Yes these are two different subjects.After all, you can have sex and not be intimate OR you can be intimate and not have any sex.
In either case, I have been asked by the sexologist who will be giving a presentation at the upcoming MS Symposium , to obtain questions from many, or anybody attending the program.. Questions that she can work the answers into her presentation portion of the program.
And then too, there is a PhD that I met this weekend at another MS seminar, who discusses MS and Intimacy.. She (Her name is Lara), would be willing to receive questions ( that I get from others) and I send to her and then she would create a short video or videos, for us to use for future podcasts of MS and Intimacy.
So, this all being said, what I need from You, the MS patients, are questions that you may have of any problems you may be having or contemplating concerning either MS and Sex or MS and intimacy.
Don't be bashful.. Leave your responses ON THIS BLOG site ( not on facebook if you want to remain anonymous)... Write your question(s) as comments found underneath this posting.
Please be civilized by NOT using any foul language...
I hope that we soon begin receiving responses / questions, so that we can begin providing this information to the experts...
Thank You
p.s. - Please remember that answers, written or via podcast(s) will not be available immediately as these things take time to create.
***********************************************************In either case, I have been asked by the sexologist who will be giving a presentation at the upcoming MS Symposium , to obtain questions from many, or anybody attending the program.. Questions that she can work the answers into her presentation portion of the program.
And then too, there is a PhD that I met this weekend at another MS seminar, who discusses MS and Intimacy.. She (Her name is Lara), would be willing to receive questions ( that I get from others) and I send to her and then she would create a short video or videos, for us to use for future podcasts of MS and Intimacy.
So, this all being said, what I need from You, the MS patients, are questions that you may have of any problems you may be having or contemplating concerning either MS and Sex or MS and intimacy.
Don't be bashful.. Leave your responses ON THIS BLOG site ( not on facebook if you want to remain anonymous)... Write your question(s) as comments found underneath this posting.
Please be civilized by NOT using any foul language...
I hope that we soon begin receiving responses / questions, so that we can begin providing this information to the experts...
Thank You
p.s. - Please remember that answers, written or via podcast(s) will not be available immediately as these things take time to create.
"Providing You with 'MS Views and News', is what we do"
Keep Informed and up-to-date with information concerning
Multiple Sclerosis when registered at
the MS Views and News website.
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17 comments:
When initially diagnosed with MS, I lost all interest in both sex and intimacy with my spouce. What do you suggest I might have done to reenergize our relationship?
since having ms i have no feeling 'down there' therefore i am unable to acheive orgasm. i have no sexual feeling whatsoever. it has made me very sad.
I have absolutely ZERO libido at ALL. I've faced previous psychological hang-ups which I feel also got better with age. But still-just honestly could care less if I ever had sex again. Or even masturbation. Granted, I have three children (youngest is 3) and a fulltime job and this miserable MS....but still! I've tried everything, every doctor--testosterone shots for a year...no help. I take a lot of meds including two antidepressants (one for neuralgia also), and between all of the above, the constant crushing pain and fatigue, I just hate even being touched anymore for fear it could lead to sex or even be a subtle "signal" for sex! This is killing my marriage and while my husband has been very supportive, he is understandably frustrated, and believes I just don't love him or find him attractive anymore.
I'm with the previous posters. I don't have much feeling, no interest and no libido but I am on only 3 MS meds. My mind wanders no matter what I'm doing. I've been distracted while trying to type this as well. If they made a "little blue pill" for women I'd be slapping people outta the way with my cane so that I could be the 1st in line. This is truly frustrating and I've tried many prescribed meds! I HAVE pretended wanting sex so that my husband doesn't feel that it's him. I don't know what to do...
Please help us with this. It is an issue that really affects our lives, especially when you try to feel sexy, your young, and the desire (mentally) is so strong. I am with the last person about the "little blue pill" for women. What exactly is the reason that this pill will not work for women?
a terrible terrible loss.But it can't numb love,so it can't win!!
I often during each day seem to have multiple erections and cannot reach climax. Any suggestions?
I have a wonderful partner that stimulates me to no end, yet I find that lovemaking and her sensuous touch seems still to take me longer than the normal until I can orgasm. Is this weird or is there a problem?
I find that when I have a full or partially full bladder and am engaged in sexual stimulation with my partner, I will sometimes accidentally leak some urine. Do you have any suggestions for me?
I still enjoy sex, although sometimes the sensation is a lot weaker than it used to be because my whole left side went numb. The problem is the fatigue, I get tired so fast. It definitely makes the whole experience less enjoyable when it makes me so worn out so quickly.I feel like I got old almost overnight and it is hard to put forth much effort anymore.
For me, I just always seem to get legs cramp at the most Un-Convenient times.. Then my wife gets pissed-off and says we are done......
Imagine a guy with a major e leg cramp and a very bewildered look on his face and ...
I have a combination of problems... When I was dx'ed, my wife internalized something an began to "cool off" though I was not impaired at that time. Now, 20+ years post dx, I have to use help to erect, but she is still cold. It is not a question of satisfying her, she has multiple orgasms when we do it, but it takes ys a year to do what we used to do in a week!
One of the main problems for men with MS is keeping it erect. What's needed is a "cock ring", a penis ligature to help a "flagging friend", available at any sex shop.
I have serious spasms, cramping, and pain, but I completely interested in keeping a sexual aspect to my life. Problem is that spouse is totally uninterested and won't even touch or kiss me. This has created a huge self-image issue (if even my spouse doesn't find me attractive, sexy, etc.) How do I overcome this issue? (I'm 48, work full-time, use wheelchair full-time). Thanks.
The research into female orgasms is abysmal - let alone research on females with MS!
I no longer have the same types of orgasm as I did pre-numbness. I used to always feel my uterus contract after orgasm. I would also feel a flush from the head down. This no longer happens.
I also now sometimes get splitting headaches from orgasm....and when I say orgasm it is the term I use to describe a very different sensation than the one I had pre-numbness.
I believe this has to do with how my hypothalamus has been affected by my spinal cord lesions but not one doctor I have met seems willing to discuss this.
Marcalee Sipski Alexander, MD
Professor of Physical Medicine and Rehabilitation, University of Alabama School of Medicine, Birmingham, AL is doing research on MS patients and sexuality but has not yet published. I look to hearing about her results!
My Lover and I need to use positions that simply create better friction.. This is how we get past the lack of sensitivity or sensation.
Has anybody else found this to be an issue?
I take DETROL LA 4 mg daily to control frequent urination. I know it dries my eyes and mouth. I seem to be much drier than previously during sexual relations with my partner. Is this dryness an additional side effect to the DETROL LA. Is it inhibiting secretion during orgasm? What can I do?
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