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Disclaimer: 'MS Views and News' DOES NOT endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.

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CHAMPIONS TACKLING MS - AWARDS Dinner, Honoring Aaron Boster, MD and Jon e. Glaser, DDS - now open for registration. Visit www.events.msvn.org

Saturday, May 15, 2010

PML Cases rise by (3)

Reported by Karen M.

Biogen: Total PML Cases At 49, Deaths At 11 As Of May 6

By Thomas Gryta, Of DOW JONES NEWSWIRES

NEW YORK -(Dow Jones)- Biogen Idec Inc. (BIIB) disclosed three more cases of a rare brain infection in multiple sclerosis patients on Tysabri, which it sells with Elan Corp. (ELN), bringing the total number of cases to 49 as of May 6.

The Cambridge, Mass., biotech company reported no additional deaths in patients that have developed progressive multifocal leukoencephalopathy, or PML, bringing the total to 11.

Tysabri is considered a highly effective therapy for MS, and its growth is important to the future of both Elan and Biogen. But its sales have been slower than originally hoped due to concerns about the risk of PML that led to its temporary withdrawal beginning in 2005.

The overall global rate is about 0.7 per 1,000 patients, the company said, which falls within the 1-in-1,000 rate previously seen in clinical trials and implied on the drug's label.

Shares of Biogen recently traded down 2.9% to $49.92, while Elan shares dropped 1.4% to $6.26.

Of the total cases, 19 were in the U.S., 27 were in the European Union and three were in other areas. Biogen provides monthly updates on the number of PML cases.

The number of cases is important because if the infection rate climbs too high, sales of the drug may drop.

The most recent update translates to a rate of 1.14 cases per 1,000 for patients on the drug for a year or longer, but rises to 1.62 per 1,000 for those on the drug for two years or longer.


Read more



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Friday, May 14, 2010

PARENT - Job Description -- Entertainment Humor with a twist


This is hysterical. If it had been presented this way,
I don't believe any of us would have done it!!!!


POSITION :

Mom, Mommy, Mama, Ma
Dad, Daddy, Dada, Pa, Pop


JOB DESCRIPTION :


Long term, team players needed, for challenging,
permanent work in an
often chaotic environment.
Candidates must possess excellent communication
and organizational skills and be willing to work
variable hours, which will include evenings and weekends
and frequent 24 hour shifts on call.
Some overnight travel required, including trips to
primitive camping sites on rainy weekends and endless sports tournaments
in far away cities!
Travel expenses not reimbursed.
Extensive courier duties also required.


RESPONSIBILITIES :


The rest of your life.
Must be willing to be hated, at least temporarily,
until someone needs $5.
Must be willing to bite tongue repeatedly.
Also, must possess the physical stamina of a
pack mule
and be able to go from zero to 60 mph in three seconds flat
in case, this time, the screams from
the backyard are not someone just crying wolf.
Must be willing to face stimulating technical challenges,
such as small gadget repair, mysteriously sluggish toilets
and stuck zippers.
Must screen phone calls, maintain calendars and
coordinate production of multiple homework projects.
Must have ability to plan and organize social gatherings
for clients of all ages and mental outlooks.
Must be willing to be indispensable one minute,
an embarrassment the next.
Must handle assembly and product safety testing of a
half million cheap, plastic toys, and battery operated devices.
Must always hope for the best but be prepared for the worst.
Must assume final, complete accountability for
the quality of the end product.
Responsibilities also include floor maintenance and
janitorial work throughout the facility.


POSSIBILITY FOR ADVANCEMENT & PROMOTION :


None.
Your job is to remain in the same position for years, without complaining, constantly
retraining and updating your skills,
so that those in your charge can ultimately surpass you


PREVIOUS EXPERIENCE
:

None required unfortunately.
On-the-job training offered on a continually exhausting basis.


WAGES AND COMPENSATION
:

Get this! You pay them!
Offering frequent raises and bonuses.
A balloon payment is due when they turn 18 because
of the assumption that college will help them
become financially independent.
When you die, you give them whatever is left.
The oddest thing about this reverse-salary scheme is that
you actually enjoy it and wish you could only do more.


BENEFITS
:

While no health or dental insurance, no pension,
no tuition reimbursement, no paid holidays and
no stock options are offered,
this job supplies limitless opportunities for personal growth, unconditional love,
and free hugs and kisses for life if you play your cards right.


Forward this to all the PARENTS you know, in appreciation for everything they
do on a daily basis,
letting them know they are appreciated
for the fabulous job they do...
or forward with love
to anyone thinking of applying for the job.

** FOOTNOTE
: 'THERE IS NO RETIREMENT -- EVER!!!

Auyurveda Treatment for MS? ever hear of this?


A Gentleman from India wrote to me last night about his wife with MS and of this Auyurveda Treatment that she has used with supposed effectiveness.

I am not against alternative therapies and after reading what he wrote, I used Google to see what this was. Click to learn if you don't already know.

Now I am asking if anybody reading this, had heard of this alternative treatment and / or if you ever tired it, and / or how you may have felt of it's effectiveness...

For many, if it works, great! Right?

I did explain to this person that the treatment, though may have worked or his wife may have felt fine for the months she was using it, IT though is not a disease modifying medication as I think they learned this too, as she is again not feeling well...

He is asking about CCSVI and again I will say, "If it works, then GREAT"...
Can anybody help me steer this caring husband into the right direction, where he can obtain more information in India ?

Please visit this blog entry to respond, even if seeing this on facebook, respond there and then here too, if possible.

Thank you



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Thursday, May 13, 2010

FDA rejects Teva's petition to block generic Copaxone

A generic version of Teva's multiple sclerosis treatment could enter the market next year.
Yael Gruntman13 May 10 18:50
The US Food and Drug Administration has rejected a second civil petition by Teva Pharmaceutical Industries Ltd. (Nasdaq: TEVA; TASE: TEVA) to block approval of a generic version of its Copaxone treatment for multiple sclerosis. Teva submitted its petition last November after its first attempt had failed earlier in 2009.

The FDA denied the second petition for the same reason as the first attempt, because it would be "premature and inappropriate" to grant Teva's requests, but gave a detailed response that rejects many of the company's arguments against the generic approval.

Momenta Pharmaceuticals Inc. (NYSE: MNTA) and Mylan Inc. (NYSE: MYL) have both filed to produce generic versions of Copaxone, a process that is likely to span years. The drug, one of the world's best selling multiple sclerosis treatments and an important part of Teva's business.

Continue

FUNNY HOME REMEDIES that REALLY - REALLY WORK

THESE REALLY WORK!!
AMAZINGLY SIMPLE HOME REMEDIES:

1. AVOID CUTTING YOURSELF WHEN SLICING VEGETABLES BY GETTING SOMEONE ELSE TO HOLD THE VEGETABLES WHILE YOU CHOP.

2. AVOID ARGUMENTS WITH THE FEMALES ABOUT LIFTING THE TOILET SEAT ... INSTEAD USE THE SINK.

3. FOR HIGH BLOOD PRESSURE SUFFERERS ~ SIMPLY CUT YOURSELF AND BLEED FOR A FEW MINUTES, THUS REDUCING THE PRESSURE ON YOUR VEINS. REMEMBER TO USE A TIMER.

4. A MOUSE TRAP PLACED ON TOP OF YOUR ALARM CLOCK WILL PREVENT YOU FROM ROLLING OVER AND GOING BACK TO SLEEP AFTER YOU HIT THE SNOOZE BUTTON.


5. IF YOU HAVE A BAD COUGH, TAKE A LARGE DOSE OF LAXATIVES. THEN YOU'LL BE AFRAID TO COUGH.


6. YOU ONLY NEED TWO TOOLS IN LIFE - WD-40 AND DUCT TAPE. IF IT DOESN'T MOVE AND SHOULD, USE THE WD-40. IF IT SHOULDN'T MOVE AND DOES, USE THE DUCT TAPE.


7. IF YOU CAN'T FIX IT WITH A HAMMER, YOU'VE GOT AN ELECTRICAL PROBLEM.


DAILY THOUGHT:

SOME PEOPLE ARE LIKE SLINKIES - NOT REALLY GOOD FOR ANYTHING BUT THEY BRING A SMILE TO YOUR FACE WHEN PUSHED DOWN THE STAIRS.

Smile and then share with others......
Ciao


Much to say or read of my previous medication vacations

Many often ask about my medication vacation a couple of years ago, so here again are the postings:

Apr 03, 2008
My Hiatus from my MS Medication - The Pros and Cons. Why I did it, and how it affected me... At first I thought I deserved a break from using it. After all, it had been longer than a year (thankfully) since having a bad exacerbation. ...
Jul 08, 2008
*My Hiatus from my MS Medication - The Pros and Cons - a valuable lesson learned.... - written April 3rd, 2008 And after what happened to me (read the stories in order of date, if you need to catch-up to present) and what I can attest, ...
Jul 20, 2009
my thanks to all, who have been leaving comments concerning this matter that needs to be circulated and re-circulated time and time again... reason, there are always new people to read it and there are always those, who consider either ...
Oct 15, 2009
This old posting still gets the attention of many. It was written in April 2008. My Hiatus from my MS Medication - The Pros and Cons - a valuable lesson learned... Click the above link to read. ============================================
Jan 12, 2009
My Hiatus from my MS Medication - The Pros and Cons - a valuable lesson learned.... The follow-up OF (the) "My Hiatus" Story .. An MS Story - POST HIATUS ( 3rd story in this series) ...

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Moving closer to stem cell therapy

By Karin Kloosterman
May 06, 2010

An Israeli discovery allowing stem cells to be cultivated in quantities ample enough to meet the world's needs means that stem cell therapy could soon be within the reach of millions.

Mass-market manufacture of stem cells is closer than ever after a breakthrough by researchers from Hadassah University Medical Center in Jerusalem.

Jerusalem's Hadassah University Medical Center has announced a breakthrough in methods for cultivating embryonic stem cells that enables the next step in the development of stem cell therapy, and the world has taken notice.

Citing medical breakthroughs in the scientific community can be irresponsible. Such announcements can raise expectations and false hopes for cures that are plausible only decades in the future, or even impossible to attain.

However, Hadassah's advance, as the scientists report in the prestigious journal Nature Biotechnology, takes stem cell researchers closer to realizing their dream of manufacturing mass market stem cell treatments for disorders such as Parkinson's disease, diabetes and age-related macular degeneration.

Lead researcher in the Hadassah study, Prof. Benjamin Reubinoff, director of the Hadassah Human Embryonic Stem Cells Research Center and an established and recognized researcher in the field, tells ISRAEL21c that stem cell therapy applications are not just science fiction.

Within the next year or two, companies in the US and Hadassah's technology company in Israel will start clinical trials on humans. His center's advance - a novel technique that allows researchers to grow and cultivate embryonic cells in suspension - paves the way for making this therapy available to everyone, not just the rich.

A decade in the making, so far

Click to Continue


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"Providing You with 'MS Views and News', is What We Do"
Remain up-to-date and Informed with Multiple Sclerosis News and Information. If not yet receiving the"Stu's Views and MS Related News", weekly M.S. e-newsletter, then please take 20 seconds to register at: http://www.msviewsandnews.org. - - Thank you -
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Beware the person selling Snake-Oil Cures


Beware the person that claims that he or she has the cure for what ails you.

Often the term snake-oil, should be used to describe these kinds of people.

Where did I get the idea of writing this today? After a few people contacted me a few days ago, when they saw an advertisement in one of our local newspapers that invited people to his (in this case a D.O.) website to view a video on his way to cure MS, ALS.

His ad implies that he can cure :
Multiple Sclerosis - MS (or ALS)
Fatigue, numbness, tremors, sexual dysfunction, weakness,visual disorders, impaired mobility, slurred speech, spasticity,chronic aching, pain, depression, mild cognitive and memory difficulties

He provided a url to watch a video (which I do not want to put to print as I do not want this guy coming after me).

He can cure MS because it's tied to the endocrine system, not neurological and by working with your hormones, blah, blah, blah,,, -- He claims that the medicine you are using is not doing anything. He doesn't tell you to stop. Instead he tells you to continue and eventually after using his services, you will be cured....

I wrote to a few reliable sources and gave them the link to watch the video.

As one person responded to my remark that this guy is a freaking "clown"..
He is not clown, because there is nothing to laugh about.
He is a crook and a charlatan and should be arrested. - "B"

And here is a message from another:
I listened to most of the first video, and it sounds to me like they're preying on people by way of helping them. I mean, he talks about food sensitivity, leaky gut syndrome, celiac disease -- stuff that anyone with or without MS could have, and finding those things would make you feel somewhat better. So they look and look and look until they find something wrong with you other than MS, that makes you feel better, then they claim they helped your MS. That's what it sounds like to me. It's CRAZY. - "Kasey"

Simply said, I ask you to be careful when you are told or read that a "Professional" has a cure for you. Was he/she on any major newswire service?

Do research before shelling out dollars to those who prey upon the disabled, ill or needy.
If you are able to read this message, then you are on the internet and if on the internet you have access to just about anything in print or media. USE the internet wisely to read-up on new things you hear about.

This person, here in Florida will eventually hear from me as I do not like it when people come to me in fear. In fear that they are currently doing something wrong by being on an approved ms therapy instead of using his remedy......

Have you ever experienced anything like this?

Have a good day...

Stuart

Wednesday, May 12, 2010

An MS Cure? IS this for sure ????

Written By Stuart Schlossman - MS Patient and Skeptic.

I am often asked what I think of certain medications and or alternatives concerning MS and recently am very often asked my opinion of CCSVI.

First , Allow me to say that I will not be so quick to allow anybody to cut into my neck for something which we ( at this point) do not know much about.

Ok - so they don't really cut into your neck. It's done much more safely than this, but I do not want anyone stenting or ballooning my jugular veins without knowing the long term effects.

Sure it would be great if we knew 100% that this procedure works. But we really don't. We only have the word of a doctor who claims that it cured his wife.

Much similar to those who tried bee stings when that information first broke several years ago or for those who tried Procarin, becoming gluten-free, got suckered into Mona Vie or recently spent thousands on Stem Cell therapy, each "definitive cure" turned out to not be a cure..

I will wait 2-3 years to see what comes of all those currently jumping onto this rising bandwagon, To see how they will feel in months to come..

Is the wave of feeling better just a Placebo effect or is it really a cure?

Stay tuned to see and hear how these people being ballooned or stented now, will feel in 9 months to a year from now...

Meanwhile, keep informed and up to date with MS News and Information, when registered at my website: http://www.msviewsandnews.org

- thank you


Best Regards,

Stuart Schlossman- RRMS

Of course this is simply my opinion and I have no proof of anything negative or positive that can come or arise from this posting......


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For persons with MS, Tips on Handling the "heat"

Information found below was obtained From Julie Stachowiak, Ph.D., in your Guide to Multiple Sclerosis in: about.com/multiplesclerosis


Make Your Own Cooling Products for MS Heat Intolerance

My neck coolers this year are a nice floral pattern that goes with everything. Now I have to figure out the rest of my summer wardrobe, trying to find clothes that don't make me panic that they will be stifling when I put them on.

Read the full article: Make Your Own Cooling Products for MS Heat Intolerance


Tips to Survive the Summer with Multiple Sclerosis
I've decided that a big part of getting through the summer is to convince myself that I can do it and that it is no big deal. It will be a lot easier to maintain that confident attitude if I am also taking precautions to avoid overheating, like toting around a plastic bottle of frozen juice (which sounds pretty good, actually, and more realistic than installing a backyard pool).

Read the full article: Tips to Survive the Summer with Multiple Sclerosis


What Are Some Things That Help You Cope With the Heat?
I think I'll stick some grapes in the freezer today. It sounds so cool and refreshing and better for me than the ice cream I've been eating for dinner.

Read the full article: Readers Respond: What Are Some Things That Help You Cope With The Heat?


An Overview of Heat Intolerance and MS
We all may have our own way to describe how we feel in the heat - I think hot temperatures just "turn up the volume" on any MS symptoms that we have. If you get hot, you also may have the special experience of finding out about old nerve damage that you weren't even aware of. The great news is that all this goes away when you cool down (although I often still feel more tired than usual even after I am back to room temperature).

Read the full article: An Overview of Heat Intolerance and MS

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Brain bank at CU aims to help find cause, cure of MS

The vast and chilly room buzzes with the whirl of 10 cooling fans and 62 giant freezers, machines so high tech they can send text messages to warn of intruders or when their temperature drops much below minus-112 degrees.

Cameras scan this repository at the University of Colorado medical campus, protecting the valuables frozen inside: pieces of prostate cancer, fetal stem cells and slices of human brain damaged by multiple sclerosis.

"It's like walking into the twilight zone for me," said Karen Wenzel, executive director of the Rocky Mountain MS Center.

With the recent relocation of the center's brain bank, CU becomes home to the largest MS-exclusive collection of human brains in North America for the purpose of finding the cause and cure of the neurological disease.

The bank has about 350 brain slices and eventually, with additional freezers, will have the capacity to store thousands at its new state-of-the-art digs.

READ MORE, from the Denver Post

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"Providing You with 'MS Views and News', is What We Do"
Remain up-to-date and Informed with Multiple Sclerosis News and Information. If not yet receiving the"Stu's Views and MS Related News", weekly M.S. e-newsletter, then please take 20 seconds to register at: http://www.msviewsandnews.org. - - Thank you -
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CCSVI Screening for Multiple Sclerosis

Tracking doctors who will screen for CCSVI (chronic cerebrospinal venous insufficiency) in MS patients


VISIT with this Website to read and hear more on CCSVI:


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Good News on Multiple Sclerosis with Adult Stem Cells

by David Prentice
May 11, 2010

A groundbreaking new study published in the last week provides more good news for treatment of multiple sclerosis (MS) with adult stem cells. Researchers at the University of Bristol used patients’ own adult stem cells to treat their MS.

In a Phase I clinical trial, six patients with MS were treated with their own bone marrow adult stem cells and their progress followed for one year. The treatment appeared to stabilized the patients’ condition and showed some benefits. As one measure of the success of the procedure, damaged nerve pathways were able to carry electrical pulses more effectively after the treatment.

Multiple sclerosis is an incurable disease, with the patients own immune system attacking the central nervous system and eventually leaving many patients in a wheelchair.

One of the most encouraging aspects of this trial was the elegantly simple procedure. Patients reported to the hospital and had bone marrow adult stem cells removed, the cells were filtered, and then given back to the patients intravenously. The patients went home before the end of the day.

The research team is led by Professor Neil Scolding, at the University of Bristol and North Bristol NHS Trust. Professor Scolding said: CONTINUE Reading


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"Providing You with 'MS Views and News', is What We Do"
Remain up-to-date and Informed with Multiple Sclerosis News and Information. If not yet receiving the"Stu's Views and MS Related News", weekly M.S. e-newsletter, then please take 20 seconds to register at: http://www.msviewsandnews.org. - - Thank you -
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Study to examine emotional side of MS

Vancouver Sun.com
BY PAMELA COWAN, REGINA LEADER-POST MAY 11, 2010

REGINA — How do people with multiple sclerosis emotionally adjust to living with the debilitating disease?That's the focus of a study by Melissa Kehler, a University of Regina doctoral psychology student, who is looking for 400 adult Canadians with MS to complete a one-time questionnaire that is available either online or in paper format.The anonymous and confidential questionnaire takes about an hour to complete and includes questions about anxiety and depression as well as quality of life, coping and MS-related disability.Research has found that up to 50 per cent of people with MS experience depression at some point in their lives."Because MS is so variable, you've got people who might have much more limited physical effects of MS, and you've got people on the other end of the spectrum who are very strongly affected physically by MS," Kehler said. "And so we might think, 'You have this condition and you don't know what's going to happen to you in the future, why wouldn't you be depressed?' "
CONTINUE



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"Providing You with 'MS Views and News', is What We Do"
Remain up-to-date and Informed with Multiple Sclerosis News and Information. If not yet receiving the"Stu's Views and MS Related News", weekly M.S. e-newsletter, then please take 20 seconds to register at: http://www.msviewsandnews.org. - - Thank you -
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