The following message was written by a Friend of mine with a progressive form of MS. "R" , as he wishes to be known wrote this message, which may seem comical to some - but surely not to him while he was going thru the "situation".. Yes, there are some words written, that some may not have comfort in reading, but if I removed them, it would take away from what "R" felt, and what he went through ...
Wanting to remain anonymous, this is "R's" story, from what he recalls of last night's adventure...And know that this is rated PG for strong language:::::
Wanting to remain anonymous, this is "R's" story, from what he recalls of last night's adventure...And know that this is rated PG for strong language:::::
- 12 midnight.
- Toilet.
- Nothing.
- Why is this tube hanging down?
- Open.
- Shit. Must’ve come loose.
- Wasn’t pushed in enough.
- Wait a second. The tube is out of my belly.
- Oh fuck. That shouldn’t be.
- Maybe I’m not seeing correctly.
- Uh oh, I am seeing correctly.
- Don’t pass out.
- Not yet, at least.
- Hit the button. A long lapse.
- Do you need help?
- Yes,. Hurry.
- Eternity.
- Riding in the big mobile one.
- The mini-hospital on wheels.
- At least I got outta the house.
- Humid as hell.
- Kinda cool inside this box . Lights flashing.
- Mood lighting.
- Too bad I can’t enjoy this priceyride.
- Am I dying? Am I dead, yet?
- Don’t think so.
- BP 170 over 100. I’m usually on the low side.
- I must be dead.
- Are they going to have to cut me open?
- There’s a balloon in there. How are they going to get it out?
- Hope a good surgeon is on call.
- I’m dead. I’m going to die tonight.
- At least I have my cell with me.
- Not that I would be calling from the other side.
- Just in case somebody calls wondering why I don’t answer the land line.
- Don’t want them to worry.
- No balloon inside. The tube is out.
- Have to put a new one in.
- Are you sure? Did you check?
- Asked same question a few times.
- Same answer.
- No surgery. It’s out.
- The doctor will put in a new one.
- Expensive night.
- I live for another day. Thank GD.
- Next episode to make me crazy. Crazier. The mind is a motherfucker.
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3 comments:
Oh, I am speachless. Funny, informative and a bit scary at the same time. I am a woman with MS and I live in Norway.
i know howyou feelk this was supposed to be the answer but has caused more pain than wetting myself and bed,my husband cannot handle this also.we are bedmates for sleep only.shit!
i am a secondary progressive lady who has a ur/ostomy and am battling a husband who cannot handle the thing he has to flush every day twice , he also changes thing every 3 weeks.flush 2xaday and change every 3 weeks,i am feeling like a project not a wife a wife, how do i handle this?we have 2 grown married daughters and i year old grandson,this is my high school sweetheart married 37 years.i feel lonely and neglesp=cted but for the urostomy stuff, can i ever expect anything better?sorry hon this as not my idea of marrage either/!
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