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Sunday, July 1, 2012

(OMG - did she really say this?:) Sharon Osbourne says: "I Won't Let My Son Die."


the message fund below was written by an MS Patient to People Magazine (and to Sharon Osbourne)



To:People Magazine
Att:Editorial Letters Dept.
Fr: Debbie Serating

I am writing to express my shock and disbelief upon receiving your recent publication referenced above, with the headline screaming " I Won't Let My Son Die." 

Sorry,Sharon,it's not up to you. Bad news, your son Jack has been diagnosed with a degenerative and unpredictable autoimmune disease. Good News: It's not an inoperable brain tumor.

It's multiple sclerosis.
Yup,MS.So there's hope yet.

I realize that while melodrama sells magazines,it is also People's responsibility to be somewhat factual,and therefore it is a contemptible act of greed and a misconception to display Mrs.Osbourne's obvious lack of knowledge and fear of MS-it's not a fatal disease,but a chronic illness-in such a negative manner.Those unacquainted with MS such as yourselves,celebrities and the entire reading public, will now be misled into thinking that being diagnosed with MS is an unbearable burden,on par with receiving a death sentence.

Bravo to People magazine,for helping to spread Sharon's fear and misinformation about this disease among your readers.As someone who has lived with MS since being diagnosed in 1998(my initial symptoms were almost identical to Jack's,but since his is the remitting/ relapsing version,he will hopefully have a milder,less progressive experience),I know how difficult it is to remain positive and hopeful,so it is disheartening not just to me and my fellow MS sufferers(including my own brother) to witness this lack of sensitivity on your part.(FYI, less than 5% of those initially diagnosed with MS have severe forms of this disease,which may lead to dire complications in the first five years;Jack has the mildest,most benign type of MS,with his temporary loss of vision-- vs.weakness or loss of balance and coordination--a key factor in determining the path of his illness).

Every case is different,everyone is unique.Which is not to say that Jack doesn't face a challenge ahead of him, but at least his will be lifelong,not swift and deadly as his mother,and your publication,would have people believe.






Please leave your opinion to this blog posting

Stuart "applauds" Debbie for writing this letter -- CLAP -CLAP




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9 comments:

Arlene Adkins-Zell said...

I have a very aggressive form of PPMS (diagnosed 1/2005) and I am living a wonderful life. I totally resent the magazine for spreading this misinformation. The last thing we need is pity and newly diagnosed will now have added fear.

rachelthehairguru said...

My husband and I saw this in the grocery store check out line and were stunned. It is a shame the magazine has labeled MS incorrectly. I am however glad to see it being spoken of in the mainstream and hope Jacks diagnosis will raise awareness and help find a cure for this disease.

mistylilacs said...

Hooray for writing this to People Magazine. I was so angry when I saw the headlines on the cover that I sat right down and wrote to both Sharon and Jack. I believe celebrities have a responsibility to their adoring public to get the facts straight. Headlines like this are nothing but sensationalism and misleading and can scare the newly diagnosed and general public.

Again, thank you so much for speaking up.
Martha Piro

Stuart said...

SHARON AND PEOPLE MAGAZINE need to come front and center on this, - to apologize to the MS Community for their lack of knowledge - AND THEN, they too should be kept up to date with MS news and information. And of course a great place for this is through: Stu's Views and MS News/ MS Views and News - REGISTER here Sharon (and anybody esle) - www.register.msviewsandnews.org --- )My turn to promote)..

Ron said...

This offense[taking and outrage over every possible thing is really epidemic. Hey, everybody, get over yourselves, will you?

EMG said...

Debbie that was an awesome letter and very well spoken. I believe the Osbournes are very new to this but PEOPLE MAGAZINE should know better. Sharon Osbourne could be a great spokesperson for this disease since she is so visible. They just need more education.

luaparrish said...

Seriously. is ANYONE shocked or surprised at Sharon Osbourne's lack of knowledge or inability to communicate effectively with Jack's doctors, who no doubt, would have been more than willing to answer any questions she might have and even explain in one syllable words so she could comprehend. This is the woman who married Ozzy Osbourne, for pity's sake. Two of her three children have spent their entire teen years abusing drugs that normally take the lives of hundreds of teens on a daily basis. He's LUCKY that he's still around to even HAVE the mildest form of MS. Maybe he would have developed this decease if he had never taken so much as an aspirin, and I'm not implying that Jack is to blame for an illness that thousands of us who never lived the "rock and roll" lifestyle that Jack did, but I AM stating straight out, COULD he have contributed to his immune system going haywire by willfully choosing to use drugs? Wonder what Richard Pryor would have to say about that? I wish him well as he learns to cope with his own personal version of MS, but honestly, is ANYONE shocked at his mother's idiotic behavior. I stopped being interested in her opinion or viewpoint regarding ANY subject when I saw her screaming like a fishwife as OZZY heaved an entire ham over the fence into their neighbors' backyard...badly done, Sharon, BADLY DONE!

luaparrish said...

Seriously. is ANYONE shocked or surprised at Sharon Osbourne's lack of knowledge or inability to communicate effectively with Jack's doctors, who no doubt, would have been more than willing to answer any questions she might have and even explain in one syllable words so she could comprehend. This is the woman who married Ozzy Osbourne, for pity's sake. Two of her three children have spent their entire teen years abusing drugs that normally take the lives of hundreds of teens on a daily basis. He's LUCKY that he's still around to even HAVE the mildest form of MS. Maybe he would have developed this decease if he had never taken so much as an aspirin, and I'm not implying that Jack is to blame for an illness that thousands of us who never lived the "rock and roll" lifestyle that Jack did, but I AM stating straight out, COULD he have contributed to his immune system going haywire by willfully choosing to use drugs? Wonder what Richard Pryor would have to say about that? I wish him well as he learns to cope with his own personal version of MS, but honestly, is ANYONE shocked at his mother's idiotic behavior. I stopped being interested in her opinion or viewpoint regarding ANY subject when I saw her screaming like a fishwife as OZZY heaved an entire ham over the fence into their neighbors' backyard...badly done, Sharon, BADLY DONE!

Cherie said...

Over the top, poorly prepared, misrepresentation, emotion, and lack of knowledge are not good bed fellows. Sharon's Face Book Page does not allow messages that might offer her some hope of education from those of us who have lived successfully with MS for decades. Sure we've had scares and down times but that does not stop us from being living, breathing, contributing members of society.