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Monday, July 5, 2010

MS patient gets her wish for Liberation

Article found here was provided to me by Dale M., in Canada


Posted By MARG. BRUINEMAN - Posted 16 days ago

With her hair freshly washed, Barb Farrell posed for photos in her bed at Royal Victoria Hospital, Friday.
The Barrie mom is going to the United States and she needs a passport.

"I'm really happy," she whispered with effort.

"We've had an offer to get the treatment in the United States by a private, anonymous source," said her husband, Patrick, who spent the day furiously trying to make arrangements.


"It looks like we're going on Wednesday, getting the procedure done and coming back the same day," he added.
Earlier this week, Dr. Russell Price had to tell the Farrells that a relatively simple procedure would continue to elude them.

As a patient suffering from the debilitating effects of multiple sclerosis (MS), the angioplasty that is her last hope continues to only be offered to heart patients.

Those with MS, identified to have a stenosis or narrowing in the veins, can't get it in Barrie, Ontario, or anywhere in Canada.

Close to 2,000 MS patients worldwide identified with chronic cerebro-spinal venous insufficiency (CCSVI), have undergone the procedure, many of them Canadians from Barrie, Orillia, Hillsdale and right across the country. Their situations and the results are compelling.

But the medical establishment says the anecdotal evidence isn't enough. For this to be considered acceptable treatment, it must undergo the rigours of research and testing.

Every day this week has presented the Farrells with a new event. The crushing news from the hospital Wednesday was followed Friday with the revelation of a community rallying around them.

With financial help, Patrick has been able to make arrangements to fly Barb to the United States in a specially equipped aircraft accompanied by a paramedic. She will undergo the procedure and then fly back to RVH where she will return to her hospital bed.

Barb hardly moves a muscle now, but the smile seemed to come easier Friday. She was remarkably brighter, cheerier.


What kind of effect this procedure will have on her in this advanced state is unknown. Maybe it can prolong life. But the couple also know the risks.

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