Please visit our MS learning channel on YouTube, which provides hundreds of MS related topics from many of our video recorded education programs and archived here: www.youtube.com/msviewsandnews -- Be empowered with MS views and news. Opt-in with us: www.register.msviewsandnews.org


~~ Scroll left side of this blog for needed resources. Also, use our 'search by topic' tool, to find specific information.


Disclaimer: 'MS Views and News' DOES NOT endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.

=================================================


Saturday, March 27, 2010

AN MS Patient's Journal continues on His LIBERATION TREATMENT

Written by Mitch - Saturday, March 27, 2010

CCSVI- Diagnosis and Treatment Log Entry #7

In Log Entry #6 I wrote about what the experience was like for me during the actual CCSVI procedure. Here, in Log Entry #7, I’ll get into the details about the abnormalities that were found, and the actions taken to correct them. To catch up on my complete CCSVI Diagnosis and Treatment log, click here (and then scroll down).

What an amazing experience it was.

Right Internal Jugular

An angiogram, which is an X-ray test using a special dye and camera to take pictures of the blood flow in the vein, was performed in the right internal jugular vein. This revealed a short segment stenosis adjacent to the confluence of the brachiocephalic vein. The diameter reduction associated with this stenosis was approximately 60%. The more important number, relative to flow restriction, is the cross sectional area reduction which in this case was approximately 85%.

Multiple collateral veins were noted at this location. Collateral veins indicate attempts by the body to establish bypass flow around an obstruction. Dr. Sclafani inserted the intravascular ultrasound device (IVUS) and confirmed the stenosis. A balloon was inserted, and the vein was dilated multiple times. Another angiogram was performed after dilation which indicated improved flow, diminished flow through collaterals, and no stenosis. Note that the nominal diameter of this blood vessel was 12 mm. Dr. Sclafani prefers to slightly over-dilate the vessel in these instances, and so a 14mm x 4 cm balloon was used.
CLICK to continue from Mitch's blog

~~~~~~~~~~~~~~~~~~~~~~~~~~~

Friday, March 26, 2010

Head-to-Head Study Comparing TYRABRI To Copaxone And Rebif

March 26, 2010


Biogen Idec (NASDAQ: BIIB) and Elan Corporation, plc (NYSE: ELN) today announced enrollment of the first patient in a global Phase IIIb, randomized, rater-blinded, active-controlled study designed to evaluate switching to TYSABRI® (natalizumab) from Copaxone® (glatiramer acetate) or Rebif® (interferon beta-1a) in patients with relapsing remitting multiple sclerosis (RRMS). The study, called SURPASS, is expected to enroll 1,800 patients in 27 countries and provide direct comparative data of different treatment options for RRMS patients who experience breakthrough disease activity.

"Despite being on therapy, many MS patients still experience disease progression, resulting in loss of physical abilities and permanent damage to the central nervous system," said Richard Rudick, M.D., chair of the SURPASS trial advisory committee and director of the Mellen Center for Multiple Sclerosis Treatment and Research at the Cleveland Clinic. "Currently, there is limited data to inform decisions about how to switch in patients who have disease activity while on therapy. The goal of the SURPASS study is to provide that data so physicians can improve treatment decisions and outcomes for their MS patients."

A significant number of MS patients continue to experience clinical relapses and disease progression despite treatment with disease-modifying therapies such as Copaxone and Rebif. The SURPASS study, a large, well-controlled comparative trial of MS treatments, will evaluate switching to TYSABRI versus staying on or switching between Copaxone and Rebif and determine whether early use of TYSABRI in the treatment algorithm ultimately leads to better outcomes.

"TYSABRI is a compelling treatment option that is bringing hope to many MS patients," said Alfred Sandrock, M.D., M.P.H., senior vice president of neurology research and development at Biogen Idec. "By evaluating TYSABRI against other MS treatments, our goal is to provide the data needed to make better treatment decisions and improve patients' lives."

"We believe the SURPASS study has the potential to improve the way MS is treated," said Carlos Paya, M.D., Ph.D., president at Elan. "Despite significant advances in treatment, the unmet medical need for many MS patients remains great and this study supports our commitment to continuing to advance the standard of care in MS."

Continue reading from Medical News Today

*

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Remain up-to-date and Informed with Multiple Sclerosis News and Information. If not yet receiving the "Stu's Views and MS Related News", weekly M.S. e-newsletter, then please take 20 seconds to register at: http://www.msviewsandnews.org. - - Thank you -

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Chronic Cerebrospinal Venous Insufficiency (CCSVI) updates

Chronic Cerebrospinal Venous Insufficiency (CCSVI)


Drs. Kim and Kabutey are leading new studies on Chronic Cerebrospinal Venous Insufficiency (CCSVI), a new treatment for multiple sclerosis (MS). Initial research has shown an improvement on MS symptoms.


To read more information on CCSVI, click here to review various other links.


*
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Remain up-to-date and Informed with Multiple Sclerosis News and Information. If not yet receiving the "Stu's Views and MS Related News", weekly M.S. e-newsletter, then please take 20 seconds to register at: http://www.msviewsandnews.org. - - Thank you -

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Thursday, March 25, 2010

CCSVI NEWS : After Patients Push for Experimental Treatment, Doctors Conclude It's Too Risky

MS Program Halted Amid Controversy

March 25, 2010


Stanford University vascular specialist Michael D. Dake has done pioneering work at the hospital's cardiac-catheterization labs, like fixing certain aortic aneurysms once thought untreatable.

But Dr. Dake's experimenting touched off a furor at the university recently when—based on preliminary research by an Italian surgeon—he inserted metal stents into the internal jugular veins of multiple sclerosis patients. Doctors are generally allowed to adapt for new uses devices, like stents, that have received Food and Drug Administration approval.

In December, Dr. Dake's 40-patient MS stenting program was shut down, according to Stanford officials. A number of patients treated by Dr. Dake had reported improvements in their symptoms following the procedure. However, one patient died of a brain hemorrhage on the way home from treatment and another had to undergo life-saving emergency surgery. Neurologists from Stanford and the University of California, San Francisco, had protested to Stanford medical school officials that the procedure was too untested to be used in people. It's not clear which factors contributed to the program's ending.

Continue reading by clicking here to read this Wall Street Journal report

Also to see a diagram of the jugulars involved with this procedure


~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Remain up-to-date and Informed with Multiple Sclerosis News and Information. If not yet receiving the "Stu's Views and MS Related News", weekly M.S. e-newsletter, then please take 20 seconds to register at: http://www.msviewsandnews.org. - - Thank you -

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Getting rid of those pesky Needles

Often it's asked of me where people can dispense of their needles when their doctors no longer take them.

The only answer for you, is to call your local waste management representatives (those who pick up your trash). - I am sure they will have the answer for you, depending on where you live.


~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Remain up-to-date and Informed with Multiple Sclerosis News and Information. If not yet receiving the "Stu's Views and MS Related News", weekly M.S. e-newsletter, then please take 20 seconds to register at: http://www.msviewsandnews.org. - - Thank you -

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Adult Stem Cell Therapy information

Stem cell research is still one of the topics for a good debate when it comes to the science or researching of ways to help mankind. The biggest issue was with the use of the embryonic stem cells which are now commonly used in research methods because government agencies are aware of their benefits for the human race. Trying to fight disease and cure cancers is becoming easier with the use of stem cell research so those people who have protested against these procedures are going to lose out if they decide to boycott the programs.

The miracles that stem cell research has provided over the last few years have been widely publicized. The fact that after all the media scare mongering the research was finally stopped because of the way the research had started to pay off dividends. Once certain parts of the research had been perfected then this was introduced into the common medical community so that everyone could benefit from the advantages.

Found in common cells the adult stem cells can be retrieves simply through skin or flesh samples and then extracted from the rest of the debris. By using the cells for different studies and research endeavors, scientists have started to make numerous discoveries which can be used to help save lives.

Read More at: www.adultstemcells.netW.ADULTSTEMCELLS.NET


*
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Remain up-to-date and Informed with Multiple Sclerosis News and Information. If not yet receiving the "Stu's Views and MS Related News", weekly M.S. e-newsletter, then please take 20 seconds to register at: http://www.msviewsandnews.org. - - Thank you -

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Wednesday, March 24, 2010

For those with MS: Make Injections More Pleasant With a Ritual

written by (about.com's) ,

For many of us who use the multiple sclerosis disease-modifying drugs known as the CRAB drugs (Copaxone, Rebif, Avonex and Betaseron), the injection process stands out as the worst part of our day. If you had someone describe his “injection ritual” step-by-step, he may say that the first step is to spend a couple minutes dreading the injection, step two is to give the injection, step three is to end the sequence by hating the injection process and MS altogether. Developing a ritual around your injection that is more pleasant than the one just described may make the process go more smoothly.

Click here to continue from the Julie's blog

*

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Remain up-to-date and Informed with Multiple Sclerosis News and Information.
If not yet receiving the "Stu's Views and MS Related News", weekly M.S.
e-newsletter, then please take 20 seconds to register at: http://www.msviewsandnews.org.
- Thank you -

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Tuesday, March 23, 2010

Hyperbaric Oxygen Therapy for Multiple Sclerosis

This article was provided by: Karen D., in Tamarac, Florida.

ABSTRACT

Multiple sclerosis (MS) is a chronic, inflammatory, and degenerative neurological illness with no cure.

It has been suggested that Hyperbaric Oxygen Therapy (HBO2T) may slow or reverse the progress of the disease. This article summarizes the clinical evidence for the use of HBO2T in the treatment of MS. We conducted a literature review focused on the interaction of hyperbaric oxygenation and MS. In particular, we appraised the clinical data regarding treatment and performed a meta-analysis of the randomized evidence using the methodology of the Cochrane Collaboration. We found 12 randomized studies in the area, all of which were performed between 1983 and 1987. A meta-analysis of this evidence suggests there is no clinically significant benefit from the administration of HBO2T.

The great majority of randomized trials investigated a course of 20 treatments at pressures between 1.75ATA and 2.5ATA daily for 60–120 min over 4 weeks against a placebo regimen. None have tested the efficacy of HBO2T against alternative current best practice. No plausible benefit of HBO2T on the clinical course of MS was identified in this review. It remains possible that HBO2T is effective in a subgroup of individuals not clearly identified in the trials to date, but any benefit is unlikely to be of great clinical significance. There is some case for further human trials in selected subgroups and for prolonged courses of HBO2T at modest pressures, but the case is not strong. At this time, the routine treatment of MS with HBO2T is not recommended.

Credits and Source of this article can be found here

######################

For those in South Florida contact: Hyperbaric Services of Palm Beach (HSPB) - for information. HSPB is a sponsor on the MS Views and News website

######################

Keep Informed with Multiple Sclerosis News and Information. If not yet receiving the "Stu's Views and MS Related News", weekly M.S. e-newsletter, then please take 20 seconds to register at: http://www.msviewsandnews.org. - Thank you

######################

Testing the New MS Theory: CCSVI - as Patients Demand Care Now

WASHINGTON (AP) -- Under intense pressure from patients, some U.S. doctors are cautiously testing a provocative theory that abnormal blood drainage from the brain may play a role in multiple sclerosis -- and that a surgical vein fix might help.

If it pans out, the approach suggested by a researcher in Italy could mark a vast change for MS, a disabling neurological disease long blamed on an immune system gone awry. But many patients frustrated by today's limited therapies say they don't have time to await the carefully controlled studies needed to prove if it really works and are searching out vein-opening treatment now -- undeterred by one report of a dangerous complication.

''This made sense and I was hell-bent on doing it,'' says Nicole Kane Gurland of Bethesda, Md., the first to receive the experimental treatment at Washington's Georgetown University Hospital, which is set to closely track how a small number of patients fare before and after using a balloon to widen blocked veins.

In Buffalo, N.Y., more than 1,000 people applied for 30 slots in a soon-to-start study of that sameangioplasty procedure. When the University at Buffalo team started a larger study a few months ago just to compare if bad veins are more common in MS patients than in healthy people -- not to treat them -- more than 13,000 patients applied.

The demand worries Georgetown neurologist Dr. Carlo Tornatore, who teamed with vascular surgeon Dr. Richard Neville in hopes of getting some evidence to guide his own patients' care.

''A lot of people are starting to go to fly-by-night places,'' says Tornatore. Doing this research takes time, he said. ''It's a marathon, not a 100-yard sprint. We have to be very careful.''

Continue reading from the NY Times


######################

Keep Informed with Multiple Sclerosis News and Information. If not yet receiving the "Stu's Views and MS Related News", weekly M.S. e-newsletter, then please take 20 seconds to register at: http://www.msviewsandnews.org. - Thank you

######################

SPEAK UP - Become an MSF Ambassador

Source: MS Foundation

Too often, MS symptoms are left in the shadows. People don’t see your fatigue and depression and can’t feel your pain. They say you look good but have no idea what’s going on inside. It’s time to speak up for yourself and others with MS!

This spring, the MSF will choose ten people with MS from around the country to serve as ambassadors. These people will become leaders in the MS community by:

• Attending local and regional MSF events.
• Speaking at support groups and health fairs.
• Participating in public outreach.

Those selected will have the chance to participate in leadership training to help them become advocates for MS awareness, and work closely with the MSF to help meet their advocacy goals.

So, tell us how you would get the word out! Be creative – write an essay, record a video, include photos, or do a slideshow presentation. See full guidelines and application at http://www.msfocus.org/pdf/AmbassadorApp.pdf or in the current issue of MSFocus.



######################

MEANWHILE:
LEARN more and Keep Informed with Multiple Sclerosis News and Information. If not yet receiving the "Stu's Views and MS Related News", weekly M.S. e-newsletter, then please take 20 seconds to register at: http://www.msviewsandnews.org. - Thank you

######################

Inside the National MS Society: Get an Insider’s Perspective of the Society’s Latest Plans, Projects and More

National MS Society News:

The following news sheets contain information regarding the operations and programs of the Society. This information ensures our staff and volunteers are engaged and informed about important ongoing work of the organization. Information contained in this file will contain links to our internal information system, which is password protected to ensure that we honor and protect the privacy of our employees as well as safeguard our systems and any proprietary information. If you would like more information regarding a topic presented, please contact your local National MS Society chapter.

To read these news sheets, CLICK HERE



######################

LEARN more and Keep Informed with Multiple Sclerosis News and Information. If not yet receiving the "Stu's Views and MS Related News", weekly M.S. e-newsletter, then please take 20 seconds to register at: http://www.msviewsandnews.org. - Thank you

######################

Sunlight may play a bigger role than vitamin D in controlling multiple sclerosis

2010-03-23

Ultraviolet portion of sunlight plays a bigger role than vitamin D in controlling multiple sclerosis (MS), according to researchers at University of Wisconsin-Madison. For more than 30 years, scientists have known that multiple sclerosis (MS) is much more common in higher latitudes than in the tropics. Because sunlight is more abundant near the equator, many researchers have wondered if the high levels of vitamin D engendered by sunlight could explain this unusual pattern of prevalence.

Vitamin D may reduce the symptoms of MS, but it is the ultraviolet portion of sunlight that has a major role in controlling MS, according to Hector DeLuca. The ultraviolet (UV) portion of sunlight stimulates the body to produce vitamin D, and both vitamin D and UV can regulate the immune system and perhaps slow MS. But researchers were not clear of the immune regulation result directly from the UV, indirectly from the creation of vitamin D, or both. The study was designed to distinguish the role of vitamin D and UV light in explaining the high rate of MS away from the equator, said DeLuca, a world authority on vitamin D.

"Since the 1970s, a lot of people have believed that sunlight worked through vitamin D to reduce MS. It's true that large doses of the active form of vitamin D can block the disease in the animal model. That causes an unacceptably high level of calcium in the blood, but we know that people at the equator don't have this high blood calcium, even though they have a low incidence of MS. So it seems that something other than vitamin D could explain this geographic relationship," says DeLuca. Using mice that are genetically susceptible to MS-like disease, the researchers triggered the disease by injecting a protein from nerve fibers. Then the mice were exposed to moderate levels of UV radiation for a week.

After they initiated disease by injecting the protein, they irradiated the mice every second or third day. The UV exposure (equivalent to two hours of direct summer sun) did not change how many mice got the MS-like disease, but it did reduce the symptoms of MS, especially in the animals that were treated with UV every other day, said DeLuca. The team also found that although the UV exposure did increase the level of vitamin D, that effect, by itself, could not explain the reduced MS symptoms.

In some situations, radiation does reduce immune reactions, but it's not clear what role that might play in the current study. "We are looking to identify what compounds are produced in the skin that might play a role, but we honestly don't know what is going on. Somehow it makes the animal either tolerate what's going on, or have some reactive mechanism that blocks the autoimmune damage," said DeLuca. (ANI)

Source: Sify News


######################
Learn More about MS. Keep Informed with News and Information. If not yet receiving the "Stu's Views and MS Related News", weekly M.S. e-newsletter, then please take 20 seconds to register at: http://www.msviewsandnews.org. - Thank you

######################

Sunday, March 21, 2010

La insuficiencia venosa, o CCSVI, en la esclerosis múltiple

Recientemente ha llamado la atención una idea, que anteriormente había sido considerada y nuevamente está siendo revisada, sobre la posible relación entre una disfunción del drenaje venoso del cerebro y la esclerosis múltiple. Aquí encontrarás lo último publicado acerca de ella.


To translate into English or another Language, Use Google Translator,
found from the Google Homepage.
It is not exact, but you can use to make sense of things
######################


Keep Informed with News and Information regarding Multiple Sclerosis. If not yet receiving the "Stu's Views and MS Related News", weekly M.S. e-newsletter, then please take 20 seconds to register at: http://www.msviewsandnews.org. - Thank you

######################

An MS Patient's CCSVI Treatment: Jane's story (includes updates though March 20, 2010)


Jane's story:
"As many of you know, there has been recent media coverage of a possible new theory of a causative factor and treatment for MS. Dr. Paolo Zamboni in Italy found a statistically significant number of MS patients had narrowed or blocked neck or chest veins, theoretically leading to CCSVI. Resultant iron leakage from the congested blood into the brain and spinal cord kills the myelin and then the nerve cells. Treatment is angioplasty or stenting to open the affected veins. There was improvement in many treated patients.

Because my disease is rapidly progressing, and because we feel the work done so far is compelling, we are very interested in this. In this country, no one will even consider doing the diagnostics. Correspondence with Dr. Zamboni himself, resulted in "wait for the research". Research studies are slow, swamped, and blinded so you never know your results and only involve diagnosis, not treatment, at this time.

So we went to Buffalo last month and had an exhaustive (ing) vein MRI done. My left jugular is severely stenotic throughout my whole neck; the right is for 3.6 cm. We just got back from our second trip; we consulted a vascular surgeon. As he said "I know nothing about MS. But this is abnormal and I can fix it". It's low risk and relatively cheap.

I go March 19th for angioplasty and/or stent placement for under $5,000 USD. It's done with a local and as an outpatient.

No one yet knows if this will help; it might not. But I have no time and I like to think my little boys still need me."

Jane
~~~~~~~~~~~~~~~~~~~~~~~~~

Background to her story:
Jane had the MRV done at Seton Imaging. The MRV was $1,400 USD.

Medical contacts and all referrals were provided by MEDCAN in Toronto and Hamilton-Smith Consultants in Mississauga. This is the first step you would need to take. Calling the Vascular Surgeons or Seton Imaging directly will probably get you nowhere.

She was referred to Vascular Surgeons at the Vascular & Endovascular Center in Buffalo.

I simply love the Buffalo Surgeons quote: "I know nothing about MS. But this is abnormal and I can fix it"

Her CCSVI angioplasty surgery is less than $5,000 USD and is scheduled for March 19 2010 at the Vascular & Endovascular Center.

This is so wonderful for Jane to share this info with us. This is a promising Neuro-free avenue for people in the Greater Toronto Area, or for people who could get to Buffalo to consider. With any medical treatment you consider, please do your own homework. The pricing is much less than Poland, and is an order of magnitude less than treatment in India.

I want to thank Jane for sharing her personal story. She is blazing a trail for so many who are seeking treatment. She is so awesome, and I wish her the best on March 19th. We will update this story, as more good news unfolds.

I believe in Dr. Zamboni. This is real, and nearly everyone tested has a blood flow problem. We are watching history being made and the dark puzzle know as MS is being solved right before our eyes. It's simply the most amazing thing I have ever seen.

Hope you find her story informative and helpful.

WaYnE
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
LINKS:

MEDCAN Clinic Toronto:
http://www.medcan.com

Hamilton-Smith Consultants Mississauga:
http://www.mridhs.com

Seton Imaging Buffalo New York:
http://www.setonimaging.com

Vascular & Endovascular Center of Western New York:
http://www.vecwny.com

Vascular Surgeons: Dr. Joseph Anain, Sr. / Dr. Paul Anain / Dr. Roger Walcott
~~~~~~~~~~~~~~~~~~~~~~~~~~
Update March 15 2010:
Jane also used Hamilton-Smith Consultants. They can arrange for your treatments and are networked with Seton Imaging for an MRV and Hamilton-Smith Consultants are networked with Vascular Surgeons.

From their website: "Hamilton-Smith Consultants was formed in 1994 in order to fill a void in the Ontario Health Care Sector. A requisition / referral from a Specialist or Family Physician will initiate arrangements being made for a prompt appointment. Our Diagnostic Imaging Partner facilities are located in Amherst, Kenmore, and Tonawanda NY."

WaYnE

http://www.mridhs.com


Update March 20 2010 - One day after surgery:
"So, I was Liberated Fri. Procedure went well and is not a big deal. If you scroll down to Kerri from Australia, she has a good video; mine was exactly like hers. So under local they cut down to your femoral vein and thread wires through your veins up to your jugulars and balloon them open. It just feels weird but OK. The balloon and the jugular was uncomfortable. Today is the next day and my neck is sore. Last night my chest was sore- my chest hurt but liveable.

Just to you know I've had MS for 21 years. I'm SP-MS now and pretty affected. I'm in a wheelchair, my legs are paralyzed, I can barely transfer and my hands are weak.

When the first vein opened I felt like the lights got brighter. I felt more awake. Can't say I'm running down the road, (wish I could!), but hopefully it stops progressing and I think (but I'm not sure) my hand might be stronger today and my feet might be less painful?

I am really tired today not only from the surgery but from the long drive, the trip away etc etc. Time will tell - who knows?

Doctor Walcott was great - no complaints about anything and no concerns.

Procedure took 1 1/2 hours, and then was in recovery for 2 hours. (Best to pee before you go..;) ). Was able to then get in the car and go home. (nice wait at the border....) If you are disabled, stay at the Courtyard Mariott on Sheridan Drive."

Jane
~~~~~~~~~~~~~~~~~~~~~~

Keep up to date with MS related medical articles, patient stories and more, when registered at the MS Views and News website: http://www.msviewsandnews.org ---

Then Bookmark my MS blog link. Use a reader such as an RSS or Google Feed to catch our postings as they appear.
~~~~~~~~~~~~~~~~~~~~~