ABOUT this BLOG and How to use it

WELCOME to Stu's Views & MS News. A product of MS Views and News, a Not-for-Profit [501c3] organization that was founded in 2008, that provides educational Multiple Sclerosis information via live seminars and via the internet.

Our Mission is dedicated to the global collection and distribution of current information concerning Multiple Sclerosis via the Internet and Live Seminars.

Key-Notes: Our live seminars average approx 60 people per educational program. Our blog is visited over 2900 times per week and our website is visited by thousands each month.

Register at our website to receive our globally transmitted Multiple Sclerosis e-newsletter, currently being received in (88) Countries.

On the left side of this page find: Blog Directory, Blog Archives, Recent Blog Posts (most recent blogged titles). Use the Blog Search box (to enter a keyword). Find Resources (LOTS of resources), See our Facebook information AND Links to other MS Organizations / bloggers. .. At the Bottom of this page, find: Resourceful informational videos and some for fun.

Please SCROLL through this entire blog site to see all that we provide to keep those affected by MS (Patients and Caregivers), up-to-date and informed with information, education and resources.

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Sunday, February 28, 2010

Stem Cell Debate Isn’t About Ideology

By Marion D. Thorpe, Jr. MD MPH

The polarizing ideology surrounding stem cell usage leaves very little room for thoughtful discussion. All too often the mainstream media frames this matter in such a way that either you support stem cell research to cure cancer, heart disease, diabetes, Parkinson's and Alzheimer's - or you're a Neanderthal, opposed to medical progress and dismissive of human suffering. That's pure nonsense. It's far more complicated.

Most agree that stem cells are wonderfully versatile, with great potential to transform themselves within the human body and advance treatments and cures for many diseases. Beyond that, there are actually three important stem cell debates going on. We need to come as close as we can to getting each one right.

The morality debate. Not all stem cells are created equal. There are embryonic stem cells taken from "discarded" human embryos, stem cells extracted from a delivered baby's umbilical cord with no risk to the donor, and adult stem cells derived from skin, organs and other parts of the body with little risk to the donor.

The Rev. Tadeusz Pacholczyk, Director of Education at the National Catholic Bioethics Center, puts the moral argument against using embryonic stem cells this way: "(Clearly) this research exploits younger humans, with lethal consequences, to address the needs of older and wealthier humans. The human embryo is being slowly transformed before our eyes into a commodity to be exploited, a kind of raw material to be utilized on the way to making a brilliant career as a scientist, or making profits as an entrepreneur, or making treatments for myself when I'm sick."

Ruth Faden, Director of the Johns Hopkins Berman Institute of Bioethics, has a different perspective: "Those who believe that human embryos have the same moral status as the rest of us will and should continue to press their case. For most Americans, however, the president's policy strikes the right moral balance (on) reducing human suffering and improving human health.

The medical debate. With due respect to Ms. Fadden, no one has yet significantly reduced human suffering or improved human health with any stem cell, embryonic or otherwise. That jury will be out for a long time.

Continue reading from second paragraph of the medical debate


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Researchers discover possible mechanism that triggers Multiple Sclerosis


How MS attacks the body
How MS attacks the body
Adam Medical










Scientists at the Catholic University of Romeannounced Saturday (Feb. 27) that they may have identified a possible onset mechanism for Multiple Sclerosis by triggering the disease in mice.

The research by Francesco Ria at theInstitute of General Pathology and Giovanni Delogu at the Institute of Microbiology shows that they could use a non-pathogenic bacterium to cause an autoimmune disease similar to Multiple Sclerosis.

The disease was triggered in a mouse that is often used to substitute for a human model.

The research was detailed in the Journal of Immunology. Two major theories about how Multiple Sclerosis attacks the human body include: a virus hiding in the brain that causes the antiviral action, and that a virus silmiar to molecules in the central nervous system causes inflammation that ignites a reaction to the immmune system, causing the body to attack itself.

Francesco Ria, the immunologist conducting the study was quoted as saying: "We do not know what causes Multiple Sclerosis. We know that there exist a genetic factor and an environmental factor, but we do not yet posses a satisfactory theory which can explain how exactly this environmental factor works."

Source: Examiner.com


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Keep Informed with News and Information regarding Multiple Sclerosis. If not yet receiving the "Stu's Views and MS Related News", weekly M.S. e-newsletter, then please take 20 seconds to register at: http://www.msviewsandnews.org. - Thank you

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Saturday, February 27, 2010

Wanted: People with MS to participate in no-cost programs of learning and fun

MARCH MADNESS
The MS Foundation has three important updates.

The first:
Wanted: People with MS to participate in no-cost programs of learning and fun
http://www.msfocus.org/news-details.aspx?newsID=47


then: Free Access to Experts on MS and Mobility


and the last (for now):
MS Experts Want Your Questions on Engaging Life with MS

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How to perform doppler examination in a multiple sclerosis patient

Dr. Marian Simka (of Poland) has written a description and an instruction to the doppler ultrasound examination in a multiple sclerosis patient. This examination allows discovering chronic cerebrospinal venous insufficiency (CCSVI).

Click: http://goo.gl/atGw to review

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--- PUBLISHED by an MS Patient, for others affected by Multiple Sclerosis ---

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What CCSVI Treatment Meant to one MS patient and current cost for treatment in Poland

Information found here, posted on February 27, 2010

Steven Simonyi-Gindele's wife Ruth had the CCSVI diagnosis in Poland from Dr Simka and the Liberation treatment from Dr. Ludyga on December 29, 2009. Steven says "Dr. Ludyga and Dr. Simka are careful, skillful, caring specialists. They are using the latest equipment in ultra modern facilities. We were treated first class both medically and were shown great hospitality no pun intended. The Liberation treatment is the best investment we ever made. We remain ever so grateful to Dr. Simka and Dr. Ludyga. We continue to pray for them. Ruth has lost the horrible constant tiredness and is becoming more like her old self. I feel that a huge burden that I did not know that I was carrying, has been lifted."
Write Steven if you want to know more. simonyigindele@yahoo.com
Or leave a comment in the field found below this blog posting. If you want to be contacted directly, you must leave your name and email address.

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See below for the Current pricing found in Poland for Treatment.
Remember that the pricing is based on the EURO

Hello,

The current fee is €6900, but now includes hotel and more..:


"Since 25th January 2010 the costs will amount to:
- 6 900 euro : angioplasty with stenting – 1 stent (if more than one stent is placed, each additional stent costs 500 euro)
- 6 400 euro : angioplasty

The price includes:
- Vascular surgeon/angiologist consultation
- Color Doppler ultrasound examination
- MRI examination
- Endovascular procedure (angioplasty or stenting)
- introductory consultation with the leading doctor
- 5-night stay in 4-star hotel (breakfast included)
- Transportation to the examination and procedure facilities (Doppler, MRI, surgery)
- Transportation from/to Pyrzowice (Katowice) or Balice (Kraków) Airport
- EuroMedic personnel assist during your stay
- telephone hot-line assistance

- If for medical reasons angioplasty or stenting cannot be performed the package price amounts to:
- 2 700 euro : Full diagnostics with phlebography
1 800 euro : color Doppler ultrasound and MRI examination"

from the letter of Tomasz Ludyga, Director of EuroMedic



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Keep Informed with News and Information regarding Multiple Sclerosis. If not yet receiving the "Stu's Views and MS Related News", weekly M.S. e-newsletter, then please take 20 seconds to register at: http://www.msviewsandnews.org. - Thank you

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Friday, February 26, 2010

Social Networking with MS Views and News

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Social networking sites allow people to share thoughts, pictures, videos and a range of information with groups of friends and other visitors.
'MS Views and News' has groups on a number of popular sites, including:

Facebook

The 'MS Views and News' group includes MS updates and a discussion board where people can share thoughts and concerns with other Facebook users living with MS
'MS Views and News' Facebook Join a Cause
'MS Views and News' Facebook fan pages
OR, personally join Stuart's Facebook Page
(you will need a Facebook account to join either of these)

Twitter

Twitter is a site that allows users to share short messages of up to 140 characters. 'MS Views and News' uses Twitter to announce recent MS news items
'MS Views and News' Twitter group
(you will need a Twitter account to see the group)
Keep Informed with News and Information regarding Multiple Sclerosis. If not yet receiving the "Stu's Views and MS Related News", weekly M.S. e-newsletter, then please take 20 seconds to register at: http://www.msviewsandnews.org. - Thank you

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Yes, It Snowed and Snowed and Snowed

Picture provided by I-Reporter : Erica T - from Scarsdale, NY -
Photo taken mid Friday Morning 02.26.10




Erica had to walk to the Train Station this morning.
Roadways were not conducive to Driving

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Remain Up to Date with MS News and Information

For those that do not know, I too have Multiple Sclerosis. It was when I was diagnosed years ago, that I got heavily involved with providing MS information for those that had diffiuclty on knowing where to learn and be educated with this illness. Now I empower tens of thousands of people with MS Knowledge. - Stuart Schlossman-RRMS



"Providing You with 'MS Views and News', is what we do"

Upon receipt of this information, take note that our weekly MS related e-Newsletter
is currently reaching (68) Countries

Whether an MS patient, a caregiver or a medical professional:

If you are not yet receiving the weekly MS e-Newsletter, titled "Stu's Views and MS Related News", or having access to our website and MS blog, then please consider registering after reading the information found below:


Enter a place where information and knowledge is provided for anybody affected by Multiple Sclerosis.This includes the patients, caregivers, medical providers and/or anybody just interested in having availability to MS information.

"MS Views and News" is Unique in what we do; Bridging the gaps to all major MS organizations. Providing information and knowledge.


On our website's homepage (http://www.msviewsandnews.org), you will find a link to register for our website and weekly e-publication of "Stu's Views and MS Related News", an MS e-Newsletter.

A Must see is our MS BLOG (http://wwwmsviewsandrelatednews.blogspot.com/), where you will find easy-to-read MS articles. Thru this blog you will have access to many other MS informational resources and organizations as well as other MS bloggers. Find the category listings and other links found on the right side column of this blog to help you to better understand Multiple Sclerosis.

Other features of the MS Views and News website include:

* In our MS Resources section find our MS Resource weblinks and our MS video library.

* Find our articles from Ask the MS Nurse and Occupational Therapist. There is a learning .pdf on Achieving Wellness.

* Additionally, click the link found on the left side of homepage to view our Library of MS Archives then use the search box to find what you need.

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(This is beneficial for family members/caregivers who don't read or fully understand English, but need Multiple Sclerosis information).

Once you are registered, you will begin receiving our weekly MS e-Newsletter



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MS And Cancer - an MS Patient needs your help

Provided by John Donnelly in Ireland:

My wife has stage 4 lung cancer and was given 2 to 6 months 18 months ago. she is on LDN and doing great. We have an opportunity to get LDN on TV here in Ireland but we need help. The link below is for a competition and we need to stay in the top 10. Please give us your support and click on the link and support our proposal Thanks in advance





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Keep Informed with News and Information regarding Multiple Sclerosis. If not yet receiving the "Stu's Views and MS Related News", weekly M.S. e-newsletter, then please take 20 seconds to register at: http://www.msviewsandnews.org. - Thank you

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BACK to Work after 30 years - HUMOR for ALL

For those over 40, you might get a chuckle to
see this video of a women who has not worked in
over 30 Years.

On Her first day back on the Job:


video



If you or someone you know, is affected by Multiple Sclerosis, register or let them know to register, at : http://www.msviewsandnews.org - to begin receiving a weekly ms related e-newsletter, published by an MS Patient, for others affected by this disease.

Thursday, February 25, 2010

Copaxone® 15-Year Study in Multiple Sclerosis Patients Demonstrates Robust Long-Term Efficacy and Safety

February 25, 2010

  • More than 80 percent of patients were able to walk unassisted following 15 years of treatment and average disease duration of 22 years
  • The majority of patients experienced either stable or improved disability rates, as well as a 78 percent reduction in annualized relapse rate (ARR) from baseline

JERUSALEM--(BUSINESS WIRE)--Teva Pharmaceutical Industries Ltd. (NASDAQ: TEVA) today announced the publication of data from the 15-year clinical study with Copaxone® (glatiramer acetate injection), which is the longest prospective and continuous evaluation ever conducted in relapsing-remitting multiple sclerosis (RRMS) patients. The data were published in the February issue of the journal Multiple Sclerosis.

“The longest term study extension further demonstrates Teva’s investment in Copaxone® and our ongoing commitment to improve the disease course of MS.”

The 15-year clinical study demonstrated that more than 80 percent of patients were still walking without assistance despite a mean MS disease duration of 22 years, and two-thirds of patients have not transitioned to secondary progressive MS. Patients who remained in the study over a mean of 15 years showed a reduction in annualized relapse rate (ARR) from baseline as well as minimal increase in Expanded Disability Status Scale (EDSS). On average, the ARR in the ongoing cohort declined from 1.12 ± 0.82 to 0.25 ± 0.34 at the 15-year analysis.

Additionally, the study reinforces the established long-term safety profile associated with Copaxone®. The most common adverse events associated with Copaxone® were local injection-site reactions and immediate post-injection reactions. No other immune-mediated disorders, infections or malignancies were reported.

“This study is important for the MS community as it further confirms the benefits of continuous long-term use of Copaxone® and its ability to effectively slow the natural progression of this disease,” said Corey Ford, M.D., Ph.D., primary investigator in the study and Professor of Neurology, Director of the Multiple Sclerosis Specialty Clinic and Assistant Dean for Research at the University of New Mexico Health Sciences Center. “It is encouraging to see such long-term results that further support the well-established benefit-to-risk profile of this treatment relevant to a life-long disease.”

"We are pleased to see that results from this study reinforce the long term efficacy and safety of Copaxone®,” said Moshe Manor, Teva's Group Vice President, Global Branded Products. “The longest term study extension further demonstrates Teva’s investment in Copaxone® and our ongoing commitment to improve the disease course of MS."

This study represents the only prospective, open-label follow-up study designed to evaluate continuous immunomodulatory therapy in RRMS patients. The study, currently in its 19th year, was extended to 20 years based on the positive results seen thus far and the interest of the MS community in the long term outcomes of treatments for this life-long disease.

About the Study

The study “Continuous Long-Term Immunomodulatory Therapy in Relapsing Multiple Sclerosis: Results from the 15-Year Analysis of the U.S. Prospective Open-label Study of Glatiramer Acetate,” a follow-up to the pivotal, Phase III trial, followed 100 ongoing Copaxone® (glatiramer acetate injection) patients starting in 1991. Patients’ EDSS scores were evaluated every six months. Confirmed disability progression was defined as ≥1.0 EDSS point increase sustained for six months. Patients were classified as “stable/improved” if EDSS score changes were less or equal to 0.5 points. Proportions of patients who reached confirmed thresholds of EDSS 4, 6, or 8 while on Copaxone®, and Kaplan-Meier (KM) estimates of median times to these thresholds, were obtained.

Fifty-seven percent of patients experienced either stabilized or improved EDSS scores, while 65 percent has not yet transitioned to Secondary-Progressive Multiple Sclerosis (SPMS). While being treated with Copaxone®, the mITT patients’ ARR declined from 1.18+/-0.82 to 0.43+/-0.58/year.


Continue from this Business Wire report


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Keep Informed with News and Information regarding Multiple Sclerosis. If not yet receiving the "Stu's Views and MS Related News", weekly M.S. e-newsletter, then please take 20 seconds to register at: http://www.msviewsandnews.org. - Thank you

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Wednesday, February 24, 2010

An MS Patients Blog posting of His Stem Cell Therapy treatment

Written by: zhenya stolyar

August 25 i had the extraction at the xcell center in Dusseldorf.

their success rates with MS were not great, but i had spoken to a patient who went through it , i felt confident. Everyone was very nice. The doctor there that advised me, had looked through the case i sent him and was very hopeful that stem cells would help. Xcell did not promise anything and pointed out several times that nothing is guranteed and that i may feel nothing.

being in bad shape already, i did not care and went to Germany with my mother. At that point i could barely walk. Van took us to and from the clinic and they do have vans with wheelchair access, there are also coordinators all over the world to help facilitate everything, mine was in Houston and communicated with me fairly promptly, Within a week from sending them my letter i was approved and scheduled.

They asked for Doctors notes, a personal history and mri reports.

The clinic is licensed and in fact only licensed clinic in EU. hardly india or china even.

Doctor who did both extraction and reimplantation was a neurosurgeon with long history and credentials, and the one that advised me was an anesthesiologist, there was a cardiologist on staff as well as a very professional nursing staff. The Hospital was very clean, and rooms nice.

August 27 was re-implantation and i started to feel improvements in January. Walking dramatically improved although i have severe problem with hand and why this letter is difficult to put together. Hopefully, its more usable tomorrow, ill write more. :)

xcell has 2 centers not far from each other, but the dusseldorf is the newer center, where stem cells are processed and counted.

it was not cheap although in grand scheme of things not overly expensive. biggest problem is dollar value.

i am sorry to give a liink for additional info, but if any questions remain feel free to ask.

overall i
would do it again, but now focus is on ccsvi.

X-Cell Center - http://www.xcell-center.com/ Once registered a coordinator will be assigned

mail me any questions you may have or leave comment to this blog posting and Stuart will get it to me.

p.s. - Blog i wrote during my therapy:
http://inzition.blogspot.com/


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