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Saturday, May 26, 2012

MS Related - Give me a BREAK Montel Williams


written by Stuart S. - 05.26.12

There is an article that came out yesterday, shown below that makes me cringe even more than my usual cringe, when I read his articles, and his complaining.

Give me a BREAK Montel... Stop looking for pity from others who often are far worse medically and definitely far from you financially... Coming out with the statement that you only have about four years to live (shown below) from your MS?  I know several black men with MS and never heard from any of them that the MS will soon be taking their lives. I do know that they do whatever they can, medically and spiritually to stay on top of the world. Four years? 

Seriously - Stop the bitching and start taking medication again to thwart the disease progression. You did tell the world that you stopped the meds because you felt they were not doing anything for you. Maybe you could have tried something different. After all, not all medications, not everything, works for everybody... Did you try a second generation of MS Medication?

Yes Montel, I hope this note gets you so pissed-off that you will take an upper hand and not hide behind another stick of cannabis...

Regards,
Stuart -  - this is, one of,  "Stu's Views" and Just my Opinion... 

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Climbing high over MS

By CARY CASTAGNA, Keeping Fit

Posted 1 day ago
Montel Williams says he only has about four years left to live -- based on research and statistics on life expectancy for black men who have multiple sclerosis.

But the 55-year-old former TV talk show host, who was diagnosed with MS in 1999, has vowed to do all he can to buck the trend.

"Supposedly, I've got some ticking time bomb in my body. Are you kidding me?" Williams candidly tells QMI Agency in an exclusive interview. "I'm not going to wait around for 59 and die. I'm going to do everything I can to live, and live a good and productive life.

"By paying attention to my diet, exercising and taking my medication on time, I'm making a difference."

For the past 13 years, the Emmy Award-winning host of The Montel Williams Show, produced from 1981 to 2008, has been waging a daily battle with the debilitating autoimmune disease that affects the brain and spinal cord, and for which there is no cure.

His symptoms range from extreme neuropathic pain in his lower extremities and weakness in his left hip flexor and left shoulder, to numbness in his fingers.

Despite his predominantly upbeat attitude, Williams admits he has his moments.

"Depression is a symptom of MS. There are those days when I sit around and wallow in my muck and say, 'Woe is me,'" the married father of four reveals. "I do that for about 10 minutes until I smack myself upside the head and realize it's worthless, it does no good. What does good is when I say, 'You know what? I'm going to do this.' And I feel better."
Williams reached perhaps one of his lowest points circa 2009, when his doctor suggested during a routine checkup that it was time for the avid snowboarder to hang up his snowboard and opt for less-intense physical pursuits.
"I was so pissed. I was like, 'Screw you, man,' " he recalls. 


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Thursday, May 24, 2012

An MS Patient's achievement: Florida Hospital salutes volunteers



Rani Merens wins Knox award
By 
SPECIAL TO THE BEACON
News image
PHOTO COURTESY FLORIDA HOSPITAL-FISH MEMORIAL
Congratulations — Ed Noseworthy, Florida Hospital-Fish Memorial CEO, congratulates Rani Merens, who won the 2012 Johana Knox Award for Community Service Excellence. Merens has lived with multiple sclerosis for 16 years, but has focused on what she can do for others.

For 16 years, Rani Merens has lived with multiple sclerosis, a disease that affects the brain and spinal cord. However, she has not let the disease limit her ability to change other people’s lives for the better.
Because of her devotion to helping others, Merens was honored with the 2012 Johana Knox Award for Community Service Excellence.
Named for West Volusia’s best-known volunteer, Johana Knox, this award recognizes outstanding people for volunteer work and philanthropic efforts.
Merens teaches English through the Volusia Literacy Council, and serves as a representative for the City of DeBary as a member of the Bicycle and Pedestrian Advisory Committee (BPAC).
A talented artist, Merens also paints portraits for people who have lost a loved one.
She also paints portraits of dogs, and donates 50 percent of the proceeds to an organization that trains dogs to assist people who have special needs.
Merens was one of 11 nominees for the 2012 Johana Knox Award, which is sponsored annually by Florida Hospital-Fish Memorial in Orange City.
Previous recipients of the award include Sandra Wilson, executive director of Gateway Center for the Arts; Ida Jane Wegrzyn, a volunteer with the Florida Hospital-Fish Memorial Auxiliary; and Brenda Gormley, who works with Haven Hospice.
Since it was created in 2009, the Johana Knox Award for Community Service Excellence has raised more than $30,000 to fight cancer. This year’s event was attended by 107 area residents and community leaders, who contributed approximately $12,000 to benefit cancer patients in the community.
Story continues here




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Health Canada approves Biogen Tysabri label change


May 24, 2012


Health Canada has approved a change to the TYSABRI Product Monograph to assist physicians and patients with multiple sclerosis (MS) make better-informed decisions about treatment with TYSABRI - for patients with relapsing-remitting form of MS. 

The new label identifies anti-JC virus (JCV) antibody status as a risk for developing an uncommon, but serious, brain infection known as progressive multifocal leukoencephalopathy (PML). 

The new label states that:

·         Anti-JCV antibody negative status indicates that exposure to the JC virus has not been detected;
·         Patients who are anti-JCV antibody positive have a higher risk of developing PML;
·         Patients who are anti-JCV antibody positive, have received prior immunosuppressant (IS) therapy and have received treatment with TYSABRI for more than two years have the highest risk of developing PML.






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Wednesday, May 23, 2012

CCSVI news: Zamboni MS treatment comes under fire



A member of an expert group advising the Canadian Institutes of Health Research (CIHR) about the effectiveness of a controversial treatment for multiple sclerosis has likened it to faith healing.
Dr. Barry Rubin, medical director of the Toronto General Hospital's cardiac centre, and three American coauthors draw the parallel in an article titled "The 'Liberation Procedure' for Multiple Sclerosis: Sacrificing Science at the Altar of Consumer Demand," in the current issue of the Journal of the American College of Radiology.
Rubin sits on the CIHR's Scientific Expert Working Group, a 23-member international panel created by CIHR in 2010 to monitor and analyse research into the link between MS and chronic cerebrospinal venous insufficiency (CCSVI), a term coined by Italian doctor Paolo Zamboni to describe blockages in the veins of the neck and spine.
Zamboni's so-called "liberation treatment" involves opening the blocked veins by inserting a balloon, a procedure known as venous angioplasty. Health Minister Leona Aglukkaq announced last month that a team of researchers has been selected to conduct a clinical trial into CCSVI in about 100 MS patients.
But the article by Rubin and his three co-authors says funding trials of a procedure "that has minimal basis in rational, empirical knowledge seems questionable." It cites two cases of Canadian MS patients who underwent venous angioplasty. One died while the other suffered a serious stroke.
The article places Zamboni's therapy in the same category as "treatment of breast cancer with laser photodynamics, Laetrile for cancer and other unproven therapeutics found in the retail sphere. And, it asks, "When is healing 'faith healing?'"
Rubin's views prompted a swift response from Liberal MP Kirsty Duncan, who has pushed for research into the link between CCSVI and MS. In a letter to Alain Beaudet, CIHR's president, Duncan said Rubin "can no longer be seen to be an independent judge of the scientific literature.
"Members of the CCSVI community are concerned that a parallel process is being created - one in which the government says it will undertake clinical trial, while a key player appears to work actively to prevent this," Duncan's letter says.


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Could Stem Cells Cure MS?


growth factor isolated from human stem cells shows promising results in a mouse model of multiple sclerosis.
By Megan Scudellari | May 23, 2012


Human mesenchymal stem cells (hMSCs) have become a popular potential therapy for numerous autoimmune and neurological disorders. But while these bone marrow-derived stem cells have been studied in great detail in the dish, scientists know little about how they modulate the immune system and promote tissue repair in living organisms.

Now, one research team has uncovered a molecular mechanism by which hMSCs promote recovery in a mouse model of multiple sclerosis (MS).
According to research, published online Sunday (May 20) in Nature Neuroscience, a growth factor produced by hMSCs fights MS in two ways: blocking a destructive autoimmune response and repairing neuronal damage. The finding could help advance ongoing clinical trials testing hMSCs as a therapy for MS.
The researchers have identified “a unique factor that has surprisingly potent activity mediating neuron repair,” said Jacques Galipeau, a cell therapy researcher at Emory University in Atlanta, Georgia, who was not involved in the research. “The magnitude of the effect on a mouse model of MS is a big deal.”
READ more - Click Here


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Monday, May 21, 2012

Opexa's Tovaxin for MS is now Tcelna


Oh My gosh - Another difficult word to say >>> Tcelna


Opexa Therapeutics, Inc.  a biotechnology company developing a novel T-cell therapy for multiple sclerosis (MS), announced today that the Company is rebranding its leading MS therapy with the new name TcelnaTM. The product, previously known as Tovaxin®, will now be known as Tcelna as the company positions itself towards the treatment of patients with Secondary Progressive MS (SPMS).
“Opexa has worked diligently in the optimization of its overall manufacturing process and clinical development program while concentrating its efforts in the SPMS indication. The rebranding of our lead product as Tcelna encompasses these advancements and our continued dedication to make a difference in the treatment of MS”

"Opexa has worked diligently in the optimization of its overall manufacturing process and clinical development program while concentrating its efforts in the SPMS indication. The rebranding of our lead product as Tcelna encompasses these advancements and our continued dedication to make a difference in the treatment of MS," commented Neil K. Warma, President and Chief Executive Officer of Opexa.
The name Tcelna (pronounced Te-SELL-nuh) reflects the T-cell derivation of the product. Opexa has requested a registered trademark for the new brand name.

Source Opexa Therapeutics, Inc.



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Understanding and Treating Progressive MS - Webcast


The National MS Society
and MS Learn Online invite you to a special Live Webcast event  


On May 23, 2012 join a panel of experts for a live nationwide Webcast "The Next Frontier: Understanding and Treating Progressive MS"

  • What do we know about what causes progression in MS?
  • What are the challenges faced in understanding and treating progressive MS?
  • What's on the horizon in terms of preventing progression and repairing the nervous system?
  • What's being tested right now for people with progressive MS?
  • What can people do now to maximize their quality of life?

To participate in this live event you must pre-register. Click here to find out more information and to register.






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Sunday, May 20, 2012

Latest results about emerging MS therapies, risk factors, disease mechanisms, rehabilitation, CCSVI, and much more


May 16, 2012

EXECUTIVE SUMMARY

Nearly 12,000 neurologists and investigators convened in New Orleans in April to present findings at the American Academy of Neurology’s annual meeting. Over 500 scientific presentations and display posters focused on research to stop MSrestore function, and end MS forever. The MS sessions were often standing-room only, and appear to get bigger every year.  Among these were the latest results from pivotal clinical trials of emerging MS therapies, possible risk factors, underlying disease mechanisms, rehabilitation approaches, CCSVI, and much more. For free access to the conference abstracts (brief summaries), go to the American Academy of Neurology’s Website.
In most cases, studies presented are considered preliminary. Many of the results will be analyzed more thoroughly, and usually published in peer-reviewed science and medical journals. Confidence in a study’s findings grows when it is repeated by others, with similar results.
• STOP: Among studies reported were these first results from late-phase clinical trials. If these treatments are found to be safe and beneficial, some of them may come on the market in 2012 and 2013. Other studies focused on understanding benefits, risks and modes of action of available and emerging therapies.
• RESTORE: Rehabilitation to address cognitive changes was explored.  In addition, several presentations focused on imaging techniques and pathology findings related to Chronic Cerebrospinal Vascular Insufficiency and MS.
• END: Understanding risk factors that influence who gets MS, and also what course their MS will take, is crucial for finding ways to prevent MS and progression of symptoms. Among the presentations were studies that looked at interactions of genes, gender, and vitamin D levels.
Highlights:
RESEARCH TOWARD STOPPING MS IN ITS TRACKS
Among studies reported were these first results from late-phase clinical trials. If these treatments are found to be safe and beneficial, some of them may come on the market in 2012 and 2013. Other studies focused on understanding benefits, risks and modes of action of available and emerging therapies.

CONTINUE READING:  CLICK HERE

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