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Sunday, May 30, 2010

Willing to wait; Woman with MS is wary of experimental new MS treatment

CORNER BROOK - GARY KEAN  - The Western Star

Last fall, Italian researcher Dr. Paolo Zamboni made headlines worldwide with his theory that multiple sclerosis may be caused by constricted veins in the neck, chest and spine.

According to the physician, the debilitating symptoms of MS could be relieved by opening up these narrowed passages to enhance blood flow through them.

Several people who had the procedure done reported quick recovery from their mobility, balance and other problems associated with MS.

While some believe he may be on to a long-awaited cure, Zamboni’s critics still have many questions related to the connection between the MS and Zamboni’s theory and the potential complications associated with the procedure he has proposed.

Stephanie Boland of Benoit’s Cove is one of those who are cautiously optimistic. She was diagnosed with relapsing remitting MS, which is characterized by unpredictable yet clearly defined episodes, in 2008.

The 35-year-old social worker is just emerging from a debilitating flare-up. Earlier this year, she had to stop working and was practically bed-ridden for about two months until the symptoms began to subside.

Not convinced
Still, that unpleasant experience was not enough to convince her that Zamboni has the answer.

“If people said they were going to do a fundraiser for me and send me to get it done, I’d say ‘no, I’m not doing that,’” she said.

“My situation is not bad enough for me to consider something like that. The way I look at it is, if that (recent flare-up) is as bad as it gets, then I can handle it.”

Some people with MS have a progressive form of the disease. Their symptoms grow steadily worse with little or no relapse from their disability.

“I can see some people with progressive MS looking at it as a last resort  because they are scared and desperate for a cure, but I personally think there needs to be a lot more testing and research done yet,” said Boland.


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