Please visit our MS learning channel on Youtube, which provides hundreds of topics from our education programs, that were video-recorded and archived here: www.youtube.com/msviewsandnews -- Be empowered with MS news by registering with us: www.register.msviewsandnews.org

joomla ecommerce template -- Scroll left side of this blog for needed resources. Also, use our 'search by topic' tool, to find specific information.

Disclaimer: 'MS Views and News' DOES NOT endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.

============================================================

Friday, April 18, 2014

Apr 12, 2014 from Birmingham, Alabama - Drs. Chris LaGanke and Rupa Kitchens - speak about Treatments, Symptoms and Bladder


https://www.youtube.com/watch?v=9TcYSmA4Tbg --


MS can be a Fatal Disease - says Dr. LaGanke

Listen to this for a little while, then pause and then get back to it later on --

Listen with Dr. Chris LaGanke - Neurologist speak about Treatments, Relapse, Symptoms and more - then hear Dr. Rupa Kitchens -Urologist speak about BLADDER ISSUES --

-- Learn and share this with others --

 Remember KNOWLEDGE is POWER

……..


To comment - click the comment link shown below
…….
Share our Articles with others
……
Sign-up at:  www.msviewsandnews.org 
To Keep CURRENT  and up to date with MS News and Information
 -------------
Donate Now Please - Click here
Thank you    
…………………….
.

Thursday, April 17, 2014

National Multiple Sclerosis Society Invests $29 Million in New Research to End MS


Society Invests $29 Million in New Research to End MS

What do dietary salt, quality of life and gut bacteria have in common? They are among the newest leads being explored to move us closer to a world free of multiple sclerosis. The Society is investing more than $50 million in 2014 alone to support over 380 new and ongoing studies around the world.

Read Full Story

……..


To comment - click the comment link shown below
…….
Share our Articles with others
……
Sign-up at:  www.msviewsandnews.org 
To Keep CURRENT  and up to date with MS News and Information
 -------------
Donate Now Please - Click here
Thank you    
…………………….
.

Join the MS Fitness Challenge



David Lyons Profile: 
President/Executive Producer of Bishop-Lyons Entertainment.
Senior Vice President/Executive Producer Hog Heaven TV Show

Founder of The MS Bodybuilding Challenge. David is the first person with Multiple Sclerosis to train to compete in a NPC bodybuilding contest. On August 22, 2009 he entered his first competition in 25 years, the Florida State Bodybuilding Championships, and was awarded The Most Inspirational Bodybuilder trophy as a cheering, standing ovation crowd watched. His challenge is supported by entertainment celebrities, athletes and major corporations. He has been featured on FOX live TV, radio and magazine articles. 
www.themsbodybuildingchallenge.com 

In 2009 David was the recipient of The National Multiple Sclerosis Society’s MILESTONE AWARD for being “an individual who is relentless in the fight against MS, achieving significant milestones in the past year”.
Contributor to the FELLOWSHIP OF CHRISTIAN ATHLETES (FCA) Daily Impact Play column as a writer of daily devotionals. www.fca.org 

David is the author of faith based autobiography, David's Goliath, available on Amazon.com 

President/Co-Founder of NaturalBody fitness brand.


-----------------------------------------------------------------------


Disclaimer:
MS Views and News/Stu's Views and MS News - did not have any input into the making of this MS Fitness Challenge 

We ask that you click the above to visit www.msfitnesschallenge.org 


……..


…………………….
.

MS: What role does vitamin D play?

Published April 17, 2014



THIS HOT-TOPIC VIDEO will be found here


……..


To comment - click the comment link shown below
…….
Share our Articles with others
……
Sign-up at:  www.msviewsandnews.org 
To Keep CURRENT  and up to date with MS News and Information
 -------------

.

Wednesday, April 16, 2014

Shadow Summit: One Man, His MS Diagnosis, and the Road to a Vibrant Life -

The video and information showing below, is about Jon Chandonnet, another blogger who attended the EMD Serono-Pfizer MS summit that I attended on April 14, 2014  - Stuart S.


Shadow Summit by Jon Chandonnet




Shadow Summit: One Man, His Diagnosis, and the Road to a Vibrant Life - 




Jon Chandonnet was doing something he’d always been able to do without fail or question: push his body, test his heart’s capacity, challenge the strength and response of his muscles, coordinate all the moving pieces with purpose.

But for the first time in his life, on a basketball court in Cambridge, MA, Chandonnet’s 27-year-old body pushed back.

His left leg and hand went dead. So odd, so unexpected, that Jon dismissed it as nothing. A “freak occurrence.” But it wasn’t.

He went to see a doctor, who ordered an MRI. The results were stunning. Jon had lesions on the brain indicating multiple sclerosis.

He had no idea how to respond to the diagnosis. So he didn’t. “I was 27 years old,” says Chandonnet. “I had the world by the tail. I thought, ‘Forget this.’”

For more than six years after the diagnosis, he lived by that credo – running marathons, climbing Mt. Whitney, pushing his physical limits to the edge. Professionally he built a strong reputation leading teams of software developers to launch start-up companies and build enterprise applications.

But MS caught up to him in a fierce way. After two years of deterioration, he could barely take care of himself. His wife, Robyn, and family convinced Jon that he could no longer ignore the reality of his condition. “We knew that we had to turn this around,” he says. He had things that he wanted to do, first among them to be a father.

But traditional medications and treatments did little to stem the disease’s momentum. Frustrated with the direction of his health, Chandonnet wanted to try something different.
Shadow Summit is Jon’s journey through a comprehensive overhaul that saw him change careers, revolutionize his diet, and, as a consequence, change his life.



Disclaimer:
MS Views and News/Stu's Views and MS News - did not have any input into the making of this book nor knew Jon prior to the MS Summit.

If you want to contact Jon, visit his website for additional information: http://jonchandonnet.com/


…………………….
.


EMD SERONO AND PFIZER HOSTS MS BLOGGERS SUMMIT

Stu (me) was also at this summit but is relying on the others who attended for their write-ups of the program. (time does have it's boundaries).

=============================================================


Written by: Lisa Lyon Dasis  04.15.14 


I just returned home from a trip to Boston for a MS Bloggers Summit hosted by EMD Serono and Pfizer Inc.  A question was asked to those of us who attended, “What gives you strength to blog?” My answer was fast, God, and family, but thinking about that question a little more, my answer is more complex. The fact is that God, faith, and family is where I get my strength to want to speak out but I also want to encourage every person who suffers with Multiple Sclerosis. It is important for you to know that I share experiences and knowledge of what I have been through so whether you are newly diagnosed or if your condition is deteriorating, I have been where you are.

If you have watched my video about what makes me want to move or read any of my stories, you may say that I seem to be doing pretty good. That is true in many situations, but there have been times when my condition was really serious, medications were not working, and have been in a wheel chair and unable to make any sense when trying to communicate. Bladder and Bowel incontinence, slurred speech, and major cognitive disorders were just the tip of the ice burg. I have experienced the job loss, wanting to work but unable which is still very difficult for me to accept. Depression and anxiety is always just a snap of the finger away, if I would let it be, but it is a daily fight to stay positive and push forward no matter what type of day that I am experiencing. My motto is I may have MS but MS doesn’t have me. I fight hard to not let this disease consume my life and not let it interfere with me living a good life.
For each of us that attended this summit, we all pretty much want to share not only our experiences, but provided as much educational material, tips which have helped us in different situations, and also motivate you to do all you can do to keep your body healthy through all of it. It was an honor to be among such an elite group of people who have been reaching out to everyone for quite some time, and found it funny that I was there since my blog only started 9 months ago. Really I am just an infant in this process and still learning ways to connect to many of my readers. Being a very simple person, my writing is also presented in a simple way.  It is my goal that what I present is easily understood and motivates you to search for correct answers to your questions and helps you down a path that I have already walked. You are not alone! I encourage you to communicate with me, ask questions, suggest topics that you would like to hear about. All of us who blog do this because we want to use our voice to help.
I want to thank EMD Serono and Pfizer for hosting a great Summit and for all the work they do for the MS Community. It was a privilege to be included with your work to improve your social media and enjoyed visiting your site and learning all the work you are doing to improve the quality of lives with all of us living with MS, so thank you. To all of the great people who has MS who attended, I enjoyed meeting you all and wish you great luck with your future blogging and assistance to everyone who suffers from this crazy disease.

Lisa can be contacted on Facebook


……..


To comment - click the comment link shown below
…….
Share our Articles with others
……
Sign-up at:  www.msviewsandnews.org 
To Keep CURRENT  and up to date with MS News and Information
 -------------
Donate Now Please - Click here
Thank you    
…………………….
.

How to Handle an ADA Violation if Disabled

April 1, 2014
When living with a physical disability, “accessibility” is an important word. It is a word that transforms the word inability to ability. For example, making a bathroom accessible for a wheelchair user breaks down the barriers that give the person freedom and dignity.
The American Disability Act was created and passed about twenty-five years ago that opened doors for disabled people in so many areas like public establishments and transportation. Standards were set. I know personally how important things like curb ramps, handicap parking, ADA equipped bathrooms and bus lifts are—I would be confined to my home in my wheelchair if it wasn’t for these accommodations. The Act states:
The ADA prohibits discrimination on the basis of disability in employment, State and local government, public accommodations, commercial facilities, transportation, and telecommunications. It also applies to the United States Congress.
So many places of the U.S. have done a great job in conforming to these standards. But it’s not a perfect world of course, and many old cities or establishments cannot comply completely. I understand this, and don’t make a fuss when something realistically cannot comply. However, there comes a time when there is a clear violation of code that is inexcusable and action needs to be taken.
I called to book a hotel room yesterday, and when I requested a handicap room, I was asked whether I wanted the handicap room with grab bars in the bathroom. Asking to clarify what this meant, it was explained that standard handicap rooms can fit a wheelchair in the bathroom, but there were no grab bars. If I needed grab bars, I would have to reserve a handicap “accessible” suite, which was $10 more. These were the only rooms the facility had for a person needing grab bars in a bathroom!
Time for action. This is so wrong…
I called the ADA and they said that the hotel was in clear violation; if the manager of the hotel had any questions regarding this, they should call the ADA to inquire about their obligation. My choices? I could file a complaint in writing to the ADA for possible action from them toward the hotel, or file a suit against the hotel myself.
The agent informed me that every complaint they receive is evaluated. She assured me that even though the ADA receives so many complaints, I will get a response. She added that it is important to notify them in situations like this; but depending upon if, when and how the ADA will respond to the violator is another matter. If they receive multiple, valid complaints of a clear violation, they will proceed directly to the violator.
There were some large hotel chains that recently received major fines from the government for handicap accessible room violations.
I called the hotel back (The Extended Stay next to Boston Logan Int’l Airport) and told them about their violation of the room and my call to the ADA agency. The manager wasn’t there, and was told by the hotel agent I could just “take it or leave it” in a snippy tone, and to follow up with the manager later. I needed the room and the $10 extra was only a big deal in principle for me.
I plan to write a complaint to the ADA agency. However, I will defer writing to the ADA or calling back this hotel before I stay there. I don’t trust saying anything more to the hotel beforehand, as I may find my room was “given away” when I show up.
In addition, I will speak with the hotel manager at check-in or check-out to discuss this in a civil manner. Maybe I’ll get $10 back, but more importantly future guests should not have to pay $10 more for a handicap bathroom with bars. I’ll show her this blog post.
Here is the link to the American with Disabilities Act (ADA) guidebookhttp://www.ada.gov/cguide.htm#anchor62335 . The standards were updated in 2010-2012, so make sure that anything you read is the updated standard with that year on it.
The direct number is 1-800-514-0301. The agent I talked to was extremely patient and knowledgeable. This is the same number that could be given to the code violator if they want to inquiry about their ADA obligation(s).
To file a complaint, write up the issue with detail and email it toada.complaints@usdoj.gov.
While this particular ADA issue with the grab bars was something the ADA said they will follow up with, there are many other situations where they are the “establishers” but not the “enforcers.” For example, while state/city levels have to conform to the number/size/etc. of handicap parking places according to the ADA, it’s up to the local governments to enforce the law.
If you are in question as to what to do and who to follow up with about something, call an ADA agent at the above number. I asked about how photo ID cards could be issued/carried by legitimate handicap placard/plate holders to defray HP abusers, and was told this is something that I would have to pursue with a state’s Department of Motor Vehicles. (Btw, the agent I spoke with indicated many people have called to inquire about this!)
Some things we have to swallow. For example, when I asked about the extremely high beds that are in handicap hotel rooms, the ADA agent explained that unfortunately, there are no codes regarding moveable furniture these hotel rooms. So if I happen to get a handicap room with a high bed, I have to nicely ask the hotel manager if they could remove the base. (This did this for me at several places.)
Personally, if a valid problem is encountered, I think it’s worthy to pursue an action and/or a solution. That’s how things get done. And there is strength in numbers. But I would add that what you say and how you say it is extremely important in achieving that solution. I have stayed in many hotel rooms that needed modification and hotel managers welcomed comments/suggestions and even gave generous rate reductions for any inconvenience I may have encountered. Sadly, hotels will book a handicap room to a “normal” person at the last minute just to fill the room. It has happened to me before, and others that I know in my position. When it happened to me, I nicely asked to not be charged for a room that night, and my request was granted.
www.DebbieMS.com

……..


To comment - click the comment link shown below
…….
Share our Articles with others
……
Sign-up at:  www.msviewsandnews.org 
To Keep CURRENT  and up to date with MS News and Information
 -------------
Donate Now Please - Click here
Thank you    
…………………….
.

Tracking MS Disability

April 16, 2014

What is the best way to measure disability progression in multiple sclerosis patients? Two specialists took on the question: William Tyor, MD, of Emory University in Atlanta and co-director of the Emory MS Center, and Jerome Graber, MD, MPH, of Montefiore Medical Center in Bronx, N.Y. They recommended a variety of tools including standardized scales, MRI scans, and clinical judgment.


WATCH a video report found here:
http://www.medpagetoday.com/HOTTOPICSNeurology/Neurology-Videos/453


……..


To comment - click the comment link shown below
…….
Share our Articles with others
……
Sign-up at:  www.msviewsandnews.org 
To Keep CURRENT  and up to date with MS News and Information
 -------------

.

Multiple Sclerosis Mental Healthcare Professionals In Focus at This Year’s 2014 Cooperative Meeting In Dallas

mental health and MSMultiple sclerosis mental healthcare professionals will play a major role at this year’s 2014 Annual Meeting of the Consortium of Multiple Sclerosis Centers (CMSC), promoted by CMSC and America’s Committee for Treatment and Research in Multiple Sclerosis (ACTRIMS).
The event, which runs from May 28 – 31 at the Hilton Anatole Hotel in Dallas, Texas, aims to offer continuing education credit for psychologists, focusing on their clinical practices with unique features for multiple sclerosis, such as depression, which disproportionately affects MS sufferers. The program for this year will include lectures, symposia, networking opportunities, workshops, and roundtables centered on the issue of treating those with Multiple Sclerosis. Participation in the even will also count as  continuing education credits for social workers, nurses, and pharmacists.



If you attend the CMSC meetings PLEASE VISIT 
   The MS Views and News Booth # 163


Tuesday, April 15, 2014

MS Relapses - Stepping Toward Another Treatment Option

SPRING HAS ARRIVED


We all welcome the spring bloom as color sweeps over our gardens, but as caretakers of this beauty we must also face the weeds. Weeds tend to change when and where they appear in a garden, much like MS relapse symptoms in your body. Weeds canʼt be avoided, but with knowledge and preparation they may be managed.
 
Know your weeds, know your tools. Learn more about how to recognize your unique MS relapse symptoms.
 
Gardeners use the tools at their disposal to deal with all types of weeds. Regardless of the type of weed, a trowel works by getting to the weedʼs roots. Though each MS relapse is unique, Acthar helps you deal with your MS symptoms by addressing them at their roots.
 
Take charge of your garden. 
Learn how Acthar can help you get back to enjoying the flowers in your life.
 
PS: Want to know more? Sign up now for an Acthar program near you.
===============================



Uses
H.P. Acthar® Gel (repository corticotropin injection) is an adrenocorticotropic hormone (ACTH) analogue used for the treatment of acute exacerbations of multiple sclerosis in adults.


Please see Important Safety Information below and full Prescribing Information.


H.P. Acthar® Gel and Questcor® are registered trademarks of Questcor Pharmaceuticals, Inc.
©2014 Questcor Pharmaceuticals, Inc. PM-01-01-0866 04/14



================================================


MS LifeLines Nurse Support Network Here for you

The MS LifeLines Nurse Network is readily available to provide you with education, training and support for living with relapsing multiple sclerosis and taking Rebif®(interferon beta-1a) therapy.
Whether they are out in the field or in the call center, every member of the MS LifeLines nursing team receives specialized MS training.

If you have questions, the MS LifeLines Nurse Network can help with tips to manage certain side effects with Rebif.

When it comes to understanding multiple sclerosis symptoms or learning tips for managing certain side effects, you are not alone. MS LifeLines—a network of support and community of people dedicated to helping those with MS—is here for you, 24 hours a day, 7 days a week, regardless of whether you take Rebif. Every call is answered by a live MS LifeLines representative.
MS-certified nurses can provide you with helpful support, including:
  • Education about MS
  • Ongoing telephone follow-up
  • Therapy support strategies and tips for people taking Rebif
  • A caring listener who understands what you're going through
Call a nurse toll-free at 1-877-447-3243.
Nurses are available by phone:
Monday through Friday
8 AM to 10 PM ET
Saturday and Sunday
9 AM to 5 PM ET
  
Please see Important Safety Information located below as well as the RebifMedication Guide and Prescribing Information located in the top of the website, and speak with your doctor for more information.

MS LifeLines licensed and registered nurses provide one-on-one Rebif injection training in your home

Available across the country, MS LifeLines Nurse Network includes Field Nurse who provide one-on-one training to help you get started taking Rebif.
A nurse will teach you , - click here to continue

……..


To comment - click the comment link shown below
…….
Share our Articles with others
……
Sign-up at:  www.msviewsandnews.org 
To Keep CURRENT  and up to date with MS News and Information
 -------------

Thank you    
…………………….
.

Video discussion of why it's important to stay on therapy


You are watching: It's A Marathon: Strategies to Help Maintain Your Treatment Regimen — Preview
MS LifeLines Nurse roundtable discussion of why it's important to stay on therapy.
Watch Talk MS on demand. This online talk show features a variety of guests, including doctors, nurses and MS LifeLines Ambassadors.



……..


To comment - click the comment link shown below
…….
Share our Articles with others
……
Sign-up at:  www.msviewsandnews.org 
To Keep CURRENT  and up to date with MS News and Information
 -------------

MS Patient Resources Information

On the MS Views and News Website, using the INFORMATION drop-down module, you will find one specific item that reads: WEB LINKS

Click that title or remember it exists on our website so that you can easily find Patient resources to the Pharmaceutical companies and other needs.



.......................

About an MS Blogger named Dave - Meet David's Goliath

Stu's Views:

I met Dave at a summit of MS Bloggers and though I would like to create a posting for each of these people that I just met, I wanted to start with Dave. 

No Dave, this  isn't because I liked you better than anybody else, I just needed to begin somewhere.  

Dave has been quite open about his life on the internet and in general. Also I have had conversations with Dave in the past and always found him to be quite intellectually humorous. At the Bloggers meeting, I found out just how humorous he is and how this is, well let's just say,, this is Dave.

Please read about Dave and what drives him to do what he does.


Like Stuart, David is an MS Fighter and an inspiration for all who follow what he does.
(Unlike Stuart, David does show his might and power).

David speaks of how he has fought to remain steps ahead of the disease.
Get a copy of David’s Goliath found here: www.davidlyonsms.com

Follow David’s MS Fitness Challenge – here: www.msfitnesschallenge.org  

===========================================
P.S. - I hope over the coming weeks you will find me writing more of the other bloggers that were at this MS Summit as EACH provides a great service to and for the Global MS Community.


……..
…….
Share our Articles with others
……
Sign-up at:  www.msviewsandnews.org 
To Keep CURRENT  and up to date with MS News and Information
 -------------

.

PPMS Update: Slowing Down Primary Progressive Multiple Sclerosis Disability Progression Worth Safety Risks For New Drugs, Say Surveyed U.S. Neurologists

Photo Credit: Designua/Shutterstock
Photo Credit: Designua/Shutterstock
According to a recent wide-ranging survey among U.S.based neurologists who treat Multiple Sclerosis, the consensus among the physician population is that doctors would be willing to accept a certain level of risk in new therapies for treating Primary Progressive Multiple Sclerosis if the drugs were proven to effectively reduce disability progression.

The survey, Chronic-Progressive Multiple Sclerosis: Amid Substantial Unmet Need, What Magnitude of Efficacy and Safety Do Neurologists and Payers Expect of a First-To-Market Therapy for Primary-Progressive Multiple Sclerosis?, which was conducted by Decision Resources Group (DRG) using a proprietary conjoint analysis tool, revealed that, among hypothetical therapies assessed in the study, neurologists are clearly calling for new therapeutic alternatives to Teva’s Copaxone. While Copaxone is often used by doctors as a therapy for Primary Progressive Multiple Sclerosis (PPMS), the neurologists implied in their responses that they would trade the safety of Copaxone for a new drug that features improved efficacy in treating the disease progression, even if there are increased life-threatening health risks associated with a new drug. 

The new insights reveal that there continues to be significant unmet needs in drug development for types of MS other than its most common form, relapsing-remitting, which features a collection of disease modifying and interferon-based drugs commonly used to slow down its progression into secondary progressive multiple sclerosis (SPMS). PPMS differs from relapsing-remitting, in that those who develop PPMS from the onset of being diagnosed with Multiple Sclerosis see a steady, constant acceleration of symptoms and brain atrophy, as opposed to the “ups and downs” associated with relapsing-remitting. Because the progression of symptoms and rapid loss of quality of life in PPMS is so palpable, that doctors are seeking out new ways to slow down the disease’s progression for their patients.
For their part, Teva would appear to agree, in that the drug maker is currently working on an emerging MS treatment called Nerventra — a promising Multiple Sclerosis treatment that, while not yet studied in PPMS patients, shows enough preliminary efficacy that the neurologists surveyed in the DGR study say that the drug would find application in 24 percent of the currently treated PP-MS patient population. The particular interest in Nerventra stems from the fact that the drug offers a key ingredient in treating Multiple Sclerosis — a putative neuroprotective effect — and has also shown a benign safety profile to date. Together with a patient-friendly once-daily oral administration, medical practitioners are clearly seeing it as a potential next-generation therapy for primary progressive Multiple Sclerosis.
READ More of this by clicking here

……..


To comment - click the comment link shown below
…….
Share our Articles with others
……
Sign-up at:  www.msviewsandnews.org 
To Keep CURRENT  and up to date with MS News and Information
 -------------
Donate Now Please - Click here
Thank you    
…………………….
.