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Disclaimer: 'MS Views and News' DOES NOT endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.

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CHAMPIONS TACKLING MS - AWARDS Dinner, Honoring Aaron Boster, MD and Jon e. Glaser, DDS - now open for registration. Visit www.events.msvn.org

Friday, February 3, 2012

Ever have Problems with Solumedrol?




  • I remember problems I had years ago, when I needed Steroids for an exacerbation..
  • I wished that there was another choice- and there was, but it was not made available to me.
  • And maybe you too, do not know that there is an alternative, if you are not able to tolerate solumedrol. 
  • Continue reading this information...



H.P. Acthar® Gel (repository corticotropin injection) is an adrenocorticotropic hormone (ACTH) analogue used for:
  • Monotherapy treatment of infantile spasms (IS) in infants and children under 2 years of age.
  • The treatment of exacerbations of multiple sclerosis in adults.
  • For inducing a diuresis or a remission of proteinuria in the nephrotic syndrome without uremia of the idiopathic type or that due to lupus erythematosus.
  • The following: rheumatic disorders; collagen diseases; dermatologic diseases; allergic states; ophthalmic diseases and respiratory diseases.



Learn more. Click here




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"Providing You with 'MS Views and News', IS What We Do"   ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ 
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Disclaimer:  'MS Views and News' (MSVN), does not endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.
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LDN ( Low Dose Naltrexone ) February 2012 Newsletter



Newsletter Link

Belated Happy New Year to everyone, my time still isn’t my own and the hours I can spend helping people via the LDN Research Trust is still limited, hopefully over time things will improve. Until I get more time the newsletters will be as and when. If you have time to help in anyway whatsoever just let me know, your help would be appreciated.

The running costs of the charity have increased quite considerable over the last year, everything has risen in price. We pay no salaries and everyone works for nothing so every penny we receive makes a difference. To carry on with our work we need financial support, we would like to ask if everyone could spare just £1,  $1 or 1 Euro a month or £12, $12, 12 Euro’s a year. This would enable us to cover the running costs, continue to produce and send free LDN Aware DVD’s to Doctors around the world, these DVD’s are proving a great success and many Doctors will prescribe after listening to what other medical professionals have to say and collect funds for trials.

Donations can be made in many ways regardless where in the world you live:


I would like to say a BIG thank you as always, to those people that makes regular donations, fundraise and help in so many different ways, without you there would be no LDN Research Trust.


We have a fundraising CD -  First Step to Freedom by Synchro
£6 each with FREE shipping,

Synchro – “ We hope you enjoy listening to the CD as much as we enjoyed making it. At just £6:00 with free P&P, you can have a quality CD AND know that you are helping a worthwhile cause.

Video of CD on YouTube:

Buy your copy today by clicking the link below.

Also inside the newsletter:


  • ·        Links to play lists on YouTube for LDN Testimonials from Users
  • ·        Details of the LDN Aware and LDN Voices DVD’s
  • ·        Tribute to Celia Danks
  • ·        Article by Dr Tom Gilhooly
  • ·        Katy Pitsi’s Book
  • ·        Sulle Alhaji’s Challenge and Fund Raiser
  • ·        Disabled Motorist Federation
  • ·        Anticancer.org.uk Dr Pan Pantziarka
  • ·        LDN Chat Room Friday chats starting 2nd February.
  • ·        And much more


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"Providing You with 'MS Views and News', IS What We Do"   ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ 
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Disclaimer:  'MS Views and News' (MSVN), does not endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.
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Thursday, February 2, 2012

An active approach to fighting MS Former national bobsleigh team member refuses to let disease slow her down


BY EVA COHEN FEBRUARY 1, 2012
Katherine Louman-Gardiner was on the Canadian women’s bobsleigh team when she was diagnosed with multiple sclerosis three years ago.


“During my training, I started to experience symptoms and I went to see a specialist,” the Vancouver resident recalled in an interview.

The news wasn’t good.

When multiple sclerosis progresses, the results can be devastating, particularly for an athlete. Symptoms include loss of balance, impaired speech, extreme fatigue, double vision and paralysis.

Traditionally, doctors have advised people with MS to rest, but Louman-Gardiner didn’t let the disease slow her down.

She no longer competes at the international level, but she’s still more active than most Canadians.
“I’m on a variety of sports teams, including ultimate Frisbee, and I participate in a number of activities, including the Warrior Dash up in Whistler,” said Louman-Gardiner, referring to a competition for runners that includes stunts such as crawling under barbed wire.

“I also cycle everywhere, all the time. I bought a new bike and in the first month I had 1,000 kilometres on it. I listen to my body, and if I’m tired I go to bed. I take my medication and get on with things.”

According to Suzanne Jay, director of communications, for the BC and Yukon Division of the MS Society of Canada, having an active lifestyle to mitigate the debilitaing effects of the disease is an emerging area of study.

“In the past, people with MS were told to cut back if they got tired, and this led to being very sedentary,” said Jay. “Some researchers have changed their medical approach and see resting all the time with MS to be counterproductive. Katherine is unique because she keeps such as active lifestyle and it’s working really well for her.”

A study published in 2009 by Australian researchers from Queensland University found that exercise improved the overall quality of life of patients with MS. Of 121 patients studied, 52 exercised regularly, 69 did not. Those who did exercise reported improvements in terms of reduced fatigue and depression.
Researchers speculated that fatigue was eased because exercise altered a certain protein molecule in the MS patients, increasing energy levels, while depression may have been eased by factors such as increased endorphin levels (the so-called runner’s high) and the patients’ increased belief in their own abilities to perform physical functions.

Such studies could prove invaluable to Canadians. In Canada it is estimated that anywhere from 55,000 to 75,000 people have the disease. It is the most common neurological disease affecting young adults in the country, with women three times more likely than men to be diagnosed with it. MS attacks the myelin, which is a protective covering wrapped around the nerves of the central nervous system.

For Louman-Gardiner, keeping active made sense. She’d followed the same approach her entire life, and it was what landed her on the national bobsleigh team to begin with.

Read more 





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Disclaimer:  'MS Views and News' (MSVN), does not endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.
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Wednesday, February 1, 2012

MediciNova Receives a Notice of Patent Allowance for a Method of Treating Progressive Multiple Sclerosis



Claims Cover the Use of Ibudilast for Primary or Secondary Progressive Multiple Sclerosis

February 1, 2012

SAN DIEGO, Calif., Feb. 1, 2012 (GLOBE NEWSWIRE) -- MediciNova Inc, a biopharmaceutical company traded on the NASDAQ Global Market  and the Jasdaq Market of the Osaka Securities Exchange, today announced that it has received a Notice of Allowance from the U.S. Patent and Trademark Office for a pending patent application, which covers the use of ibudilast for the treatment of progressive forms of multiple sclerosis. Ibudilast (MN-166), is the company's lead drug development candidate for certain neurological conditions, including progressive multiple sclerosis, neuropathic pain, and drug addiction.
A patent maturing from this allowed patent application is expected to expire no earlier than early 2029 and covers a method of treating primary progressive multiple sclerosis (PPMS) or secondary progressive MS (SPMS) by administering ibudilast either alone or in combination with other drugs. The patent application is based upon clinical investigations conducted by MediciNova researchers which showed an apparent disease-modifying benefit in which brain volume loss, or brain atrophy, commonly associated with disease progression, was reduced by oral administration of ibudilast to a group of multiple sclerosis patients including some subjects with progressive multiple sclerosis, in a dose-related fashion over at least a 10-month treatment period.







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     Please use the link found below, to leave comments.. .. All comments are moderated to reduce SPAM and bad language
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Help us to educate $ DONATE NOW PLEASE $

"MS Views and News"  is a 501©(3) Not-For-Profit organization
 as recognized by the Internal Revenue Service

All contributions are tax deductible to the fullest extent allowed by law
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Disclaimer:  'MS Views and News' (MSVN), does not endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.
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Multiple Sclerosis SYMPTOMS Study



Researchers in the Physical Activity and Behavior Lab at the University of Massachusetts Amherst are currently recruiting individuals with MS for a study of MS symptoms. This is a voluntary study that is testing a new comprehensive symptom questionnaire to determine how well it is able to measure the severity, frequency, and distressfulness of MS symptoms. The study can be completed by mail or online and participants will be compensated for their time and effort. Participants in the study must have a definite diagnosis of MS and be between 20-70 years old. 

Anyone interested in more information should contact Dr. Erin Snook by email esnook@kin.umass.edu or telephone (413) 545-6007. 

If participating, Please advise Erin, that you received this information from Stu's Views & MS News - thank you


IMPROVING the Measurement of MS Symptoms
You are invited to participate in a research study conducted by Dr. Erin Snook and the Physical Activity and Behavior Lab in the Department of Kinesiology at the University of Massachusetts Amherst. The objective of this study is to test a new comprehensive MS symptom questionnaire that is able to measure the severity, frequency, and distressfulness of symptoms. We believe measuring these three symptom characteristics will help to improve our understanding of symptoms. This is the first study in a series of studies meant to develop a questionnaire that can be used by neurologists and other clinicians to better track and treat changes in MS symptoms over time. We plan on publishing the results of this study in a journal read by doctors and clinicians who treat MS and to use this new data to obtain funding for future research focusing on symptom assessment and management.

This study is quite straightforward and involves completing 8 questionnaires. These questionnaires will take approximately 1.5 – 2 hours to complete. You will return a signed copy of this consent form and the packet of questionnaires in the self-addressed and stamped envelope that came with the study materials. Please keep the second copy of the consent form for your records.

Your participation in this research is voluntary and you must be between 20 – 70 years old to participate. You may refuse to participate, discontinue participation, or skip any questions you do not want to answer at anytime without penalty. If you have any questions or concerns about being in this study you should contact Dr. Snook by phone (413-545-6438) or email (esnook@kin.umass.edu).



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Disclaimer:  'MS Views and News' (MSVN), does not endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.
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Monday, January 30, 2012

UAE's Multiple Sclerosis Sufferers to Benefit from National Taskforce




(MENAFN Press) Emirates Medical Association, Emirates Neurology Society, and Novartis Sign Memorandum of Understanding;


'Increased Disease Awareness Leads to Better Quality Life,' Say Doctors


Dubai, United Arab Emirates
The first-ever national taskforce to tackle multiple sclerosis (MS) in the UAE has been created by the Emirates


Neurology Society (EMINS), it was announced at a press conference today, in the hopes of improving quality of life for MS sufferers across the country.


Continue reading here:




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Disclaimer:  'MS Views and News' (MSVN), does not endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.
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Research teams making progress collecting critical data on CCSVI


January 27, 2012

TORONTO - Research teams investigating a potential and hotly debated cause of MS say they are making good progress toward providing essential data that will help to design a clinical trial of a proposed treatment for the disease.
The seven Canadian and U.S. teams were given $2.4 million in July 2010 to probe the connection between multiple sclerosis and a condition called chronic cerebrospinal venous insufficiency, or CCSVI, put forth as a possible cause of MS by Italian vascular surgeon Dr. Paolo Zamboni.
Zamboni has theorized that MS could be caused by narrowed neck veins, which he suggests cause a backup of blood in the brain, leading to iron deposits that destroy brain cells and set off the cascade of nerve damage characteristic of MS.
Multiple sclerosis is an unpredictable, often disabling disease of the central nervous system, which interrupts the flow of information within the brain and between the brain and body. Symptoms range from numbness and tingling to blindness and paralysis. An estimated 55,000 to 75,000 Canadians have the disease.
“The research underway is significantly advancing our understanding of CCSVI and what its relationship might be to the MS disease process,” Dr. Tim Coetzee, chief research officer at the U.S. National MS Society, said Friday in a release.
The research groups have recruited and performed neck-vein scanning of a broad spectrum of people both with and without MS to see who may be affected by CCSVI. They are also refining imaging methods to reliably verify the occurrence of CCSVI and to understand its role in disease progression, the U.S. society said.
More than 800 people have been scanned with various imaging technologies being used in the studies, including the Doppler ultrasound technique used by Zamboni and his collaborators, and various types of MRI techniques.
The combined results of the research projects will be used in the design of an early-phase clinical trial in Canada to test the ability of balloon venoplasty — which opens up narrowed neck veins — to improve blood drainage in MS patients found to have CCSVI. That trial should launch in late spring.
Several of the teams have presented, or are planning to present, preliminary results at medical meetings. But the complete results will be available only after completion of all the studies, which will involve more than 1,300 people representing a spectrum of forms of MS, as well as individuals with other neurological diseases and healthy controls.
The U.S. National MS Society, which is jointly funding the research projects with the MS Society of Canada, said Friday the next update on the seven studies will be reported in six months.

Source : Winnipeg Free Press




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..Comments for each blog posting are always appreciated. 
     Please use the link found below, to leave comments.. .. All comments are moderated to reduce SPAM and bad language
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Help us to educate $ DONATE NOW PLEASE $

"MS Views and News"  is a 501©(3) Not-For-Profit organization
 as recognized by the Internal Revenue Service

All contributions are tax deductible to the fullest extent allowed by law
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Disclaimer:  'MS Views and News' (MSVN), does not endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.
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