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Disclaimer: 'MS Views and News' DOES NOT endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, for your personal knowledge and to keep you informed of current health-related issues. It is not a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.

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Thursday, December 1, 2011

Caffeine, Headaches and Multiple Sclerosis

Stuart Says: and GOLLY - do I know about Headaches.. I am so glad to have found this:


By Julie Stachowiak, Ph.D., About.com Guide   November 30, 2011



About a week and a half ago, I eliminated caffeine from my world. That's right, I stopped drinking my beloved coffee.


I took such a drastic step because I have been getting migraine headaches - sometimes full-blown, grit-your-teeth-in-pain ones, and other times, just really uncomfortable ones. All of these headaches were combined with nausea and many of them also came with sensitivity to light. People with multiple sclerosis are much more prone to migraines and headaches in general, than the rest of the population, but they are usually treated the same way. I have tried migraine meds before. While they did work, they knocked me out or made me feel "off."


I also knew that these headaches were directly related to something I was eating or drinking. I would be fine until I ate something or drank anything besides water. About 75% of the time, as soon as I consumed something, I would have a major headache. I made an appointment with an allergist, who told me that my symptoms were not those of an allergy and that he couldn't help me (besides telling me not to eat things that seemed to bother me).


One night, I decided to do a little digging around and found the book by David Buchholz, Heal Your Headache: The 1-2-3 Program for Taking Charge of Your Pain. Sure enough, Dr. Buchholz, a Johns Hopkins physician, says that many migraines are caused by food triggers. He presents a diet plan to follow that eliminates all triggers for 4 months (then you can add them back in if they don't bother you). Caffeine is number one on his list of triggers and he does say that people with migraines should NEVER add caffeine back to their diet.



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Disclaimer:  'MS Views and News' (MSVN), does not endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.
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Novartis MS Pill Gilenya Rejected by U.K. Health-Cost Agency *** RIDICULOUS***


By Makiko Kitamura
Dec. 1 (Bloomberg) -- Novartis AG’s multiple sclerosis pill Gilenya failed for a second time to gain the backing of the U.K.’s health-cost agency, denting the company’s ambitions to turn the drug into a multibillion-dollar-a-year blockbuster.
Novartis failed to show that Gilenya would be cost effective compared with existing options available even after the drugmaker proposed a discount, the National Institute for Health and Clinical Excellence said in a statement today. NICE said in August the annual cost for the medicine, also known as fingolimod, was about 19,196 pounds ($30,134).
Gilenya, approved in Europe in March as the first oral treatment for MS, is among the products that Basel, Switzerland- based Novartis is counting on to fuel sales growth as patents start to expire on the company’s best-selling treatments, including the hypertension pill Diovan.
“While Novartis submitted evidence that shows fingolimod can reduce relapses, our independent committee has not been convinced that it is a cost effective treatment option,” Andrew Dillon, chief executive of NICE, said in the statement.
NICE advises the state-run National Health Service on which medicines represent value for money as the U.K. government works to save as much as 20 billion pounds a year on medical expenses.

READ MORE




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Disclaimer:  'MS Views and News' (MSVN), does not endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.
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Wednesday, November 30, 2011

AANN, ARN, and IOMSN Release Nursing Management of the Patient with Multiple Sclerosis in the Clinical Practice Guideline Series


Released: 11/30/2011 9:00 AM EST
Source: Association of Rehabilitation Nurses
Newswise — Glenview, IL— November 2011 —The American Association of Neuroscience Nurses (AANN), the Association for Rehabilitation Nurses (ARN) and the International Organization of Multiple Sclerosis Nurses (IOMSN) are proud to announce the newest addition to the respected AANN Clinical Practice Guideline series, Nursing Management of the Patient with Multiple Sclerosis. The publication was supported by an educational grant from TEVA Neuroscience.
Nursing care of patients with MS and their families or care partners has evolved from a focus on interventions during periods of crisis to a focus on symptom management, wellness, prevention of disease worsening, and empowerment. The goal of this guideline is to offer evidence-based recommendations on nursing activities that have the potential to maximize outcomes for adults with MS.
This guideline is the second collaborative publication in the AANN Clinical Practice Guideline series, which has produced more than ten guidelines to date. The publication promotes evidence-based practice across the continuum of care. A team of 26 nurse volunteers from AANN, ARN, and IOMSN developed, authored, and reviewed the content offered in the document.



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Disclaimer:  'MS Views and News' (MSVN), does not endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.
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Tuesday, November 29, 2011

Canadian Researchers to study role of inflammation in MS


Date: Tuesday Nov. 29, 2011 9:24 AM ET
TORONTO — A group of Canadian researchers has received funding to try to figure out what role inflammation plays in progressive multiple sclerosis.


New research, led by Dr. Peter Stys from the University of Calgary's Hotchkiss Brain Institute, is going to look at damage that occurs in MS prior to inflammation.


The work, being done in collaboration with scientists at several other institutions, is being funded by the Multiple Sclerosis Society of Canada and the Multiple Sclerosis Scientific Research Foundation.


The society and foundation have awarded a $3.8-million grant to the researchers looking at this issue.
To date science has attributed the damage done in the disease to autoimmune attacks, but this research team wants to see whether the inflammation process is triggered by an underlying degenerative process.


About 10 per cent of people with MS are diagnosed with the primary progressive form of the disease.


Secondary progressive MS is more common; it begins as relapsing remitting MS, but within 10 years half of the people diagnosed with relapsing MS go on to develop secondary progressive.


There are seven licensed disease modifying treatments for relapsing MS in Canada, but little progress has been made in managing primary progressive MS or secondary progressive MS without relapses.


"We urgently need research that tackles the challenges unique to the progressive forms of MS," says Karen Lee, vice-president of research, MS Society of Canada.


Read more: http://www.ctv.ca/CTVNews/Health/20111129/multiple-sclerosis-inflammation-111129/#ixzz1f9P8IwPg





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Disclaimer:  'MS Views and News' (MSVN), does not endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.
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Monday, November 28, 2011

So Long Ago… By Brenda M Bodanza -

written by Brenda


I remember, one summer day, lying on the beach, feeling the warmth of the sun, soaking within my skin. Listening to the seagulls flying above my head, feeling the tranquility of the ocean breeze, thinking life doesn’t get any better than this.


The warmth of the sand, between my toes, as I dug my feet within the embrace of the earth. I remember enjoying these magical moments most of my life, as the summer season approached, taking for granted, that this would never end!


I dreamed forever, I’d be visiting here, enjoying my paradise. My favorite place to be, viewing the ocean front, walking the shorelines, listening to the serenity that could engulf me, within my thoughts, of total peace, for that’s what it all did for me.


Then one summer day, I remember, while walking onto the beach, as my feet hit the damp sand, my feet seemed to spasm , a pain shot through my toes, right up to my knees, and all of a sudden, I feared I might fall. Luckily I was able to compose myself, and continue to fight, this sensation I was feeling that brought me a fright.


As the years continued, every summer seemed to bring something new, that perhaps I tried so hard to ignore. There was no explanation, how all this came on, for I continued to fight those spasms that my legs now performed. 


I fought and won while I made them stand in that cold ocean water, till the day while standing ankle deep, a little wave knocked me right off my feet. I laughed as my children were watching me, for all of a sudden I had no sense of balance it seemed. The ocean was playing right against me, for no matter how stubborn I tried to be, it was determined to show me, that the water was just to powerful for me.


Soon the sand beneath my feet, felt like hot coals burning through my soles. But more than that, my feet felt like they were in quicksand, making every little step I took, feel like I was walking with cement blocks attached to my feet.


I tried so hard, to make light of it all, but inside, I was worried. I continued to struggle and not give in, to whatever was trying to invade me. I would do whatever it took, to continue enjoying my piece of paradise.


I remember setting my goals to the day when I would be 58 years old and finally my youngest children would be 18 years old, where I would finally be free, to begin my venture of a new journey just for me. 


I would visualize my time, at my ocean paradise, running the beach at dusk or dawn. Waking at the crack of dawn, grabbing a coffee and sitting on the rocks, listening to the waves rolling in the ocean, and thinking I waited so long, to accomplish this. Total serenity with just me, no longer having to watch my children, or worry about someone else, but arrival at the time, where I would be so independent on my own.


I would dream of being that awesome 58 year old grammy, running with the grandkids, climbing mountains, playing games, enjoying life with no restrictions, swimming, dancing, or just plain old walking. I was reaching that whole new world ready to embrace me.
Until that goal of the perfect dream, exploded by a monster invading me. A chronicle illness, that bore no cure, that was going to teach me, the importance of life, that one could never see.


Lifes lessons on gratitude, and taking nothing for granted was now the mission, placed before me. Simple things like, brushing ones teeth, which is only allowed providing the arm doesn’t tire before the task is done. Sitting on the floor, and hoping to have the strength to rise back up onto your feet. To be able to walk barefoot, without your feet, sticking to the floor, unable to move. To be able to wear normal shoes, like sandals, moccasins (my favorite), clogs, boots, for now you support braces and have to have special shoes. To be able to walk up the stair, for now your leg (s) no longer bends, to run downstairs, forever forbidden , for you no longer have sensory feelings, now you could fall instead.


How I wish I could just be, the person I was, when I never thought it could be all taken from me. How I wish, I could take a walk, and hold you close to me, perhaps feel your hand inside of mine, but those days are gone, for now my hands hold a crutch to support me.
So no matter how much I resist, the monster has totally engulfed me, it continues to show its face, no matter how much you try to maintain your own saving grace.


Now you learn, the importance to life, and you pay close attention to every single step you take. You are careful to never lose ground; you thank GOD everyday that you wake. How grateful you are when you open your eyes, and breathe upon the morning rise. You notice things you never saw, and you breathe. And every day you start again, with thanking God for another day. 


You struggle more often than not, as you continue to progress, but fight hard to not cave in, to letting this monster become the King!!
You fall over and over, and crawl right back up, refusing to give up and let the monster win. Your drive is so strong, for deep within your soul, is still the same person that had all of their goals in place.


Life has changed, the battle is huge, you no longer can see in front of the road your on. But you realize that it’s so much easier to see, what is right in front of you, for today! 


For now, you wake, thank the Lord as you step your foot on the floor, and prepare to start another day. And at the end, you smile for the day is done, and you made it through, to go to bed, and start all anew. You now promise to make the best of what you have, and you learn, that nothing, nothing is ever forever, for it all could be taken from you!


Your comments would be appreciated



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Disclaimer:  'MS Views and News' (MSVN), does not endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.
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