS was immersed in a hot tub of water, and the appearance of neurologic symptoms or their worsening was taken as evidence that the person had MS.

Heat-Related Symptoms are Temporary

It is important to remember that heat generally produces only temporary worsening of symptoms and does not cause more disease activity (demyelination or damage to the nerves themselves). The symptoms are generally rapidly reversed when the source of increased temperature is removed. People with MS who are planning to move to a very warm climate should try to visit first; plans may have to be changed if the weather seriously worsens MS symptoms.

Strategies for Easing the Effects of Heat

  • Stay in an air-conditioned environment during periods of extreme heat and humidity. [If an air conditioner is needed to help minimize the symptoms of MS, the cost of this equipment may be tax deductible if the physician has written a prescription for it.]
  • Use cooling products (vests, neck wraps, bandanas, etc.) during exercise or outdoor activity, or pre- and post-cool.
  • Wear lightweight, loose, “breathe-able” clothing.
  • Icy drinks such as “slurpees” or popsicles can provide temporary relief.
  • Use an oscillating fan during indoor exercise.
  • Exercise in a cool pool (<85>

Cold Can Also Be a Problem

Some people with MS notice that symptoms, particularly spasticity, become worse in cold weather. It is generally recommended that people with MS who are sensitive to temperature try to avoid extremes of either hot or cold, and that people who are considering a move to a "better" climate try to visit first to see if the climate change is, indeed, beneficial.

source: National MS Society

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Monday, May 11, 2009

The Global Spread of Multiple Sclerosis

Info obtained from ms.about.com

Monday May 11, 2009
It is hard to get a good sense of the spread of multiple sclerosis in some parts of the world. Last summer, the BBC reported on a survey of multiple sclerosis internationally. They have a great map that shows multiple sclerosis prevalence worldwide (the MS Global Map). It is very interesting how well that map "maps" onto the the Anglo-European world. The US, UK, Canada and Northern European countries dominate the map.

They also report on the lack of knowledge and information about multiple sclerosis in some countries, to the point that people with multiple sclerosis experience stigma and are shunned because people think the illness is contagious or the result of "sins in a past life."

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Staying Ahead of MS

Information provided by Karen in Coral Springs, FL. - thank you Karen


Reported May 11, 2009

Staying Ahead of MS

Click a viewing speed on the right to watch Staying Ahead of MS!
Click here to watch Staying Ahead of MS in low speed: Use with an Internet connection using a modem.
Click here to watch Staying Ahead of MS in high speed: Use with a broadband Internet connection.
FREE! Download
Windows Media Player

JACKSONVILLE, Fla. (Ivanhoe Newswire) -- It's a debilitating disease that wreaks havoc on the central nervous system and can rob a person of the ability to walk. Up to 350,000 people in the United States have multiple sclerosis (MS), and 200 new cases are diagnosed each week. An experimental drug holds promise for people hoping to hold on to their mobility.

A 38-year-old attorney, Allison Keller is in the race of her life.

"I would get all sorts of electrical symptoms just shooting up and down my legs and my back," Keller told Ivanhoe.


>> CLICK HERE to see COMPLETE ARTICLE

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Sunday, May 10, 2009

How Progressive-Relapsing MS (PRMS) Differs from Primary-Progressive MS (PPMS)

Source: National MS Society

Primary-progressive MS (PPMS) is characterized by steadily worsening neurologic function from the beginning. Although the rate of progression may vary over time – with occasional plateaus and temporary, minor improvements — there are no distinct relapses (also called attacks or exacerbations) or remissions.

PRMS is also characterized by steadily worsening neurologic function from the beginning, but with occasional relapses along the way. During these relapses, a person is likely to experience new symptoms or a sudden worsening of old symptoms, which last for awhile and then gradually subside.

Ask questions or leave comments by usingthe comments tab found below...

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How Primary-Progressive MS (PPMS) Differs from Relapsing Forms of MS

Source: National MS Society

Approximately 10 percent of people with MS experience a primary-progressive course. For them, the disease progresses fairly steadily from the beginning, without any relapses (also called attacks or exacerbations) or significant remissions. However, the rate of progression differs from one person to another and over time for any single individual.

Although there is a lot of variability among people with PPMS, we know that as a group, they differ in several ways from people with relapsing forms of MS:

  • Relapsing MS is defined by inflammatory attacks on myelin. PPMS involves much less inflammation of the type seen in relapsing MS. As a result, people with PPMS tend to have fewer brain lesions (also called plaques) than people with relapsing MS, and the lesions tend to contain fewer inflammatory cells. People with PPMS also tend to have more lesions in the spinal cord than in the brain. Together, these differences make PPMS more difficult to diagnose and treat than relapsing forms of MS.
  • In the relapsing forms, women are affected 2-3 times as often as men; in PPMS, the sex ratio is 1:1.
  • The average age of onset is approximately 10 years later in PPMS than in relapsing MS.
  • People with PPMS tend to experience more problems with walking and more difficulty remaining in the workforce.
  • In general, people with PPMS may also require more assistance with their everyday activities.
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What We Know About Secondary-Progressive MS (SPMS)

Source: National MS Society

If you have read about secondary-progressive MS (SPMS) or been told by your doctor that you have this kind of disease course, you may be wondering what it is, how it differs from other disease courses in MS, and what the available treatment options are. And you may be looking for information about the research that is being done on SPMS.

The name for this disease course comes from the fact that it follows after the relapsing-remitting course. Of the 85% of people who are initially diagnosed with relapsing-remitting MS (RRMS), most will eventually transition to SPMS, which means that the disease will begin to progress more steadily (although not necessarily more quickly), with or without any relapses (also called attacks or exacerbations).

Click here to review a video from the Nat'l MS Society





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How Secondary-Progressive MS (SPMS) Differs from Primary-Progressive MS (PPMS)

source: NMSS

People are often confused by the terms primary and secondary and the relationship between these two disease courses. Although both are considered progressive courses of MS, one does not follow the other. And, they differ in several important ways.

  • SPMS occurs in people who initially had a relapsing-remitting disease course. In other words, SPMS occurs as a second phase of the disease for many individuals. PPMS is the first — and only — phase of the illness for approximately 10% of people with MS.
  • In SPMS, people may or may not continue to experience relapses (also called attacks or exacerbations) caused by inflammation; the disease gradually changes from the inflammatory process seen in RRMS to a more steadily progressive phase characterized by nerve damage or loss. People with PPMS never experience any relapses.
  • While many of the approved disease-modifying therapies may be effective in some people with SPMS, none of these medications have been shown to be beneficial in PPMS.


Secondary-Progressive MS
follows an initial period of relapsing-remitting MS (the most common form of MS in people who are newly-diagnosed). In SPMS, the disease begins to worsen more steadily, with or without occasional attacks, slight remissions, or plateaus.

Primary-Progressive MS is characterized by steadily worsening neurologic function from the beginning. Although the rate of progression may vary over time — with occasional plateaus and temporary, minor improvements — there are no distinct relapses (also called attacks or exacerbations) or remissions.


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