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Disclaimer: 'MS Views and News' DOES NOT endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.

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Thursday, January 13, 2011

A Consumer's Guide to Conversion Vans

Information provided by Cherie C. Binns RN BS MSCN



Source : MS Foundation  - By: Teresa Campbell

In the forty-plus years that I have had MS, I have purchased multiple mobility devices, including a cane, walker, manual wheelchair, and three-wheeled scooter. When visiting San Francisco, I often used public transportation and my scooter. Other times, a friend would push me in my manual wheelchair. More recently, I was planning a trip to Yosemite National Park. I assumed I would take my manual wheelchair and my friend, Sue, would push me. Unfortunately, Sue had developed tendonitis and pushing my chair was painful. It was time to find another way to transport my scooter so I could go where I wanted to go independently.

My knowledge of accessible vans was limited to my experiences with San Francisco’s Ramp Taxi Service, which is part of the city’s Paratransit Program. Their wheelchair accessible minivan has a lowered floor and rear entry. It’s provided by Liberty Motor Company, Inc., which provides vehicles to more than 60% of North American taxicab and paratransit companies, and is the only company that offers a lifetime conversion warranty. (This means that Liberty will repair, or have repaired, any aspect of the conversion that proves to be defective in material or workmanship for as long as the buyer owns the vehicle – at no cost.)    
      
When the driver backed up to my door, entering the van was easy. I relaxed as he secured my scooter, pulled up the manual lift, and closed the rear door. Besides the driver, the van could carry up to five passengers. If I purchased my own van, I wouldn’t be able to operate a manual door or ramp independently. I also decided that rear entry, which required space for the driver to open the door and drive the scooter out, was less convenient than side entry.

SIZING UP ACCESSIBLE VANS


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Myelin Repair Foundation Identifies 40+ Possible Repurposing Opportunities for Next Generation Multiple Sclerosis Therapy


SARATOGA, Calif.--(BUSINESS WIRE)--In an analysis of 150 putative myelin repair targets identified by the Myelin Repair Foundation (MRF) collaborative research team since 2004, more than 40 already have approved drugs on the market or are currently in clinical development by several biopharmaceutical companies for non-Multiple Sclerosis disease indications (See Figures 1 & 2.). The analysis also shows that 31 additional MRF targets are in the discovery process or preclinical stage for other indications.


The analysis of publicly available data was conducted by the MRF Drug Discovery Advisory Board of outside biopharmaceutical experts to aid the Foundation in prioritizing the overwhelming number of targets generated in its funded laboratories at Stanford University, the University of Chicago, Northwestern University, Case Western Reserve University, University of California-San Francisco and the University of Melbourne, Victoria, Australia


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Disclaimer:  'MS Views and News' (MSVN), does not endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.
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Wednesday, January 12, 2011

Using Facebook to chat with others affected by Multiple Sclerosis

January 12, 2011


Stuart designed the Blog, "Stu's Views & MS News" for those affected by Multiple Sclerosis.


When facebook started becoming popular a couple of years ago, Stuart joined that site and then created the MS Views and News page for persons affected by MS.
Access it by clicking here: www.facebook.com/msviewsandnews


Then when facebook gave an option ( a couple of months ago) to have a Chat room, Stuart created : Friends of: "Stu's Views and MS News"


Soon thereafter, a caregiver asked Stuart to arrange a page for the caregivers and Stuart thought this was a good idea. And So he created:  Caregivers of  "Friends of Stu's Views and MS News" 
(http://goo.gl/b1GVr)  ...


And today, Stuart was asked if he would do a new chat page for those with PPMS - again Stuart thought this was a good idea.. So as of today we have PPMS of: Friends of Stu's Views and MS News

Why?  People ask.  

And Stuart will tell them again and again, because different people need different things. Caregivers should have access to a site just for caregivers so that they can know that they are not alone in what achievements or struggles they face each day. The same for people with MS and now the same for those with PPMS, in being able to chat with others of similar situations.

Those with MS can chat with others with MS
Those that are caregivers, can use Stu's Caregiver chat page to converse with other caregivers.
And now, those with PPMS can chat amongst themselves and know that they too do not live alone...

I am sure that Stuart will offer more pages as there becomes more persons who want to take part in what he offers. Each new page requires a person to administer the page as Stuart does not have enough hours in the day to oversee each of these new projects, but he does look in from time to time, periodically each day, just to review and then goes onward to the next one or another project.

If you have any ideas or comments for Stuart, pelase contact him at: stuart@msviewsandnews.org 

=========================


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Canadian scientists have identified a potential therapeutic target for multiple sclerosis (MS).

January 12, 2011


Multiple sclerosis (MS) is a disease caused by damage to myelin -- the protective covering wrapped around the nerves of the central nervous system (CNS).



Previous studies have shown that certain white blood (immune) cells, called leukocytes, infiltrate the CNS and play a significant role in causing the damage that contributes to MS symptoms. It has also been shown that these leukocytes enter the CNS with help from a family of molecules called MMPs.

Using a mouse model, researchers have discovered that a molecular switch called EMMPRIN plays an important role in MS. The researchers explored how in MS, EMMPRIN affects MMPs and the entry of leukocytes into the CNS to result in disease activity.

"In our studies we inhibited EMMPRIN and noticed a reduced intensity of MS-like symptoms in mice," says Dr. V. Wee Yong, a professor of Clinical Neurosciences at the Hotchkiss Brain Institute at the University of Calgary's Faculty of Medicine and the study's principal investigator. "Our data suggests that if we target EMMPRIN in patients with MS, we may reduce the injury to the brain and spinal cord caused by immune cells."


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Tuesday, January 11, 2011

Wanted: A National Respite System - For Caregivers

Source: NY Times -- Caring and Coping



The concept of a “holiday” is an elusive one for the over 28 million people in the United States who provide care for someone age 75 or older. A 2009 National Alliance for Caregiving/AARP study found that 88 percent of family caregivers never get a break from this full-time job. As readers here know all too well, the non-stop effort can take both a physical and emotional toll over time.
Jill Kagan, who has chaired the National Respite Coalition since 1994, hopes to change all that — not household by household, but at the policy level. She is determined to help caregivers who can’t afford private options find a way to catch their breath.
Respite advocates face a Goliath-sized challenge on a decidedly David-sized budget. Authorized by Congress in 2006, the Lifespan Respite Care Program was intended to support and expand the delivery of respite services nationwide. In each of the last two years, the federal Administration on Aging has provided $2.5 million to the program, the bulk of it granted to individual states to develop their own initiatives.

Click here to read more






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Certain Alcohol Pads/Swabs Recalled by FDA - If using an injectable - make sure the pad is not made by the Triad Grp


Jan 08, 2011
The FDA has launched an important recall of alcohol prep pads, swabs, and swabsticks manufactured by Triad Group because of possible contamination. Anyone taking an injectable medication for their MS should check the alcohol prep pads in their medication package and should not use them if they were manufactured by Triad Group. The FDA has posted additional information on its Website:  Read More
Because alcohol pads/swabs may be manufactured by one company and distributed by another, if you cannot tell whether the product was manufactured by Triad, you can call the 800 number provided on the product packaging to find out, or contact the patient support program for the injectable medication you are taking to find out who manufactures the swabs that are included with your medication.
Source: NMSS.org



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Disclaimer:  'MS Views and News' (MSVN), does not endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.
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