Please visit our MS learning channel on Youtube, which provides hundreds of topics from our education programs, that were video-recorded and archived here: www.youtube.com/msviewsandnews

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Disclaimer: 'MS Views and News' DOES NOT endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.

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Saturday, October 10, 2009

Juggling increases brain power


Complex tasks like juggling produce significant changes to the structure of the brain, according to scientists at Oxford University.

In the journal, Nature Neuroscience, the scientists say they saw a 5% increase in white matter - the cabling network of the brain.


Click here, to read this BBC News report


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Life with Chronic Pain: A How-to Guide

Information provided by: Barbara (a mother of an MS patient). Evidently she cares to share and wants other mothers, of MS patients to also get involved as they too, are affected by MS


Barbara wants to share these information Tips on Cooking, Housework, and Life in General:

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A Multiple Sclerosis patient Perseveres through the pain of the chronic disease

Former Education Alliance Leader Finds Power Over Multiple Sclerosis
Posted Saturday, October 10, 2009

Hazel Palmer perseveres through the pain of the chronic disease which she was diagnosed with at age 57.

Story by Mike Ruben

CHARLESTON -- Tradition at the church had been to light a candle of hope.

Hazel Palmer opted to take a slightly different symbolic approach eight years ago after learning she had been diagnosed with adult-onset multiple sclerosis.

“I lit a candle of reality,” she said.

“I was committed to get on with my life, and to live my life my way. MS is part of it, but it’s still going to be a good life,” said Palmer, who retired earlier this year as president and chief executive officer of the West Virginia Education Alliance, a nonprofit organization dedicated to improving student achievement in the state’s public school system.

MS is a chronic disease that attacks the central nervous system — the brain, spinal cord and optic nerves. Essentially, it is caused by damage to the myelin, which interferes with the transmission of nerve signals. While there is no cure, there are effective strategies to modify the course of the disease and to treat flare-ups.


Continue reading this story by clicking here: http://www.wvnstv.com/story.cfm?func=viewstory&storyid=68208

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Important Links for those affected By Multiple Sclerosis

Visit our homepage : http://www.msviewsandnews.org
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To have access to :
  • Web Resources for Individuals with Multiple Sclerosis (MS
  • International MS Society websites
  • MS Views and News Web Resources
  • MS Drugs in Research
  • Everyday Tips When Living with Primary-Progressive M.S.
  • FAQ's about Multiple Sclerosis
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Then familiarize yourself with the other information found on our site, by clicking the various links found on the left side of the homepage.
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When you have time, click the various banners to see our site sponsors and what they do or have, for those with Multiple Sclerosis



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Tails of Love (Not MS related)

Tails of Love

By Geoff Brown, November & December 2009

The bond between people and animals is one of the strongest and most beneficial friendships in history. Now researchers are beginning to learn more about this unbreakable connection


The rocket came in fast, maybe 900 feet per second—too fast for anyone to sound the warning siren, and much too fast for all the troops of the 2nd Marine Expeditionary Force to take cover. It was March 21, 2007, when the 73-millimeter insurgent-launched rocket exploded inside their base in the Al Anbar province of Iraq, right next to Corporal Dustin Jerome Lee and his canine partner, Lex. Lee, a 20-year-old Mississippi native, was gravely wounded by the blast. Lex—a German shepherd trained to sniff out hidden explosives—was also injured, his brown and black fur burned, shrapnel lodged in his back and spine.

Marines on the scene watched as the bleeding Lex climbed on top of Corporal Lee to protect him from further harm. They saw Lex try to revive his master by licking his wounds. And the Marines who rushed to their comrade's side had to peel Lex reluctantly off the young corporal so medics could try to save him. But Corporal Lee's injuries were too severe; he died at a nearby military hospital.

A few days later, two uniformed Marines arrived at the Lee family home in Quitman, Mississippi, to deliver the news of the corporal's death. "After the Marine Corps representative told us everything that happened," recalls Dustin Lee's mother, Rachel (pictured above with Lex), "my next question was—and I'll always remember it—'What about Lex?' "

Continue reading from the fourth (4th) Paragraph


I am a dog lover. Have three of my own, and had to show others this story



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"Don't Ask Me How I Feel - I Have MS" - By Stephen Knapp

"Don't Ask Me How I Feel - I Have MS"
- By Stephen Knapp
-
An MS patients' story

My neurologist stunned me
when she said:
"You have Multiple Sclerosis
and looking at your MRI,
you are a walking time bomb"

To Read More,

Click Here

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Friday, October 9, 2009

For those with PPMS (Primary Progressive MS), a study that "should " interest you:

FINALLY, a study that many of you have been waiting for.

For those with PPMS (Primary Progressive MS), shown below is a study that "should " interest you:

NEUROLOGICAL ASSOCIATES is seeking PPMS patients who may be interested in participating in a clinical research study with Dr. Brian Steingo.

  • This is an oral medication.
  • Patients with primary progressive MS are eligible for this study.
  • One of the criteria is that your first MS symptom must have occurred between 2 and 10 years ago.


If you are interested, please call Cara at (954) 738-1686.

The location of this study is in Fort Lauderdale , Florida


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Remain up-to-date with Multiple Sclerosis (MS) News by being registered at: http://www.msviewsandnews.org - Once registered, you will begin receiving our weekly MS related e-newsletter, called "Stu's Views and MS Related News"

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Management options for bladder dysfunction in patients with multiple sclerosis

9-October - 2009

An outline of the management options for patients with MS who experience bladder symptoms, which usually arise due to spinal cord involvement

Author:

Collette Haslam, BSc, RGN, is clinical nurse specialist in uro-neurology, National Hospital for Neurology and Neurosurgery, London.

Abstract:

Haslam, C. (2009) Management options for bladder dysfunction in patients with multiple sclerosis. Nursing Times; 105: 40, early online publication.

In the UK today there are thought to be more than 85,000 people with multiple sclerosis (MS). Approximately 75% will go on to develop bladder symptoms, usually as a result of spinal cord involvement, which is a common feature of the condition. In the UK practitioners now aim to arrange management for each patient according to their individual needs and level of disability. This article outlines the various treatment and management options available.

Keywords: Multiple Sclerosis, Bladder dysfunction, Urinary incontinence

  • This article has been double-blind peer-reviewed.

Introduction:

Multiple sclerosis (MS) is a chronic inflammatory demyelinating disease of the central nervous system (brain and spinal cord). The cause is still unknown but evidence to date suggests it has an autoimmune component which causes myelin damage. It is often progressive, leading to increasing disability.

Bladder problems in MS usually arise due to spinal cord involvement and, as the disease progresses and mobility deteriorates, it is not uncommon for bladder symptoms to worsen. The condition affects 100-120 people per 100,000 population and, of these, approximately 75% will develop urinary symptoms (NICE, 2003a).

The severity of bladder dysfunction is usually related to patients’ level of disability although there are exceptions. One feature of MS is that symptoms can vary in severity due to its relapsing/remitting course. A UK consensus for continence management was recently agreed by a multidisciplinary group involved in MS patient care (Fowler et al, 2009) (Fig 1).


The bladder in MS: CLICK here to continue from NursingTimes.net

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Avanir drug shows promise for MS-related pain

October 9, 2009

(Reuters) - Avanir Pharmaceuticals Inc said a late-stage trial of its neurological drug Zenvia showed encouraging proof of concept data in relieving pain associated with multiple sclerosis (MS), sending its shares up more than 16 percent.

Additional data from its STAR trial, which tested Zenvia as a treatment for pseudobulbar affect (PBA), showed that the 30/10 mg dose of the drug reduced MS-related pain in a small subset of patients with moderate-to-severe pain, Avanir said.

PBA is a condition in which patients cannot control outbursts of crying or laughing. It affects an estimated 2 million Americans with multiple sclerosis, Lou Gehrig's disease (ALS), stroke and other neurological diseases or trauma that can cause brain lesions.

Continue reading more of Avanir from this REUTERS news release

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Fampridine-SR Update - for the proposed indication of improvement of walking ability in people with multiple sclerosis (MS).

Acorda Therapeutics Announces Posting of Briefing Documents for October 14 FDA Advisory Committee Meeting on Fampridine-SR
  • Company to Host Investor Conference Call on Thursday, October 15 at 8:00 a.m.

HAWTHORNE, N.Y.--(BUSINESS WIRE)--Oct. 9, 2009-- Acorda Therapeutics, Inc. today announced that the U.S. Food and Drug Administration (FDA) has posted on its website briefing documents for the Peripheral and Central Nervous System Drugs Advisory Committee meeting to review Acorda’s New Drug Application (NDA) for Fampridine-SR for the proposed indication of improvement of walking ability in people with multiple sclerosis (MS). The Prescription Drug User Fee Act (PDUFA) action date for the Fampridine-SR NDA is October 22, 2009.

The Advisory Committee meeting is scheduled for 8:00 a.m. ET on Wednesday, October 14th. The briefing materials can be accessed at:

http://www.fda.gov/AdvisoryCommittees/WhatsNew/default.htm


Continue Reading this news release

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Misc. Household tips (Non MS Related )

Information provided by Paul M. - thanks Paul. I am sure that there is at least one item for each person that reads this:

A sealed envelope - Put in the freezer for a few hours, then slide a Knife under the flap. The envelope can then be resealed.. (hmmm...)
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Use Empty toilet paper roll to store appliance cords
.. It keeps them Neat and you can write on the roll what appliance it belongs to.
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For For icy door steps in freezing temperatures: Get warm water and put Dawn dish washing liquid in it. Pour it all over the steps. They won't refreeze. (wish I had known this for the last 40 years!)
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To remove old wax from a glass candle holder
, put it in the freezer for A few hours. Then take the candle holder out and turn it upside down. The wax will fall out.
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Crayon marks on walls? This worked wonderfully! A damp rag, dipped in baking soda. Comes off with little effort (elbow grease that is!).
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Permanent marker on appliances/counter tops
(like store receipt blue) Rubbing alcohol on paper towel.
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Whenever I purchase a box of S.O.S Pads, I immediately take a pair of Scissors and cut each pad into halves. After years of having to throw Away rusted and unused and smelly pads, I finally decided that this would
Be much more economical. Now a box of S.O.S pads last me indefinitely! In fact, I have even noticed that the scissors get 'sharpened'' this way!
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Blood stains on clothes? Not to worry! Just pour a little hydrogen Peroxide on a cloth and proceed to wipe off every drop of blood. Works Every time! (Now, where to put the body?) LOL

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Use vertical strokes when washing windows outside and horizontal For inside windows. This way you can tell which side has the streaks. Straight vinegar will get outside windows really clean. Don't wash windows On a sunny day. They will dry too quickly and will probably streak.
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Spray a bit of perfume on the light bulb in any room to create a lovely Light scent in each room when the light is turned on.
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Place fabric softener sheets in dresser drawers and your clothes will Smell freshly washed for weeks to come. You can also do this with towels AND linen.
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Candles will last a lot longer if put in the freezer for at least 3 hours prior to burning.
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To clean artificial flowers,
pour some salt into a paper bag and add the Flowers. Shake vigorously as the salt will absorb all the dust and dirt And leave your artificial flowers looking like new! Works like a charm!
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To easily remove burnt on food from your skillet
, Simply add a drop or Two of dish soap and enough water to cover bottom of pan, and bring to A boil on stove top.
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Spray your TUPPERWARE with nonstick cooking spray before pouring In tomato based sauces and there won't be any stains.
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Wrap celery in aluminum foil when putting in the refrigerator and it will Keep for weeks.
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When boiling corn on the cob,
add a pinch of sugar to help bring out the Corn's' natural sweetness
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Cure for headaches: Take a lime, cut it in half, and rub it on your Forehead. The throbbing will go away...
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To get rid of itch from mosquito bites, try applying soap on the area And you will experience instant relief.
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Ants, ants, ants everywhere ...
Well, they are said to never cross a chalk Line. So, get your chalk out and draw a line on the floor or wherever ants Tend to march See for yourself.
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Use air-freshener to clean mirrors. It does a good job and better still, Leaves a lovely smell to the shine.
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When you get a splinter, reach for the scotch tape before resorting to Tweezers or a needle. Simply put the scotch tape over the splinter and Then pull it off. Scotch tape removes most splinters painlessly and easily.
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Now look what you can do with Alka Seltzer to clean a toilet. Drop in two Alka Seltzer tablets, wait twenty minutes, brush and flush.
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Clean a vase.
To remove a stain from the bottom of a glass vase or cruet, fill with water And drop in two Alka Seltzer tablets.
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Polish jewelry.
Drop two Alka Seltzer tablets into a glass of water and immerse the Jewelry for two minutes.
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Clean a thermos bottle.
Fill the bottle with water, drop in four Alka Seltzer tablets, and let soak for an hour (or longer, if necessary).
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Unclog a drain.
Clear the sink drain by dropping three Alka Seltzer tablets down the drain followed by a cup of Heinz White Vinegar. Wait a few minutes, and then run the hot water.
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Do your friends a favor.
Pass this timely information on to a friend! Makes you wonder about ingesting Alka Seltzer, doesn't it?

==============================

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Thursday, October 8, 2009

Calling on Relapsing Remitting Multiple Sclerosis Patients in New York

Calling on Relapsing Remitting Multiple Sclerosis Patients in New York- Get $100 for an interview

The Patients Voice would link to invite you to take part in our latest market research project with relapsing remitting multiple sclerosis patients in New York.

The research will take the form of a sixty minute interview at a central location in Manhattan on 20th October 2009 in the morning. If you do take part we will be delighted to reward you with $100.00 plus travel costs to thank you for your time and effort.

To qualify for the study you will need to meet at least the following requirements:-

  • Have been diagnosed with relapsing remitting multiple sclerosis
  • And have been on your current medication for longer than six months

If you wish to take part there are two ways you can put yourself forward for the study. Click here to get this information.

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MS Views and News and Stu's Views and MS News, prides itself on providing all affected by Multiple Sclerosis, with information that can benefit or help you to manage this illness. If you are not already registered at our website to receive our weekly MS related e-newsletter, then please take a moment now, to register. Then please, share our information with others whom you know, will benefit from also getting our information.

Thank you

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Wednesday, October 7, 2009

Glatiramer Acetate Treatment Reduces Risk of Early MS Progressing to Clinically Definite Disease

Treatment with glatiramer acetate can reduce by almost half the risk of patients progressing from the very early signs of multiple sclerosis (MS) to clinically definite disease, according to a study published early online and in an upcoming edition of The Lancet.

Giancarlo Comi, MD, Department of Neurology, University Vita-Salute, Milan, Italy, and colleagues conducted a randomised, double-blind trial at 80 sites in 16 countries.

A total of 481 patients presenting with a clinically isolated syndrome were randomly assigned to receive either subcutaneous glatiramer acetate 20 mg per day (n = 243) or placebo (n = 238) for up to 36 months, unless they converted to clinically definite MS.

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Keep Informed and Up-to-Date with MS News and information:
If not yet registered to receive the "Stu's Views and MS Related News", weekly Multiple Sclerosis e-newsletter, then please Click Here to register.

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National MS Society November Leadership Meeting in Chicago (Nov. 4-6)

National MS Society Bulletin

Posted by Mansi Akruwala

Get ready to Move It! Join the National MS Society at our November Leadership Meeting in Chicago (Nov. 4-6) as we celebrate and recognize some of the Society's most valued leaders -- our team captains and fund raising champions from Walk MS, Bike MS and other exciting Society-sponsored events. Enjoy three days of inspirational general sessions and informative workshops where you will hear from some of our most successful volunteers who have shown just how powerful a movement can be. General registration is $395.

Meeting Highlights:
- Special appearance and message by Phil Keoghan, host of CBS's The Amazing Race

- A "WOW" welcome reception that will feature highlights of Chicago's very own Navy Pier

-Keynote address by Joyce Nelson, President & CEO

-A special private concert by county music superstar Clay Walker

-Outstanding workshops and networking opportunities.

To register for the event: https://meetings.nmss.org/attendee/event/novleadership09.ww

View Bulletin on Facebook

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Listen to a Podcast of how Copaxone helps tthose with Multiple Sclerosis

PreCISe study and multiple sclerosis

Encouraging results from a phase III placebo-controlled trial suggest that glatiramer acetate (already licensed for relapsing-remitting multiple sclerosis) is effective in reducing progression to clinically definite disease after a first clinically isolated syndrome. Individuals were studied for three years, with MRI analysis done every 3 months to compare underlying disease progression with clinical symptoms.

The study is discussed in a podcast.

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If not yet registered to receive the "Stu's Views and MS Related News", weekly Multiple Sclerosis e-newsletter, then please Click Here to register.

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How Do I Know if I'm Having an MS Relapse?

Written By Julie Stachowiak, Ph.D., About.com

Remember, if you do get the flu or have a fever for other reasons, you may also experience increased MS symptoms. Here are some questions to help you figure out if it is a true relapse or a "pseudoexacerbation" caused by increased body temperature. Please note, however, only your neurologist (with the help of an MRI) can tell for sure if you are or are not having a relapse. Also, in some cases, an infection CAN lead to a true relapse, so see your doc if you are concerned.


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Lancet publication surrounding Phase III data from the COPAXONE® PreCISe study

The Lancet, Early Online Publication, 7 October 2009
COPAXONE® is the established global MS market-leading relapsing-remitting multiple sclerosis (RRMS) treatment based on the unsurpassed efficacy, safety and tolerability demonstrated over approximately 850,000 patient years of exposure.

The PreCISe results reinforce the importance and clinical benefit of early treatment initiation. Early treatment with disease-modifying therapies, such as COPAXONE®, is recommended by the National MS Society to prevent or delay the initiation or progression of irreversible neuronal damage. In the PreCISe study, investigators found:

· A 45 percent reduction in the risk of developing clinically definite MS in patients treated with COPAXONE® compared to those taking placebo; and,

· 25 percent of the patients treated with COPAXONE® delayed conversion to clinically definite MS by 115 percent (from 336 days for placebo to 722 days for COPAXONE®.)

Based upon those results, earlier this year, the FDA approved an expanded label for COPAXONE® to include the treatment of patients who have experienced a first clinical episode and have MRI features consistent with multiple sclerosis. Similar indications were also approved in the EU, Australia and Canada.


Study URL: http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(09)61259-9/fulltext#

Lancet PreCISe Commentary Piece: http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(09)61453-7/fulltext


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If not yet registered to receive the "Stu's Views and MS Related News", weekly Multiple Sclerosis e-newsletter, then please Click Here to register.

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Tuesday, October 6, 2009

International Journal of MS Care - Fall 2009 Issue


IJMSC Fall 2009 Issue
The Fall 2009 issue of the International Journal of MS Care is now available online at the following link:
http://www.mscare.org/cmsc/Current-Issue.html
Here is the listing of this issue's contents.
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Editorial, Lael Stone, MD, Editor-in-Chief
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Physical Activity Levels in People with Multiple Sclerosis in Saskatchewan
Angela S. Currie, Katherine B. Knox, Karen E. Glazebrook, Lawrence R. Brawley
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Team Focus: Physiatrist
Keith McKee, Francois Bethoux

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