Please visit our MS learning channel on Youtube, which provides hundreds of topics from our education programs, that were video-recorded and archived here: www.youtube.com/msviewsandnews

joomla ecommerce template -- Scroll left side of this blog for needed resources. Also, use our 'search by topic' tool, to find specific information.

Disclaimer: 'MS Views and News' DOES NOT endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.

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CHAMPIONS TACKLING MS - AWARDS Dinner, Honoring Aaron Boster, MD and Jon e. Glaser, DDS - now open for registration. Visit www.events.msvn.org

Thursday, December 24, 2009

An MS Caregiver Needs Stem Cell Information from those with firsthand knowledge

Stuart,

I appreciate what you are doing. My wife is quadriplegic, on a ventilator due to MS. Bedridden for 15 years.

I have hopes for stem cells and other possible cures. When I went to the site concerning the experiences in China with stem cell therapy, I noticed a pattern: generally enthusiastic praise for the treatment during and a few weeks after, followed by no further comments or a rare negative one on lack of progressw. The big improvements were to come within a few months and seem not to have occurred. We need to know the unvarnished truth, even if that diminishes the likelihood of a placebo effect.


Now I see other treatments being covered with a similar pattern: early this and early that.
Follow ups are needed!


Douglas W. Cooper, Ph. D.
Walden, NY
Click to view their family webpage: http://tinyurl.com/mfyh47
.
email Douglas at: dwcooper05@yahoo.com
or leave a comment on this blog site posting ( not on the facebook page that this will also appear)
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Wednesday, December 23, 2009

Multiple Sclerosis - A concern for many

For many, Multiple Sclerosis is of great concern.

This is why 'MS Views and News' is dedicated to the global collection and distribution of current information concerning Multiple Sclerosis. In collaboration with other organizations, 'MS Views and News' uses state-of-the-art communication channels to provide information for those affected by, or interested in MS.

Through our website and blog( Stu's Views & M.S. News) , we have countless resources of Multiple Sclerosis information and an abundance of weblinks that will re-direct you to other well known MS organizations.

Found on our website and blog are MS patient videos as well as other videos to help you to learn and better manage this disease.

Show our information to your caregiver(s) and others who want to help you to live with Multiple Sclerosis.
If not yet receiving our weekly MS related e-Newsletter (Stu's Views and MS Related News) then please act now to register. This will take less than (30) seconds to accomplish.

This e-Newsletter is currently being received in (59) countries. There must be a reason why so many people want to receive the information found in this e-Publication each week. -- [ UPDATED to (68) countries in Feb 2010 ]

We receive information and news sent from MS organizations, individuals with and without MS, Newswire Feeds, and other MS resources from all over the globe, to read and disseminate for your future viewing and learning.

Read our Welcome message and learn more about Stuart Schlossman (photo seen below) , by clicking here.
After all, he too has MS.

"MS Views and News" (MSV&N) is a 501©(3) organization as recognized by the Internal Revenue Service. We ask for contributions to help offset typical operational expenses. Please consider any sized donation (small or large) to help us with these expenses. Please Donate Now.

Happy Holidays.

Sincerely,

Stuart S. - RRMS

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If In The USA - Take Action : Critical Juncture for Health Care Reform

Urge your U.S. Senators to Support Health Care Reform
We are at a critical juncture in the effort to overhaul and improve our nation's health care system. MS activists played an important role in shaping the process, from release of the Society's National Health Care Reform Principles to relentlessly making calls and sending emails to ensure that the legislation adequately supports those living with MS. As the Senate completes work on its health reform package, MS activists must rise to the occasion one more time. The Senate could vote as early as tomorrow--scroll down to email your Senators now. Urge your Senators to support the Senate health reform bill.
The Senate bill makes substantial investments that will improve the lives of people living with MS and other chronic conditions or disabilities. In line with the Society's Principles, the Senate bill:
  • Extends health coverage to tens of millions of people who are currently uninsured and underinsured;
  • Works towards eliminating pre-existing condition discrimination;
  • Prohibits monetary lifetime benefit caps;
  • Restricts the use of annual limits to ensure access to needed care and beginning in 2014, completely prohibits monetary annual limits;
  • Helps make coverage affordable by limiting out-of-pocket costs, providing subsidies to lower-income families;
  • Increases certain providers' reimbursement; and
  • Invests in community-based and long-term care.

People living with MS and other chronic conditions are particularly vulnerable in our current health care system. We need meaningful reform now.

Every vote counts. CLICK HERE, then Scroll down and take action now. Urge both of your Senators to support the health reform bill so that we can seize this historic opportunity and take a true step towards accessible, affordable, comprehensive, quality health care for all.

The information provided above, comes from The National MS Society

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REVIVE MS Support

For those affected with Multiple Sclerosis (especially) in the UK, there is a relatively new support site for you to view, enabling you to reach out to others in similar situation as either you as a patient or for care givers.


Click the above Logo to access Revive MS

Over 10,000 people in Scotland (1 in 500) have MS, the highest prevalence of any country in the world. "Revive MS Support" aims to provide resources and support for everyone affected by MS.


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Tuesday, December 22, 2009

Multiple Sclerosis Music Video - Cool to watch an listen

the song found below was provided to me from an MS peer, Eileen in Miami -- Thank You Eileen


The person who created new imaging to go with the song says:
After singing along to this song by Jordin Sparks I realised some of the lyrics reminded me of MS... MS is kind of like having a tattoo - it'll always be there... we've got to learn to live with it..

Don't waste time and don;t look back.. Just click the above link and then share with others

Meanwhile, while not wanting you to waste any more time, if you haven't yet registered to be receiving my weekly MS related e-newsletter, then please (NOW) click here, to not miss another issue. each e0-newsletter is published each Thursday and as of yesterday, will be received this week in (59) Countries. In less than thirty seconds, you will be registered. Have a great day.
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National MS Society Continues to Propel Research Forward end MS - Launches 2010 With Call for Research Grants to Pursue CCSVI

2009 saw exciting research progress, unprecedented opportunities on the horizon, and more scientists than ever working on resolving important questions. Despite the year’s economic and financial challenges, the National Multiple Sclerosis Society continues to propel research forward to end MS.

New York, NY (Vocus/PRWEB ) December 22, 2009 -- 2009 saw exciting research progress, unprecedented opportunities on the horizon, and more scientists than ever working on resolving important questions. Despite the year’s economic and financial challenges, the National Multiple Sclerosis Society continues to propel research forward to end MS. In 2009 the Society provided over $33.5 million to support 345 new and ongoing projects in its research portfolio, plus $1.5 million for Fast Forward, the Society’s drug development subsidiary which continues to attract new funding streams. In addition, thanks to the efforts of our MS activists, $5 million was specifically allocated for funding MS research out of the 2009 Department of Defense budget.

As 2009 comes to a close, the Society maintains its nimble pursuit of promising research opportunities to end MS and has issued an international call for grant applications to expeditiously examine the potential impact of the chronic cerebrospinal venous insufficiency (CCSVI) hypothesis on disease process in MS. Working with MS Societies around the world, an international panel will be convened to conduct a joint expedited review of the grant applications submitted in order to ensure a coordinated, strategic approach to funding the best research examining the CCSVI hypothesis in 2010. http://www.nationalmssociety.org/news/news-detail/index.aspx?nid=2206

The following is just a small sample of the many important, potentially high-impact research results that occurred during 2009, which support the Society’s three research goals: stopping MS, reversing the damage and restoring function, and ending MS forever.

CONTINUE to read this very interesting MS Society Press Release, by clicking here

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ImmunoSupressive vs Immunomodulator Therapies for Multiple Sclerosis

What are immunosuppressive drugs?

Research indicates that MS is an autoimmune disease. As immunosuppressants have been proven to be beneficial in other autoimmune diseases such as rheumatoid arthritis and psoriasis, drugs that have an immunosuppressant function have shown to be potentially beneficial in controlling disease progression in patients with MS.

Immunosuppressive drugs work by suppressing the body’s immune reaction, and they prevent the body’s ‘good’ white cells (leukocytes) from attacking each other. Normally, leukocytes help regulate the immune system. Immunosuppressive drugs offer another way of treating MS but they are normally used if the disease is progressing in spite of immunomodulatory treatment.

There are a variety of immunosuppressive drugs that have been used in cancer treatment and that have proved effective in treating advanced forms of MS. Specific immunosuppressive drugs used in MS therapy include azathioprine, mitoxantrone and occasionally cyclophosphamide or methotrexate.

However, only Tysabri® (Natalizumab) (in the USA) and Novantrone® (Mitoxantrone) (in the USA, France and Switzerland) are currently licensed specifically for use in the treatment of MS.


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What are immunomodulatory drugs?

Immunomodulatory drugs are Disease Modifying Drugs(DMDs), which alter the course of the disease.

Treatments for MS have been considerably advanced by the availability of Disease Modifying Drugs. Positive outcomes in people with relapsing forms of the disease have been demonstrated, including:

  • reduction in the frequency and severity of relapses; and
  • reduction of brain lesion development, as evidenced by Magnetic Resonance Imaging, (MRI), and (for some DMDs) the possibility of future disability.

As the name suggests, immunomodulatory drugs ‘modulate’, i.e. change, the disordered immune processes of MS, and have a corrective effect on the immune system. Interferons belong to this group of drugs.

Interferons are small soluble proteins or glycoproteins that, as ‘messenger substances’, modulate immune responses.

Read more about Interferons and the role they play in treating MS.

Recent results from clinical studies indicate that therapy should begin as soon as possible after diagnosis.

Dosage and route of administration of current available immunomodulatory drugs

Proprietary name

Rebif®

Avonex®

Betaferon®

Copaxone®

International
non-proprietary name

Interferon beta-1a

Interferon beta-1a

Interferon beta-1b

Glatiramer Acetate

Delivery systems

Ready to use Pre-filled syringe

Reconstitution needed / pre-filled syringe

Reconstitution needed

Ready to use pre-filled syringe

Available dosage

22 mcg three times a week or 44 mcg three times a week

30 mcg once a week

0,25 mg every other day

20 mg daily

Route of administration

Subcutaneous injection

Intramuscular injection

Subcutaneous injection

Subcutaneous injection

Other characteristics, such as indications, format, etc. may vary from one country to another. Always consult the product leaflet.


SOURCE for the above data comes from the MS-Network - However, their information has not been updated in a couple of years.

Such the case that Cytoxan and Imuran are also being used for MS and are immunosupressants


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