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Disclaimer: 'MS Views and News' DOES NOT endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.

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Friday, April 29, 2011

Read this Story of a Child with an extremely RARE illness called : Lafora Disease



"My friend and fellow blogger, Michael Gerber wrote to me and asked for my help. 

I do want to help and think that we all should. Please read what he had to say.

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Dear Stuart;

I know this is asking a lot, but I am going to ask it anyway. I need to reach as many people as I can as quickly as I can and I thought perhaps you could help. 

To put it bluntly, my niece is dying. She has a very rare disease (only about 200 known cases worldwide). I wrote about her in my blog about 18 months ago ( What if it was your child? What would you do?)  and again just a week ago. There is a contest going on that we want to win. If you could help, I would appreciate it.

My assumption (and I am sure that I am right) is that you have a much larger audience than I do. And if you could help us get more votes, I would be forever grateful.
There is no registration and no money is asked for. 

Just a click of the mouse to vote.

Thank you for all that you do. 


To read the blog and then to vote just click this link: 
Michael





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Disclaimer:  'MS Views and News' (MSVN), does not endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.
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Wednesday, April 27, 2011

Multiple What? Explaining MS to Kids


ORIGINALLY BROADCAST: JANUARY 26, 2011
Kids understand more than we think, but it can still be difficult to explain the complexities of relapsing MS to them. In this episode, a health care professional provides helpful tips and demonstrations on how to explain MS to children, as well as how to address a child's fears and concerns for their parent's health and well-being.

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Disclaimer:  'MS Views and News' (MSVN), does not endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.
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Devic's disease and it's so-so relation to Multiple Sclerosis



Here is a link to an excellent explanation of the difference between MS and NMO (neuromyelitis Optica) or Devic's disease.   There is a great deal of cross diagnosis between the two disorders but treatment for MS comprises the use of immunomodulating drugs while treatment of NMO is immunosuppressant therapies.  Outcomes are also different.  

Click: 




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Remain CURRENT with Multiple Sclerosis information 
 when registered at the  MS Views and News  website
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Help to Educate:  Please donate   - all contributions are tax deductible - 
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"Providing You with 'MS Views and News'is what we do"
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Disclaimer:  'MS Views and News' (MSVN), does not endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.
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Adventurer with Multiple Sclerosis Reaches the Top of the World


Wendy Booker, a 57 year old climber, runner, and explorer with multiple sclerosis, has beaten the odds yet again… this time conquering the North Pole via dog sled.

Beverly, MA (PRWEB) April 27, 2011
Overcoming sub-zero temperatures, high winds and unfavorable conditions on the arctic ice, on April 23rd Wendy Booker became the first person with MS to stand at the North Pole.
After trekking the last degree to the North Pole with her canine and human teammates, Wendy awoke to near blizzard conditions and frigid temperatures on Easter morning at the top of the world. April 24th is her birthday, and a birthday celebration on ice at the North Pole was the best present Wendy could receive!
The first leg of a long and arduous mission, the North Pole is only one of three arctic expeditions that Wendy plans to undertake on her way to completing the Polar Trilogy. In December of 2011 she will follow up her North Pole triumph with a cross-country ski trek to the South Pole. 2011 will mark the 100th anniversary of the famous Scott and Amundsen race to the Pole in 1911, and Wendy is honored to participate in this historic centennial year. Next spring, she’ll be tackling the frozen expanse of Greenland to complete the Polar Trilogy, again supported by dog sled.
How does a New England interior designer come to find herself mushing to the North Pole?
Diagnosed with multiple sclerosis in 1998, Wendy was initially devastated. But it took little time for her to transform anguish into inspiration by running the Boston Marathon. Over the past decade she has continued running with ten marathons under her belt – the latest being the New York Marathon in the fall of 2010.
CLICK to continue reading and to watch a video



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Remain CURRENT with Multiple Sclerosis information 
 when registered at the  MS Views and News  website
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***************************************************************************************
Help to Educate:  Please donate   - all contributions are tax deductible - 
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"Providing You with 'MS Views and News'is what we do"
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Disclaimer:  'MS Views and News' (MSVN), does not endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.
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Overview of Pain as a Symptom of MS


Stuart lives with MS Pain and so, always appreciates this topic being re-emphasized. Stuart (Me) has learned to re-channel the pain through meditation biofeedback. Hard to do, but very much worth the effort...


Okay, here goes. Raise your hand if you think multiple sclerosis (MS) is not painful. Keep your hand up if you actually have MS.

I guess that there may be a couple of you out there with MS who are saying, "Pain? Whaddya mean?" However, I am willing to bet that (like me) most of you have felt pain as part of your MS experience, whether it is from the "MS hug,"severe tingling sensations or optic neuritis.


The pain that comes along with MS is different for everybody, both in manifestation and severity, given that there are over 50 symptoms of MS - most of which could have a pain component. Surprisingly, it was only in very recent years that the "experts" believed that MS brought any form of pain.


Read the full article (while you shake your head in amazement at that last statement):  Overview of Pain as a Symptom of Multiple Sclerosis




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Remain CURRENT with Multiple Sclerosis information 
 when registered at the  MS Views and News  website
.
***************************************************************************************
Help to Educate:  Please donate   - all contributions are tax deductible - 
.
"Providing You with 'MS Views and News'is what we do"
***************************************************************************************
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Disclaimer:  'MS Views and News' (MSVN), does not endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.
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