Managing Symptoms: Bowel Dysfunction
featuring Nancy Holland, EdD, RN, MSCN
- Incontinenance of the bowel
- A healthy regimen
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CHAMPIONS TACKLING MS - AWARDS Dinner, Honoring Aaron Boster, MD and Jon e. Glaser, DDS - now open for registration. Visit www.events.msvn.org
- Provide Rich Social Media Experience For WalkMS Participants -
The site, www.iwalkbecause.org, relaunched to coincide with the 2009 season of the National Multiple Sclerosis Society's WalkMS program, is the online extension of Acorda's presence at 30 of the largest Walks around the country. Saatchi & Saatchi Wellness partnered with Studio PMG, a
Continue to read from the 3rd paragraph
Biogen Idec. Inc. recently reported the eighth confirmed case of progressive multifocal leukoencphalopathy (PML) in a patient taking the company’s drug Tysabri. PML is a rare and often fatal viral disease that is characterized by progressive damage or inflammation of the white matter of the brain at multiple locations.
According to reports, the patient with the latest confirmed PML case took 35 doses of the monthly medication, the most of any of the post-launch cases, and was located overseas. Only two of the eight cases since last July were located in the U.S.
In 2005, a link between Tysabri and PML led to the drug being pulled off the market for 18 months. The drug was relaunched in 2006 due to its effectiveness in fighting MS.
It is reported, however, that the long-projected risk of developing the PML infection while on Tysabri is well below 1 in 1,000 patients.Continue reading
The TOPIC Study is a clinical research study testing the safety and effectiveness of Teriflunomide, an oral investigational medication for those at high risk of developing multiple sclerosis (MS). This study, which is sponsored by Sanofi-Aventis, will also determine whether early treatment can reduce the severity of symptoms associated with MS.
Teriflunomide (Terr-eh-floo-no-mide) is derived from Leflunomide (Leh-floo-no-mide), also known as Arava®. (<Arava® is already approved in many countries for the treatment of rheumatoid arthritis. Teriflunomide inhibits rapidly dividing cells, including activated T cells, which are thought to drive the disease process in MS.
In every healthy marriage and relationship, intimacy plays an important role. For those living with a disability, such as multiple sclerosis (MS), maintaining a satisfying sex life can be an arduous task. But there are ways to return to the level of intimacy you once knew.
“I think MS, especially for women who are diagnosed, can affect your psyche,” says Mimi Mosher, who, through the National Multiple Sclerosis Society, offers intimacy guidance to patients. “Many women, at times, feel unattractive and experience mobility issues and various symptoms of the disease that hurt their self-confidence. First and foremost you really need to restructure who you are and become comfortable in your own skin before you can start to address intimacy and relationship-related issues.”
Mosher was diagnosed with progressive MS at the age of 24, gradually losing her ability to walk and witnessing a steep decline in her energy and stamina. Her initial MS symptoms were vision-related: She unexpectedly started losing her eye site. After undergoing a barrage of tests, doctors gave her a 30% chance of not having MS.
To continue to read this well informative and much needed (by many) article, click here
* Biogen working on test for virus related to PML
* Says risk of PML less than originally believed
* Physicians expected to increase Tysabri use
By Toni Clarke
BOSTON, March 25 (Reuters) - Biogen Idec Inc said on Wednesday it is developing a test that can identify the presence of a virus that can cause a potentially deadly brain infection in certain patients taking its multiple sclerosis drug Tysabri, and hopes to have it available by year-end.
Click here to continue reading from Reuters
The Rhode Island legislature overrode a gubernatorial veto of a medical marijuana law Tuesday afternoon by an overwhelming margin, paving the way for state-licensed medical marijuana shops to begin operating. The House voted 68-0 for the pot measure and the senate moved it minutes later by a 35-3 count.
Once the law takes effect, the state will be the first in the nation to have one officially licensed nonprofit center selling marijuana. Over time, the state will license further nonprofit dispensaries.Continue reading this GREEN, Leafy Story
Daily Record - June 16, 2009
A CAMPAIGNING Scots schoolboy whose mother has multiple sclerosis has led hundreds of supporters to Hollyrood in a bid free vitamin D to be made available for children and pregnant women..
Ryan McLaughlin wants the groups to get free vitamin D supplements, believing it can help prevent multiple sclerosis (MS).
The 14-year-old from Drumchapel, Glasgow, said he decided he had to act when he saw his mother suffering with the incurable disease.
Ryan said he was inspired after watching the film Braveheart and hearing Harry Potter author JK Rowling talk about her mother's battle with MS.
He was joined by around 200 supporters, many of them schoolchildren, in a march down Edinburgh's Royal Mile towards the Scottish Parliament.
Speaking before putting his case to Holyrood's Petitions Committee, he said: "I'm going to Parliament to try to give them my insight into how my family's been affected and that vitamin D is the answer, in my opinion, to get through this."
Continue to read by clicking here and continuing from the 7th paragraph
David Rice Jr. had not even reached his 40th birthday when he found out he had multiple sclerosis.
"I was sad. You think about your future, and you think, what's my future going to be? Am I going to be a burden to someone? What's going to happen with me?" says Rice.
Click here to continue reading from the 3rd paragraph and to watch a video from NY1.com
|from Julie Stachowiak, Ph.D. |
Usually I try to find articles or blogs that have a loosely-related theme, then say something moderately insightful about them. However, today I woke up feeling the effects of the heat and lack of sleep and worse than when I went to bed last night. Most days I rage against these feelings and fight them to get something done, which usually ends up with me feeling a little angry and still nonproductive.
Today I have decided to kick back a little and take a new approach (although I still put together a couple little articles for you guys). Think I am going to be nice to myself, take it as easy as possible and see what happens. I bet I'll get just as much done and feel better about this whole situation.
I encourage everyone to do the same - do something that makes you feel good. It's worth a try, and besides, I am starting to realize that the sun doesn't seem to be responding to my threats and begging, unless that is the reason that it has kicked it up a notch. Take (extra) care of yourselves, my friends.
WASHINGTON: Scientists have discovered two new genes involved in multiple sclerosis, a breakthrough they claim could pave the way for treating the debilitating disease using vitamin D.
An international team has pinpointed the two genetic variants which increase the risk of multiple sclerosis as well as reveal links to other autoimmune disease, the latest issue of the 'Nature Genetics' journal reported.
Lead scientist Prof Matthew Brown of the University of Queensland said: “One of the two genes is most likely a gene which controls metabolism of vitamin D. Previous research has already shown that levels of vitamin D influence the risk of people contract ing MS. **For example, people have a higher risk the further they live from the Equator. This instantly suggests that a possible preventative treatment for multiple sclerosis is vitamin D. This may lead to new types of therapeutics down the track.'' Thei r three-year study involved scanning the DNA of 1,618 people with multiple sclerosis and 3,413 people without multiple sclerosis.
The team looked at genetic landmarks in the genome called SNPs and then progressively narrowed down their search to individual genes. After comparing over 300,000 SNPs, two genetic regions on chromosome 12 and 20 showed significant differences. - PTI
Source: Business Line - June 16, 2009
Type of MS: rapidly progressing
Year of Diagnosis: 1999
"It was an amazing feeling to go step by step by step up Mount Everest with the World MS Day flag in my pack. Each step was hard and I had to concentrate on every aspect, and I had to really convince myself to keep going. It gave me a whole new feeling for people with MS who may have a hard time walking across a room. My difficulty on the mountain was short-lived, but I realised that some people with MS experience this level of difficulty with every step they take. I encourage them not to give up hope and to keep following their dreams!"
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NEW YORK (Reuters Health) - Zocor (simvastatin), a "statin" type of cholesterol-lowering drug, may block the body's ability to repair nerve tissue, according to a report in The American Journal of Pathology.
The results of an animal study suggest that use of Zocor impairs "remyelination," a process in which the fatty outer covering of nerve cells is reformed. Several neurologic disorders, most notably multiple
Statins are currently in clinical trials for the treatment of multiple sclerosis based on their ability to improve symptoms in animal models of the disease. However, there has also been evidence that statins may damage the cells responsible for remyelination.
Dr. Veronique E. Miron from McGill University, Montreal, Canada and colleagues investigated the effect of long-term Zocor therapy on an experimental form of multiple sclerosis in lab animals.
Treatment with Zocor for 5 weeks, but not for 3, impaired remyelination, the authors found. They believe that Zocor achieves this effect by blocking the development of cells responsible for remyelination.
The results highlight the importance of monitoring the long-term effects of drugs that can access and affect the brain and spinal cord, the researchers state..SOURCE: The American Journal of Pathology, April 6, 2009.