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Disclaimer: 'MS Views and News' DOES NOT endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.

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CHAMPIONS TACKLING MS - AWARDS Dinner, Honoring Aaron Boster, MD and Jon e. Glaser, DDS - now open for registration. Visit www.events.msvn.org

Friday, July 12, 2013

IMPACT of MS on the Family plus Treatment Options

LAST date to RSVP for this Tampa program is Tuesday - July 16, 2013





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New Brunswick doctors want government to stop funding liberation for MS patients

The Canadian Press

FREDERICTON - The New Brunswick government should stop spending public money on so-called liberation therapy for multiple sclerosis patients because those funds could go to more effective treatment, the New Brunswick Medical Society says.
The society said Friday that the government should immediately suspend a fund it set up two years ago to help people with MS in New Brunswick pay for the treatment abroad.
The group's president, Dr. Robert Desjardins, said recent studies have shown liberation therapy doesn't work for the majority of patients. He said the money set aside for the New Brunswick program would be better spent on clinically effective treatment.
"We think MS patients would benefit more in having this kind of money invested in helping them with physiotherapy or other ways to improve their life," he said in an interview from Bathurst.
Desjardins said the government did the right thing in 2011, but its policy has to change, given the latest evidence.
"If I had such a terrible disease ... I would try to get hope with anything," he said. "(But) we said back then there was no proof of its efficacy. It was more anecdotes. ... I'm not criticizing the fact that the government wanted to help our population. People needed hope, and they needed help."
Desjardins said 82 people in New Brunswick took advantage of the program and travelled abroad for treatment. The total cost of the program was just over $200,000.
The doctor, who practises in Bathurst, said the society is offering to meet with provincial officials to provide clinical advice.
The group represents 1,600 doctors in the province.

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Multiple Sclerosis and Social Security Disability Insurance


Here is an explanation of Social Security's five-step process to determine if an MS patient qualifies for SSDI:

1.  Determine if an individual is "working (engaging in substantial gainful activity)" according to the SSA definition. Earning more than $1,010 a month as an employee is enough to be disqualified from receiving Social Security disability benefits.


2.  Conclude the MS disability must be severe enough to significantly limit one’s ability to perform basic work activities needed to do most jobs. 
  • Walking, standing, sitting, lifting, pushing, pulling, reaching, carrying or handling
  • Seeing, hearing and speaking
  • Understanding/carrying out and remembering simple instructions
  • Responding appropriately to supervision, co-workers and usual work situations
  • Dealing with changes in a routine work setting

3.  MS is listed under the category of impairments known as neurological. There are several ways to satisfy the listing criteria for MS:
  • Significant and persistent disorganization of motor function in two extremities, resulting in sustained disturbance of gross and dexterous movements or gait and station
  • Visual impairments with either best corrected vision in the better eye of 20/200 or less, marked contraction of peripheral visual fields to 10° or less from the point of fixation or visual efficiency in the better eye of 20% or less
  • Organic mental disorder with marked restrictions
  • Significant, reproducible fatigue of motor function with substantial motor weakness on repetitive activity, demonstrated on physical examination, resulting from neurological dysfunction in areas of the central nervous system known to be pathologically involved by the multiple sclerosis process. For example, an individual requiring assistive devices to ambulate secondary to MS would be a listing level impairment.
Continue to read, from the MS Views and News website
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NESS L300 Foot Drop System

Overview:

DESCRIPTION
This animation video shows the Mechanism of Action (MOA) of the Bioness L300 Foot Drop System. The L300 helps people with foot drop (drop foot) caused by damage to Central Nervous System (CNS).

TAGS
Bioness, L300, footdrop, dropfoot, foot drop, drop foot, mechanism of action, MOA, central nervous system, CNS

TRANSCRIPTION
OPENING SLIDES

Bioness

NESS L300 Foot Drop System

NARRATOR

The system consists of three main components. A Functional Stimulation Cuff, a Control Unit, and a Gait Sensor, all of which communicate wirelessly, eliminating the need for troublesome, externally worn wires and connectors, making the system simple and easy to use.

While walking, the Intelli-Sense Gait Sensor detects gait events and transmits wireless signals to synchronize the electrical pulses delivered by the RF stem unit. These pulses activate the nerves, stimulating the muscles that cause the foot to lift off the ground during the appropriate time during gait. The miniature control unit allows simple operation while displaying real-time information regarding the system’s status.


VIEW VIDEO of this L300  ON YOUTUBE
http://youtu.be/A2xBlI5t47I


SOURCE: BIONESS




Tuesday, July 9, 2013

Hospital taps therapeutic robots for patients

osted on 07 Jul 2013 at 11:24pm
Experts used to think that when a region of the brain is damaged, its function is lost forever. However, new studies revealed that the brain can reorganize itself after injury so that when nerve cells die, their functions are taken over by other cells.
Neuroplasticity is the principle behind CSMC’s revolutionary robotic technology
This is the principle behind neuro-plasticity which is also the science behind the ground-breaking In-Motion Robotic Therapy — a revolutionary technology that helps patients relearn arm movements that were affected by stroke.
Cardinal Santos Medical Center (CSMC), located in Greenhills, San Juan, recently introduced the first In-Motion Robotic Therapy in the country. This breakthrough medical technology provides rehabilitation treatment for stroke survivors and patients with spinal cord injury, multiple sclerosis, cerebral palsy, and other neurological conditions.
CSMC Department of Rehabilitation Medicine chair Dr. Ofelia Reyes said the In-Motion Robotics is a cost-effective therapy because of its intensive nature such that results can be seen in a shorter period of time compared to standard stroke rehabilitation treatments.
“And as proven by actual cases of our patients, the effects are long-term and longer lasting. The treatment gives stroke and other neurological patients new hope for a better quality of life,” she said.
The rehabilitation expert cited the experience of 26-year-old Stephen Escalante who suffered from spinal cord injury. After undergoing six months of In-Motion Robotic therapy, he felt significant improvements in his arms.
“My arm became more flexible and stronger. It was a big help because no occupational or physical therapist can move my arm with that range for 960 times,” he shared.

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CNN’s Dr. Sanjay Gupta Profiles BalanceWear® to Resolve Multiple Sclerosis Instability Issues

BalanceWear success is based on Balance-Based Torso Weighting® (BBTW®)
ATLANTA--()--In May, CNN’s Dr. Sanjay Gupta profiled Steve Ofca, a father living with MS. Ofca was finding it difficult to walk or sit without having balance issues. Even worse, when he attempted to sit, he ran the risk of falling. His biggest challenge, however, was easing his daughter’s insecurity as she watched him suffer from his unsteadiness.
“What’s going on with you man? Are you drunk?”
Ofca’s use of the BalanceWear stabilizing garment has been profound and provided him with confidence. Dr. Gupta profiles Ofca’s story and the BalanceWear stabilizing garment he uses. It was fitted by physical therapist, Dr. Stephen Kanter with empowering results.
Following is the transcript of Dr. Gupta’s Everyday Health program featuring BalanceWear. You can view the video online at Everyday Health.
[Transcript]
Dr. Sanjay Gupta: It’s tough being the father of a teenage daughter. You know that little girl who once adored you, now seems to be embarrassed by you. It’s even tougher, though, if you have a disability that affects how you walk, and how you talk. Steve Ofca said that was the hardest part about living with MS. He worried about how it was affecting his daughter. But he found a surprising way to reduce those symptoms and it was as easy as slipping into a shirt. A few years ago, Steve Ofca could not have walked down the street with his daughter, Alice.
Steve Ofca: It gets old when people keep saying to you, “Why are you walking so funny,” or “What’s going on with you man? Are you drunk?” You know.
Dr. Sanjay Gupta: He couldn’t do this either [sitting in a chair]. Sitting down meant basically falling down. His physical therapist, Dr. Stephen Kanter, demonstrates what he used to do.
Dr. Stephen Kanter [demonstrating]: This kind of sitting is indicative of loss of control, loss of coordination and loss of balance.
Dr. Sanjay Gupta: The transformation from this [no vest]…to this [vest and more stability]…all thanks to this simple vest.
Steve Ofca: This is my BalanceWear vest and it’s calibrated with weights. Dr. Kanter gave me weights up on my left shoulder and also on my right side.
Dr. Sanjay Gupta: Those carefully placed weights somehow restores his stability.
Steve Ofca: I can’t explain it, all I know is that it works and it makes me…it makes my life… the quality of my life so much better.
Dr. Sanjay Gupta: Dr. Kanter can’t entirely explain it either.
Dr. Stephen Kanter: You would think it shouldn’t work. It wasn’t about weighting them in the opposite direction they were falling; it was a matter of putting a weight on them that changed the way their body perceived being in space. It sounds a little bit hocus pocus and if I hadn’t seen what I’ve seen, I wouldn’t believe it worked either.
Dr. Sanjay Gupta: Studies have backed up that it works, but not how it works. Alex was 12 when her father’s symptoms were at their worst.
Steve Ofca: My biggest concern was her being embarrassed by her father.
Dr. Sanjay Gupta: There’s no cure for MS but there’s many more ways to manage the symptoms than there were even a decade ago when Steve was diagnosed and even more are in the pipeline. With Everyday Health, I’m Dr. Sangay Gupta. Be well.
[End Transcript]
BalanceWear, a therapeutic invented by Physical Therapist Cindy Gibson-Horn and manufactured by Motion Therapeutics is designed to counter balance loss in individuals based on Gibson-Horn’s research utilizing Balance-Based Torso Weighting® (BBTW®). It has attracted doctors, researchers and patients suffering balance loss and earned a National Institutes of Health Recovery Grant of just under $400,000 awarded to Samuel Merritt University (SMU) Physical Therapy Professor Dr. Gail Widener, PT, and Dr. Diane Allen at San Francisco State University to continue research into Balance-Based Torso Weighting (BBTW) and its effects on Multiple Sclerosis (MS) mobility challenges. The first phase of the study validates previous research funded by the National MS Society demonstrating same session improvement in walking.
For more information on BalanceWear, visit www.motiontherapeutics.com

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Monday, July 8, 2013

StuMS Radio on Blogtalk Asks you for topics that you want us to explore


Being so many have different needs and wants, we are asking You, our audience, to let us know MS topics that you want to learn more about, via our blogtalk radio program

Providing this information to us, will enable us to disseminate this wanted information by the MS patient OR Caregiver

PLEASE POST A COMMENT to THIS BLOG posting by clicking the link found below, to comment -- Tell us the topics you want to hear

To find this blog posting, click here

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Blog Comments are appreciated

In this day and age, when so many are using Facebook, we find that many are commenting to our blog articles, but they are commenting only on Facebook or Twitter.

So, when a person writes a comment such as the one shown below, we want to share with you and hope that others will leave comments or questions to our articles and to leave those comments right here on our blog site.

So here is a comment from Tina:

Tina B  has left a new comment on your post "MS Presents Differently Among Family Members":

I forwarded this post to my siblings. Our Mother had MS for 13 years. She stayed the same for a few years then progressed very quickly and passed away. We are always following the news and hope for a cure someday..


Your blog has been a useful tool in helping us keep up with the latest. Thank you!




Thanks again Tina

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