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Saturday, April 10, 2010

Multiple Sclerosis "The Scottish Disease"

Provided By Terence in Spain:

"Scotland – the mainland around Aberdeen, the Orkney and Shetland Islands – has the highest risk (of MS]. The best explanation is that this reflects the genetic background because those are areas where there is a very high influence of Nordic genes, probably delivered by the Vikings, as I understand it they were in the habit of leaving behind their genetic material in the most generous way.

Alastair Compston, professor of neurology and head of the department of clinical neurosciences at Cambridge University.

Other regions of high MS prevalence around the world were settled by Scottish immigrants. During the 18th and 19th centuries The Highland Clearances forced displacements of the population of the Scottish Highlands leading to mass emigration mainly to Canada, the United States of America, and Australia. In the USA British colonies were settled all along the US east coast, particularly Maryland, Pennsylvania, Delaware, Virginia, North and South Carolina and later Georgia, Alabama, Tennessee, Kentucky, Arkansas, Texas, and Oklahoma. Americans can thank these Scottish settlers for the Rev. Elijah Craig, Bourbon whiskey, "Blue Grass" music, paper-mills, and MS! During the English Civil War in the 1600s, Scots mercenaries from both sides were transported and the Jacobite rebellions of 1715 and 1745 also saw many Scots transported. A few hapless souls were kidnapped by pirates who sold them as slaves to work on plantations in the West Indies.

Click here to read more on this interesting MS information


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THEN,
Remain up-to-date and Informed with Multiple Sclerosis News and Information. If not yet receiving the "Stu's Views and MS Related News", weekly M.S. e-newsletter, then please take 20 seconds to register at: http://www.msviewsandnews.org. - - Thank you -

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Epstein-Barr Virus Positivity Linked to Increased Interaction Between Smoking and MS

Source: Medscape

Emma Hitt, PhD

April 9, 2010 — Smoking appears to be associated with an increased risk of multiple sclerosis (MS) in individuals with high anti–Epstein-Barr virus nuclear antigens (EBNA) titers but not in those with low titer levels, according to a report in the April 7 online issue of Neurology.

Claire Simon, ScD, with Harvard School of Public Health in Boston, Massachusetts, and colleagues evaluated data from 3 case-control studies involving 442 MS cases and 865 controls. The 3 studies were a nested case-control study in the Nurses’ Health Study/Nurses’ Health Study II, a Tasmanian MS study, and a Swedish MS study.

“Few studies have considered the effects of MS risk factors simultaneously,” Dr. Simon told Medscape Neurology. “Our goal was to investigate whether the observed effects of smoking, anti-EBNA antibody titers, and HLA-DR15 were independent or related, indicating the possibility of shared biological mechanisms,” she said.

The current analysis used data from 3 case-control studies, a nested case-control study in the Nurses' Health Study I and II, a Tasmanian MS study, and a Swedish MS study, including 442 subjects with MS and 865 without MS.

Continue Reading


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Friday, April 9, 2010

Not allowing his MS diagnosis to define his lifestyle, A Cabarrus man continues to run...

Published: April 9, 2010

CONCORD - As the saying goes, " when someone hands you lemons, you make lemonade."

Simply put, you make do with what you've been given.

Cabarrus County Deputy Sheriff David Allred, 43, was diagnosed with multiple sclerosis 13 years ago.
This weekend, he will once again prove that the diagnosis won't define his life as he runs the Charlotte RaceFest Half Marathon & 10K.

MS is a chronic, often disabling disease that attacks the central nervous system, including the brain, spinal cord and optic nerves.

Symptoms of MS may be mild, such as numbness in the limbs, or severe, such as paralysis or loss of vision.

Last spring, Allred attempted something he has worked towards since his diagnosis, the Ford Ironman — a 2.4-mile swim, 112-mile bike ride and a complete marathon of 26.2 miles — in Lake Placed, N.Y.

"When you look at what can happen with MS, there were things I wanted to do, and the day may come when I can't. It may or may not," Allred said. "When I was diagnosed, the doctor said, 'you may go 20 years and have no problems or you may go 20 minutes and have a problem.' You just don't know."

So he decided it was time to "start doing things," beginning to train and try to get physically fit. His friends pushed him to run, bike and swim.

"It just kind of grew from one thing to another," Allred said. "There was a lot of help from my wife Julie and my daughter."

Training for events like marathons, of which he has done several, and half-ironman events is very time consuming. An early morning swim at 5 a.m., a run at lunch and then a long bike ride after work can eat up a lot of family time, but Allred is thankful for his family's support.

"It's a big sacrifice, but they are both very supportive, and my wife helps monitor everything," Allred said. "Sometimes I don't notice if I'm a little too fatigued, but she has to live with me so she picks up on it."

Though training can be difficult, Allred said sometimes "he just makes his mind up" to persevere.
"When it's really, really hot, sometimes it makes me a little bit dizzy, but not to bad," Allred said.

He controls the dizziness with cool water.

The treatment for his MS includes the drug Avonex. It is a shot his wife, who is a nurse, administers, and has worked very well for him.

Continue to read this patient's story from North Carolina's Independent Tribune

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Actress Teri Garr Hosts New Video for MS Patients

Information provided by Daniel B - in South Florida

Newswise - Silver screen star Teri Garr is the host of the American Academy of Neurology Foundation's newest patient education video and guidebook, Living Well: A Guide to Managing Multiple Sclerosis for Patients and Families. The video and guidebook are aimed at answering important questions for newly diagnosed multiple sclerosis (MS) patients and their caregivers and can be viewed for free atwww.aan.com/patients. A DVD and printed booklet can be ordered fromwww.aan.com/patients as well.

In addition, free copies of the DVD and guidebook are being made available to neurologists at the Annual Meeting of the American Academy of Neurology in Toronto, April 10-17, 2010, to take back to their practices and share with patients.

Read more - click here: http://newsblaze.com/story/2010040906250600005.wi/topstory.html

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If unable to work due to an MS related disability you might be entitled to Social Security Disability Insurance or ...


If you live with MS & are unable to work due to an MS related disability you might be entitled to Social Security Disability Insurance or Supplemental Security Income benefits. This Tuesday's teleconference will help assist you in deciding whether applying for disability benefits is right for you & in navigating the application process.
Click here for a teleconference taking place on April 13th, 2010


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Wednesday, April 7, 2010

Teva to Present New Data on Multiple Sclerosis and Parkinson's Disease at the 62nd American Academy of Neurology Annual Meeting

ress Release Source: Teva Pharmaceutical Industries Ltd. On Wednesday April 7, 2010, 10:45 am EDT

JERUSALEM--(BUSINESS WIRE)--Teva Pharmaceutical Industries Ltd. today announced that several new studies supporting the company’s innovative central nervous system (CNS) portfolio will be presented at the 62nd American Academy of Neurology Annual Meeting in Toronto, April 10-17,2010.

Featured presentations highlight:

  • Pre-clinical data surrounding the unique mechanism of action (MOA) of Copaxone® (glatiramer acetate injection), further demonstrating how the product works with the immune system. Additional data underscoring the benefit-risk profile of Copaxone®, the global market-leading relapsing-remitting multiple sclerosis(RRMS) treatment, in both treatment-naive and pre-treated patients.
  • An analysis of placebo patients from the ADAGIO study of Azilect® (rasagiline tablets) inParkinson’s disease (PD), providing information on the natural progression of clinical symptoms of the disease in its early stages. The subgroup analyses provide further insight into the larger effect size seen for rasagiline in ADAGIO patients with greater severity of disease at baseline.
  • Pre-clinical and early animal model data demonstrating the immunomodulatory and potential neuroprotective properties of Teva’s investigational, once-daily, oral laquinimod. These data provide further insight into the novel MOA of laquinimod, which is currently being investigated for the treatment of RRMS in two global Phase III clinical trials.
  • The innovative study design of the OCTAGON (Optical Coherence Tomography Assessment of Glatiramer acetate On retinal Nerve fiber layer) trial exploring the use of glatiramer acetate in the early treatment of Acute Optic Neuritis
  • Results demonstrating the potential role and impact of Neutralizing Antibody (NAb) Testing on multiple sclerosis (MS) treatment decisions

Read more on each of the above, by clicking here



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Monday, April 5, 2010

1500 Bee Stings helps MS patient to walk again

Stuart says: I would be able to run, if I just even saw 1500 bees.....

Monday, April 05, 2010


A 45-year-old U.K. woman who suffers from multiple sclerosis, says bee stings helped her regain her quality of life, London's Daily Mail reported.

Sami Chugg was confined to her bed and unable to move, but after the area around her spine was deliberately stung by 1,500 bees, she feels much better and can walk again.

Bee venom therapy is known in some cultures to relieve the body of pain by reducing inflammation.

"Most people would be terrified by the prospect of being stung by a bee," Chugg said. "But when you have a condition like MS, that involves numbing of the body, any sensation is welcome - even if it's from a bee sting."

There are some risks associated with bee stinging — some people go into anaphylactic shock after being stung.

A MS Society spokesman said trials in the United States on purified bee venom extract have not found any lasting effect on MS sufferers.

source: FoxNews.com


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Sunday, April 4, 2010

Although Treatment Brings Hope, an MS patient tells you he is not super-human

A word from an awakened spirit. For the Tysabri users out there.. Tysabri only seems to make some of us, feel super-human for much of the time, but not all of the time.

After yesterday, I strongly suggest that no "T" user plans an event (large or small) (social or otherwise), on a weekend just before the next infusion...

I am utterly drained, after the ms education program that I choreographed for yesterday's program in Ft. Lauderdale on "Treatment Brings Hope" (see below)

Gee-whiz (colloquial)- makes me remember the times before "T"...

Life was different then.... and today (but hopefully not tomorrow), will make me remember one of the reasons I chose "T" ...

Now if I can only get my day started, I am only (already) two hours behind...


re: Treatment Brings Hope:
As I have stated many times - If diagnosed with any disease that has medications to thwart or slow further progression, you had best be using it. Fore, without using a medication that has been proven to slow progression only increases the percentage of you worsening when you "had" an option. And if there is more than one medication for that illness and one doesn't seem to work as well as you want, then try another option.

Using an available treatment will allow you "to do". To do things you may not may able to do if the illness/disease worsens.

Life is too short to await a cure and so I will say Treatment Brings Hope...

Have a good day.. I will be resting today...

written by: Stuart Schlossman - Sunday, April 4, 2010
( and I just had to look at a calendar as I had no clue what day of the week today was - Cognitively speaking)

Meltdown, meltdown.......... m-e-l-t-d-o-w-n

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Remain up-to-date and Informed with Multiple Sclerosis News and Information. If not yet receiving the "Stu's Views and MS Related News", weekly M.S. e-newsletter, then please take 20 seconds to register at: http://www.msviewsandnews.org. - - Thank you -

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