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CHAMPIONS TACKLING MS - AWARDS Dinner, Honoring Aaron Boster, MD and Jon e. Glaser, DDS - now open for registration. Visit www.events.msvn.org

Saturday, July 7, 2012

Researchers testing sunlight for MS cure



New Zealand researchers are testing the hypothesis that sunlight can cure multiple sclerosis, a debilitating condition on the increase around the world, especially in colder climates.
MS is three times more prevalent in Otago and Southland than in the North Island, with a rate of 134 incidence per 100,000 people as opposed to 73 per 100,000 nationally.
This latitudinal trend is reflected throughout the world.
A world-first trial will test the long-held theory that a lack of vitamin D contributes to the prevalence of MS. It will track up to 300 people from Australasia, including up to 100 from New Zealand, who display early symptoms of MS, for two years.
Deborah Mason, a Canterbury-based neurologist who is running the New Zealand side of the study, said some of the subjects would be given vitamin D and others a placebo.
"There are probably a whole lot of things, both environmental and genetic, that come together to cause MS. But we think maybe if we can supplement people's vitamin D, improving one factor, then maybe the threshold won't be reached."


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New, Low-THC Marijuana Should Relieve Pain Without the High


Marijuana, long known as a recreational drug, has earned some respectability with its growing reputation as a pain reliever for those who suffer from cancer, multiple sclerosis, and other ailments. And now, cannabis’s seedy reputation may go entirely to pot: a new strain called Avidekel preserves the drug’s medical properties but does not get users high.


READ MORE


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Honey Bee Therapy for Multiple Sclerosis(MS)


We all have options and I have been asked to provide the information for this alternative therapy.
Read and decide for yourselves, as I am simply the messenger of information.

Honey bee's sting could be used to treat many neurological illnesses including multiple sclerosis (MS). MS is neuron degeneration disease in which mylien sheath around the neurons can be attacked and causes that the messages from the brain not to reach correctly the corresponding muscle. 


Having myelin can speed up sending messages 80 times more, due to this degeneration or mylien loss, movement will be disrupted and in extreme cases due to high attacks and tremors, balance will be lost and disabilities may occur. However, chemical and conventional MS drugs might be used to help a patient, slower the disease progression for 40 percent. The medicines which never cure are generally 3 types: 1. Interferon Beta 1a, 2. Interferon Beta 1b, 3.accetate acid and other kinds of medicines. There are other kinds of medicines like Tysabri, Novanterone which kills white blood cells and shortly a patient feels revealed which may cause blood cancer and progressive multifocal leukemia. T- Cells are parts of white blood cells which fight with an infection but in case of MS they attack brain nerves and cerebellum that the message from brain cannot be reached correctly to the organ and this causes disability. 


Read More




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Friday, July 6, 2012

The Fight MS with Food project



The Fight MS with Food project exists to explore the link between undiagnosed food sensitivities and multiple sclerosis.
While current medical research focuses on finding a magic drug to cure MS, this new approach theorizes that by avoiding the immune response caused by Type IV hypersensitivity reactions to certain foods, MS sufferers will be able to avoid triggering the debilitating MS symptoms caused by aberrant immune responses.
multiple sclerosis caused by food sensitivities
Watch the Fight MS with Food video to learn more! ((SEE BELOW))
 MS patients enrolled in the program will receive blood testing to determine food sensitivities, along with personal dietary management and customized menus and recipes.
The goal is to collect statistical data as to the efficacy and validity of the theory and program while giving enrolled MS patients immediate relief from symptoms and a decrease in inflammatory activity.

Geographic location is not an obstacle to joining the project, with the only restriction being the ability to send a package overnight to Florida.
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To learn if you are an appropriate candidate to enroll in the Fight MS with Food projectcontact the director, Elizabeth Yarnell



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Wednesday, July 4, 2012

Ann Romney opens up about living with MS



Mitt Romney's wife says that multiple sclerosis, a debilitating autoimmune disorder, used to make her feel as though Pac-Man was attacking her — from the inside



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Tuesday, July 3, 2012

Botox Injection May Still (relax) MS Tremor



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MS (oral) Drug Slows Inflammation of Brain



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Monday, July 2, 2012

Lemtrada™, Another MS Drug Application Submitted for FDA Approval



Applications for Lemtrada™ (alemtuzumab), a potential therapy for MS, have been submitted by Genzyme Corp. to both the U.S. Food and Drug Administration and to European regulators. The potential MS therapy for relapsing MS is already approved to treat leukemia under the name Campath®, and Genzyme executives called results from a second Phase III trial for Lemtrada, released earlier this year, “unprecedented.” 


Genzyme's clinical development program for Lemtrada included two Phase III studies in which results for Lemtrada were superior to Rebif® (high dose subcutaneous interferon beta-1a) on clinical and imaging endpoints, including a reduction in relapse rate. In addition, as presented at the 2012 American Academy of Neurology meeting, some patients with pre-existing disability treated with Lemtrada in the CARE-MS II trial were more than twice as likely to experience a sustained reduction in disability over two years than patients treated with Rebif.

Side effects of Lemtrada include potential autoimmune illnesses, including thyroid disorders and disorders in which the immune system attacks blood platelets, which can cause bleeding. 



The drug is given by daily infusion for five days, and then daily infusion for three days, 12 months later.



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Caregiver Studies pertaining to those affected by MS


Information found below was sourced from the MS Foundation



Caregivers of Spouses/Partners with MS Study – Researchers at the University at Albany, SUNY are recruiting anyone who is the spouse/romantic partner of someone with MS to learn more about these special caregivers. Spouses/partners of someone with MS who provide any care, and can take a brief, anonymous survey are eligible. The survey will take about 40 minutes to complete. Participants can enter to win a prize. Participation may ultimately help to explain how MS affects couples and lead to improved support for spousal/partner caregivers.

Call 518-442-4684 or e-mail arivers@albany.edu with any questions or to take the survey over the telephone. To take the survey Click here.




Young Caregivers Study – An investigator at Towson University is conducting a research study investigating the effects of early caregiving experiences on adult mental and physical health. Individuals recruited for this study are U.S. citizens aged 18 years or older who have provided hands-on care (i.e., bathing, dressing, feeding, medications, etc.) to a  parent or adult relative when the caregiver was under 18 years old, or is currently caregiving for a parent or adult relative while between the ages of 18 and 25. The study requirements include a three-minute phone or email interview to determine qualifications, and, for those who qualify, a packet of questionnaires on early caregiver experiences, and adult mental and physical health, which is mailed to participants' homes. Participants will be compensated for completing the questionnaire packet.

For more information or to participate, contact Dr. Kim Shifren at 410-704-6239 or email kshifren@towson.edu.






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Vocational Accommodations and MS



Vocational Accommodations and MS – Investigators at the University at Buffalo are conducting an online longitudinal survey of individuals who have MS and are currently working. The goal of this research is to help patients identify possible vulnerabilities that may create employment problems. 

In this survey, participants will be asked about their work activities and problems they may have encountered. The entire survey will take less than 15 minutes to complete. For further information, please contact mscogsur@buffalo.edu.

To take the survey Click here .




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Sunday, July 1, 2012

(OMG - did she really say this?:) Sharon Osbourne says: "I Won't Let My Son Die."


the message fund below was written by an MS Patient to People Magazine (and to Sharon Osbourne)



To:People Magazine
Att:Editorial Letters Dept.
Fr: Debbie Serating

I am writing to express my shock and disbelief upon receiving your recent publication referenced above, with the headline screaming " I Won't Let My Son Die." 

Sorry,Sharon,it's not up to you. Bad news, your son Jack has been diagnosed with a degenerative and unpredictable autoimmune disease. Good News: It's not an inoperable brain tumor.

It's multiple sclerosis.
Yup,MS.So there's hope yet.

I realize that while melodrama sells magazines,it is also People's responsibility to be somewhat factual,and therefore it is a contemptible act of greed and a misconception to display Mrs.Osbourne's obvious lack of knowledge and fear of MS-it's not a fatal disease,but a chronic illness-in such a negative manner.Those unacquainted with MS such as yourselves,celebrities and the entire reading public, will now be misled into thinking that being diagnosed with MS is an unbearable burden,on par with receiving a death sentence.

Bravo to People magazine,for helping to spread Sharon's fear and misinformation about this disease among your readers.As someone who has lived with MS since being diagnosed in 1998(my initial symptoms were almost identical to Jack's,but since his is the remitting/ relapsing version,he will hopefully have a milder,less progressive experience),I know how difficult it is to remain positive and hopeful,so it is disheartening not just to me and my fellow MS sufferers(including my own brother) to witness this lack of sensitivity on your part.(FYI, less than 5% of those initially diagnosed with MS have severe forms of this disease,which may lead to dire complications in the first five years;Jack has the mildest,most benign type of MS,with his temporary loss of vision-- vs.weakness or loss of balance and coordination--a key factor in determining the path of his illness).

Every case is different,everyone is unique.Which is not to say that Jack doesn't face a challenge ahead of him, but at least his will be lifelong,not swift and deadly as his mother,and your publication,would have people believe.






Please leave your opinion to this blog posting

Stuart "applauds" Debbie for writing this letter -- CLAP -CLAP




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