MS Advocacy stories being requested by The MS Foundation

a Message from the MS Foundation

Share your success! 

If you know of an MS advocacy success story, send an email to advocate@msfocus.org. 

If we use your suggestion in an upcoming issue of Movers & Shakers, you'll receive a free MS advocate t-shirt courtesy of the Multiple Sclerosis Foundation. 

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Visit: StuMSradio - With Deanna and Stu

 CALL-IN To listen, speak with us or speak with a guest

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Disclaimer:  'MS Views and News' (MSVN), does not endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.

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Study needed to determine how Interferon beta medications can affect Pregnancy

Pregnancy Registries for MS Medications – It is known MS primarily affects women of childbearing age who can become pregnant unintentionally, it is extremely important to acquire information about how interferon beta medications can affect pregnancy and unborn children. Information about the registries is provided here, including materials from the pharmaceutical companies to share with your physician. 

For More detailed information, and to participate, click here 

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Remain CURRENT with Multiple Sclerosis news and information  

Click to: REGISTER

Providing You with MS Views and News, is what we do 

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ 

On the Fourth Wednesday of Each Month

Visit: StuMSradio - With Deanna and Stu

 CALL-IN To listen, speak with us or speak with a guest

* Call (347) 215-9265 *

or click: Multiple Sclerosis-UnPlugged to listen online

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Help us to educate $ DONATE NOW PLEASE $

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Disclaimer:  'MS Views and News' (MSVN), does not endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.

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Pediatric Network and Other Sites Recruiting for Study of Environmental and Genetic Risk Factors

 Investigators nationwide are recruiting 640 children with early relapsing-remitting MS or CIS (clinically isolated syndrome, a single episode of MS-like symptoms) and 1280 children without MS or CIS for a four-year study to determine environmental and genetic risk factors that make children susceptible to developing MS. 

For more information, and to participate: 

http://www.nationalmssociety.org/news/news-detail/index.aspx?nid=5494  

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Disclaimer:  'MS Views and News' (MSVN), does not endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.

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College Students with Hidden diability are needed - Survey on "Hidden" Disabilities in College Students with MS

Information shown here, came for the MS Foundation

Researchers at the University of Southern Maine are seeking to recruit 200 college students nationwide who identify themselves as having a "hidden disability" -- a disability that is not always seen or perceived by others.

To participate, please email hiddendisabilitiessurvey@yahoo.com, and the survey will be sent to you.

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Remain CURRENT with Multiple Sclerosis news and information  

Click to: REGISTER

Providing You with MS Views and News, is what we do 

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ 

On the Fourth Wednesday of Each Month

Visit: StuMSradio - With Deanna and Stu

 CALL-IN To listen, speak with us or speak with a guest

* Call (347) 215-9265 *

or click: Multiple Sclerosis-UnPlugged to listen online

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ 

Help us to educate $ DONATE NOW PLEASE $

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Disclaimer:  'MS Views and News' (MSVN), does not endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.

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Help Support Medicare Part D Coverage for Off-label Drugs for People with Multiple Sclerosis

URGE Congress to support the Part D Off-label

Prescription Parity Act (H.R 1055). Doctors routinely prescribe drugs for off-label purposes to treat diseases that are not listed on the label based on their professional medical judgment. Most of these treatments are prescribed because “on-label” treatment does not exist or is unsuccessful. Thus, the current rules cause people living with MS and other chronic conditions to be denied medically necessary treatment that could vastly improve their quality of life because known uses that are “off-label” are not covered.

 

Send in your support to your local congressman: http://www.contactingthecongress.org/

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Remain CURRENT with Multiple Sclerosis news and information  

Click to: REGISTER

Providing You with MS Views and News, is what we do 

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ 

On the Fourth Wednesday of Each Month

Visit: StuMSradio - With Deanna and Stu

 CALL-IN To listen, speak with us or speak with a guest

* Call (347) 215-9265 *

or click: Multiple Sclerosis-UnPlugged to listen online

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ 

Help us to educate $ DONATE NOW PLEASE $

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Disclaimer:  'MS Views and News' (MSVN), does not endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.

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MS Activity Returns Soon After Stopping Natalizumab (Tysabri)

AMSTERDAM – Significant percentages of patients with relapsing-remitting multiple sclerosis who discontinue natalizumab but start another medication experience a return of disease activity within 12 weeks, according to the results of the RESTORE study.

The risk of return of disease activity during treatment interruption was "notable" even with the use of interferon beta-1a (IFNB-1a, Avonex); glatiramer acetate (Copaxone); or methylprednisolone in place of natalizumab in the study of 175 patients, Dr. Robert Fox said during a late-breaking trials session at the joint triennial congress of the European and Americas Committees for Treatment and Research in Multiple Sclerosis.

The risk of temporarily stopping natalizumab generally appeared to outweigh its benefits in this exploratory study, said Dr. Fox, the lead investigator of the study and medical director at the Mellen Center for Multiple Sclerosis at the Cleveland Clinic in Ohio.

Interrupting treatment with natalizumab has been proposed as a possible way to reduce the risk of progressive multifocal leukoencephalopathy, a rare and potentially fatal opportunistic disease caused by the JC virus. It has been associated with prolonged natalizumab therapy.

In RESTORE, all patients had been treated for 1 year or longer and were relapse free before treatment with natalizumab (given at 300 mg IV once every 4 weeks) was interrupted for 24 weeks. The investigators randomized patients to continue natalizumab treatment (n = 45), stop natalizumab and receive IV placebo (n = 42), or stop natalizumab and receive 1,000 mg IV methylprednisolone every 4 weeks (n = 54), 30 mg intramuscular IFNB-1a once per week (n = 17), or 20 mg subcutaneous glatiramer acetate once daily (n = 17) for 24 weeks, followed by re-instatement of natalizumab infusions for an additional 24 weeks. Investigators at each of the study’s 31 clinical sites selected the choice of alternative treatment.

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Disclaimer:  'MS Views and News' (MSVN), does not endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.

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Montel Williams: Israel leads in medical marijuana

JERUSALEM (AP) - Emmy Award-winning television personality and patient activist Montel Williams said Sunday he was impressed with Israel’s liberal attitude toward medical marijuana, and he believes the U.S. could learn a thing or two from the Jewish state.

Williams was diagnosed with multiple sclerosis in 1999 and he has since been an outspoken advocate of medical marijuana to relieve pain caused by the disease.

The former host of the popular long-running talk show “The Montel Williams Show” is in Israel on a fact-finding mission to learn about its medicinal cannabis practices. He is meeting with legislators, scientists and physicians.

At the height of his TV career, Williams was one of the most recognizable faces in America alongside fellow daytime TV hosts Oprah Winfrey, Phil Donahue and Geraldo Rivera.

“We need to get out of the dark ages and into the new ages,” he told The Associated Press. “Not every patient can use cannabis, but for those who can _ why deny it?”

READ MORE

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Remain CURRENT with Multiple Sclerosis news and information  

Click to: REGISTER

Providing You with MS Views and News, is what we do 

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ 

On the Fourth Wednesday of Each Month

Visit: StuMSradio - With Deanna and Stu

 CALL-IN To listen, speak with us or speak with a guest

* Call (347) 215-9265 *

or click: Multiple Sclerosis-UnPlugged to listen online

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ 

Help us to educate $ DONATE NOW PLEASE $

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Disclaimer:  'MS Views and News' (MSVN), does not endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.

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