Please visit our MS learning channel on Youtube, which provides hundreds of topics from our education programs, that were video-recorded and archived here: www.youtube.com/msviewsandnews

joomla ecommerce template -- Scroll left side of this blog for needed resources. Also, use our 'search by topic' tool, to find specific information.

Disclaimer: 'MS Views and News' DOES NOT endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.

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Saturday, January 16, 2010

CCSVI in Multiple Sclerosis's Notes

Rusty in NC provided the following CCSVI links which might be of interest to many.
Thanks Rusty



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Friday, January 15, 2010

Rants and Raves over "Stu's Views & M.S. News"

Everyday we (me, I and myself) hear or receive emails from people delighted and appreciative of the information found on this blog and within the MS Views and News website.

Some comment how they had felt lost with lack of information until they found these two sites and then since, have gained a better 'handle' knowing that when they seek to learn more of their MS or to just remain up to date, that they only have to click on the bookmarked site for Stu's Views and MS News or to our website.

Yet, with all that has been mentioned of this blog, there are many who still need to learn how to use it to find answers to things they recently heard.

Like for Instance CCSVI.. They send emails asking if I have heard about it? Uh- yea...!!!! It's been in almost every e-newsletter of mine since the beginning of December and uh, yea,,,,,,, you can easily just do a blog search to see if I have any articles of it yet on my site.

Oh, so that leads us to the next situation.. How to find things on this site. After all, there are well over 1000 articles and there is just no way to san each to find what you seek...
THIS is why there is a little box found near to the upper right called Blog Search... Actually it is not a box. It's a rectangle... Ok- yes , a bit of sarcasm going on here, no?

So anyway, for those that wonder how to find things, with blog search is a "HOW to USE Blog Search", found directly beneath the rectangular window.
Again imagine that,, Stuart tried to cover the bases. After all, he too has MS and knows how baffling and confusing things can be when websites are not user friendly... I know,, sarcasm again?!!

No but seriously,,, If you get a tingling sensation (what a pun , having MS) - of hearing news of something new effecting the MS community, take a look here, on this blog first before asking me if I have heard anything about a specific subject. If it's not here, Scream at me and ask why it's not yet in print.

Ok - are we god to go? Ready to learn. Please find the Blog Search Rectangle and type in (for instance) CCSVI (or Pain, or Fatigue - as examples). Click enter. Then see all the links that appear contains those typed-in letters (or another keyword).

Many blue link titles will then appear. Click on the one you want to read.
Under the ones shown there may be numbers (also in blue). This refers to other pages of articles to also read on that subject.

Have any questions? Any Comments ? If so, please write to me at stuart@msviewsandnews.org .

Thank you

and sorry about any sarcasm you may have found...

Have a good weekend.

Stuart

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Use "Stu's Views & M.S. News" to learn from the web too

When using the Blog Search rectangular box found on this blog, after entering a keyword or phrase, or initials of something like: CCSVI or NMSS or MSF or other things, the artiels found on this site containing those initials will open and atop that field, will be title like like "shared resources" and THE WEB.

If you click THE WEB, the keyword or initials that you typed into our blog search box will then link to other articles found on the web...

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Have Hypertension? Learn what you can do to control this problem

Making this DASH Can Take You to Lower Blood Pressure


Some people with high blood pressure - also known as hypertension - are able to control the problem without medication by using lifestyle changes such as weight loss, exercising, and stopping smoking. According to the National Institutes of Health, the Dietary Approaches to Stop Hypertension (DASH) eating plan may be a particularly helpful way to lower your blood pressure

Here are a few pointers to get you started:

1 Make small changes. Add an additional serving of fruit or vegetables to your meals or snacks rather than trying to go vegetarian overnight. Also gradually start replacing your sodas with fat-free or low-fat milk.

2 Cut back on processed foods like frozen dinners and canned soups, since these often contain a lot of sodium. This is where you get most of the salt from your diet - not the shaker.

Learn more about lowering your blood pressureGO



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Thursday, January 14, 2010

UK Stem Cell Foundation & MS Society Stem Cell Research Collaboration


Press Release Source: MS Society and UK Stem Cell Foundation On Thursday January 14, 2010, 8:34 am EST

LONDON, January 14 /PRNewswire/ -- Stem cell research in multiple sclerosis (MS) has been given a much-needed shot in the arm thanks to a partnership between the UK's largest charity supporting people affected by the condition and the UK's only charity dedicated to supporting stem cell research.

The MS Society and the UK Stem Cell Foundation (UKSCF) today (Thursday) formally marked the beginning of the collaboration by announcing a call for research grant applications that can now dip into a dedicated pot of joint-funding up to GBP1million.

Dr Doug Brown, Biomedical Research Manager at the MS Society, said the partnership would "pump prime" and speed up stem cell research.

He added: "We're delighted to announce this partnership that is the first of its kind and look forward to receiving applications for research funding."

"Stem cells are showing real promise in MS, and the sooner we can take the science from the bench to the bedside, the sooner people with MS will get the answers they so desperately need."

The potential of stem cells as a treatment for MS has long been the subject of much interest and debate.


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Wednesday, January 13, 2010

MS Related: Traveling with Scooter or Power Chair

By Cherie C. Binns RN BSA MSCN


As we are entrenched in winter’s cold, many are thinking of taking a vacation to a warmer climate to break the chill. I have been getting a number of questions on special needs travel and most revolve around scooters and power chairs. For the purpose of this answer to those questions, I will address only those special problems faced by users of full sized power chairs or scooters.

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My scooter has been damaged to the point where it cannot be used on 5 separate flights. The tiller has been broken, seat broken, batteries reconnected to opposite poles causing the batteries to be unchargable, the chassis has been cracked and the scooter has even come rolling down the baggage belt disassembled. The airlines have always footed the bill for the necessary repairs (scooter has been fully rebuilt three times and partially twice).


Continue to read Cherie's article by clicking here.


THEN, if you have a comment, please return to this blog posting, to do so.

Thank You

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Use Your Senses to Combat Short-Term Memory Problems with Multiple Sclerosis

The information found here was written by: Julie Stachowiak, Ph.D., About.com Guide to Multiple Sclerosis
Tuesday January 12, 2010

I could deal with the frustration of the cognitive dysfunction that comes with my multiple sclerosis (MS) when it happened once or twice a day. You know - forgetting if I turned off a light after going to bed or wondering if I added a dryer sheet to the load of laundry that was tumbling around.

However, it got to the point where a good part of my day was spent trying to remember what I had done the other part of the day. It started to get stressful and make me doubt my every move.

Then I came up with a little trick and have changed how I feel about my capabilities to function in a somewhat normal manner. It may not sound like such an amazing breakthrough, but give it a try and see if it helps your day go a little more smoothly.

Basically, what I do is try to employ my senses more as I perform routine actions - I smell stuff, feel stuff, taste stuff and listen to things in new ways to try to engage my brain. It has helped me remember medicine that I have taken (and given my children), and where I have put small items.

Again, not rocket science, but this little tip has helped me gain time and confidence. Give it a try.

Read the full article: MS Cognitive Tip - Engage Your Senses

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Multiple sclerosis IS painful !!

Information found below was written By Julie Stachowiak, Ph.D., About.com Guide to Multiple Sclerosis

Okay, here goes. Raise your hand if you think multiple sclerosis (MS) is not painful. Keep your hand up if you actually have MS.

I guess that there may be a couple of you out there with MS who are saying, "Pain? Whaddya mean?" However, I am willing to bet that (like me) most of you have felt pain as part of your MS experience, whether it is from the "MS hug," severe tingling sensations or optic neuritis.

The pain that comes along with MS is different for everybody, both in manifestation and severity, given that there are over 50 symptoms of MS - most of which could have a pain component. Surprisingly, it was only in very recent years that the "experts" believed that MS brought any form of pain.

Read the full article (while you shake your head in amazement at that last statement):Overview of Pain as a Symptom of Multiple Sclerosis

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Treatment for Foot Drop in Multiple Sclerosis

Foot drop, for anyone who doesn't know, is a symptom of multiple sclerosis, in which it is difficult to lift the front part of your foot. Sound like a minor problem? Try walking or driving with foot drop. In fact, foot drop can lead to a huge decrease in quality of life and an increase in disability. In multiple sclerosis, foot drop occurs because the message from the brain to "lift" doesn't make it all the way to the foot. The foot itself is just fine, just waiting for "orders."

Bioness has designed and released a device that bypasses the brain. By putting a sensor on a shoe, the device "knows" what the foot should be doing when someone is walking. The device then signals a second device, strapped to the calf, that has the ability to stimulate the nerves and cause the muscles in the calf to "operate" the foot.

I can't endorse the product outright, but this seems like a very plausible way of dealing with foot drop and I am encouraged that there are developments in the treatment of multiple sclerosis symptoms. Devices cost around $7,000 and right now I have no idea if insurance would cover that cost.

Find out more by clicking on th4e Bioness Sponsorship Logo found on our website

Source for the above Bioness information was found at about.com:MS

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Biogen Idec Submits Application In Europe For The Approval Of Fampridine-PR Tablets To Improve Walking Ability In People With Multiple Sclerosis

Biogen Idec (NASDAQ: BIIB) announced the submission of a marketing authorization application (MAA) to the European Medicines Agency for Fampridine Prolonged Release (Fampridine-PR) tablets, a novel oral therapy for the improvement of walking ability in adult patients with multiple sclerosis(MS). The company also has filed a New Drug Submission (NDS) to Health Canada. "Walking impairment has a significant impact on the lives of many people living with MS," said Alfred Sandrock, MD, PhD, Senior Vice President, Neurology Research and Development, Biogen Idec. "Fampridine-PR tablets may offer a novel approach to address this debilitating aspect of the disease by improving the walking ability of MS patients. We look forward to working with regulators to make this therapy available to people with MS in Europe and Canada."

Click here for more information

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Basic Multiple Sclerosis Information

Multiple sclerosis (MS) is a complex disease. Learn more about basic information, including types, causes, risk factors, prevalence, prognosis and relapses or exacerbations.

Am I More Likely to Develop Alzheimer’s if I Have MS?

Multiple sclerosis (MS) and Alzheimer's disease are both neurological disorders. People with MS often wonder if they are more likely to develop Alzheimer's disease than the general population. Learn the answer here.

What Is the Difference Between Alzheimer’s Disease and MS?

While multiple sclerosis (MS) and Alzheimer's disease are both neurological disorders, they have different mechanisms of action, different causes and different symptoms and levels of severity.
Most people with multiple sclerosis (MS) get MRI (magnetic resonance imaging) scans at least annually, if not more often. Fortunately, there is no radiation exposure during an MRI scan, unlike other test, such as CT scans or X-rays.

Smoking Increases Risk for Developing Multiple Sclerosis

People who ever smoked have a higher risk for developing multiple sclerosis (MS). This risk is increased more in people who started smoking at a young age or who are heavy smokers.

Smoking Makes Multiple Sclerosis Worse

Smoking has been shown to increase risk of multiple sclerosis (MS), but until recently, the impact of smoking on MS disability and progression was unknown. Research now shows that smoking speeds progression from relapsing-remitting multiple sclerosis to secondary-progressive MS.

What Do We (People With Multiple Sclerosis) Want To Be Called?

As people with multiple sclerosis (MS) we are often referred to as MS "sufferers" or "victims." What should we call people with MS?

Racial Differences in Multiple Sclerosis

White Americans are more likely to get multiple sclerosis (MS), but African Americans experience more severe symptoms from MS. This is despite the fact that black Americans are diagnosed sooner after experiencing symptoms and start treatment with disease-modifying therapy sooner after diagnosis.

MS Diagnosis "Red Flags"

A multiple sclerosis (MS) diagnosis can be tricky, as symptoms are common with other diseases and are often vague. However, there are certain characteristics of patients or their symptoms that should make doctors investigate causes other than MS.

Evoked Potentials for Diagnosis of Multiple Sclerosis

Evoked potential tests measure how long it takes for stimulation of different nerves to reach the brain and how big the response is.

Headache as a Side Effect of Lumbar Punctures

Headaches are the most common side effect of lumbar punctures, also called spinal taps. While painful and frightening, these headaches can be treated quickly and successfully.

Who Develops Secondary-Progressive Multiple Sclerosis?

Secondary-progressive multiple sclerosis (SPMS) is diagnosed in about half of people who originally had relapsing-remitting MS (RRMS), although disease-modifying drugs may change these statistics. Learn about some signs that RRMS may become SPMS.

What Are the Usual Symptoms of Primary Progressive Multiple Sclerosis?

Primary progressive multiple sclerosis (PPMS) is usually characterized by gradually worsening of the ability to walk. However, for a small minority of people, the main symptoms are tremor and problems with balance.

Continue by clicking here, to be re-directed to the about.com:Multiple Sclerosis website

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Tuesday, January 12, 2010

Biogen's Tysabri Sales Surpass $1 Billion In 2009; Users Rise 30%


DOW JONES NEWSWIRES

Biogen Idec Inc. (BIIB) said sales of its controversial multiple sclerosis treatment Tysabri surpassed $1 billion in 2009, reaching blockbuster status, as the number of patients using the treatment climbed 30%.

The company estimates that at the end of December, the number of patients using Tysabri was 48,800 globally; including 24,500 in the U.S., 23,700 in the rest of the world and 600 in clinical trials.

The company faces continued pressure from activist shareholders and concerns about the growth trajectory of the controversial multiple sclerosis treatment, sold with Elan Corp. (ELN).

Tysbari's connection to a rare brain infection called progressive multifocal leukoencephalopathy, or PML, led to an 18-month market withdrawal beginning in 2005; the infection re-emerged in 2008, although it remains within the 1-in-1, 000 PLM rate implied by its label. The number of Tysabri patients is closely followed as a result of the ratio.

Chief Executive Officer James C. Mullen, who will outline the company's growth strategy at an investors meeting Tuesday, said Biogen intends to continue its focus on accelerating Tysabri sales, as well as pipeline advancements, potential milestones for 2010 and plans to reinvigorate MS drugs Avonex and Rixuxan.

Biogen also said it submitted a marketing application to European regulators for its Fampridine tablets.

Shares were up 9 cents at $53.99 in recent trading. The stock is up 11% in the past year.

-By Tess Stynes, Dow Jones Newswires; 212-416-2481; Tess.Stynes@dowjones.com;

  (END) Dow Jones Newswires   01-12-101041ET   Copyright (c) 2010 Dow Jones & Company, Inc.








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Monday, January 11, 2010

Doctor 'misled' MS patients with 'bogus' stem cell treatment

January 11, 2010

A doctor duped a group of multiple sclerosis sufferers into taking an alleged stem cell therapy despite no evidence that it worked, a disciplinary hearing was told.


Nine men and women, the majority of whom were suffering from the ''progressive and aggressive'' form of the disabling neurological disease, consulted Dutch-trained Dr Robert Trossel in the ''desperate'' hope they could achieve a marked improvement in their health.


The sufferers who travelled to his clinic in Rotterdam raised thousands of pounds to fund the therapy but there was ''no evidence'' that the substance injected into them by Dr Trossel contained stem cells or that it was fit for human use, the General Medical Council in London heard.


Continue to read from Telegraph.co.uk


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MS Society update: 2009: Substantial Progress Propelled MS Research Forward

This year saw exciting research progress, with unprecedented opportunities on the horizon and more scientists than ever working on important questions. While the economic environment resulted in an unfortunate slowing of funding, creating gaps in planned expenditures to support MS research, we hope this impact will be of short duration.

Despite these challenges, the National MS Society continues to propel research forward and move us closer to a world free of MS.

In 2009 the Society provided over $33.5 million to support 345 new and ongoing projects in our research portfolio, plus $1.5 million for Fast Forward, our drug development subsidiary which continues to attract new funding streams. In addition, thanks to the efforts of our MS activists, $5 million has been specifically set aside for funding MS research out of the 2009 Department of Defense budget.

The Society has nimbly pursued promising opportunities when they arise, such as the recent request for research applications to expeditiously examine the potential impact of the chronic cerebrospinal venous insufficiency (CCSVI) hypothesis on disease process in MS.

Here is just a small sample of the many important, potentially high-impact research results that occurred this year, which support our three research goals: stopping MS, reversing the damage and restoring function, and ending MS forever.


Continue reading stopping MS, reversing MS damage and More by clicking here

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Sunday, January 10, 2010

An education program to discuss this research on February 18th at 6pm at the Byrd Center in Tampa

Information provided by Marc Stecker (the Wheelchair Kamikaze)

Research into Blood Flow in the Brain and Venous Insufficiency, or CCSVI, in MS is a new and potentially interesting area in MS research. Dr. Krolczyk will be traveling to Canada in early February to meet with Dr.'s Zamboni and Haacke and other experts to learn more about this new data.

We will be holding an education program to discuss this research on February 18th at 6pm at the Byrd Center. Since this is an area of great interest, we expect a high attendance.

We respectfully request you limit the number in your party to two.

Please RSVP by February 3rd to reserve your seat.

Please RSVP via email at rsoares@health.usf.edu or call 813-396-9656 and leave your name and phone number.

Thank you and we hope to see you there!

Johnnie B. Byrd, Sr., Alzheimer's Center & Research Institute
University of South Florida
4001 Fletcher Avenue
Tampa, FL 33613
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