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Saturday, March 29, 2014
Friday, March 28, 2014
MS Progression: Expanded Disability Status Scale (EDSS)
Functional System Score (FSS)
- Weakness or trouble moving limbs
- Tremor or loss of coordination
- Problems with speech, swallowing, or involuntary eye movements
- Numbness or loss of sensation
- Bowel and bladder function
- Visual function
- Mental functions
The EDSS Scale
- 0 = Normal
- 1-1.5 = No disability, but some abnormal neurological signs
- 2–2.5 = Minimal disability
- 3–4.5 = Moderate disability, affecting daily activities, but you can still walk
- 5–8 = More severe disability, impairing your daily activities and requiring assistance with walking
- 8.5–9.5 = Very severe disability, restricting you to bed
- 10 = Death
Mobility Aids for Multiple Sclerosis
- The cane should be held on the stronger side of the body while the weight is shifted away from the weaker side.
- A quad cane (or four-legged cane) provides more stability than a standard cane.
Aids for Activities of Daily Living
- Tub bench
- Hand-held shower head
- Grab bars installed in shower/tub
- Bedside commode
- Grab bars near toilet
- Toilet seat with armrests (a raised seat with armrests can be placed over a regular toilet)
- Velcro, buttons, zippers, and hooks on clothing
- Sock pull
- Long-handled shoehorn
- A stool for sitting while dressing
- Microwave oven
- Wheeled utility cart
- Electric can opener
- Pot stabilizer
- Specialized utensils, such as large-handled spoons and forks, or ''sporks,'' and rocker knives
- Plate guard
- Wrist supports
- Special grips for pens and pencils
- Wrist supports
- Electric beds or mattresses
- Reacher devices
- Grab bars
Resources for Assistive Devices and Equipment
Silver Spring, MD 20910
1-800-227-0216 (Voice) or (301) 608-8912 (TTY)
A federally funded service to inform consumers about available products.
By Dana Jay, Reporter - bio
There is no cure for multiple sclerosis, but Heather Nicole Burke believes the stem cell replacement procedure she is about to undergo could make a big difference.
Burke contacted FOX 35, because she wants others to know that the procedure.
When Burke got news that her insurance would cover the still-experimental procedure, "I looked at my phone, and I was like, 'This is real! I'm going to get my life back! I'm going to be OK! I'm going to be able to take care of my children!'"
Burke will soon travel from Florida to Chicago for a multi-step stem cell therapy that could stop her disease from progressing.
Dr. Richard Burt, the chief or immunotherapy at Northwestern Memorial Hospital, and his team will use Burke's stem cells to reset her immune system.
WATCH Informational Video and read more here:
Thursday, March 27, 2014
Also, for many of us with MS, confidence is one of those “old us” (pre-diagnosis) facets of ourselves we so often feel we have lost along our journey with the disease -- our confidence in daily routine, but also, perhaps, inside where we don’t admit it to others. Yet, self confidence is very important for your well-being. It is your internal cheerleader of sorts. Rooting for you, helping you find your voice.
And, you don’t have to think of a confident person as a braggart. No. The admiration you lavish on others should start for you, with you. Confidence helps persuade people. If you are confident in your position others take notice. Confidence can also appear as charisma in those that ad fearlessness and warmth.
The best place to nurture confidence is in your knowledge -- of yourself and your cause. Knowledge cannot help but infuse confidence. When you have answers, or understanding, confidence will follow. Knowing the angles and facts behind your particular avenues of advocacy, you’ll find confidence is not far away. If you are not as personally confident, learning all you can about whatever area you’ve lost confidence in should help; fear of falling? Learn how to prevent it. Fear of speaking? Learn to speak slowly with cue cards if needed. Find a way to believe in yourself.
If you are ready to take an advocacy step, then you have nurtured your belief enough to take the needed action. You know what it is you are talking about or need on some level. This is when confidence can blossom.
Don’t let MS take your confidence. In any aspect of your life, for advocacy and personal needs, educate yourself in whatever area you feel you have lost, or need to cultivate confidence.
Information source: MS Foundation
Wednesday, March 26, 2014
Click the above to listen to another MS Views and News, video-recorded educational program that can benefit those affected by Multiple Sclerosis
this program took place on March 6, 2014 in Orlando Florida
Watch and Listen and learn from the (2) Speakers at this program