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Disclaimer: 'MS Views and News' DOES NOT endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.

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Saturday, April 16, 2011

PREPARE for the Coming Summer Heat




Polar Body Cooling Products     




Then Click on the POLAR Products
 banner
for Product information to help you stay cool


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Disclaimer:  'MS Views and News' (MSVN), does not endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.
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MS Patients in Belgium, need Support



MS-STEUNACTIE loopt van 14 januari tot 25 mei 2011 / MS SUPPORT ACTION runs from 14.JAN. TILL 25.MAY


PLEASE NOTICE: For organizational reasons we ask those who are really coming  to Brussels to fill out the form . Thanks for this.



GOAL OF THIS ACTION:     MS SUPPORT ACTION : RUNS FROM 14 JANUARY  UNTILL 25 MAY   (MS WORLDDAY)

What has been achieved up to now:

Contacts:
  1.  Three  of the politicians we have contacted ( Elio Di Rupo and Petru Luhan), have already agreed to meet us on 25 May (see Schedule for 25 May).
  2.  Efforts have been made to convince, Yves Leterme, Laurette Onckelinckx to hear our grievances. Their answer is still pending. I expect a positive answer  by the end of the week .
  3.  Other politicians have also been invited to help us in our fight against MS. It must be feasible to have them cooperate.


 Schedule for
5 May
12.30 :a.p. meeting Alexander De Croo
17 May
10 : a.p. meeting Etienne Schou
 25 May (so far):
11:a.p. meeting Jo Vandeurzen (Flemish Parliament)
13.30:a.p. meeting Fadila Laanan
14:a.p. meeting Delizée
14:30 p.m. meeting with Elio Di Rupo
16:30 p.m. meeting with Petru Luhan (European Parliament)

 Goal of this action :
You may know someone with MS. Or maybe you see yourself day in day out confronted with MS. In either case SUPPORT this action.

MS is a disease that although not always visible gradually makes it impossible for the patient to function normally - physically as well as mentally. MS starts in the brain. It  then progressively attacks the nervous system. As it  spreads throughout the body, the patient's gait, balance, and vision  deteriorate irreversibly. In the end the patient finds himself increasingly disabled and largely dependant on another person's help.

Belgium lags behind in its fight against MS and the impact it has - socially and financially - on the patient's life. There is no national register. Financial support remains insufficient. Not enough coverage from the media.
In order to focus public attention on this devastating disease I started this action (together with my daughter Isabella - see her picture on this page).

MS_onder_controle_03 
How to support this action:
Either visit the page on Facebook and express your support
Or Leave some comment in the guestbook on this site.

The pressure must increase!

All reactions will be collected in a file. This file will be handed over to our national and European policy making authorities in Brussels on 25th of May, world MS day 2011.

The more numerous we are, the more successful our trip to Brussels will be. A special appeal to those who cannot come to Brussels: if you cannot be there please leave some words of sympathy in support of our action on the Facebook Page.

 This action runs from 14 January until  25 May 2011. From  the 15th of  May onwards all modalities will be worked out and communicated.
  1. You can support this action by sending a mail or opening the link to Facebook.
  2. Do not hesitate to convince friends and relatives that their support counts. In particular, do not forget the 'high-rankers' who are in a position to really force a change. Send them the link to this website.


You can support by a  mail or to open the link on Facebook.

Isa tells about MS - movie (Dutch spoken)




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Disclaimer:  'MS Views and News' (MSVN), does not endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.
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AAN: Laquinimod Reduces Multiple Sclerosis Activity


The immunomodulator laquinimod appears to reduce the relapse rate and delay the progression of disability in individuals with multiple sclerosis, according to research presented at the annual meeting of the American Academy of Neurology, held from April 9 to 16 in Honolulu.



FRIDAY, April 15 (HealthDay News) -- The immunomodulator laquinimod appears to reduce the relapse rate and delay the progression of disability in individuals with multiple sclerosis (MS), according to research presented at the annual meeting of the American Academy of Neurology, held from April 9 to 16 in Honolulu.


In the ALLEGRO trial, Giancarlo Comi, M.D., of the Scientific Institute and University Vita-Salute San Raffaele in Milan, Italy, and colleagues randomized 1,106 people with relapsing-remitting MS in 24 countries to receive either a once-daily oral dose of 0.6 mg of laquinimod or a matching placebo for two years.


The researchers found that 80 percent of individuals who received laquinimod and 77 percent of those who took placebo completed the two-year study. Compared to patients who received placebo, individuals treated with laquinimod experienced a significantly lower annual relapse rate -- a 23 percent reduction. Treatment with laquinimod was associated with a 36 percent reduction in disability progression and a 32.8 percent reduction in the progression of brain atrophy (P < 0.0001). The investigators also found that adverse events and serious adverse events were similar between the two groups.



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Remain CURRENT with Multiple Sclerosis information 
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Disclaimer:  'MS Views and News' (MSVN), does not endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.
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Friday, April 15, 2011

Study: CCSVI may result from multiple sclerosis disease progression


April 15, 2011

A just released study on the relationship between multiple sclerosis (MS) and chronic cerebral venous insufficiency (CCSVI), a narrowing of the extracranial veins that restricts the normal outflow of blood from thbrain, found that CCSVI may be a result of MS, not a cause.


The study, conducted by University at Buffalo researchers, appears in the current issue of Neurology, the journal of the American Academy of Neurology.


Robert Zivadinov, MD, PhD, associate professor of neurology in the UB School of Medicine and Biomedical Sciences and president of the International Society for Neurovascular Disease, is first author on the paper.


Zivadinov says of the findings: "Given the intense interest in the hypothesis that CCSVI is a possible cause of MS, independent evaluation of CCSVI was identified as an urgent need.


"Our results indicate that only 56.1 percent of MS patients and 38.1 percent of patients with a condition known as clinically isolated syndrome (CIS), an individual's first neurological episode, had CCSVI.


"While this may suggest an association between the MS and CCSVI, association does not imply causality. In fact, 42.3 percent of participants classified as having other neurological diseases (OND), as well as 22.7 percent of healthy controls involved in the study, also presented with CCSVI.


"These findings indicate that CCSVI does not have a primary role in causing MS," says Zivadinov. "Our findings are consistent with increased prevalence of CCSVI in MS, but substantially lower than the sensitivity and specificity rates in MS reported originally by the Italian investigators."




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Remain CURRENT with Multiple Sclerosis information 
 when registered at the  MS Views and News  website
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***************************************************************************************
Help to Educate:  Please donate   - all contributions are tax deductible - 
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"Providing You with 'MS Views and News'is what we do"
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Disclaimer:  'MS Views and News' (MSVN), does not endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.
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Biogen Test Finds Tysabri Patients With 1% Risk of Getting Brain Disease


By Michelle Fay Cortez - Apr 15, 2011

Biogen Idec Inc. (BIIB) has identified high-risk patients taking its multiple sclerosis drug Tysabri who have a 1 in 100 chance of developing a potentially deadly brain infection from the medicine.
By analyzing risk factors including the length of time taking Tysabri, previous treatments and results of a blood test for antibodies to the virus that causes the infection, doctors may also spot patients with less than a 1 in 10,000 chance of developing the disease known as progressive multifocal leukoencephalopathy, or PML, a study showed. The drug’s U.S. label says the risk of PML is about 1 in 1,000 after two years of treatment.
The test for the JC virus should boost use of Tysabri over time, with peak sales of as much as $3 billion, said Corey Davis, an analyst at Jefferies & Co. in New York.
“If you test negative right now, you have a zero percent chance of getting PML,” since everyone who has the brain disease was previously infected, Davis said today in a telephone interview. “To better delineate the risk is going to be a very powerful tool for Tysabri.”
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Remain CURRENT with Multiple Sclerosis information 
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.
***************************************************************************************
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"Providing You with 'MS Views and News'is what we do"
***************************************************************************************
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Disclaimer:  'MS Views and News' (MSVN), does not endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.
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