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Disclaimer: 'MS Views and News' DOES NOT endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, for your personal knowledge and to keep you informed of current health-related issues. It is not a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.

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Friday, March 19, 2010

Stem Cell Report Card - Where's the Black Box

Where America Stands: Stem Cell Research

March 16, 2010 4:12 PM

After years of research and billions of dollars spent, stem cell research is promising, but how close are we? Dr. Jon LaPook shows us 'Where America Stands' on stem cell research.


CLICK this Link: http://www.cbsnews.com/video/watch/?id=6305502n&tag=api - to see this CBS video

THIS IS REALLY INTERESTING!!!

HOPE IS on the Horizon.....

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Keep Informed with News and Information regarding Multiple Sclerosis. If not yet receiving the "Stu's Views and MS Related News", weekly M.S. e-newsletter, then please take 20 seconds to register at: http://www.msviewsandnews.org. - Thank you

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Brain Fitness Software Improves Cognitive Function in Multiple Sclerosis Patients

Submitted by Denise Reynolds RD - EMAX Health

Cognitive dysfunction is a common, often scary, symptom of Multiple Sclerosis. Cognitive evaluation techniques and neurorehabilitation studies have been used to greatly improve the dysfunction. A new brain fitness software by CogniFit Inc. May help improve cognitive function and skills of multiple sclerosis patients.

Multiple Sclerosis (MS) is a chronic inflammatory disease that causes lesions in the brain and nervous system. It is reported that about 50% of people with MS admit to experiencing cognitive problems, such as the ability to pay attention, learn and remember information, solve problems, and use language to express ideas. Mood disorders and depression are also common which can exacerbate the cognition process.

Some of the specific cognitive deficits observed in people with MS are:
Memory Dysfunction. This is the most commonly reported cognitive dysfunction in MS and occurs in 20 to 44% of people with MS. The type of memory deficit most often reported is free recall of recently learned material. Free recall is the ability to get to a memory instantly.
Verbal fluency is affected in some people with MS whereas verbal comprehension appears undamaged. Verbal fluency deficits usually take the form of slowed free recall of words that describe concepts and less often words that name objects.
Cognitive Fatigue. On average, people with MS tire more quickly during psychological tests. Patients appear to lose the ability to hold attention for a long period of time.
Impaired Planning Ability. One study reported that 40% of people with MS are less able to plan things than healthy controls.


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Many of us with MS have cognitive issues. Forgetting is the number one issue. This being said, don't put-off registering at my website. Do it now. It will take less than 30 seconds to complete and then, you will begin receiving my weekly e-Newsletter known better as "Stu's Views and MS Related News".
Here is the Link: http://goo.gl/6yI8

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Thursday, March 18, 2010

Cannabis drug nearing UK, Spain approval

Thursday, March 18 11:08:30

A pioneering - but much delayed - cannabis-based medicine for multiple sclerosis is now on track to win regulatory approval in Britain and Spain in the second quarter of 2010, its maker said on Thursday.

GW Pharmaceuticals said regulators in both countries had concluded there were no major quality, safety or efficacy issues remaining to be resolved. Talks are now focused on points of clarification related to the patient information leaflet.

Approval of the dug Sativex in Britain and Spain will be a landmark for the British drugmaker, whose shares jumped more than 12 percent to a four-year high on the news by 0940 GMT.

The medicine, which is sprayed under the tongue, is to be marketed in Britain by Germany's Bayer and in the rest of Europe by Spain's Almirall.

GW will get a £10 million milestone payment from Bayer on British approval, while a further £2.5 million is payable by Almirall following both regulatory and pricing approval in Spain.

Clinical trials have shown GW's drug Sativex reduces spasticity in multiple sclerosis patients who do not respond adequately to existing therapies.

It became the world's first cannabis medicine to win regulatory approval when it was approved in Canada in 2005. GW had originally hoped to win approval in 2003 for its drug - which is extracted from marijuana plants grown at secret locations in the English countryside - but the medicine has been hit by a string of regulatory delays in Europe.

The rate of uptake in Britain will be limited until the National Institute for Health and Clinical Excellence (NICE) decides whether it should be reimbursed on the National Health Service (NHS).

Further clinical trials need to be completed before the medicine is ready for submission for approval in the US, where GW's partner is Otsuka of Japan.

(c ) Reuters



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Potty Humor


THE POTTY

A LITTLE THREE YEAR OLD BOY IS SITTING ON THE TOILET. HIS MOTHER THINKS HE HAS BEEN IN THERE TOO LONG, SO SHE GOES IN TO SEE WHAT'S UP. THE LITTLE BOY IS SITTING ON THE TOILET READING A BOOK. BUT ABOUT EVERY 10 SECONDS OR SO HE

PUTS THE BOOK DOWN, GRIPS ON TO THE TOILET SEAT WITH HIS LEFT HAND AND HITS HIMSELF ON THE TOP OF THE HEAD WITH HIS RIGHT HAND.


HIS MOTHER SAYS: "BILLY, ARE YOU ALL RIGHT? YOU'VE BEEN IN HERE FOR A WHILE.


BILLY SAYS: "I'M FINE, MOMMY. I JUST HAVEN'T GONE YET."


MOTHER SAYS: "OK, YOU CAN STAY HERE A FEW MORE MINUTES. BUT, BILLY, WHY

ARE YOU HITTING YOURSELF ON THE HEAD?"


BILLY SAYS: "WORKS FOR KETCHUP."

Beneficial impact of vitamin D could alleviate symptoms and treat MS

March 18, 2010

Glasgow GP Dr Tom Gilhooly is at the forefront of an exciting new treatment for sufferers of MS. He comments ‘Scotland has the greatest incidence of Multiple Sclerosis in the world – and has more to gain than any other country from new developments such as CCSVI.’

CCSVI (Chronic Cerebrospinal Venous Insufficiency) is now an internationally recognised condition which has been found more commonly in MS patients. Gilhooly explains ‘We need more research to establish if treating CCSVI will improve outcomes in MS, but the theory does make sense. Leakage of iron from leaky veins could increase immune activity and contribute to breakdown of the blood brain barrier. Also MS lesions tend to occur round veins which makes sense if CCSVI is present. It’s early days, but this could be one of the greatest medical breakthroughs of the early 21st century.’

Gilhooly has one of the largest MS private practices in the UK, based at the Essential Health Clinic in Glasgow. There are plans to open a similar centre in London and they are actively seeking to offer scanning services for CCSVI in both London and Glasgow at some point later in 2010.

Gilhooly continues ‘The beneficial impact of vitamin D, antioxidants and omega-3 also fit the CCSVI hypothesis, and could be used to alleviate the symptoms and treat MS. The Doppler ultra sound scan required to show the CCSVI abnormalities has been specially adapted and we hope to have anultrasound technician fully trained later this summer.’

The cost of the scans in the UK is still to be finalised. Gilhooly and his team are also liaising with intervention radiologists to develop treatment centres around the UK.

SOURCE Cision

News-medical.net


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Keep Informed with News and Information regarding Multiple Sclerosis. If not yet receiving the "Stu's Views and MS Related News", weekly M.S. e-newsletter, then please take 20 seconds to register at: http://www.msviewsandnews.org. - Thank you

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Stuart's role in MS Awareness (this week) on Internet Radio

This mention really has nothing to do with my MS but it does show you that I do what I can to discuss and let others know about this disease that so many of us, live with.

Stuart Schlossman on Internet Radio on March 16th, 2010

Click here: http://www.thejorgerodriguezshow.com/archives/ - and then on the March 16th archives. I was on during his 12-1pm time-slot so it will be easy to find what I spoke about.

Yes this is a talk show but 'they', not wanting to sound NPR-ish - do it more slapstick-ish and because it is internet radio, they Jorge and others on SoFloRadio - do not need to adhere to FCC guidelines.

The first 3 minutes can be skipped through as it's all music. But then It's them and me for the next 58 minutes except for a few (4-5) minute breaks

Listen to it all if you want and please do not tell me that I sound like I was yelling.. I think they had my microphone on too loud.

Lots of Comedy is thrown in as well... A Slapstick approach....

After the first break we discuss the medications, choices, then symptoms -- then I really don't remember - enjoy -- MUCH was covered concerning Multiple Sclerosis and so I hope that this new way of providing information will help some and hopefully to create awareness too..

Bada Bing, bada- boom

Comments would be appreciated, so come back to this blog posting and tell me what you thought of the program. Should I try to do more of this style program?



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For those that do not know, I too have Multiple Sclerosis. It was when I was diagnosed years ago, that I got heavily involved with providing MS information for those that had diffiuclty on knowing where to learn and be educated with this illness. Now I empower tens of thousands of people with MS Knowledge. Please register at: http://www.msviewsandnews.org

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STAY INFORMED ABOUT MULTIPLE SCLEROSIS AND HEAR PERSONAL STORIES FROM OTHER PEOPLE WITH MS

If you are looking to learn more about MS therapies, the TYSABRI Hope and Health Teleconference Series may help you make a more informed treatment decision.

Many teleconference programs will be offered in 2010.

Log on to hear a physician discuss treatment information and to hear a panel of TYSABRI patients share their personal experiences. Ask them questions directly, or just listen to the discussion — all in the comfort of your own home.

Registration is easy — at no cost to you.

Sign up for free to learn more!


Indication

TYSABRI is a prescription medicine approved for adult patients with relapsing forms of MS to slow the worsening of disability that is common in patients with MS and decrease the number of flare-ups (relapses). Because TYSABRI increases the risk of progressive multifocal leukoencephalopathy (PML), a rare brain infection that usually causes death or severe disability, TYSABRI is generally recommended for patients that have not been helped enough by, or cannot tolerate, another treatment for MS. TYSABRI does not cure MS and has not been studied for longer than two years or in patients with chronic progressive MS.


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Keep Informed with News and Information regarding Multiple Sclerosis. If not yet receiving the "Stu's Views and MS Related News", weekly M.S. e-newsletter, then please take 20 seconds to register at: http://www.msviewsandnews.org. - Thank you

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Monday, March 15, 2010

A study, much needed for determining long term usage of Tysabri®

IN Stuart's own words, "I believe the purpose of this study is to see if stopping the use of Tysabri and then the re-start is to determine if for example - if a patient has had 24 infusions and then is taken off Tysabri for 6 months, when they re-begin using Tysabri, are they re-beginning with infusion #25 or is their system re-booted causing them to now begin again with infusion #1.
A study much needed for determining long term usage of the medication".





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Patient Walking with Dignity: Israeli "Exoskeleton Suit" Enables Paralyzed People To Walk

After being paralyzed for the past 20 years, Radi Kaiof began to walk down a street in Israel to the sound of a dim mechanical hum. That was the sound of an electronic exoskeleton, developed by a small Israeli high-tech company, propelling the 41 year old paraplegic down the street with a proud expression on his face. The device, called ReWalk, is the brain child of engineer Amit Goffer, founder of Argo Medical Technologies.


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Keep Informed with News and Information regarding Multiple Sclerosis. If not yet receiving the "Stu's Views and MS Related News", weekly M.S. e-newsletter, then please take 20 seconds to register at: http://www.msviewsandnews.org. - Thank you

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Multiple sclerosis turns the tables on Portland oncologist, as patients become caregivers

By Katy Muldoon, The Oregonian

March 13, 2010, 11:47AM
How a visitor hauling a 40-pound Everlast punching bag got past the nurse's station without being noticed is a mystery, but the woman proceeded straight to Devon Webster's hospital bed. She helped Webster lace on red boxing gloves and waited for her to take a swing.

Webster, a prominent Portland oncologist, had been unable to speak, swallow or see clearly for weeks. Her balance was gone. Her right arm, quivering with a tremor, was useless. Her face drooped.

The multiple sclerosis flare-up was so severe that Webster, 41, didn't know whether she'd walk again or be able to live independently. More than anything, she remembers desperately wondering if her ailing body would cut her off permanently from the work that fills her life: treating breast cancer patients and searching for a cure.

With little warning, she'd gone from doctoring to needing doctors. Current and former patients pushed through the door of her hospital room atProvidence Portland Medical Center, offering the sort of good wishes and help that Webster typically offered them.

Was it OK, she wondered, to let patients see her at her most vulnerable, even though they were vulnerable themselves? Was it ethical to accept their help?

READ MORE and watch video by clicking here

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Keep Informed with News and Information regarding Multiple Sclerosis. If not yet receiving the "Stu's Views and MS Related News", weekly M.S. e-newsletter, then please take 20 seconds to register at: http://www.msviewsandnews.org. - Thank you

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Boy Scouts do housework for people with MS


A group of boys banned together to help local people living with the debilitating disease Multiple Sclerosis. They may not know the people personally, but they do know the struggle with MS.

On Saturday afternoon in southwest Bakersfield a group of boys frantically worked on a house to clear weeds, and groom plant beds.

No, they aren't getting paid, and no they are not being punished. On the contrary, they are being rewarded, emotionally. “My aunt has MS so it's kind of personal for me. I'm kind of doing this for her,” volunteer Kendrick Crabtree said.

James O'Rourke is the mastermind behind this project, called MS Service Day. His mother suffers from multiple sclerosis. “She can't get around too well anymore and she's mostly in bed most of the time. I miss doing stuff with her,” O’Rourke said.

O'Rourke is trying to earn his eagle badge for the Boy Scouts and wanted to give back to those who are going through what his family is going through. He arranged for several teams of boys, mostly Boy Scouts, to go around Bakersfield, completing home improvement projects, painting, and doing yard work for people with MS.

William Jensen is one of the people who they are helping. He has suffered from MS for five years says he has little mobility. “It's hardly anything. I can't walk anymore,” Jensen said. “I feel like I can help those who can't help themselves. I feel like I can do something for others. It's gives me a good feeling,” Crabtree said.


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