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Disclaimer: 'MS Views and News' DOES NOT endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.

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CHAMPIONS TACKLING MS - AWARDS Dinner, Honoring Aaron Boster, MD and Jon e. Glaser, DDS - now open for registration. Visit www.events.msvn.org

Friday, December 17, 2010

MS Cognitive Impairment

Trouble Thinking? 

Is MS the Cause?
 




About half of people with MS will experience some form of impaired thinking. Find out how to recognize it.



Click to read of MS Related Thinking Problems 



Plus, CLICK for coping strategies.





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CCSVI UPDATE: Canadians support liberation treatment trials: survey


CTV.ca News Staff
Date: Wednesday Dec. 15, 2010 
A vast majority of Canadians believe the federal government should support clinical trials of the controversial "liberation treatment" for multiple sclerosis, and say the procedure should be available in Canadian hospitals for patients who request it, according to a new survey.

In an online poll of 2,011 Canadian adults, conducted Dec. 13 to Dec. 15, polling firm Angus Reid Public Opinion found that three quarters of respondents support government-funded clinical trials, while 82 per cent support making the treatment available to Canadian patients.
The poll found that 37 per cent of respondents had seen, read or heard something about the procedure, while another 13 per cent said they were well-informed about the treatment. Half of respondents had never heard of the procedure.

Mario Canseco, vice president of communications and media relations with Angus Reid Public Opinion says he was impressed that such a large segment of the respondents had heard something about the procedure.

"It means that there are a lot of people paying attention to the story," he told CTV.ca, noting that 39 per cent of respondents also said they personally knew someone with MS.

"This survey shows there's a lot of appetite for allowing people to have this medical treatment. There's high support for that and high support for actually testing it."

The so-called liberation treatment was developed by Italian vascular surgeon Dr. Paolo Zamboni, whose research suggests that the majority of MS patients have blockages in veins in their necks that prevent blood from draining from the brain. According to Zamboni, these blockages cause toxic levels of iron to build up in the brain, which triggers MS symptoms, such as fatigue and paralysis.
Earlier this year, the Canadian and U.S. MS Societies announced that they will offer $2.4 million in research grants for studies on Zamboni's theory. But the federal government has said it will abstain from funding clinical trials until further research is completed.


CONTINUE READING on this Liberation Treatment update


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Celebrity chef, registered dietitian team up to create nutrition program for people with MS

December 17, 2010
Amanda Freitag, celebrity chef and recurring judge on the Food Network's "Chopped," and Julie Barto, a registered dietitian specializing in multiple sclerosis(MS), have teamed up to create a nutrition program especially for people with MS. The MS Active Wellness nutrition program offers easy-to-follow, healthy recipes and videos that address the role nutrition can play in maintaining overall wellness for people with MS atwww.MSActiveWellness.com. In the program's online video series, Freitag demonstrates how to cook simple MS-friendly dishes at home. The MS Active Wellness nutrition program is part of MS Active Wellness, an online resource that provides tools to help people with MS live well and stay active. The MS Active Wellness initiative launched earlier this year with a fitness program that is also accessible at www.MSActiveWellness.com.


“Many people living with MS don't know how they are going to feel on a given day, and sometimes just going grocery shopping can be a challenge”

"The MS Active Wellness nutrition program is designed to make healthy eating and good nutrition easy to achieve for people with MS," said Freitag. "A healthy diet can work wonders for your overall well-being but it can be hard to cook at home every night when living with certain MS symptoms. My hope is that this program will show people that healthy cooking can be done by almost anyone."





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Disclaimer:  'MS Views and News' (MSVN), does not endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.
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New study contradicts presence of oxysterols in multiple sclerosis patients


Dec 16, 2010


New research findings appearing in the January Journal of Lipid Researchindicate that compounds called oxysterols are not present in any significant amount in multiple sclerosispatients, contradicting a previous study that suggested that some of these cholesterol metabolites were associated with MS and could be used as diagnostic tools in the clinic.


Oxysterols are somewhat controversial in science; while some laboratory experiments suggest these steroid molecules may be biologically important, they are present in only trace amounts in the blood, and studies in living animals or humans have not convincingly proven a definitive role.


Therefore, there was great interest when a study published last year in the journal Nature Immunology reported that two oxysterols, known as 15HC and 15KC, were increased more than three-fold in the blood of MS patients, and that these oxysterols could be associated with the development of the disease.
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Disclaimer:  'MS Views and News' (MSVN), does not endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.
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Stress and MS: Relaxation Techniques

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Tuesday, December 14, 2010

A RESEARCH STUDY (on dysphagia) for the MS Patient and THEIR Caregiver(s)


A study is being conducted to investigate the symptoms of dysphagia, or swallowing disorders, in people with MS.

·        Dysphagia can impact a person’s health and quality of life.
·        Information about the perception of difficulty swallowing can help prevent problems caused by this disorder.

If you are a person with MS between the ages of 18-70 who wishes to volunteer for this study, both you and your caregiver or loved one may complete a brief questionnaire online.

Participation is voluntary and is not affiliated with MS Views and News.

* In order to participate, BOTH you AND your caregiver/loved one  must complete the questionnaire using the instructions below:

1.     You and your family member/caregiver will select a 3-digit code to enter on the questionnaires.  It is essential that you both use the SAME 3-digit code so that your questionnaires will be linked to each other. 

For example, you both enter the 3-digit code, “123”on your questionnaires.

2.     You, the individual with MS, will go to:

Your family member/caregiver will go to:

*The questionnaire will prompt you to enter your shared 3-digit code.
  

This study has been approved by the IRB at Southern Connecticut State University.







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The human body can create its own vaccine, which boosts the immune system and helps prevent chronic inflammatory diseases

Vaccine Boosts Your Immune System


ScienceDaily (Dec. 14, 2010) — Researchers at BRIC, the University of Copenhagen, have discovered that the human body can create its own vaccine, which boosts the immune system and helps prevent chronic inflammatory diseases. The researchers' results have just been published in the Journal of Clinical Investigation and may have significant consequences in developing new medicine.


Researchers at the Biotech Research and Innovation Centre (BRIC) at the University of Copenhagen have discovered a protein normally found in the body that can act to prevent chronic tissue inflammation. When administered in the form of a therapeutic vaccine it is able to effectively prevent and treat a number of different inflammatory disease models for multiple sclerosis (MS), rheumatoid arthritis (RA), skin hypersensitivity and allergic asthma (AA).


Read More

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THE Myelin Repair Foundation's response to: Promoting Remyelination in Humans


by SCOTT JOHNSON on DECEMBER 14, 2010
As you might imagine, we’ve heard from many of you about the latest news from the University of Edinburgh concerning stem cells and myelin repair.  I’d like to take this opportunity to respond personally to those queries.
First, MRF-funded scientists have identified several targets that demonstrate similar potential benefit, including some that utilize stem cells.
Second, the operative language in the reports from Edinburgh is that this work has been demonstrated in animal models. In fact, all of the work, including our own to date, has made use of one or more animal models.
But we also know that historically, in MS, animal studies have translated poorly when advanced to humans.
Today there are no available tests to measure remyelination in humans. The absence of these tools is a critical, rate-limiting step to moving new discoveries safely into the clinic. That’s why the current MRF research plan includes a study that we hope will lead to answering this question. The ability to demonstrate and measure remyelination in human tissue will benefit all myelin repair research. And, once developed, we hope to make these tools available to others who wish to further test whether their own work in animal models will also work in human cells.
We applaud the work that is being done in Edinburgh and wish the best for all who are working toward solutions. We also want to assure you that your support is underwriting the most comprehensive and accelerated work in myelin repair for MS. We remain grateful for that support.

Source: Myelin Repair Foundation



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