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Disclaimer: 'MS Views and News' DOES NOT endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.

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Saturday, December 28, 2013

Reducing Stress Part II: Get Out Of Your Head, Create A Scrapbook -

by Laurie Erdman



The greatest source of stress in our lives is work. But unless you win the lottery (I hear you have to play to win), work is inevitable. That means stress is inevitable.

I heard it said that no one dies of a snakebite. They die of the venom. The same could be said of stress. No one dies of stress, but they die from their reaction to stressful events.

Last week I introduced you to step one of my three-step formula for relieving stress naturally. I hope you dove right in and started implementing. This week, I’m sharing the final steps in the formula.

Step Two: De-Stress Your Mind

When I ask audiences the question, “What is stress?” I typically receive answers such as “deadlines,” “traffic,” “over-commitment,” “not enough time,” and even “having to deal with “stupid” people.” These answers suggest that many of us believe stress is something that happens to us. In reality, stress is merely our response to all those external factors.
The stress response is a function of our autonomic nervous system’s flight-or-fight response. Specifically, stress is triggered by a thought or belief that we are in danger — our body then goes into overdrive producing cortisol and adrenaline to help us get out of danger as fast as possible.

In modern life, we spend far more time engaging this stress response than we do engaging our relaxation response. This has serious consequences for our health, as too much stress can accelerate the aging processsuppress our immune systems and leave us feeling fatigued and depressed

The key takeaway here is that stress begins in our minds via a thought or belief. Thus, it’s important to neutralize stress by fueling our minds with more positive, happy, gratitude-filled thoughts in order to trigger our stress responses less often.

Stress-Relieving Tips for your Mind

  1. Cultivate gratitude. We are going to have things go wrong in our day. It’s inevitable. We can take the sting out of these negative events by focusing on what’s great in our life. A gratitude practice will help you focus. Each evening, write down three things you are grateful for. They can be as simple as seeing a gorgeous sunrise to being complimented on your new shoes.
  2. Meditate regularly. A consistent meditation practice — even if it’s only five minutes a day — may help lower blood pressure, and can help us control the thoughts that can trigger stress. The next time you get stressed because your boss just added another task to your already overflowing to do list, stop and take a breath. Shake out your body, sit back down and meditate for 5 minutes.
  3. Learn to say no. Being overbooked, worked and committed will lead to stress. We often feel obligated to say yes to everything for fear we won’t be liked. The greatest act of stress relief is exercising your right to say no. You can explain to others that you are overcommitted and you just must say no. And yes, you can even tell your boss no, just explain that one more project will mean the quality of your work will drop. Negotiate priorities.

Step-Three: Don’t Lose Sight of Your Purpose

Each of us is more than the work we do. We are creative, in relationships, spiritual beings, and passionate. Connecting with our whole selves by fueling our sense of purpose is the keystone for less stress and more happiness.

“What’s that?” you say? What is purpose and what does it have to do with stress? As I’ve written before, purpose can be thought of as a person’s calling in the world — but it’s really broader than that. It encompasses everything from meaningful work to relationships to the hobbies that brings us joy and meaning. Purpose is the expression of our own unique spirit.

When we starve our purpose — by not engaging with our work, suppressing our creativity, or ignoring our relationships (including the one with ourselves) — we trigger our stress response. When our life is full of nothing but work and obligations, we begin to get bitter, resentful, depressed, and even angry. Fueling all facets of our life is the antidote and gives us even more for which we can be grateful.

Stress-Relieving Tips for Your Purpose

  1. Re-attach to your relationships. When we’re working crazy hours, we can find ourselves detached from our relationships. Each week, schedule some time with a loved to just be together, hang out, and laugh. No work talk allowed, and no checking the Smartphone. Disengage from work and reengage with those that matter.
  2. Get creative. Remember how much fun you had as a kid doing crafts. You might have stopped because your last creation wasn’t perfect. Or you didn’t have the time. Carve out some time to be creative and tap into your inner kid. Creativity can be cooking dinner, handwriting a card to a friend or creating a vision board. Get out the scissor and glue stick and just play.
  3. Get spiritual. It’s human nature to seek connection to a higher power, however that may look for you. There’s even evidence that we are hard-wired for spirituality. Yet when we are overworked and chronically stressed we can forget about our place in the bigger picture. Connecting with your spiritual roots through prayer, meditation, chanting or other forms of spiritual ritual is an excellent way to get perspective on what’s stressing you and relieve that pressure.
  4. Managing Workplace Stress: The Takeaway

We cannot eliminate or escape stress at the workplace. It is a fact of modern life. Yet we can neutralize stress in all areas of our lives by fueling our lives with meaningful actions, thoughts, and beliefs. We all deserve to live a happy, contented life. It’s never too late to start making yours.

How will you relieve stress today? Let me know in the comments below.

- See more at: http://www.theignitewellbeinginstitute.com/reducing-stress-part-ii-head-create-scrapbook-pray/#!


Laurie Erdman, JD, MS, CHHC is a speaker, Get More Energy Strategist and the CEO of The Ignite Well Being Institute LLC where she helps companies sustain fast growth by energizing their people. 


To download her FREE book: Burnout. Identify It. Extinguish It. Ignite Your Life visit www.TheIgniteWellBeingInstitute.com. - 





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With 2013 coming to a close, please read...


DEAR ALL - 

Thank you for following what we do, to provide information, education and resources to those affected by Multiple Sclerosis. Many hours go into the development of our education programs, the planning, the day of activities and then the reconciliation of each meeting. 

This year, we began video-recording our programs so that we could archive these as an enduring material making our programs available for anybody with internet access to watch and to learn.

The hours, the time, the video recordings, and many of the programs all take money..  Occasionally we do programs even without grant dollars to do them. 

Private contributions were lower this year than previous years. Sure the economy is still strapping for many. I understand this.

However, I also know that the end of the year is soon upon us and many of you will be making your last minute end of year contributions for tax deductions.

MS Views and News is a 501c3 Not for profit organization. Your contributions to us are tax deductible to the fullest extent allowed by law.

Multiple Sclerosis can effect anybody at anytime. There are no age limits nor religious or ethnic boundaries. There are no fences or borders. 

MS Views and News helps to erect confidence by addressing the need for people to learn about the disease, the medications, symptom management and a variety of other topics relating to Multiple Sclerosis

Consider Your dollars in helping us to help the educate the MS community. Consider MS Views and News for this end of year contribution.

Please Click www.donations.msviewsandnews.org  and donate.
No amount is too small. Help us to help others. 
Donate, Please


Thank You and have a Happy New Year 

Stuart Schlossman 
President and an MS Patient
MS Views and News


















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Friday, December 27, 2013

Help Prevent Flare-Ups

Call it a flare-up, an exacerbation, an attack, or a relapse. Whatever you call it, it's not something you expect. When you have relapsing-remitting multiple sclerosis (MS), you can go days or years without major changes in your symptoms. Then, suddenly, things change.
You'll work closely with your doctor to feel better. You can also reset your schedule to take special care of yourself. Exercise, stretching, and relaxation can help you manage MS symptoms -- and they boost your mood, too.

Symptoms of a True Flare

Here's how to tell if you're having a relapse of MS, when the illness is active again:
  • You develop a new symptom of MS. For example, you’ve never had vision problems before, and suddenly you can’t see clearly out of your left eye.
  • A regular problem gets worse. Maybe you’ve had some numbness in your left leg before, but now you can’t feel anything below your knee.
  • Your symptoms last for 24 hours or longer. A relapse means a change in your brain, called a lesion. "If a symptom lasts less than 24 hours, it’s something transient that’s not related to a new lesion," says Edward Fox, MD, PhD, director of the MS Clinic of Central Texas.
  • Symptoms level off after a while and stop getting worse.
MS flares can last days, weeks, or even as long as a year.
"Then they usually do improve, but recovery can be quite slow," says Bruce Cohen, MD, of the Northwestern University Feinberg School of Medicine. You may recover completely, or you could have some permanent loss of function or sensation.


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MS breakthrough: London researchers have fine-tuned a high-powered MRI to actually measure the amount of damage to that protective sheath

HEALTH RESEARCH

MS breakthrough for Western team



By Jonathan Sher, The London Free Press
London scientists have made a breakthrough fighting the scourge of multiple sclerosis, fine-tuning MRIs to detect the disease before it ravages its victims.
“This could be a real game-changer,” said Dr. Bruce Bebo, who this year will decide how to invest $50 million in research raised by the National MS Society in the United States.
Bebo marvelled Thursday from afar at the work of a London research team headed by Dr. Ravi Menon that’s aimed at what has been an elusive target — finding and treating MS before it causes physical and cognitive ­impairment.
The challenge is especially pressing in Canada, where MS rates are the highest in the world — nine times higher than the world average.
Neurologists have long used MRIs to diagnose MS by showing damage to the protective sheath that insulates the body’s central nervous system.
Now, London researchers have fine-tuned a high-powered MRI to actually measure the amount of damage to that protective sheath —called myelin — as well as the deposits of iron typically found with the disease.
The team from Western ­University perfected the scans first on rats in a study published this month in the journal Proceedings of the National Academy of Sciences.
“It’s a huge step (forward),” Menon told The Free Press.
They then tested it on ­people, and though that study won’t be published until January, ­preliminary data showed that damage might be pinpointed
long before patients are ­traditionally diagnosed, potentially before they had suffered any ill effects.
“It’s really the holy grail, being able to track myelin,” Bebo said.
Though it’s not practical or affordable to screen everyone for MS using an MRI, research is underway to identify those most at risk from the disease. Some day, that work might lead to simpler tests such as a blood test to find those more at-risk who could then be scanned before the onset of symptoms, Bebo said.
In the meantime, more precise MRIs may help people already being treated for the disease with conventional drugs that suppress their immune system — it’s the immune system that attacks the myelin.
That treatment is by trial and error: If patients continue to deteriorate, doctors switch medications. Menon’s MRIs might help doctors switch away from failing medications before the damage occurs, Bebo said.
New research is aimed at reversing the damage to myelin, a task that may deliver even greater benefit if MS is discovered early, he said.
News of the breakthrough brought optimism this week to a Londoner who has grown skeptical over 30 years about “breakthroughs” as he helped his wife and the local MS society.
“It’s been a slow grind to hell,” Bob Sadler said of the challenges faced by his wife Margo and others with the disease. “An early detection system would be great.”
Menon’s team is not the only one seeking a more precise way to find MS and track its course. American researchers at Case Western Reserve University School of Medicine this month published research using a different type of scanner aimed not at the brain but the spinal cord, using gamma rays in what’s commonly called a PET scanner.
Source: lfpress.com


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a FREE WiFi "WARNING" -- Not MS related

Not MS related But Truly IMPORTANT to Know

I obtained this from the State of Florida


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Free Wi-Fi May Cost Your Your Identity

These days, everyone is on-the-go. As a result, free Wi-Fi is now offered in many public places such as hotels, airports and coffee shops. This has made it easier than ever to stay connected while you travel, but not without risk. Most individuals don’t think twice about accessing an open network, even to make a purchase or check a bank balance. However looks can be deceiving and not all Wi-Fi hotspots are legitimate. Fraudulent individuals can set up a real Wi-Fi hotspot in a public area such as a café, with the sole purpose of stealing personal information.
How It Works

Fraudsters set up ad-hoc networks or computer-to-computer networks from a laptop in public areas, particularly airports, to gain access to others’ personal devices. They use labels like "Free Wi-Fi" or "Wireless Connection" to appear legitimate. When using your personal computer or smart phone in a public area, you may choose to connect to the network, not knowing it is not legitimate, or your device may automatically connect. Once the connection is established, a fraudster can see everything you browse online, including personal or financial information. Furthermore, if your computer allows file sharing, attackers can access personal files and data on your computer and may even install malicious software.

Protect Yourself The easiest way to protect yourself from Wi-Fi fraud is to avoid connecting your personal device to any free wireless networks. If you decide to use a free Wi-Fi connection, here are some useful tips to keep in mind:
  • Beware of Evil-twin hot spots. Scammers will sometimes set up a Wi-Fi hotspot near a business that already provides Wi-Fi to its customers. They may even use the same Wi-Fi name as the legitimate internet connection offered by the business in order to lure victims into connecting to their network. If you see two hot spots with the same name, make sure you check the network description of each one. A normal wireless network will simply say "wireless network" - make sure to avoid any networks that say "computer-to-computer" network.

  • Disable automatic connections. Make sure that your computer has not been configured to automatically connect to any wireless networks within your range. Otherwise, your computer may automatically connect to a bogus Wi-Fi network.

  • Set up a Virtual Private Network (VPN). If you regularly access online accounts through Wi-Fi hotspots, use a virtual private network. VPNs encrypt traffic between your computer and the internet, even on unsecured networks. You can obtain a personal VPN account from a VPN service provider. In addition, some organizations create VPNs to provide secure, remote access for their employees.

Source: 
For additional information, contact the Florida Department of Agriculture and Consumer Services at www.800helpfla.com or call 1-800-HELP-FLA (435-7352) within Florida, (850) 410-3800 from outside of Florida or 1-800-FL-AYUDA (352-9832) en Español.




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StemGenex® Offers New Hope for Multiple Sclerosis Patients Offering Cutting-Edge Stem Cell Therapy

StemGenex is now providing access to multiple new stem cell treatment options for patients diagnosed with Multiple Sclerosis. These treatments are being studied with expertise by board certified MD’s in the United States.



La Jolla, CA (PRWEB) November 07, 2013
Currently there is no cure for MS, but stem cell treatment studies like the ones being offered through StemGenex attempt to slow the progression of the disease and limit its symptoms or complications. Since adult stem cells have the ability to differentiate into many different types of cells, such as those required for proper functioning and protection of nerve cells, the use of adult stem cells for MS could be of substantial value.

StemGenex is currently studying ways to more effectively deliver these adult stem cells directly to the areas of the body that need them most. One of these groundbreaking treatments is called intranasal stem cell administration which highlights the potential for a noninvasive approach to cell therapy delivery. This approach poses itself as a much safer and effective alternative to surgical brain transplantation of stem cells. Intranasal administration works by providing mesenchymal stem cells a pathway to travel through the nose to the brain, past the blood brain barrier. It also makes it possible to deliver multiple treatments over time.

Stem cell treatment studies are currently being offered by StemGenex patients diagnosed with Multiple Sclerosis and other degenerative neurological diseases. StemGenex takes a unique approach of compassion and empowerment while providing access to the latest stem cell therapies for degenerative diseases including Parkinson’s, Alzheimer’s disease, stroke recovery, COPD and others. Rita Alexander, founder of StemGenex and the company’s first stem cell patient, insists that all patients be treated like they are one of our loved ones. “Hope, compassion, and the relentless pursuit for an end to these diseases are our primary focus.”

To find out more about stem cell therapy, contact StemGenex either by phone at (800) 609-7795 or email Contact@stemgenex.com



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Thursday, December 26, 2013

Parenting With MS

By                --- Reviewed by Arefa Cassoobhoy, MD, MPH
WebMD Feature

Multiple sclerosis may get in your way, but it can't stop you from being a great parent. You just need to focus on your strengths and learn creative ways to work around your symptoms.

Your condition will shape your outlook and approach to parenting. But don’t think of that as a bad thing.

"Having MS made me a better parent than I would have been without it," says Matt Cavallo, 37, who has known he had MS since 2005. He now has two young boys.

What Can MS Teach You About Parenting?

Know what's important. Living with an unpredictable disease, you understand something about life that most people don't. "Before I had MS, I was someone who worked 15-hour days, my mind always on the next big project," says Cavallo, who is also an author and motivational speaker. "MS makes you aware of how life can change at any time. You learn to focus on appreciating the moment."
Expect the unexpected. MS can teach you to be flexible and adaptable. "Any parent knows that the best possible plans can veer horribly wrong at any moment, because of a meltdown or sick kid," Cavallo says.
Be a role model. "Your kids will understand we all face challenges, but they'll see you succeeding despite them," says Cindy Richman, senior director of patient and health care relations at the Multiple Sclerosis Association of America. "Your example will make them more resilient and confident."

Tips for Parenting With MS

Take care of yourself. Don’t feel guilty about needing downtime and rest. "Tending to your own needs isn't selfish," says Rosalind Kalb, PhD, a clinical psychologist and vice president of clinical care at the National Multiple Sclerosis Society. If you overdo it one day, it could take you a week to recover -- and that's not good for anyone.
Have a Plan B. Your symptoms can act up at the worst times -- like right before a special outing with your kids. Always be prepared. Have a stash of fun stuff you can dip into at home, such as a few unopened board games or a DVD.
Don't hide your disappointment. Your kids are going to be upset when you have to cancel plans. Let them know that you're disappointed, too, Kalb says. They'll see how important it is to you. Reassure them that you'll feel better again soon.
Be honest. Shielding your kids from your MS doesn't work. "Kids are so perceptive, they'll know something is going on," Richman says. If you don't tell them what's happening, they fill in the blanks. What they imagine may be much scarier than the truth.
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Antioxidant drug knocks down multiple sclerosis-like disease in mice

12/26/13  Portland, Ore.
Researchers at Oregon Health & Science University have discovered that an antioxidant designed by scientists more than a dozen years ago to fight damage within human cells significantly helps symptoms in mice that have a multiple sclerosis-like disease.
The antioxidant — called MitoQ — has shown some promise in fighting neurodegenerative diseases. But this is the first time it has been shown to significantly reverse an MS-like disease in an animal.
The discovery could lead to an entirely new way to treat multiple sclerosis, which affects more than 2.3 million people worldwide.
Multiple sclerosis occurs when the body's immune system attacks the myelin, or the protective sheath, surrounding nerve fibers of the central nervous system. Some underlying nerve fibers are destroyed. Resulting symptoms can include blurred vision and blindness, loss of balance, slurred speech, tremors, numbness and problems with memory and concentration.
The antioxidant research was published in the December edition ofBiochimica et Biophysica Acta Molecular Basis of Disease. The research team was led by P. Hemachandra Reddy, Ph.D., an associate scientist in the Division of Neuroscience at OHSU's Oregon National Primate Research Center.
To conduct their study, the researchers induced mice to contract a disease called experimental autoimmune encephalomyelitis, or EAE, which is very similar to MS in humans. They separated mice into four groups: a group with EAE only; a group that was given the EAE, then treated with the MitoQ; a third group that was given the MitoQ first, then given the EAE; and a fourth "control" group of mice without EAE and without any other treatment.


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"What's the skinny on being treated with your own stem cells here in the USA?"

"FACT...the MS disease community in particular, finds itself at the top of the list to become medical tourists in other countries. Why is this?"


Written by Jennifer Ziegler – a Member at PatientsForStemCells.org Grassroots advocate for Multiple Sclerosis and Adult Stem Cell

The only cell type that is currently in use in clinical trials for MS is autlolgous bone marrow transplants used in Dr. Burt's study at Northwestern, http://www.youtube.com/watch?v=yi49gJkuRlQ
and MSC NP (Mesemchymal Stem Cells Neural Progenitor) used in the new study at the Tisch Center for MS, with Dr. Cox. You may have heard about the Tisch study recently as Meredith Viera's husband is a participant. http://www.examiner.com/article/dr-oz-discusses-meredith-vieira-s-family-health-battle-and-stem-cell-research

Other than those 2 studies that's it! ESC never paned out even after millions of dollars were pumped into their development, and they are also known to be tumorigenic. iPC cells are 10 to 15 years out. We believe iPC cells do show promise and will probable be extremely useful at some point in the future, but "no option," patients don't have time to wait. What were seeing, in the MS online communities over the past 10 years is a migration for treatment to overseas clinics. These are the success stories we are hearing about. Thanks to social media ALL disease communities are very well connected today. FDA drugs have proved to be lacking, and stem cell success stories are an exciting reality.

Those of us who have had treatment share the good, the bad and the ugly with each other. We share success and failure. Not everyone has the same level of recovery, that's just fact. We are seeing that early treatment is key. Younger stem cells prove to be more viable. We have an uphill battle here in the US, there's no doubt, but our PFSC group is making waves. Our member Micheal Phelan spoke at the Workshop of the Institute of Medicine of the National Academies: Stem Cell Therapies – Opportunities for Assuring the Quality and Safety of Unregulated Clinical Offerings, that was held on November 18, 2013 at the National Academy of Science Building in Washington, DC. http://www.cellr4.org/article/592  

Mike did an amazing job presenting our view point. It's well worth the time to read his summary. Forbes also did an article featuring Mike earlier in 2012. http://www.forbes.com/sites/johnfarrell/2013/02/21/one-mans-reluctant-tour-for-adult-stem-cells/


Mike and SammyJo are our awesome public speakers and can very eloquently get our view point across on various patient panels. SammyJo spoke on the patient panel at the Houston Stem Cell Summit, along with Chairman Hardcastle, former Texas House of Representatives member and PFSC member. Honestly the entire stem cell community has never had a group of patients speek up as loudly as we are doing. I also highly recommend that you listen to, "The History Of FDA Control Of Your Body." http://www.patientsforstemcells.org/home/ 

This is really where it all began. I've gotten a crash course in adult stem cells over the past 18 months! Never in million years did I think I'd be caught up in a fight for the right to be treated with the cells from my own body. I will leave the country to gain access to be treated with my cells in the future, and until this changes so will everyone else that I know.




Comment here at this blog posting if you want to message Jennifer

To access this posting from the outside, click: http://wwwmsviewsandrelatednews.blogspot.com/2013/12/whats-skinny-on-being-treated-with-your.html




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Tuesday, December 24, 2013

MS Views and News (MSVN) to bring new-style of MS education Programs Outside the State of Florida

MS Views and News (MSVN), a Not for Profit organization, founded in 2008, will again venture outside the State of Florida, bringing educational seminars that benefit those affected by Multiple Sclerosis.

After having (3) years of only doing MS education programs in the State of Florida, in November 2013 MSVN traveled to Atlanta, Ga., to do their first program in another State.

In 2014 MSVN has now initiated the planning for scheduling another round of MS educational programs for the year including upcoming programs which will be held in Birmingham, Alabama in April; Charlotte, North Carolina and another in Atlanta, Georgia for May. 

Also being added for the second half of 2014 will be a program in Charleston, South Carolina.

In addition to these four programs several others are being planned for various location in Florida for 2014.

If not yet registered with MS Views and News (MSVN), please click the link showing below, so that you can be informed when these, and future programs will be available in your region.

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