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Thursday, December 26, 2013

"What's the skinny on being treated with your own stem cells here in the USA?"

"FACT...the MS disease community in particular, finds itself at the top of the list to become medical tourists in other countries. Why is this?"

Written by Jennifer Ziegler – a Member at PatientsForStemCells.org Grassroots advocate for Multiple Sclerosis and Adult Stem Cell

The only cell type that is currently in use in clinical trials for MS is autlolgous bone marrow transplants used in Dr. Burt's study at Northwestern, http://www.youtube.com/watch?v=yi49gJkuRlQ
and MSC NP (Mesemchymal Stem Cells Neural Progenitor) used in the new study at the Tisch Center for MS, with Dr. Cox. You may have heard about the Tisch study recently as Meredith Viera's husband is a participant. http://www.examiner.com/article/dr-oz-discusses-meredith-vieira-s-family-health-battle-and-stem-cell-research

Other than those 2 studies that's it! ESC never paned out even after millions of dollars were pumped into their development, and they are also known to be tumorigenic. iPC cells are 10 to 15 years out. We believe iPC cells do show promise and will probable be extremely useful at some point in the future, but "no option," patients don't have time to wait. What were seeing, in the MS online communities over the past 10 years is a migration for treatment to overseas clinics. These are the success stories we are hearing about. Thanks to social media ALL disease communities are very well connected today. FDA drugs have proved to be lacking, and stem cell success stories are an exciting reality.

Those of us who have had treatment share the good, the bad and the ugly with each other. We share success and failure. Not everyone has the same level of recovery, that's just fact. We are seeing that early treatment is key. Younger stem cells prove to be more viable. We have an uphill battle here in the US, there's no doubt, but our PFSC group is making waves. Our member Micheal Phelan spoke at the Workshop of the Institute of Medicine of the National Academies: Stem Cell Therapies – Opportunities for Assuring the Quality and Safety of Unregulated Clinical Offerings, that was held on November 18, 2013 at the National Academy of Science Building in Washington, DC. http://www.cellr4.org/article/592  

Mike did an amazing job presenting our view point. It's well worth the time to read his summary. Forbes also did an article featuring Mike earlier in 2012. http://www.forbes.com/sites/johnfarrell/2013/02/21/one-mans-reluctant-tour-for-adult-stem-cells/

Mike and SammyJo are our awesome public speakers and can very eloquently get our view point across on various patient panels. SammyJo spoke on the patient panel at the Houston Stem Cell Summit, along with Chairman Hardcastle, former Texas House of Representatives member and PFSC member. Honestly the entire stem cell community has never had a group of patients speek up as loudly as we are doing. I also highly recommend that you listen to, "The History Of FDA Control Of Your Body." http://www.patientsforstemcells.org/home/ 

This is really where it all began. I've gotten a crash course in adult stem cells over the past 18 months! Never in million years did I think I'd be caught up in a fight for the right to be treated with the cells from my own body. I will leave the country to gain access to be treated with my cells in the future, and until this changes so will everyone else that I know.

Comment here at this blog posting if you want to message Jennifer

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1 comment:

Jennifer Ziegler said...

I wanted to add an additional link to the Cleveland Clinic adult stem cell trial for MS patients using autologous bone marrow cells. http://my.clevelandclinic.org/media_relations/library/2011/2011-08-23-cleveland-researchers-collaborate-to-launch-phase-1-clinical-trial-for-new-multiple-sclerosis-treatment.aspx#!