Much similar to those who tried bee stings when that information first broke several years ago or for those who tried Procarin, becoming gluten-free, got suckered into Mona Vie or recently spent thousands on Stem Cell therapy, each "definitive cure" turned out to not be a cure..
I will wait 2-3 years to see what comes of all those currently jumping onto this rising bandwagon, To see how they will feel in months to come..
Is the wave of feeling better just a Placebo effect or is it really a cure?
Stay tuned to see and hear how these people being ballooned or stented now, will feel in 9 months to a year from now...
Meanwhile, keep informed and up to date with MS News and Information, when registered at my website: http://www.msviewsandnews.org
- thank you
Best Regards,
Stuart Schlossman- RRMS
Of course this is simply my opinion and I have no proof of anything negative or positive that can come or arise from this posting......
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
10 comments:
Cut your neck? That isn't how you treat ccsvi and it's irresponsible for you to say that. Your opinion is one thing, being wrong with facts is another.
It's one thing to hold personal views that are completely unfounded, it's another matter completely when making them public.
Suggest you read from the plethora of research supporting CCSVI before you go public again. Maybe!
The actual procedure involves inserting a catheter into a vein to allow the placement of a "wire" with a balloon attached to be inflated, thus expanding the vein.
It is considered to be an invasive procedure and it is not without risk.
There may be a plethora of research supporting CCSVI, but there is a plethora of research that doesn't. And until there is proven scientific evidence to show this is an effective treatment, I will not recommend anyone to jump on that band wagon.
That being said, I am excited about this little bit of MS information that will add to our understanding of the disease. It's another piece of the puzzle. I want to know if all those people who have CCSVI will develop MS. I want to know why many with MS don't have CCSVI. Another 10 years and we might know.
S.
Opinions are opinions...
Ok - so they don't cut into your neck.. They go through your groin. It's not the neck cutting that hampers me. It's the entire Gig.
I will wait a few years to see what comes of this before "anything invasive" is done to this body of mine...
DEAR ANONYMOUS -- I re-worded my post to show that cutting is really not the option...
SIGNED - Anonymously, Stuart
I agree with Stuart about CCSVI and other innovative approaches: temper one's hope with healthy skepticism.
Thanks for the backup Doug
We have a little more than the word of one doctor. Check out youtube for "dake ccsvi" for more background. Dake (Stanford), Sclafani (Brooklyn), and Zamboni report 100% correlation between MS and CCSVI.
The Buffalo studied that showed low correlation did not use current protocols, and their control group included family members.
The patient uproar in Canada may have reached fruition, and their Medicare may actually start endorsing treatment in the forseeable future.
This is real. MS will go the way of Polio.
Bart - I have seen many of the videos from Dake and others.
I also know people with SPMS and PPMS that were tested and found to NOT have blockages.
What then could you make of this? that they were not tested properly? Much like is mentioned of the University of Buffalo.
I think not. But what I do think is that Blocked veins "can be" a symptom of MS, much like many other symptoms that we have.
Post a Comment