Please visit our MS learning channel on Youtube, which provides hundreds of topics from our education programs, that were video-recorded and archived here: www.youtube.com/msviewsandnews

joomla ecommerce template -- Scroll left side of this blog for needed resources. Also, use our 'search by topic' tool, to find specific information.

Disclaimer: 'MS Views and News' DOES NOT endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.

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CHAMPIONS TACKLING MS - AWARDS Dinner, Honoring Aaron Boster, MD and Jon e. Glaser, DDS - now open for registration. Visit www.events.msvn.org

Saturday, May 30, 2009

A recent write-up of Stu's Views & MS News - in The Amazing World of Psychiatry: A Psychiatry Blog

The Amazing World of Psychiatry: A Psychiatry Blog

Blog Review: Stu’s Views & MS News

Posted in Blog Review, psychiatry by Dr Justin Marley on May 30, 2009

The featured blog is ‘Stu’s Views & M.S. News‘ by Stuart Schlossman who was diagnosed with multiple sclerosis in 1998 and has put considerable effort into sharing news about multiple sclerosis with others through his blog. The homepage contains a series of links to YouTube videos on different aspects of Multiple Sclerosis located at the very bottom of the screen. The right hand panel contains links to medical sites as well as the blog archive. The first post is listed as April 2, 2007 and tells the reader about a subscription news service that is available. In this post, Stuart tells us more about his aims – to empower other people with M.S through sharing of knowledge

A particular strength of this blog is the incredible rate at which it is updated and links are made to the latest news stories. Topics covered in the news updates range from how the blood-brain barrier affects illness severity, collagenase-2 as a therapeutic target for maintaining blood-brain barrier integrity, new delivery systems for baclofen, a nationwide program in Ireland for people with MS, parallels between a benign condition – Balo’s disease and MS, and a link to an article by the National MS Society listing clinical trials in 2009. There are links to M.S organisations such as MS News, links to websites on MS, the myelin repair foundation and MS Blogger sites. There is also a series of diary-like posts ‘Merely Me‘.

There are frequent updates on therapeutic approaches that are being trialled including an AMPA-type glutamate receptor antagonist, a trial of Maestro-o3, FTY720, BHT-3009 a DNA vaccine, SF-1019, fluoxetine, naltrexone, frampridine, teraflunomide, laquinimod, functional electrical stimulation, methylphenidate, PI2301, cladribine, pioglitazone and Symadex. Stuart also shares with us his own experiences in managing his illness and engages in dialogue with the readers for instance when he takes a brief hiatus from his medication. As the blog is written for people with M.S, there are a number of articles which inform the reader about the basics – what is myelin?, various hints and tips about injections, facial pain, vertigo, common questions about MS, assistive devices and types of MS. Along the way, Stuart includes humorous clips to entertain and complement the other posts.

This is an excellent blog by Stuart Schlossman which contains a vast amount of information on MS including links to organisations, basic information about MS as well as recent research developments.


SOURCE:
Blog Review: Stu's Views & MS News « The Amazing World of ...
By Dr Justin Marley
The featured blog is 'Stu's Views & M.S. News' by Stuart Schlossman who was diagnosed with multiple sclerosis in 1998 and has put considerable effort into sharing news about multiple sclerosis with others through his blog. ...
The Amazing World of Psychiatry:... - http://theamazingworldofpsychiatry.wordpress.com/



Stuart asks - if anybody knows Dr. Marley, please ask this informative person to contact me


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Friday, May 29, 2009

State-of-the-Science Update on Pathophysiologic Immune/Inflammatory Responses in MS

Let's thank Karen D., in Coral Spirngs, Fl for providing and sharing information:

Drs. Aaron E. Miller, Suhayl Dhib-Jalbut, and Bruce A. C. Cree examine the latest developments in the pathogenesis and treatment of MS and neuromyelitis optica (NMO). Dr. Dhib-Jalbut presents current MS research including the newest findings on the role of B-cells, regulatory T-cells, IL-17, and genetics in MS pathogenesis. Dr. Cree illustrates the clinical features, pathogenesis, and treatment of NMO through the case of a young adult patient with this disease. This webcast is part of The Advanced Certificate Program: Multiple Sclerosis Management. Click here to continue

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Insights into Pain Managment

Information provided by Karen D. in Coral Springs, Fl.

Series Overview


Pain is one of the most common reasons that patients seek the services of Health Care Professionals (HCPs), yet most medical professionals currently feel inadequate to care for patients with pain. HCPs need updated, state-of-the-art, effective education to assist them in developing the skills necessary to evaluate and manage patients with pain. It is essential that HCPs understand and address the prevailing attitudes toward pain, because the perceptions of both patients and HCPs can present barriers to optimal pain management and resultant improved quality of life.


Click to read more: http://www.onlinepaincme.com/index.html?mptts=20090529095338

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Have something to share with others? Send to me for review
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It's a Beautiful Day - Song and Video - asking you to send-out and to get others Involved

Received from Michael M, in South Florida

Hi everyone,
I saw this video for the first time yesterday thanks to Stuart Schlossman. I've also had the opportunity to speak to many with MS either in person or by Email.

Many of the conversations seems to eventually get around to how can we, the MS community, get the word out. I'm sending this video link to you again www.worldmsday.org.

If you're like me, I watched it over and over and now I'm sending it to you to send to your friends and relatives as my small way of getting the word out.
May the wind be always at your back and
your path always feel like it is down hill.

Michael

http://www.themsmovement.org/video.html

www.worldmsday.org



Have something to share with others? If so, please use the post comment link found below. Your name and email address would be appreciated but is not necessary unless you want a response from others. Thank You
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Thousands of people are getting involved as MS activists. You too can Join!

Information provide by Tracy in the Lonestar State (Texas)

Source: www.nationalmssociety.org


I always ask if you have something to share, to send it to me. You can now do this via email or via my facebook page.... On facebook, look up Stuart Schlossman
or send an email to: stuart@msviewsandnews.org

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Treatment for Foot Drop in Multiple Sclerosis

Bioness - Treatment for Foot Drop in Multiple Sclerosis

Foot drop, for anyone who doesn't know, is a symptom of multiple sclerosis, in which it is difficult to lift the front part of your foot. Sound like a minor problem? Try walking or driving with foot drop. In fact, foot drop can lead to a huge decrease in quality of life and an increase in disability. In multiple sclerosis, foot drop occurs because the message from the brain to "lift" doesn't make it all the way to the foot. The foot itself is just fine, just waiting for "orders."

Bioness has designed and released a device that bypasses the brain. By putting a sensor on a shoe, the device "knows" what the foot should be doing when someone is walking. The device then signals a second device, strapped to the calf, that has the ability to stimulate the nerves and cause the muscles in the calf to "operate" the foot.

I can't endorse the product outright, but this seems like a very plausible way of dealing with foot drop and I am encouraged that there are developments in the treatment of multiple sclerosis symptoms. Devices cost around $7,000 and right now I have no idea if insurance would cover that cost.

Find out more from the Bioness website.


source for this article - ms.about.com

Have something to share with others? If so, please use the post comment link found below. Your name and email address would be appreciated but is not necessary unless you want a response from others. Thank You
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Alarmante número de casos de esclerosis múltiple en la Isla - en Español

(Alarming Number of Cases of MS in Puerto Rico)

unes, 25 de mayo de 2009 -
Rosa Escribano / Primera Hora

Imagina un día recibir la noticia de que ya no cuentas con la misma fuerza física que antes. Experimentar cómo se te dificulta caminar, que tus facultades de razonamiento se comienzan a afectar, y tu visibilidad se torne borrosa. Devastador, ¿verdad? Este panorama es sólo una parte de la realidad que día a día enfrentan muchos pacientes de esclerosis múltiple, quienes buscan en las alternativas de tratamiento una esperanza para contar con mejor calidad de vida ante el cuadro de esta enfermedad progresiva.

A continuación, el neurólogo Ángel R. Chinea Martínez habla sobre la enfermedad.

OPRIMA AQUI PARA CONTINUAR (press here to continue)

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Thursday, May 28, 2009

MS Learn Online's Link to accessible webcasts and podcasts

MS Learn Online is the
National MS Society's
online educational series.



Please visit the
Society’s website
for more information



The Current feature:

Healthy Living with MS featuring Clay Walker



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MS patients reported significantly greater satisfaction with the efficacy and convenience of TYSABRI, as compared to MS treatments used previously

Contact: Shannon Altimari; Biogen Idec
617-914-6524 - GCI Health
Article source: Eureka Alerts

MS Patients report greater treatment
satisfaction with TYSABRI

Atlanta, Ga. – May 28, 2009 – Biogen Idec (NASDAQ: BIIB) and Elan Corporation, plc (NYSE: ELN) today announced interim results from an ongoing, one-year longitudinal health-outcomes study in which patients reported significantly higher levels of treatment satisfaction after three infusions with TYSABRI® (natalizumab) when compared to multiple sclerosis (MS) therapies used previously. The findings from the study, which were reported by patients on therapy, further demonstrate the benefits of TYSABRI in treating MS and are helping to redefine successful treatment of the disease. The study, which was performed in conjunction with HealthCore Inc., a health-outcomes research company, is being presented in a poster today during the 23rd Annual Meeting of the Consortium of Multiple Sclerosis Centers.

"The patients in this study reported significantly greater satisfaction with TYSABRI when compared to their previous MS treatments, which makes these data even more compelling for patients who may not be satisfied with their current treatment," said William Stuart, M.D., medical director of the Multiple Sclerosis Center of Atlanta. "When coupled with previously reported data from this ongoing study that showed overall improvement in quality of life measures, we have a clearer picture of the real-world impact of TYSABRI on MS patients' lives. The success of TYSABRI over the past three years should be an encouragement to move this drug to the forefront of treatment options in many select MS patients."

Continue to read ABOUT THIS STUDY, by clicking here
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Have something to share with others? If so, please use the post comment link found below. Your name and email address would be appreciated but is not necessary unless you want a response from others. Thank You
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"I'm an MS Activist"

On the Nat'l MS Society's - MS Activist Blog called "I'm an MS Activist" - http://msactivist.blogspot.com/ -

See their posting dated May 28, 2009

Then looking on the lower left, under the title : Other MS Activist Blogs - Can you recognize the name of a blog seen there?



This is the credit being given from the National MS Society for the MSV&N organization via the new relationship that I share with NMSS Staff with a specific goal in mind: How best to Serve those affected by Multiple Sclerosis

additional note: Stuart works to provide information equally from the NMSS, MSF and other organizations who choose to share information "for the better, of those affected by MS"


Together, we will make a difference...
You too, can become an MS Activist



Have a comment to share with others? If so, please use the post comment link found below. Your name and email address would be appreciated but is not necessary unless you want a response from others. Thank You
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The more you chat, the closer we get to a world free of MS

The more you chat, the closer we get to a world free of MS

The Microsoft i’m Initiative makes it easy to move closer to a world free of MS. Every time you use Windows Live™ Hotmail® or Windows Live Messenger, Microsoft shares its advertising revenue with the National MS Society. Click here to get started: http://im.live.com/Messenger/IM/About/Default.aspx

Then join the i'm Initiative and designate the National MS Society to receive your support. The more you chat, the closer we get.

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U2’s ‘Beautiful Day’ for all affected by: Multiple Sclerosis

Watch the global campaign film with U2’s ‘Beautiful Day’ soundtrack at www.worldmsday.org and get everyone you know to watch it too


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Have something to share with others? If so, please use the post comment link found below. Your name and email address would be appreciated but is not necessary unless you want a response from others. Thank You
============================================

Nat'l MS Society's Momentum Magazine's Summer issue

Momentum Magazine Summer 2009
Summer 2009
Volume 2, Number 3


In this issue...
Inside MS Clinical Trials, World MS Day, Research Now, and much more...

Click to Read this issue


Missed a Past Issue?

Don't worry. We have 6 back issues and selected articles from previous years.
Find a back issue



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Wednesday, May 27, 2009

MS related - Learning more of the Stem Cell Topic

At MS Views and News, we are collecting and providing current information relating to Multiple Sclerosis.

One of these items, and an often thought-of and asked about subject of recent months has been the topic of Stem Cell therapy.

Stuart Schlossman is collecting information for you to read and learn from. At the MS Views and News website, you will currently find the information found below.

Use this information as reference only.
Speak with your doctors before making rash decisions concerning this form of treatment.

In this link, you will find: the history of stem cell treatment, what is stem cell therapy, various treatments, and more.

If you have information that can benefit others,
we would like you to post your comments.
Thank you

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Stem Cell information is now available at the MS Views and News website

Now available on the MS Topics of Interest page is information concerning the popular Stem Cell Subject

and added to the MS Views and News web links section, you will find new informational links within the following categories:


  • Click each category to gain access to the available information.
  • The information in these categories often get updated.
  • Periodically check back to access new information.

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Current Studies Enrolling in South Florida at NEUROLOGICAL ASSOCIATES RESEARCH

  • Primary Progressive MS - A 5-year study comparing the efficacy and safety of oral Fingolimod versus placebo. For more information visit: http://www.msclinicaltrials.com/.
  • Primary Progressive or Relapsing- Remitting MS – A 14-week study comparing safety & Efficacy of 3 different does of oral Nerispirdine versus placebo in the treatment of walking disability. Must be able to walk 25 feet in a designated time frame.
  • Relapsing-Remitting MS - A 2 year study comparing safety and efficacy of 2 different doses of oral Fumarate versus placebo with Copaxone as an active comparator. For more information visit: www.clinicaltrials.gov/ct/show/NCT00451451.
  • Relapsing Remitting MS - A 5 1/2-year study comparing safety and efficacy of intravenous Alemtuzumab (Campath) versus 3 times weekly subcutaneous Interferon Beta-1a (Rebif). For more information visit: www.clinicaltrials.gov/ct2/show/NCT 005488405.

  • ENROLLING SOON: Relapsing-Remitting MS – A 6-month study comparing the safety & efficacy of MRI lesions on 3 doses BAF312 Hemifumarate verses placebo.



For Further information of these studies,
contact: 954.738.1680
or Click here to see more information

<><><><><><><><><><><><><><><><><>

Multiple Sclerosis Patients Benefit From Diabetes Drug

Medical News Today (url found below)

A drug currently FDA-approved for use in diabetes shows some protective effects in the brains of patients with relapsing remitting multiple sclerosis, researchers at the University of Illinois at Chicago College of Medicine report in a study currently available online in the Journal of Neuroimmunology.

In a small, double-blinded clinical trial, patients with relapsing remitting multiple sclerosis were assigned to take pioglitazone (a drug commercially known as Actos used to treat type-2 diabetes) or a placebo. Patients continued their normal course of therapy during the trial.

» Read More


Have something to share with others? If so, please use the post comment link found below. Your name and email address would be appreciated but is not necessary unless you want a response from others. Thank You
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A pilot test of pioglitazone as an add-on in patients with relapsing remitting multiple sclerosis

Source: msif.org

Summary: In this study the authors aimed to investigate the effects of oral pioglitazone, a drug that has been shown to have anti-inflammatory and neuroprotective effects, in people with relapsing-remitting MS, when added to IFN beta. After one year of treatment, though no differences were observed between the two groups of treatment (IFN+pioglitazone and IFN+placebo) from the clinical point of view, some differences were observed in terms of MRI parameters. These findings would suggest hints of efficacy favouring the pioglitazone treatment. Further studies are needed to establish clinical efficacy of pioglitazone.

authors: Kaiser CC, Shukla DK, Stebbins GT, Skias DD, Jeffery DR, Stefoski D, Katsamakis G, Feinstein DL

source: J Neuroimmunol. 2009 May 14

weblink: click here


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Have something to share with others? If so, please use the post comment link found below. Your name and email address would be appreciated but is not necessary unless you want a response from others. Thank You
============================================

Quality of life in multiple sclerosis is associated with lesion burden and brain volume measures

Source: MSIF.org

Summary: In MS, health-related quality of life (HRQOL) is reduced. However, it is not yet well established that measures related to quality of life are to be taken into account as outcome measures in clinical trials. In this study the authors have shown that there is a significant association between MRI characteristics such as lesion burden and brain volume loss and HRQOL. These findings strengthen the argument for the use of HRQOL outcome measures in clinical trials.

authors: Mowry EM, Beheshtian A, Waubant E, Goodin DS, Cree BA, Qualley P, Lincoln R, George MF, Gomez R, Hauser SL, Okuda DT, Pelletier D

source: Neurology. 2009 May 19;72(20):1760-5

weblink: click here


Have something to share with others? If so, please use the post comment link found below. Your name and email address would be appreciated but is not necessary unless you want a response from others. Thank You
============================================

Healthy Living with MS featuring Clay Walker

MS Learn Online

Today's new Feature Presentation
Healthy Living with MS featuring Clay Walker
also featuring Rosalind Kalb, PhD
and Kate Milliken
focuses on:
  • Physical health
  • Emotional health
  • Fitting MS into your daily life
Click here to view the webcasts, or copy and paste into your browser

http://www.nationalmssociety.org/multimedia-library/webcasts--podcasts/healthy-living-with-ms-featuring-clay-walker/index.aspx
If you have a pop-up blocker, you will need to disable it prior to participating
in a MS Learn Online webcast.

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Statins, may actually have a negative impact in Multiple Sclerosis

Information for this topic provided by Karen Hart.

One size does not fit all: A new look at therapies

May 26th, 2009

Statins, a commonly prescribed class of drugs used by millions worldwide to effectively lower blood cholesterol levels, may actually have a negative impact in Multiple Sclerosis (MS) patients treated with high daily dosages.

A new study by researchers at the Montreal Neurological Institute (MNI), McGill University, demonstrates that statin therapy in mice inhibits myelin repair or remyelination in the central nervous system. The findings, published in The , highlight the crucial need to monitor the effects of central nervous system-accessible immune therapies on the myelin repair processes in patients with MS and other progressive demyelinating diseases.

Continue reading: Click to be re-directed to PhysOrg.com

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Epstein-Barr and Multiple Sclerosis: New Research

From the ms.about.com website

Monday May 25, 2009
We've talked about the link between the Epstein-Barr virus (which causes mono) and multiple sclerosis before. In fact, over 150 of you wrote in to tell your story of infection with the Epstein-Barr virus (and a vast majority reported some infection in their health history).

Researchers have released new findings that support a connect between multiple sclerosis and the Epstein-Barr virus. What is interesting (and what researcher Alberto Ascherio at Harvard discovered) is that, in a sample of 305 members of the armed services who were diagnosed with multiple sclerosis, 100% of them were infected with the Epstein-Barr virus before diagnosis (compared to 30% of over 600 other service members whose blood was examined and were similar to the 305 in age and other factors (though they had not been diagnosed with MS).

In addition to those findings, the people with high levels of antibodies to Epstein-Barr virus were as much as 50 times more likely to develop multiple sclerosis. Researchers were able to do this study because of a "bank" of blood samples that the Department of Defense keeps. This "bank" allowed researchers to test blood before and after MS diagnosis for those 305 individuals to see the levels of Epstein-Barr antibodies that were present.

Of course, not everyone who is infected with Epstein-Barr develops MS (in fact, most adults are infected with Epstein-Barr at some time in their life). It seems like being infected with Epstein-Barr (or a similar virus?) may be a necessary pre-condition to developing MS. For example, if infected with Epstein-Barr and another factor is also present (vitamin D deficiency?), then the chances of developing MS may go way up.

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Have something to share with others? If so, please use the post comment link found below. Your name and email address would be appreciated but is not necessary unless you want a response from others. Thank You
============================================

Some Unemployed Americans to Qualify for Free Medicines

from the MSFYi e-newsletter

Unemployed Americans and their families who have lost their health insurance may be able to keep getting their Pfizer medications at no cost if they qualify for a new program called MAINTAIN (Medicines Assistance for Those who Are in Need).
More than 70 Pfizer primary care medicines will be available through the program, including Rebif®, an FDA-approved drug used to treat relapsing-remitting multiple sclerosis. Qualifying applicants will receive their Pfizer medicines free for up to 12 months, or until they become re-insured (whichever comes first).
The Pfizer program, which applies regardless of prior family income, will be fully operational on July 1 and enrollment will be open through December 31. Eligibility requirements include: Loss of employment since January 1, 2009, prescribed and taking a Pfizer medicine for at least three months prior to becoming unemployed and enrolling in the program, lack of prescription drug coverage, attesting to financial hardship.
Nearly 46 million Americans lack health insurance coverage, a number that is certain to grow as unemployment rates reach their highest levels in 25 years, according to the company.
All of Pfizer’s patient assistance programs, including the new program, can be reached by calling 1-866-706-2400 or by visiting www.PfizerHelpfulAnswers.com.


Have something to share with others? If so, please use the post comment link found below. Your name and email address would be appreciated but is not necessary unless you want a response from others. Thank You
============================================

This Month's MS Foundation e-Newsletter (MSFYi) contains important topics and ONE Interesting story (if I do say so, myself)

Featured HERE, from the MS Foundation e-Newsletter (MSFYi) -
World MS Day and a WEBSITE to Watch


World MS Day: May 27, 2009Bookmark: WMSD
More than 8,000 individuals and organizations in 129 countries have registered at the World MS Day website, www.worldmsday.org, to show their support of this inaugural event, which will happen in future years on the last Wednesday in May. To find out if there are activities in your area, and to check out events across the globe, the website offers an interactive map.
And don’t forget to join us for the MSF’s Town Hall teleconference to be held at 8 pm (EST) on May 27. To learn how, see the MSF news section below.
===========================================================
Website to WatchBookmark: web
Stuart Schlossman is a MS information hound. He began collecting MS facts and knowledge in earnest in 2003, when MS-related fatigue caused him to retire from his sales job with the family’s industrial sewing machine parts company.
Soon after, Schlossman decided to share what he had learned.
When he started his website, www.msviewsandnews.org, Schlossman’s goal was to provide educational information and resources for everyone affected by MS, including caregivers, friends and medical providers. Not only has Schlossman succeeded in establishing a popular and useful website, but he has also requested IRS permission to turn MS Views and News into a nonprofit corporation so he can optimize the site and begin applying for education grants.
Already well-known for his ability to organize events in South Florida where he lives, Schlossman would also like to provide educational programs for the local MS community.
In addition to a wealth of resources, MS Views and News contains a link to Stu’s MS Blog and a place to register for Schlossman’s weekly e-newsletter called Stu’s Views and Ms Related News.
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Want to receive the MSFYi e-newsletter?
Subscribe, change your address, or cancel your subscription to MSFocus,
Support Group News and/or MSFYi. Read More
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Tuesday, May 26, 2009

The hospital trust fund could be broke by 2017, and Part B spending keeps outpacing the growth of the economy.

Source: American Medical News

Medicare trustees present dire outlook on program's finances

By Chris Silva, AMNews staff. Posted May 25, 2009.


Medicare's hospital trust fund could be out of money in less than a decade, and outpatient spending threatens to consume an even larger portion of the gross domestic product, according to those overseeing the program's finances.

Both the physician and hospital portions of the Medicare program are in trouble, according to the 2009 Medicare trustees report, released May 12. The insolvency date for Part A has been moved up two years to 2017. Part B does not face insolvency because it is automatically funded by a combination of general tax revenues and beneficiary premiums. However, it does face rapid growth that will continue to expand faster than the economy as a whole, the report warns.

Continue reading by clicking here

Voice your concerns. Post a comment.
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Diagnosing Multiple Sclerosis

At this time, there are no symptoms, physical findings or laboratory tests that can, by themselves, determine if a person has MS. The doctor uses several strategies to determine if a person meets the long-established criteria for a diagnosis of MS and to rule out other possible causes of whatever symptoms the person is experiencing. These strategies include a careful medical history, a neurologic exam and various tests, including magnetic resonance imaging (MRI), evoked potentials (EP) and spinal fluid analysis.

Continue to read from the source of this article, on the following:
  • The Criteria for a Diagnosis of MS
  • The Tools for Making a Diagnosis
  • MRI
  • Visual Evoked Potential (VEP)
  • Blood Tests, and More


After reading and If not yet receiving our weekly MS Related e-newsletter, called "Stu's Views and MS Related News", then please click this link to complete the registration. It will take less than 30 seconds and you will be rewarded with current MS information to your inbox each week.

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Pediatric Multiple Sclerosis

Although multiple sclerosis occurs most commonly in adults, it is also diagnosed in children and adolescents. Estimates suggest that 8,000-10,000 children (defined as up to 18 years old) in the United States have multiple sclerosis, and another 10,000-15,000 have experienced at least one symptom suggestive of MS.

Facts:
>Studies suggest 2 to 5% of all people with MS have a history of symptom onset before age 18.
Diagnosis in children is more challenging than in adults due to the frequency of other childhood disorders with similar symptoms and characteristics.

» Read More


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The Multiple Sclerosis Foundation's - Six Questions with Stuart Schlossman

Six Questions with Stuart Schlossman of Stu's Views and MS News (an MS advocate, blogger, source for MS information and MS peer).

This Live Journal Interview was created by MSF Staff member Kasey Minnis

Review by clicking here: http://msf-staff.livejournal.com/9530.html?view=9018#t9018

Share with others, post a comment to the Live Journal Post, to leave your response to the last question on the page, where it asks, So, readers, what would you do? What will you do?



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re: Plasma Exchange and Multiple Sclerosis

It has been asked and here it is written.
Click to read-up on Plasma Exchange for Multiple Sclerosis: http://wwwmsviewsandrelatednews.blogspot.com/search?q=plama+exchange

If wanting to see more results, "Google" it.


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Have something to share with others? If so, please use the post comment link found below. Your name and email address would be appreciated but is not necessary unless you want a response from others. Thank You
============================================

Review: SPECT, MRI and Cognitive Dysfunction in Multiple Sclerosis

Posted in Medical Article Review, psychiatry by Dr Justin Marley on May 25, 2009

The featured article is ‘SPECT, MRI and cognitive functions in multiple sclerosis’ by Pozzilli and colleagues and freely available here. The aim in this study was to clarify the distribution of 99mTc HMPAO (used as a marker of cerebral blood flow) in the brains of people with relapsing-remitting multiple sclerosis with ‘mild physical and cognitive disturbance’. The authors selected 17 people with Multiple Sclerosis from a Multiple Sclerosis outpatient clinic. However the selection criteria aren’t clear – there is no mention of consecutive patients being considered or random assignment otherwise. The exclusion criteria are clearly stated as those with chronic progressive illness and MMSE scores less than 23 or a score greater than 4 on the Kurtzke Expanded Disability Status Scale. There is some information on the sample demographics/scores with an average MMSE of 28.5. I wasn’t able to identify power calculations for estimating sample size.

Continue reading this article and Viewing Videos by clicking here

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Have something to share with others? If so, please use the post comment link found below. Your name and email address would be appreciated but is not necessary unless you want a response from others. Thank You
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Monday, May 25, 2009

Statins and Multiple Sclerosis - Not what was once thought to be postive news

Statins and Multiple Sclerosis ( MS )

In their report titled "Statin Therapy Inhibits Remyelination in the Central Nervous System" Miron and others must have startled those who once considered statin therapy appropriate for multiple sclerosis.

In the American Journal of Pathology, Vol. 174, No. 5, May 2009, Veronique Miron presented data that has sent proponents of simvastatin treatment for multiple sclerosis back to their drawing boards.

Characterized by inflammatory demyelinating lesions in the central nervous system, multiple sclerosis (MS) has been propelled into clinical trials by earlier studies of the use of simvastatin. Not so, reports Miron! These earlier short-term studies that showed possible benefit from simvastatin (Zocor®) use could not be confirmed in their longer-term studies. The short-term studies involved the effect of simvastatin on cell cultures of oligodendroglia progenitor cells (OPCs).

Continue to read from the spacedoc.net website


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Have something to share with others? If so, please use the post comment link found below. Your name and email address would be appreciated but is not necessary unless you want a response from others. Thank You
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Rocker Group: U2 - backs worldwide effort to raise awareness of MS

Yorkshire Post-UK ---- Published Date: 25 May 2009

Rock giant U2 is backing the first global awareness campaign for multiple sclerosis.
World MS Day day, to be launched on Wednesday, will involve more than 160 events in 51 countries.

U2's contribution is the hit song Beautiful Day, which is providing the campaign soundtrack and will be featured on a global campaign film.
The aim is to highlight the plight of people with the disease, raise donations for patient charities and research funding, forge links between MS organisations, and urge action from politicians.
MS is an auto-immune disease in which nerves are attacked by the body's own defences.

The incurable illness affects around 85,000 people in the UK. It can cause symptoms ranging from mild tingling sensations and loss of balance to full blown paralysis. Up to 60 per cent of MS sufferers face long-term disability.

Among the planned activities for the campaign is an attempt on Mount Everest by two American women with MS, Lori Schneider and Wendy Booker.

In Ireland, eight people will climb six mountains in 72 hours, while "Roll for MS" cycling and motorcycling events are being held in Belgium, Canada, France and Luxembourg. Concerts will also take place in Greece and Cyprus, and human chains formed in the Indian cities of Mumbai and Delhi. The MS Society charity will also open its first office in Palestine.

The US National MS Society is rallying more than 850,000 individuals to press politicians to support affordable health care for sufferers.

One of the sports celebrities backing the campaign is Argentinian and Barcelona FC soccer star Lionel Messi who will play against Manchester United in the Champions' League final in Rome on World MS Day on Wednesday.

Peer Baneke, chief executive of the Multiple Sclerosis International Federation, said:"We want to support those who have MS and work together across the globe to find a cure."

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Sunday, May 24, 2009

Epidemiology of Multiple Sclerosis

Epidemiology is the study of disease patterns, which takes into account variations in geography, demographics, socioeconomic status, genetics and infectious causes. Epidemiologists contribute to knowledge about MS by studying the relationships between these factors, as well as patterns of migration, in an effort to understand who gets MS and why, and identify and explain areas with high or low rates of MS.

Epidemiological studies have helped to identify factors that may be related to the risk of developing MS, including geography, genetics and infectious processes, but we still have few definitive answers. It is challenging to conduct these types of studies in a disease that can be difficult to diagnose. Since there is no single test for MS, the diagnosis can be missed, delayed, or even incorrect. While MRI technology is helping to address this problem, it remains difficult to determine how accurately data from earlier epidemiological studies truly represent the MS population, particularly since the investigators used different methods for identifying and counting people with MS, as well as different strategies for analyzing their data.

Therefore, it is important to keep in mind that all epidemiological numbers are estimates.

Incidence and Prevalence of MS

People often want to know how many people have MS in various parts of the country or the world, and whether those numbers are increasing. Simply counting them is easier said than done due to the diagnostic challenges described above.

Continue to read direct from the National MS Society website's article by clicking here
then continue from Incidence


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Genetics and Multiple Sclerosis

The genes a person inherits help determine whether that person is at increased risk for developing MS. While there is evidence from studies that this genetic component exists, it appears to be only one factor among several that determine who gets MS. Most likely, an individual’s genetic blueprint ultimately determines if that individual will be susceptible to a triggering factor in the environment, which in turn initiates the autoimmune process that leads to the development of MS.

What Population Studies Show

Epidemiologic surveys have determined that an individual's risk of developing MS increases several-fold if a close family member has MS. While the average person in the United States has about 1 chance in 750 of developing MS, the risk for a person who has a parent or sibling with MS increases to about 1 in 40. MS. Thus, the risk increases significantly for a person whose parent has MS, but still remains relatively low.

These risk estimates, however, are oversimplifications that can easily be misinterpreted. We now know, for example, that risk estimates can vary greatly depending upon the structure of a person’s family. In families in which MS occurs in many relatives, the risks for any given individual are significantly higher than they are for an individual who has no family members with MS. Risk for MS is also affected in part by a person’s ethnic background and other factors that haven’t yet been clearly identified.

How do we know that genes are not the only factor in determining who gets MS? The identical twin of a person with MS has a 1 in 4 chance of developing the disease. The fact that identical twins of people with MS—who share all the same genes—don’t always get MS, and that more than 80% of people with MS do not have a first-degree relative with MS, demonstrates conclusively that MS is not directly inherited and that factors other than genetics must be involved.

To continue reading from the source of this article's website, click here - the National MS Society

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Loneliness isn't inevitable for man with MS

If anybody in the State of Washington knows this guy, ask him to send Stuart an email.
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By:Carolyn Hax: - Idaho Statesman - Published: 05/24/09

Carolyn: I'm in my early 40s and have multiple sclerosis. My ex left me because she didn't want to "play nurse" for the rest of her life. I don't blame her, but I am left to pick up the pieces of my life and am having a hard time getting up the motivation to dive back into the dating pool. Why would any woman want the future that I have to offer, one of inevitable debilitation? Should I just resign myself to a life of solitude?

STRUGGLING IN OLYMPIA, WA

I think we'd all be better for resigning ourselves to a life of solitude. Not in a woe-is-me sense, but in the sense that we are the only people we can be absolutely sure will be with us at every stage of our lives.

Your illness - a rotten break by any measure, I'm sorry - doesn't necessarily make you worse off than others on this particular account. The ex who wasn't up to dealing with your MS may well have decided, had you not been ill, that she wasn't up to the ravages of time that every longtime couple must face.

Committed is committed, and she wasn't.

Where that leaves you is exactly where it leaves everyone else: in need of plans A, B and C. Plan A represents what each of us has now: Whether paired or single, it makes the most sense both to live in the moment and make plans for that moment to last. As in, have a healthy dinner, splurge a little on dessert, keep feeding your 401(k).

Plan B is the anticipation of change. Anything we have can be gone tomorrow, including companionship or solitude, health or illness, fears or dreams. You don't need to build your life around the possibility of change, but you do need to accept it. Buy insurance, keep your will up to date, don't burn bridges, and keep your eyes and heart open to opportunity in all forms.

Plan C is the wild card. If you ask around, you might be surprised by the number of people whose lives don't bear any resemblance to the lives they'd expected to live. The only way you can "plan" for such a life is to get right with yourself, get right with your choices, and take a quick mental walk through your past to note the times you've had to be braver, stronger and more flexible than you ever cared to be.

If you've been this emotionally resourceful before, you can do it again. If you haven't been, you can start now. It's hard work, but where's the appeal in the alternatives? No one can take away the sense of yourself - the sense of peace - you derive from passing these tests.

While your illness will deter some potential companions, your ability to Plan-A-B-and-C it into a full, rewarding and well-managed life will attract others - specifically, those who appreciate that circumstances change but character doesn't. There may be fewer of them, but they're exactly the people you want.

From Stuart : "Many from both sexes feel the way this guy does after a spouse or significant other, cops our of the relationship for unknown fears of what might never happen. Yet there are plenty of persons to provide love, to and for even those with disabilities"

Kuwait provides best multiple sclerosis treatment:

Published Date: May 24, 2009

AMMAN: The number of Multiple Sclerosis (MS) cases is increasing around the world, and Kuwait is providing the best available medication for its citizens despite the high costs of treatment, said a top neurologist yesterday. Dr. Suhail Al-Shemmari, the Head of Neurology at Kuwait's Mubarak Hospital, explained that MS, first discovered in 1868 by French doctor Jean-Martin Charcot, is a condition where the body's own immune system attacks the central nervous system and disrupts the sending of neurological signals to the brain.

to continue to read, click here to be re-directed to Kuwait Times -
the First Daily in the Arabian Gulf


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Ask the Ph.D from Stem Cell Pioneers of Stem Cell related Questions

I am not endorsing the information found below. Remember please, that I only supply information that enables you to keep current with available information, directly and/or indirectly relating to Multiple Sclerosis. Speak with your medical practitioner with any questions you may have.

Linda from Naples, Fl. furnished me with the information Link found below, to share with others

Ask the PhD (Stem Cell Pioneers Website) - Focus on Nepsis Institute


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Have something to share with others? If so, please use the post comment link found below. Your name and email address would be appreciated but is not necessary unless you want a response from others. Thank You
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HALT-MS study initial results look positive

In know way am I endorsing the information found below. Remember that I only supply information that enables you to keep current with available information, directly and/or indirectly correlating to Multiple Sclerosis.

Source for the information found below was taken from a posting at the Stem Cell Pioneers website

In an article published in the Summer 2009 edition of Multiple Sclerosis Quarterly Report, a joint publication of United Spinal Association and the North American Research Committee on Multiple Sclerosis (NARCOMS), highlights the positive initial results of patients who have improving neurologic function after receiving a stem cell transplant, despite no longer taking any MS medications.

The results are reported in a National Institutes of Health (NIH)-sponsored study called HALT-MS to confirm whether high-dose immunosuppression followed by autologous stem cell transplantation will prevent MS attacks in patients who are not responding to available treatment options and ultimately protect against the degeneration of nerve fibers.

The article, written by George H. Kraft, MD, MS, director of the Western MS Center in Seattle, Washington, and colleagues, reveals the promising outcomes of the first three patients entered into the HALT-MS Study, including a 27-year-old woman with an 8-year history of relapsing MS who was treated with five different MS drugs, but continued to have relapses.

The study involves wiping out the patient's immune system through high-dose chemotherapy or other means, such as radiation, to destroy most blood cells and bone marrow. Blood "stem cells" with the capacity to generate new blood and immune cells are then transplanted into the patient. These stem cells can either be the patient's own or those from a matched donor. Once the cells are transplanted, they repopulate the bone marrow and restart building all the cell types found in the blood, a process called "engraftment". After transplantation, the patient would effectively have a "new" immune system that would not attack nerves in the brain and spinal cord as seen in MS.

Currently, there are approximately 400 patients with MS worldwide who have been treated with stem cell transplantation. Research demonstrates that patients with highly active forms of relapsing-remitting MS have responded best to treatment.

The Halt-MS Study is taking place at four centers in the US: The Fred Hutchinson Cancer Research Center/University of Washington Western MS Center; Ohio State University; Baylor College of Medicine; and M.D. Anderson Cancer Center, and is currently open to participants with severe relapsing forms of MS.

United Spinal is a national 501(c)(3) non-profit membership organization formed in 1946 by paralyzed veterans and is dedicated to improving the quality of life for all Americans with spinal cord injuries, multiple sclerosis, spina bifida, ALS and post polio. It has played a significant role in writing the Americans with Disabilities Act, made important contributions to the Fair Housing Amendments Act and the Air Carrier Access Act. Membership is free and is open to all individuals with spinal cord disorders.
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Had uc treatment April 5, 2007
Had autologous treatment Sept. 8, 2008
Had autologous treatment Nov. 24, 2008
Had autologous treatment Feb. 20, 2009

Barbara - ( Pioneer Founding member)
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Have something to share with others? If so, please use the post comment link found below. Your name and email address would be appreciated but is not necessary unless you want a response from others. Thank You
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