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Disclaimer: 'MS Views and News' DOES NOT endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.

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Friday, July 23, 2010

Through an innovative procedure we were able to completely re-open his occluded artery

I Received this message this morning from my Mom who received it from a Hadassah contact ...

After reading what is shown below, you may be in awe as to how it relates to what we know as CCSVI



Dear Friends,

I couldn’t leave for Convention without sharing this wonderful story I heard from Prof. Jose Cohen, Director of our Endovascular Neurosurgery and Invasive Neuroradiology Unit.

Just after Shabbat ended last week, family members rushed their 65-year-old father (we’ll call him Yair) to the Judy and Sidney Swartz Center for Emergency Medicine. They said his speech had suddenly become garbled and he was experiencing weakness on the right side of his body.

It was all so sudden, they said. The family was sitting around the Shabbat table, enjoying their meal and talking about the daughter’s upcoming wedding when suddenly Yair started slurring his words, sounding confused. At first everyone laughed, but they quickly realized that Yair was really having difficulty speaking properly. As soon as they arrived in the CEM, neurologists immediately evaluated him and performed a CT. It revealed that there was a severe blockage in one of the main arteries that supplies blood to the brain – most certainly the cause of Yair’s difficulty in speaking and physical weakness.

Yair was immediately transferred to the Invasive Neuroradiology Laboratory. “Through an innovative procedure we were able to completely re-open his occluded artery,” Prof Cohen explained. “We used a stent as a kind of ‘micro-hand’ to capture the clot, allowing us to remove it from the artery. The procedure was completely successful,” Prof. Cohen continued. “Yair woke up the next morning with no neurological damage whatsoever. He could speak fluently and move his limbs freely. The family was overwhelmed and couldn’t stop thanking us and everyone they encountered at Hadassah. They were so happy Yair was well and they didn’t have to cancel next month’s wedding. In fact, they were so grateful they even invited me to come.”

Hadassah is a leader in the field of endovascular neurosurgery in Israel and the entire Middle East. Under Prof. Cohen’s leadership, our Endovascular Neurosurgical team has pioneered endovascular therapies for stroke in Israel, some of them involving the use of clot retrievers.  The revolutionary use of stents as ‘clot-catchers’ significantly improves how Hadassah handles major strokes for patients of all ages, which is why Hadassah is the Israeli leader in treating acute strokes. Yair’s case – and others – will be published soon in a prominent medical journal. Yair was the seventh patient this month to undergo this innovative procedure.

Time and time again, Hadassah’s dedicated teams set new benchmarks devising and integrating sophisticated lifesaving treatments that are admired and emulated  – in Israel  and around the world.

Yair and his grateful family are gearing up for the wedding in good health, Hadassah and Prof. Cohen did more than save his life – they saved their world.

Thank you all for helping to make this happen.

Shabbat Shalom,

Osnat 


Osnat Moskowitz
Director
Development, Donors & Events Dept.
Hadassah Medical Organization
Phone: +972-2-677-6019
Cell:    + 972-50-7874130
Fax:     +972-2-643-0934
 


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Makes you wonder, no ??


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If caught early, Natalizumab-PML not fatal for multiple sclerosis patients

Successful Management of Natalizumab-Associated Progressive Multifocal Leukoencephalopathy (PML) and Immune Reconstitution Syndrome (IRIS) in a Patient With Multiple Sclerosis
Alexandra Schröder, MD; De-Hyung Lee, MD; Kerstin Hellwig, MD;
Carsten Lukas, MD; Ralf A. Linker, MD; Ralf Gold, MD
Arch Neurol. Published online July 12, 2010. doi:10.1001/archneurol.2010.157



Objective To describe a case of successful clinical management of natalizumab-associated progressive multifocal leukoencephalopathy(PML) and immune reconstitution syndrome (IRIS) in a patient with multiple sclerosis.


Design Case report.


Setting University hospital.


Patient A 41-year-old woman with relapsing-remitting multiple sclerosis developed PML after 29 natalizumab infusions.


Interventions Immediate plasma exchange was combined for removal of natalizumab with application of mefloquine and mirtazapine to limit viral replication and oligodendrocyte infection. A subsequent IRIS was treated with glucocorticosteroids.


Results After 3 months of treatment, cerebrospinal fluid tested negative for JC virus. There was a favorable outcome, and the Expanded Disability Status Scale score remained stable at 3.5 compared with before PML.


Conclusions In the setting of early diagnosis and consequent treatment, natalizumab-associated PML can be well managed in some cases. This situation differs from the course of PML in other conditions, eg, after the application of depleting monoclonal antibodies, in which irreversible cellular effects are associated with very high mortality.


Author Affiliations: Departments of Neurology (Drs Schröder, Lee, Hellwig, Linker, and Gold); and Radiology (Dr Lukas), St Josef-Hospital, Ruhr-University Bochum, Bochum, Germany.


SOURCE: Archives of Neurology  - July 12, 2010 - 


Read more of this, from Lori Friend, a writer for the examiner.com by clicking here




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JCV Antibody Program: STRATIFY-2 for persons using Tysabri for Multiple Sclerosis

Information found below, was provided by Chris N, from Reno, NV.


Subj: U.S. JCV Antibody Program: STRATIFY-2
All,
I just got back from giving blood for the new JCV Antibody Study Program [code name STRATIFY-2] before doing so I was asked to sign the necessary paperwork for voluntary inclusion in the study
What is the JCV Antibody Program: The code name for the 2 year study is STRATIFY-2 being sponsored by Biogen (the maker of Tysabri). Because Tysabri is associated with an increased risk of PML and the JC virus is being linked to PML. Biogen has now developed a blood test that measures antibodies to JCV. Antiobodies are produced by the body's immune system when it detects foreign substances. It is through that approximately 1/2 of MS patients have antibodies to JCV. The purpose of STRATIFY-2 is to better understand whether antibodies to JCV may be used to predict whether a patient is ar higher or lower risk for developing PML. .

The code name for the 2 year study is STRATIFY-2 being sponsored by Biogen (the maker of Tysabri). Because Tysabri is associated with an increased risk of PML and the JC virus is being linked to PML. Biogen has now developed a blood test that measures antibodies to JCV. Antiobodies are produced by the body's immune system when it detects foreign substances. It is through that approximately 1/2 of MS patients have antibodies to JCV. The purpose of STRATIFY-2 is to better understand whether antibodies to JCV may be used to predict whether a patient is at higher or lower risk for developing PML.

  This is a research question and it is not known whether detection of antibodies to JCV in an individual can predict their risk of developing PML. For this reason, the test result from this study should be used in Tysabri treatment decision [i.e. should the patient take Tysabri, if yes then is a holiday needed/required? if yes, for how long?]

Blood samples will be collected from at least 8,000 patients in the US who have relapse-remitting Multiple Sclerosis. Participation in STRATIFY-2 is voluntary and is expected to last 2 years. There is NO drug treatment provided in this study.

Patients in study will provide a sample of blood [1 1/2 teaspoons] 3 times, once at the start and then yearly for up to 2 years.

What are the benefits of participating in STRATIFY-2?
There are no direct health benefits for participating in this study. However, the information collected in this study may help Biogen and your doctor better understand JCV and risk factors for developing PML.


Risks: None known at this time.

My Doc's infusion nurse only drew a blood sample today. No urine sample was taken at this time.
Long story short-if you have JC antibodies already built up in your system then you may be at a higher risk for developing PML.

If antibodies already exist in your system : (  -this would have been generated by another virus you had at some point in your medical history.

If No current antibodies were in your system at the time of first STRATIFY-2 blood sample : ). Could develop at a later time which would be detected in future STRATIFY-2 blood samples taken.



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Thursday, July 22, 2010

"Open Door" - A New Zealand MS Documentary

At the bottom of this blog page, are various MS videos to watch.  

Posted as of July 22, 2010 is one of a new - New Zealand MS Documentary called "Open Door"
Scroll down to our videos to watch:"Open Door" .


Open Door is a community-based TV series where groups or individuals make a documentary about an issue that concerns them. This episode on the neurological disease Multiple Sclerosis features interviews with people who have been diagnosed with MS and their spouses, as well as MS fund-raisers and field officers. International expert Professor George Jelinek also features. Interviewees share their experiences of living with MS, and the programme discusses treatments and therapies.  


"It maybe a useful resource, and we'd like to share it with a wider audience", says Deb Diaz of NZ on Screen. 

New Zealand On Screen is a publicly-funded body tasked with making NZ films and television programmes more widely available via the internet. 

Use our share links to share with others



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Wednesday, July 21, 2010

The Multiple Sclerosis Society provides free publications for people living with MS and others.

Publications are also listed in our Publications Catalog (.pdf) or by title only.
For printed copies of any of our materials, contact your chapter. 1-800-344-4867
The publications are sorted by topics of interest listed below.
Click on each Blue title shown below.



General Information


What is MS? Learn about MS—History, genetics, research, and how to choose a healthcare provider. Also learn about the National MS Society and chapter programs.

Newly Diagnosed


Read about how MS is diagnosed and treated, lifestyle issues, and how to make informed decisions about disclosure, and more.

Employment Issues


Be informed about your ADA rights and workplace accommodations, deciding to work or not, employment strategies, symptom management on the job, and information to share with your employer.  

Staying Well


Explore ways to maintain a healthy lifestyle. Includes topics such as exercise, nutrition, managing stress, emotions, intimacy, and rehab.

Managing Specific Issues


Learn how to live with specific MS symptoms such as fatigue, spasticity, depression, cognitive issues and much more. . .

Managing Major Changes


Practical guidance for caregivers and families, adapting your environment, and material for those with Progressive MS.

For Children & Teenagers


Colorful publications for kids and teens who know someone with MS.

Información en Español


Tenemos folletos en Español.


All publications are approved by key staff, professional advisors, and the National MS Society's Client Education Committee of the Society’s Clinical Advisory Board. Information is updated on a regular basis.


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 Multiple Sclerosis when registered at
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Inflammation bowel "bug' - 'may cause multiple sclerosis'

July 21, 2010


A bug that causes inflammation in the gut may play a key role in multiple sclerosis (MS), scientists have discovered.


In mice, the bowel bug caused healthy animals to become ill with MS-like symptoms.Scientists believe it may have a similar effect in humans due to its impact on the immune system. 
MS is an auto-immune condition which attacks the fatty insulation around nerve fibres known as myelin.

As the myelin is destroyed, the transmission of nerve messages becomes disrupted, leading to symptoms ranging from mild tingling to paralysis.


The disease affects around 85,000 people in the UK and 2.5 million worldwide.


Anecdotal evidence has suggested that genetically engineered MS-prone laboratory mice fare better in cleaner environments.


Experts have speculated that this might be because of bacteria that affect the development of MS.


The scientists believe that rather than causing MS directly, the bacteria are helping to create the right conditions for the disease to develop
.


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Revealed, the Secrets that helped thousands of people just like YOU



Revealed, the Secrets that helped thousands of people just like YOU who were ready to kick disease, depression and the impossible challenges in life in the BUTT and take their power back!

  By Hillary Rubin - a Peer who wants to provide to you, what has worked for her

YES, Radiant health and well-being can be yours!

YOU need to get my **FREE**
3 Week Simple Living Wellness
Kick Start Program
that will give you the real tools that work to

  • Stop feeling all alone, worried that there is no one to help you.
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Value $497
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Go here to open the door to your wholeness.


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Tuesday, July 20, 2010

As a child, You or I might have had MS and not have even known it...

As a Child I or You, might have already had Multiple Sclerosis
Who is to say no and who might say yes?


Who else might right now be thinking back, many moons ago to when he or she was also a child...


How many might have been considered lazy or a day dreamer?


How many may have been slower than most of their friends? Especially known while playing a game called TAG, that you were easiest to catch, to be tagged and then yelled at : "YOU'RE IT" !  Were you "IT" more than others?


How many might have gone on road trips with their parents and often had a bladder issue that your parents only yelled at you about...? I am not stopping again, they would say...


Were you called clumsy or a klutz


Could you not score high on school testing, not because you didn't study, but because you just could not remember what you read? 


How about participating in Gym Class (P.E. or Phys ed)? Ever notice that Gymnastics just wasn't your thing, simply because you felt it better to keep both feet on the ground where you were better balanced! Less coordinated?


Not I, but were you ever last to be picked or amongst the last to be on a team because you were as "able" as others participating in that sport? 


Vertigo was an issue for me, even way back then... (surely no roller-coasters for me either)


Oh, let's not forget about Pain, headaches and more. I seemed to always have-had something hurting and then simply labeled: a Kvetch, or a hypochondriac.

As a child from what you may be able to recall, what else might there have been that caused you to be different, which now you just chalk-up to being your MS? 


So, let's read what others have to say...
Please do not leave comments only on facebook.


>> Click to get to this blog item and leave your reply under the comments link under this posting. - thank you 

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Monday, July 19, 2010

Cytoxan as an MS Therapy

Written July 18, 2010 - By: Cherie C. Binns RN BS MSCN


I have had MS since the early 1970s and was formally diagnosed in 1994.   It was not, however, until 2001 when I was no longer able to walk without assistance and was legally blind, that any treatment for the disease was even suggested to me.   Since that time, I have been treated with Interferons, steroids, IVIg (Intravenous Immunoglobulin) and Cytoxan.  Copaxone was never used because I have allergies to certain dyes and preservatives and it was felt this drug, as entirely synthetic, might not be safe for me to take for that reason.   My neurologist will not use Mitoxantrone (Novantrone) or Tysabri.



When a chronic urinary tract infection would not resolve with more than a year of antibiotic therapy, I was removed from my interferon.   The thinking was that the interferon was suppressing the immune system so that I could not effectively fight the infection.   This decision came about with the consultation of an immunologist working with my neuro and primary care doctor.  Within a month of going off Rebif and being placed on IVIg weekly, the urine cultures came back clear and infection has only reoccurred once in the 16 months since then.


Click here to continue reading this review

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