Please visit our MS learning channel on Youtube, which provides hundreds of topics from our education programs, that were video-recorded and archived here: www.youtube.com/msviewsandnews

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Disclaimer: 'MS Views and News' DOES NOT endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.

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CHAMPIONS TACKLING MS - AWARDS Dinner, Honoring Aaron Boster, MD and Jon e. Glaser, DDS - now open for registration. Visit www.events.msvn.org

Friday, June 1, 2012

Preventing Misdiagnosis of MS



Lynne Friedmann
June 1, 2012

June 1, 2012 (San Diego, California) — Misdiagnosis of multiple sclerosis (MS) is becoming an increasingly recognized problem in the field, one experts says.
Misdiagnosis is, "under-recognized, under-appreciated, and under-studied," said Brian G. Weinshenker, MD, from the Department of Neurology at Mayo Clinic College of Medicine in Rochester, Minnesota. "Unless we are 80% certain of the diagnosis, we should not offer disease-modifying treatments," he said.



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Positive test boosts Sanofi MS drug hopes


June 1, 2012

Sanofi reported positive results from a late-stage trial of its Aubagio multiple sclerosis drug, bolstering its chances of approval by regulators as it seeks to catch up with a fast-selling oral treatment from rival Novartis.

Sanofi said it found that a daily dose of the treatment, one of two multiple sclerosis drugs it has in late-stage development, reduced the rate of relapse by 36 percent compared with a placebo.

The study assessed the efficiency and safety of Aubagio in 1,169 patients with relapsing forms of multiple sclerosis.
The full data from the study will be presented at an upcoming scientific meeting, Sanofi said.


Read more: http://www.foxnews.com/health/2012/06/01/positive-test-boosts-sanofi-ms-drug-hopes/#ixzz1wZ7LN89G


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MS in the News: New MS Drug Data Highlight Meeting



SAN DIEGO -- Reports on closely watched drug trials, involving established as well as investigational products, are likely to make the biggest splash at the joint CMSC-ACTRIMS meeting under way here.
Topping the list will be the first formal presentation of results from the TENERE trial pitting the investigational oral drug teriflunomide against subcutaneous interferon beta-1a (Rebif) in patients with relapsing-remitting multiple sclerosis (MS), and more detailed data from the CombiRx trial of combined glatiramer acetate (Copaxone) and interferon beta-1a (Avonex).
The meeting -- held jointly by the Consortium of Multiple Sclerosis Centers (CMSC) and the Americas Committee for Treatment and Research in Multiple Sclerosis (ACTRIMS) -- is the only major MS-focused scientific conference in the U.S.
The TENERE presentation, slated for Saturday with Patrick Vermersch, MD, of the University of Lille Nord de France in Lille, France, as lead investigator, represents the second installment in a series of phase III trials conducted by teriflunomide's sponsor, Sanofi's Genzyme unit.
It's also the first to report on teriflunomide in a direct head-to-head comparison with an established agent. The only other trial to be completed, called TEMSO, evaluated teriflunomide as monotherapy.

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Thursday, May 31, 2012

7T MRI: New Vision of Microvascular Abnormalities in Multiple Sclerosis




Abstract

Background

Although the role of vascular pathology in multiple sclerosis (MS) lesions was suggested long ago, the derivation of these lesions from the vasculature has been difficult to assess in vivo. Ultra-high-field (e.g. 7T) MRI has provided an imaging tool for assessing vascular involvement in MS lesions due to markedly increased image resolution and susceptibility contrast of venous blood.

Objective

To describe the perivenous relationship of MS lesions on high resolution and contrast 7T MR susceptibility sensitive imaging.

Result

We demonstrate markedly enhanced detection of unique microvascular involvement that is associated with most of the visualized MS lesions with abnormal signals on and around venous wall on 7T as compared to 3T MRI.

Conclusions

These findings, which have never been shown on conventional field of MRI, not only allow for direct evidence of vascular pathogenesis in MS in vivo, but have important implications for monitoring lesion activity and therapeutic response.

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Multiple Sclerosis: 'There is no individual MS gene'




MS GeneticsAround 10,000 people in Austria suffer from multiple sclerosis (MS). It is a disease whose exact cause remains unclear. “It is very likely due to a combination of genetic and environmental factors. But there is no individual 'MS gene’”, said Karl Vass from the University Department of Neurology at the MedUni Vienna to mark the occasion of International MS Day on Wednesday.
In two studies which featured considerable involvement of the MedUni Vienna, the role of the MHC gene has now been confirmed in the development of multiple sclerosis, and it has been discovered that the diagnostic procedures used for adults are also effective for children.
Multiple sclerosis in children is rare. Five per cent of all cases of MS start at a very young age. It is usually teenagers who are affected. Says Vass: “This may be due to the development of autoimmunity during puberty.”
In a multicentre study led by Barbara Bajer-Kornek from Karl Vass’s team, 50 young MS patients were investigated at the time their disease first manifested itself. It was found that the diagnostic procedures used for adults, such as MRI scans, cerebrospinal fluid analysis or electrophysiological investigations, also yield good results in young people and that consequently “off-label” drugs - with the doses for adults calculated appropriately for children, since there are usually no studies involving such drugs - are the right way forward, says Vass.
A timely diagnosis generally has a very important role to play in the treatment of multiple sclerosis. Says Vass: “The earlier we are able to establish a diagnosis of MS, the more effectively we are able to respond and draw conclusions regarding the right treatment.”
Read More - when the page opens, scroll down to the article of the same title found with this posting

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AMPYRA Web Seminar



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This presentation is not medical advice or an attempt to provide medical advice. Talk to your healthcare provider to determine if AMPYRA is right for you.

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June Web Seminar Schedule
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Thursday, June 14, 2012
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7:00 PM EST
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Randall Schapiro, MD
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Register Now
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9:00 PM EST
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Mark Cascione, MD
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Register Now
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See the complete schedule

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Why attend?
AMPYRA seminars are designed with you in mind. They bring you accurate information about AMPYRA from a multiple sclerosis treatment expert, and give you an opportunity to get answers to questions that you may have about this unique MS medication.
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Attending is easy!
All you need is access to the internet or a telephone. When you register for the date and time that is convenient for you, you'll receive a confirmation email with simple instructions on how to attend the seminar of your choice.
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An Israeli team has made medical history with its ability to transform skin stem cells from heart-disease patients into healthy heart tissue


This article has NOTHING to do with MS, but still can give us hope for stem cell treatments

Be still your beating hearts: Making medical history, scientists from Israel have been able to transform human stem cells from older diseased patients into brand-new, healthy, beating heart tissue.
This could mean that heart disease might someday be repaired by using cells from a person’s own body, eliminating the need for risky surgical implants and transplants.


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Wednesday, May 30, 2012

Is MS Fatigue the Same as Chronic Fatigue?


A: 
Fatigue is a nearly universal symptom of multiple sclerosis, occurring in at least 80 percent of people. This symptom can significantly interfere with your ability to function at home or at work. In fact, fatigue represents a major source of disability in MS and is one of the main causes of early departure from the workplace. It is also important to realize that disabling fatigue can occur even in someone who does not have an obvious or substantial physical disability.
Although there are many factors that may contribute to fatigue, the cause of MS fatigue is currently unknown. Common contributors include medical conditions such as depression, thyroid problems, or anemia, as well as side effects of various medications, inactivity or deconditioning, and obesity.
Chronic fatigue syndrome is a “syndrome,” or collection of symptoms, that is completely unrelated to multiple sclerosis. It is characterized by overwhelming fatigue and other symptoms, typically including problems with concentration, muscle aches, and headache. Although there is similarity in some of the symptoms that affect people with MS, these are two separate disorders.
Generally, the best way to treat MS fatigue is by approaching the problem in a comprehensive fashion. Learning to meter out your energy and pace yourself is at the top of my list and is one of the biggest challenges in MS. However, this is one of the best ways to conquer MS fatigue. Learning to conserve your energy and stay cool go hand-in-hand with this, as does an appropriate exercise routine based on your own level of functioning.
It is clearly important to treat any of the other problems that may be adding to your fatigue – anemia, hypothyroidism, or depression. In addition, some people with MS are fatigued, in part, because their sleep cycle is disrupted by frequent waking at night to urinate, painful night spasms or spasticity or sleep apnea. If you’re not sleeping well, that will certainly contribute to daytime fatigue!
Learn More - Click here

Source: Everyday Health

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The Role of Cognitive Intervention in the Shaping of ...



International conference on
Brain and Cognitive intervention
More information in the site:
        (The information is available in German, French & Spanish too)


CLICK the ABOVE to Read more





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News from the MS Foundation on Medicare, Vitamin D and Genetic Research and more..



News from the MS Foundation:


Help Protect Medicare – American families and people who rely on Medicare and/or Medicaid have much at stake in the Supreme Court's decision on healthcare reform. The Ryan/Republican budget (which includes repeal of Affordable Care Act, or ACA ) aggressively slashes critical programs including Medicaid and would transform Medicare into a voucher program. If ACA is repealed, or the Ryan/Republican budget is implemented, millions more will go without access to health coverage and care.

To get involved visit: http://salsa.democracyinaction.org/o/777/p/dia/action/public/?action_KEY=7255


Check Facts Before You Lend Your Voice – News and media these days seem to be more interested in sensationalism, than facts. If your gearing up to work for a cause, or just heard something that made you wonder, there is a site that actually fact checks. They are a “nonpartisan, nonprofit” consumer advocate for voters that aims to reduce the level of deception and confusion in U.S. politics.

Visit and research: http://www.factcheck.org/


MS Trial Alert: Differential Hippocampal Vulnerability as a Mechanism for Major Depression in MS –  A California-based trial to determine if similar patterns of brain changes are found in people with depression alone and people with depression in combination with MS to help target therapies to address depressive symptoms of MS.

If you are in CA, contact: Julie Pham, (310) 423-8041


MS Trial Alert: Trial of Vitamin D Supplementation Recruiting People with Relapsing-Remitting MS – Investigators at several centers nationwide are recruiting 172 people with relapsing-remitting MS to compare the effectiveness of the current recommended amount of vitamin D supplementation versus high dose vitamin D supplementation at reducing MS disease activity.

To learn more about the enrollment criteria for this study, and to find out if you are eligible to participate, please see: http://www.clinicaltrials.gov/ct2/show/NCT01490502, or e-mail vitamindtrialms@jhmi.edu.  


DNA Bank for MS Genetic Studies – The DNA Bank at the University of California at San Francisco (UCSF) for many years. This bank is feeding many of the genetic breakthroughs happening today. The UCSF Multiple Sclerosis Genetics Group is among the foremost teams in the world seeking to understand the genetic basis of MS. A large number of participants are needed to accelerate discovery. The bank provides resources not only for the UCSF team’s research, but also to other collaborating teams.

Get involved: http://neurology.ucsf.edu/msdb/index.html



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Magee Rehabilitation Hospital in Philadelphia




Magee Rehab is one of the nation’s top-ranked rehabilitation hospitals. The General Rehab Program at Magee provides comprehensive rehabilitation to individuals with a wide variety of conditions, such as Multiple Sclerosis and functional decline secondary to prolonged medical illness and hospitalization. The Rehabilitation Team in collaboration with the patient and family establishes rehabilitation goals unique to the needs of each individual patient. The focus of rehabilitation care is to stabilize and improve medical status, increase functional capacity and independence in activities of daily living. The General Rehabilitation Program services are available in a variety of settings, including inpatient, outpatient and Day Rehab.

Magee offers its MS patients case management services designed to assist them in navigating the healthcare environment. Many issues outside of a patient's medical care can impact the patient's ability to maximize progress towards achieving independence. The Case Management department will help coordinate all services needed to arrange for therapy, assist in financial matters and educate patients and families on their disability. Additionally, Magee patients and family members take part in a variety of educational activities to learn about their injuries and illnesses. Patients learn what to expect from life at home with a disability, how to care for themselves and prevent complications. The patient and family learn how to support each other; they learn problem-solving skills; and they learn how to become advocates for their healthcare rights. Magee provides a wealth of expertise that is accessible to the patient and family throughout the patient's life.

Because rehabilitation is a process that continues throughout each person's lifetime as personal goals and lifestyles change, Magee's Lifetime Follow-Up System of Care provides patients and families with continued access to rehabilitation physicians and a team of expert rehabilitation professionals. This team provides a variety of services to help patients regain or maintain their level of physical function and good health.

See more by clicking here http://www.MageeRehab.org

  
Kimberly Shrack, M.S.
Social Media & PR Manager
Magee Rehabilitation Hospital
1513 Race Street
Philadelphia, PA 19102




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Slideshow: A Visual Guide to Multiple Sclerosis



Learn more of Multiple Sclerosis when watching this Visual Guide which will help you to better understand the illness.

Click here, sit back, watch and listen




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World MS Day: Working Towards A Brighter Future


Today (May 30th) is World MS day (WMSD), an annual global awareness raising campaign for multiple sclerosis - a debilitating disease which affects the lives of more than two million people around the world. 

In the run-up to WMSD, patient advocacy groups from twenty countries met last weekend in Zurich, Switzerland (May 24th) at a unique Patient Summit which brought together MS societies, activists, MS bloggers and social media experts to learn from each other about how to communicate the challenges of living and working with MS to a wider audience.

MS is the leading cause of neurological disability among young and middle-aged adults. 

Symptoms usually start between the ages of 25 and 31 - a time when adult life is just beginning, when careers are being launched and when plans are being laid for the future. One of the most devastating consequences of MS in this relatively young population is unemployment. A key objective of the Patient Summit was to debate how best to convince employers and policy makers that helping people with MS to remain actively employed is good for both patients and for society.


Continue Reading


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Tuesday, May 29, 2012