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Disclaimer: 'MS Views and News' DOES NOT endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.


Saturday, June 13, 2009

MS ACTION ALERT - Help Include Follow-On Biologics in Health Care Reform

Individuals living with MS pay between $16,500 to more than $30,000 a year for their medically necessary drugs. Generic (or follow-on) versions of biological therapies are not yet available in the United States for any condition because the Food and Drug Administration (FDA) does not have the authority to review applications for generic versions of biologic drugs like other counties do.

The cost of these drugs can keep them out of reach for those who need them. Congress must pass legislation to create a regulatory pathway to approve safe, effective and lower-cost generic versions of biological drugs. With Congress preparing to debate health care reform legislation this summer and affordability being one of the key components of legislation, now is the time to influence the reform debate.

Take Action Today!

Click here to e-mail your senators and representative to urge them to include follow-on biologics legislation as a part of broader health care reform legislation.

Four of the six MS therapies are biologic drugs, which are drugs produced from living cell cultures rather than synthesized chemicals. Congress must pass legislation in order to create a regulatory pathway for approving safe and effective follow-on versions of biologic drugs. More affordable follow-on versions could provide safe alternative treatment options and help alleviate the cost burden on families living with MS and other diseases. Recent congressional testimony has shown that a competitive pathway for follow-on biologics will also help spur new innovation.


Friday, June 12, 2009

?? Hmmm, Forgetfullness ??

to review topics on Cognition, Cognitive and Memory, use the links found here:

to hunt other useful information, use the search box on this site
The search box is found approximately halfway down on right side of page

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Stem Cell Transplant Study Shows Promise For Multiple Sclerosis

June 12, 2009 - Medical News Today

U.S. researchers have reversed multiple sclerosis symptoms in early stage patients by using bone marrow stem cell transplants to reset the immune system.

Commenting on the study, Helen Yates, MSRC Chief Executive said, "This further piece of research into the use of stem cells with Multiple Sclerosis patients provides another piece of evidence that stem cells could one day provide clear therapies and treatments for MS. MSRC hopes that further work in this area proves as positive as this piece of research"

Some 81 percent of patients in the early phase study showed signs of improvement with the treatment, which used chemotherapy to destroy the immune system, and injections of the patient's bone marrow cells taken beforehand to rebuild it.

"We just start over with new cells from the stem cells," said Dr. Richard Burt of Northwestern University in Chicago, whose study appears in the journal Lancet Neurology.

Multiple sclerosis occurs when the immune system mistakenly attacks the myelin sheath protecting nerve cells. It affects 2.5 million people globally and can cause mild illness in some people and permanent disability in others.

Symptoms may include numbness or weakness in the limbs, loss of vision and an unsteady gait.

Click here to continue reading from Medical News Today

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Acorda drug (Fampridine-SR) eligible for coordinated review in Europe

By Jay Loomis • • June 9, 2009

Acorda Therapeutics Inc. said that its new multiple sclerosis drug is eligible for a centralized regulatory review in Europe, potentially opening up huge new markets for the medication if it receives approval.

The Hawthorne-based biotech company has been seeking approvals for the drug, known as Fampridine-SR, after a study showed that patients taking the medication walked faster than patients taking a placebo.

Click to continue reading
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Thursday, June 11, 2009

MS Views and News, is seeking Volunteers

MS Views and News, is seeking Volunteers.

The only qualification, is to not be afraid to use "your" computer & to not be afraid of the internet.

Must be able to "Tweet" on Twitter or "Friend" others on Facebook.
And be personable enough to communicate with other MS bloggers, on the internet.

The need is:
etting people to register at our website:
This will help build our database and allow others to receive our weekly e-newsletter.
Hence, providing more information to more people about Multiple Sclerosis.

Setting up a facebook BECOME A FAN page - which we would discuss separately.

Visiting MS Bloggers and making contact - getting them to add our blog to their site and allowing our postings and of what we do, to appear on their pages.

If you want to know more details or have other suggestions, then please write to me at:

Thank you


UK: Adult Stem Cells Reverse Symptoms of Multiple Sclerosis

By Bob Ellis on June 10th, 2009
source: Dakota Voice

Chalk up yet another success for adult stem cell therapy!

According to the UK Telegraph, researchers in Britain have taken stem cells from a patient’s own body fat to stimulate the regrowth of tissue damaged by multiple sclerosis.

Last year experts suggested that stem cell therapy could be a “cure” for MS within the next 15 years.

Patients’ symptoms were still improving up to a year after the treatment, the new study shows.

One, a 50-year-old man, who had suffered more than 600 painful seizures in the three years before treatment has not had a single one since the infusion of his own cells.

Another patient’s ability to walk, run and even cycle are still improving 10 months after the therapy.

CONTINUE READING by clicking here


Related Posts


Tracking Down The Causes Of Multiple Sclerosis

ScienceDaily (June 10, 2009) — Over 100,000 people suffer from multiple sclerosis in Germany alone. Despite intensive research, the factors that trigger the disease and influence its progress remain unclear. Scientists from the Max Planck Institute of Neurobiology in Martinsried and an international research team have succeeded in attaining three important new insights into the disease.

It would appear that B cells play an unexpected role in the spontaneous development of multiple sclerosis and that particularly aggressive T cells are activated by different proteins. Furthermore, a new animal model is helping the scientists to understand the emergence of the most common form of the disease in Germany.

Multiple Sclerosis (MS) poses enormous problems for both patients and doctors: it is the most common inflammatory disease of the central nervous system in our part of the world and often strikes patients at a relatively young age. In some patients it leads to severe disability. Moreover, despite decades of research on MS, the causes and course of the disease are still largely unclear.

continue to read from the 3rd paragraph by clicking here

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President Supports Bill to Expand Medicaid Services for Disabled

Information provided by Karen D. in Tamarac, Fl.

By Emily P. Walker, Washington Correspondent, MedPage Today
Published: June 09, 2009
WASHINGTON, June 9 -- President Barack Obama supports a bill that would expand Medicaid to cover home- and community-based assistance for people with disabilities, said Sen. Tom Harkin (D-Iowa).

Speaking to a crowd of disability rights advocates Monday, Harkin said he broached the subject at a recent meeting with Obama and his healthcare adviser, Nancy-Ann DeParle. He said the president told him, "I consider it something we should do."

During the last session of Congress, Obama was a co-sponsor of Harkin's bill, the Community Choice Act, which would provide Medicaid payments for home- and community-based attendants to help people with disabilities perform daily activities, such as eating, dressing, and bathing, and participating in the community.

Currently, Medicaid reimburses for care in hospitals, mental institutions, and nursing homes, and bases coverage on age and diagnosis, rather than level of functioning.

While he said Obama's support is neither a glowing endorsement nor a promise that legislation would be rolled into healthcare reform, "now we have a president of the U.S. who is on our side in this effort."

A 1999 Supreme Court decision found that people with disabilities have the right to choose to receive long-term healthcare and support in the community, rather than in an institutional setting.

Despite that ruling, in 2007 about 70% of the Medicaid funding for people with disabilities paid for institutional services rather than home- or community-based services, according to the bill.

Supporters of the bill say it would be only a third as expensive to elderly adults or adults with disabilities through home- and community-based services as it would in a nursing home.

Still, the bill would initially cost about $2 to $4 billion annually.

"I know that's a lot of money, but when we're looking at a $1 trillion healthcare reform bill, 2, or 3 or 4 or 5% is not too much to ask to provide civil rights for an entire group of people," Harkin said.

Having a home healthcare worker may enable some disabled people to hold jobs they couldn't otherwise handle, which would in turn provide economic gains that could offset the costs of reimbursing for community-based care, Harkin said.

A draft of a healthcare reform bill by the Senate Health, Education, Labor and Pensions Committee, of which Harkin is a member, outlined a plan to create an insurance plan which people with disabilities could buy to pay for their community-based care. The draft bill does not propose extending Medicaid to cover community-based care.

If you have articles of interest to share, please send them to:
Thank You

Wednesday, June 10, 2009

The Show Must Go On

A film by Kristie Salerno Kent about living with MS.

Click to View this video
and then share this with others by clicking this which will bring the person back to this blog page

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Tysabri - How It Works To Fight Multiple Sclerosis


Click this link to review the Tysabri information

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Breastfeeding lowers risk of MS relapse-US study

Tue Jun 9, 2009
Reuters - India

WASHINGTON (Reuters) - Breastfeeding may protect women with multiple sclerosis against relapses of their disease, possibly by delaying a return to normal monthly cycles, U.S. researchers reported on Monday.

They found that MS patients who nursed their babies exclusively -- meaning no bottled formula -- for at least two months appeared less likely to have a relapse within a year of the child's birth than women who did not breastfeed.

Continue to read, by clicking here

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Some Financial Medicine to Cushion Health Crises

A good article with some information provided by the National MS Society

June 10, 2009
source: Wall Street Journal

Finding the gaps in your health and disability coverage, and then filling them, may be one of the best ways to protect against financial disaster.

The costs of illness contributed to six out of 10 personal bankruptcies filed by Americans in 2007, according to a study published online by the American Journal of Medicine. Three-quarters of those affected had health insurance.

"It's perilous to assume that we are protected just because we have a health-insurance card in our wallet," says Karen Pollitz, a research professor at Georgetown University's Health Policy Institute.

Continue reading by clicking here

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Twin studies and the heritability of Multiple Sclerosis:

Twin studies and the heritability of MS: a conclusion
source: MSIF research

summary: MS is a complex disease in which genes may play a role. In this study the authors aimed to investigate the relative contribution of genes and the environment to the appearance of MS by re-analysing six published studies from six countries, on people with MS who were twins.

The authors found that the different methodologies and the huge variability in the results of the different studies prevented them from obtaining robust conclusions. They also suggested that further twin studies with improved methodology should be undertaken in people with MS, to more thoroughly investigate the genetic influence in the appearance of MS.

authors: Hawkes Ch, Macgregor A

weblink: click here

source: Mult Scler. 2009 Jun;15(6):661-7


Effect of parenteral cladribine on relapse rates in patients with relapsing forms of multiple sclerosis:

results of a 2-year, double-blind, placebo-controlled, crossover study
source: msif research

summary: The aim of this placebo-controlled clinical trial was to investigate the beneficial effects of cladribine given subcutaneously in people with MS compared to placebo.

The 84 patients in the study were divided into two groups. One group received cladribine first and a placebo afterwards and the other group received a placebo first and the cladribine afterwards.

The results showed that cladribine was effective in people with MS mainly because it provoked a reduction in the relapse rate.

authors: Stelmasiak Z, Solski J, Nowicki J, Jakubowska B, Ryba M, Grieb P

source: Mult Scler. 2009 Jun;15(6):767-70

weblink: click here

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Remyelination capacity of the MS brain decreases with disease chronicity


summary: MS is an inflammatory-demyelinating disease of the central nervous system. It is known that demyelinated areas can recover the myelin by an internal repair mechanism of the damaged neural tissue by a process called remyelination.

However, little is known about the characteristics of this protective process. The authors of this study aimed to investigate the frequency of remyelination in people with MS with different disease durations and the areas where this protective phenomenon was more prominent.

They finally conclude that remyelination was more prominent in earlier stages of the disease and also that the location of the lesion may influence the extent of the remyelination.

authors: Goldschmidt T, Antel J, König FB, Brück W, Kuhlmann T

source: Neurology. 2009 Jun 2;72(22):1914-21

weblink: click here

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Could MS Doctors be Treating the Wrong Disease?

Provided by Karen in Florida

Tuesday June 9, 2009
I ran across this while doing some research and, although it is a little old, thought it was interesting. Some experts think that the reason a cure for multiple sclerosis has not been found is because the understanding of multiple sclerosis that researchers and physicians have is fundamentally wrong. The alternative theory, upheld by Drs. Peter Behan and Abhijit Chaudhuri states that multiple sclerosis is not caused by the immune system attacking myelin (as is commonly believed); instead, multiple sclerosis is caused by cells (called astrocytes) malfunctioning.

The thinking goes like this: the animal model of multiple sclerosis (which is used for treatment and drug development) is very different from the human experience of multiple sclerosis. In the animal model, the MS-like condition (in which the myelin indeed is attacked by the immune system) leads to death or disability, while in people the course of multiple sclerosis is much more varible (and only rarely leads to death). Therefore, claim the researchers, these are really two different diseases (with the further proof that, despite extensive research, these animal-based treatments do not "cure" MS).

Reactions to this theory vary, but most consider it an oversimplification of things and recent evidence of the impact of MS treatments on multiple sclerosis itself leads most researchers and physicians to believe we are "on the right track."

For the full-text article explaining this theory in more detail, see Abhijit Chaudhuri and Peter O Behan. "Multiple sclerosis: looking beyond autoimmunity." J R Soc Med, Jul 2005; 98: 303 - 306.

( I am SURE many have wondered, if they are being treated correctly)


New Pathways Magazine

You can receive "New Pathways" for free for 1 year. It's a very interesting magazine. Hope you have a great summer!
Take Care, Laurie

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Tuesday, June 9, 2009

MS Views and News - for All Affected By Multiple Sclerosis

Our Mission: We are dedicated to the global collection and distribution
of current information concerning Multiple Sclerosis. In collaboration with
other organizations, MS Views and News uses state-of-the-art communication
channels to provide information for those affected by, or interested, in MS.
a 501(c)3 Not-for-Profit Organization

Whether an MS patient, a caregiver or a medical professional:

If you are not yet receiving the weekly MS e-Newsletter, titled "Stu's Views and MS Related News", or having access to our website and MS blog, then please consider registering after reading the information found below:


Enter a place where information and knowledge is provided for anybody affected by Multiple Sclerosis. This includes the patients, caregivers, medical providers and/or anybody just interested in having availability to MS information.

On our website's homepage (, you will find a link to register for our website and weekly publication of "Stu's Views and MS Related News", an MS e-Newsletter.

Other features of the MS Views and News website includes:

* Our MS Resources sections of many other Multiple Sclerosis organization weblinks and a video library. * See our MS Resource weblinks section

* Find our articles from Ask the MS Nurse and Occupational Therapist. There is a learning .pdf on Achieving Wellness.

* Additionally, click the link found on the left side of homepage to view our Library of MS Archives (

A Must see is our MS BLOG (, where you will find easy-to-read MS articles. Thru this blog you will have access to many other MS informational resources and organizations as well as other MS bloggers. Find the category listings and other links found on the right side column of this blog to help you to better understand Multiple Sclerosis.

On the MS Views and News website, you will find MS Facts and information

in more than (11) different languages. (This is beneficial and much needed

for MS patients or family members/caregivers who don't read or fully

understand English, but need Multiple Sclerosis information).

Once you are registered, you will begin receiving our weekly MS e-Newsletter

MS Views and News, Inc., strives to keep the MS patient and caregiver,

informed and up-to-date with MS News and Information

If you have any information, questions or comments, please send an email to Stuart Schlossman


As a reminder I am not authorized to answer specific questions regarding medical diagnosis or treatment. Should your inquiry deal with such specifics, you should contact a physician or other qualified health care provider. If your inquiry is of a more general nature, please feel free to contact me, by email.

Warm Regards, Stuart Schlossman


Sheriff's deputies bicycle to fight multiple sclerosis and to get fit (in MS150)

Palm Beach Post Staff Writer

Tuesday, June 09, 2009

Their goals were lofty: raise money for charity and raise their own level of fitness.

Toward those ends, several officers with the Palm Beach County Sheriff's Office recently cycled from Miami to Key Largo to raise money for multiple sclerosis.

"With the economy not doing well, the charities are all hurting," says deputy Richard Jackson. "We feel it's important to support them and at the same time get some good exercise."

The officers who took part in the National MS Society's MS 150 Bike Tour are members of the PBSO Cycling Club, which rides in West Palm Beach's Okeeheelee Park, or, for more experienced cyclists, all around Palm Beach County.

CLICK here to continue and to learn which deputies were involved.

Have you something to share, leave your comment here.


Monday, June 8, 2009

L'Hermittes and other sensory symptoms of MS

L'Hermitte's sign describes electrical buzzing sensations in the limbs and body brought on by movement of the neck. These sensations are known as paraesthesia and include tingling, buzzing, electrical shocks, partial numbness and sharp pains. L'Hermitte's is most often triggered by lowering the head so that the chin touches the chest. The sensations usually only last for a second or two. It has been called the "barber shop" symptom because it is often evoked when the hairdresser asks you to lower your head when he or she shaves the back of your neck.

L'Hermitte's is associated with a number of conditions including arthritis, cervical spondylosis, disc compression, pernicious anaemia, tumours and multiple sclerosis. In many cases, the cause cannot be found.

Because the cervical spinal cord is a frequent target for multiple sclerosis it is a very common symptom of MS. Aproximately two thirds of people with multiple sclerosis experience L'Hermitte's symptom at some point during the course of their disease.

In MS, L'Hermitte's is an indicator of lesions in the cervical spine (the part of spine in the neck). Movement of the neck causes the damaged nerves (the demyelinated neurons) to be stretched and send erroneous signals. The symptoms can occur anywhere below the neck and many people with MS find that it moves around their body from one day to the next.

L'Hermittes sign links:
Sensory symptoms of multiple sclerosis


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Medication Vacations... - A MAJOR No - No !!

by: Stuart Schlossman

Again needing to be written.
I still hear and read from so many people who think that it's cool, to stop taking their medications. It's Not cool or even partially cool. It's Dangerous !!

Those that don't know what I put myself through need to read the series of messages that I provided for the world to see, how stupid I was.

And now for all those reading what I just wrote, I will write it again, YES, I was STUPID and I do not want you to have to say this in months to come, so please heed the warning.

Begin with this posting:

A Multiple Sclerosis Patients' desire to share his ill advised Medication Vacation and the aftermath...

And then continue to read the ones ( the articles I wrote) that preceded the above link.
Beginning with: The No-No's of taking Medication Vacations -

IT IS IMPORTANT that you understand that there can be harsh consequences for not taking medication that is known to help you.

And even now, I wonder if my setback last year, caused me to get as far along as I am now, as I know I continue to worsen.......


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Fatigue - Specifically MS Fatigue

And even more specifically, MS Fatigue, exacerbated by Heat....
written by: Stuart Schlossman-RRMS

I was almost annihilated yesterday, by fatigue brought on by heat, brought on by? - Oh of Course, my MS .... Thinking it was early enough in the day to tend to the grounds of my backyard. And after just about 15 minutes, feeling as if I were going to pass out..

Recovering some, by getting in the pool fully clothed (but luckily remembering to remove my wallet and cell phone) to get an immediate cool down.
But yet, spent the rest of the day feeling "wasted". Like I was drug induced or having drank way too much...

Of course you would think that I (Stuart Schlossman) would know better than to attempt what I did in 80+ degree weather. But it needed to be done as so much time has passed since the last time I tended to my grounds.

Well, I can say this.. Unless it's 6am or 8 at night, the tending to what I did yesterday, may have to wait til the winter months or for me to get somebody else to do these small tasks...
Small tasks that i guess I am no longer able to accomplish.

I slept like a baby last night, having fallen asleep with just .06 seconds remaining in the Lakers-Magic game. Awoke this morning still feeling dazed and learning the Lakers won in Overtime.

Even now, almost 5 hours since awakening, I am still feeling: beat-up / dazed / wasted...
Yes- I will be resting today as I have many other thinsg to do this week where my mind is needed to function.

For those that want to read: Much is written of fatigue, by the National MS Society: Click here
But, what do you do to combat fatigue?
Your responses could benefit others. Maybe even me........

Have a GOOD day.

p.s. :
If not yet registered to receive the "Stu's Views and MS Related News", weekly Multiple Sclerosis e-newsletter, then please Click Here to register.


EMD Serono Staging Battle Against Multiple Sclerosis in Boston, Chief Says

Ryan McBride 6/8/09

If you don’t already count EMD Serono among the leaders in research of multiple sclerosis treatments in the Boston area, perhaps you haven’t talked to EMD chief executive Fereydoun Firouz. For EMD Serono—the U.S. affiliate of German chemical and drug powerhouse Merck KGaA and its Swiss biotech unit Merck Serono— the Boston area is home to a multi-pronged effort to develop new drugs for multiple sclerosis as well as other neurodegenerative diseases, cancer, and fertility-related conditions.

Click here to continue reading


Battling MS in Baghdad using Stem Cell therapy:

Stars and Stripes - By Geoff Ziezulewicz, - Mideast edition, Monday,
June 8, 2009

Iraqi doctor uses stem cell therapies to help treat patients’ diseases

Amid the blast walls and cacophony of Baghdad, patients at a local clinic are receiving potentially groundbreaking stem cell therapy, treatments that remain illegal and unproven in many countries.

Dr. Abdul Majeed Alwan Hammadi is conducting the treatments for free, mostly on young Iraqis. He is a clinical hematologist who works in the Bone Marrow Transplant Center, part of Baghdad’s Medical City complex of hospitals on the eastern banks of the Tigris River.

Hammadi says he started therapies in 2008 and has so far treated 34 patients, the majority for multiple sclerosis.

Continue reading, from the 4th paragraph


A Few Possible Ways to Help Treat Multiple Sclerosis Patients

A look at various treatments including BHT-3009 ( a potential vaccine?)

Just a couple years ago there were no medication available to completely cure multiple sclerosis (MS). There were just medications and different therapies to keep MS severity relatively under control. But what is happening today? Today researchers say that there are real hopes for a vaccine that will help MS patients cure the disease. Despite the enormous advances in the pharmacological treatment there will still be needed some time till this vaccine will actually be approved by FDA as a safe medication for use.

Click here to continue (at the 2nd paragraph)

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Sunday, June 7, 2009

Multiple sclerosis and facial pain

June 5, 2009
Multiple sclerosis and facial pain
By Trevis Gleason

It wasn’t that long ago when a competent doctor might have told us that “there is no pain associated with MS.” It’s funny how much they’ve learned in the past few years.

We’ve talked about some of the pains associated with multiple sclerosis here before. There have been discussions of the MS Hug, stabbing leg & foot pain, Lhermitte’s sign, etc. One MS Pain we haven’t much talked about is trigeminal neuralgia (TN) also known as tic douloureux. When people have this, they feel a hot, stabbing facial pain.

Continue to read this informative message by clicking here.


Multiple Sclerosis Drug keeps people with MS walking, even running

June 5th, 2009 @ 6:21pm
By Ed Yeates

SALT LAKE CITY -- After following hundreds of multiple sclerosis patients for more than two years, physicians say an elegant but very simple drug is dramatically changing the outcome of their disease.

At the Rocky Mountain Multiple Sclerosis Clinic neurologist John Foley checks Heidi Adams for coordination and movement. She comes in once a month for an infusion of an agent called TYSABRI.

Dr. John Foley, division chief of neurology at LDS Hospital, said, "This is the first time we've really been able to gather data of actual improvement, where people are getting better."

( >>> CLICK HERE to watch a Video that provides "hope" for many )

During clinical trials, physicians had hoped the monoclonal antibody would simply stabilize MS, minimizing relapses, but expectations apparently fell short of what it really can do.

"Short of being able to actually cure this disease, which I think is still fairly a long way into the future, the next best thing is to be able to put it into sort of suspended animation," Foley said.

Heidi was rapidly going downhill. With vertigo, she was spinning and falling. She was stiff with spasms in the back and legs and was ready to go on disability, but not anymore.

Now, after 37 months of infusions, Heidi is walking in a park, and you wouldn't even know she has MS.

Little dark spots where certain white blood cells at one time attacked and destroyed the sheaths around her nerves are in the past. The damage, for now, has ended.

Heidi said, "This year, I've done three half marathons, and I'm able to run four to six days a week and exercise normally, so that's really been fantastic."

Dr. Foley has close to 300 Utah MS patients on TYSABRI. Not all are doing as well as Heidi, but many are. He says other agents on the heels of this drug may hold even more promise.

TYSABRI works by keeping those white blood cells that attack nerve sheaths from entering the brain or spinal cord. The agent does not kill cells. It's not considered an immunosuppressant drug.


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