I am so happy to have received the email shown below (letting me know how much my work is appreciated) that I asked the sender of this, for her permission for me to post it...
---------------------------------------------------------------------------------------
From: Judy Z [mailto:]
Sent: Thursday, March 04, 2010 12:28 PM
To: Stuart@msviewsandnews.org
Subject: Re: MS in the News - includes info: AMPYRA, CCSVI, COPAXONE News, patient stories, and...
Sent: Thursday, March 04, 2010 12:28 PM
To: Stuart@msviewsandnews.org
Subject: Re: MS in the News - includes info: AMPYRA, CCSVI, COPAXONE News, patient stories, and...
Hi Stu,
Don't know if I am doing this right, but I can't tell you enough how much your blog has helped me cope with this most nasty, debilitating disease.
I have been diagnosed for 8 years but knew I had it much longer. My Neuro is a total ass and doesn't care what drug I choose since his drug of choice was Avonex (he was part of the clinical trials) and at the time I opted for Copaxone. He is now being "paid" by Clabradine so is pushing that for then near future. I see him once a year and all he wants to do is give my Rx for Copaxone and Xanax and I have actually stopped asking him questions as he fails to do a full neuro work up each time I come and when I do ask a question he tells me it is not related to MS! He heads up this practice and when I mentioned I would like to switch to another doc in the group (my friend sees him) he maligned him and went on to write the scripts and leave the room. So most of my info is gleened through the web and YOU. I am so inspired by your Tysabri experience as I have felt that I am declining, ever so slowly but a decline nonetheless. So I have decided that perhaps I would like to give this a try. I am most fortunate to have attained an appt at Georgetown with an MS specialist there and will ask his advice and try to run my laundry list of 8+ years of questions by him but in the meantime I continue to read your blog regularly and have learned SO much. Finances being what they are with me not working and a son in college I hope to be able to contribute to your endeavor in the near future, but in the meantime, thanks again and keep up the good work. Don't overdo with Tysabri but do enjoy life as I have always been about quality as opposed to quantity!
Judy Z in Richmond VA
######################
You can comment to this message replying to the comments link found below
Access this post by clicking here
#######################
Keep Informed with News and Information regarding Multiple Sclerosis. If not yet receiving the "Stu's Views and MS Related News", weekly M.S. e-newsletter, then please take 20 seconds to register at: http://www.msviewsandnews.org. - Thank you
######################
0 comments:
Post a Comment