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Saturday, May 31, 2014

About the International Organization of MS Nurses (IOMSN)

Company Profile

ounded on May 30, 1997, International Organization of Multiple Sclerosis Nurses (IOMSN) is the first and only international organization focusing solely on the needs and goals of professional nurses, anywhere in the world, who care for people with multiple sclerosis. Mentoring, educating, networking, sharing - the IOMSN supports nurses in their continuing effort to offer hope.


Mission Statement

The mission of the IOMSN is the establishment and perpetuation of a specialized branch of nursing in multiple sclerosis; to establish standards of nursing care in multiple sclerosis; to support multiple sclerosis nursing research; and to educate the health care community about multiple sclerosis; and to disseminate this knowledge throughout the world.

The ultimate goal of the IOMSN is to improve the lives of all those persons affected by multiple sclerosis through the provision of appropriate healthcare services and to make hope happen!


Strategies

Facilitate the development of a specialized branch of nursing in multiple sclerosis.
1. Develop and maintain a mechanism by which members can share information on practice positions and resources.
2. Establish the IOMSN as a forum for discussion and collaborations on issues that concern multiple sclerosis nurses.
3. Serve as a resource for external organizations related to multiple sclerosis practice issues.
4. Promote IOMSN recognition in the healthcare arena and encourage participation with other nursing organizations.
5. Share information on research activities among members.

Establish standards of nursing care in multiple sclerosis.
1. Review practice patterns in MS care and communicate this information to the IOMSN membership and partnering organizations.
2. Facilitate the development of a core curriculum for multiple sclerosis nursing.

Support multiple sclerosis research.
1. Encourage research activities that contribute to the development of a sound theoretical basis for MS practice.
2. Recommend topics for educational sessions at IOMSN meetings.

Educate the healthcare community about multiple sclerosis.
1. Promote communication among the IOMSN membership via things such as the newsletter and the web site.
2. Facilitate internal and external communication about multiple sclerosis care and research.

Learn more of the IOMSN - Click here: http://www.iomsn.org/


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Questcor Receives "Recognition of Appreciation" Award from MS Views & News

PRESS RELEASE             - May 28, 2014

Questcor Receives "Recognition of Appreciation" Award from MS Views & News


HAYWARD, Calif., May 28, 2014 /PRNewswire/ -- Questcor Pharmaceuticals, Inc. today announced that it has been honored with a "Recognition of Appreciation" Award from MS Views & News, Inc., a leading multiple sclerosis (MS) education, information and advocacy organization.
"We are very proud to recognize Questcor for its exemplary support in helping to provide services to the multiple sclerosis community," said Stuart Schlossman, President and founder of MS Views & News.  "Because of Questcor's steadfast dedication to the not-for-profit community, MS Views and News is readily able to reach out to tens of thousands of people affected by multiple sclerosis, including their caregivers and healthcare providers."
Mr. Schlossman presented the award today to Questcor at a special reception held in conjunction with the Consortium of Multiple Sclerosis Centers Meeting & Exhibition being held at the Hilton Anatole in Dallas.  Questcor vice presidents Fran Olson and Darlene Romine together accepted the award on behalf of the company.
"Questcor is honored to receive this recognition from MS Views & News," said Steve Cartt, Questcor's Chief Operating Officer.  "We are committed to serving the needs of MS patients, their families and the healthcare providers who care for them.  Our work together has helped bridge an information and awareness gap related to the care of patients suffering from MS relapses, an area of medicine that historically has received little attention.  We look forward to continuing this important partnership in the future and furthering these important educational efforts for MS patients."
About Multiple Sclerosis: Multiple sclerosis (MS) involves an immune-mediated process  in which an abnormal response of the body's immune system is directed against the central nervous system (CNS), which is made up of the brain, spinal cord and optic nerves. The exact antigen — or target that the immune cells are sensitized to attack — remains unknown, which is why MS is considered by many experts to be "immune-mediated" rather than "autoimmune."  Within the CNS, the immune system attacks myelin — the fatty substance that surrounds and insulates the nerve fibers — as well as the nerve fibers themselves.  The damaged myelin forms scar tissue (sclerosis), which gives the disease its name.  When any part of the myelin sheath or nerve fiber is damaged or destroyed, nerve impulses traveling to and from the brain and spinal cord are distorted or interrupted, producing a wide variety of symptoms.
About MS Views & News: MS Views and News is dedicated to the global collection and distribution of information concerning multiple sclerosis.  The organization provides educational MS information via the Internet using its website, blog, e-Newsletter, YouTube Channel and social media.  For more information, please visitwww.msviews.org
About Questcor Pharmaceuticals Questcor Pharmaceuticals, Inc. is a biopharmaceutical company focused on the treatment of patients with serious, difficult-to-treat autoimmune and inflammatory disorders. Questcor's specific areas of focus are in the fields of neurology, nephrology, pulmonology and rheumatology, and the company is currently supporting research efforts in a variety of conditions having significant unmet medical need. For more information about Questcor, please visitwww.Questcor.com . 
SOURCE Questcor Pharmaceuticals, Inc.
Copyright (C) 2014 PR Newswire. All rights reserved 



Comtex

Data from Biogen Idec’s Portfolio of Multiple Sclerosis Therapies and Pipeline Featured at Medical Congresses

CAMBRIDGE, Mass., May 30, 2014 (BUSINESS WIRE) --Biogen Idec today announced that more than 60 company-sponsored presentations highlighting key data from its industry-leading portfolio of marketed and investigational multiple sclerosis (MS) therapies are being featured during two neurology conferences, further demonstrating its commitment to meeting the individual needs of MS patients and improving outcomes with research that addresses important efficacy and safety questions.
Data are being presented during the annual meeting of the Consortium of Multiple Sclerosis Centers (CMSC) and the Sixth Cooperative Meeting with Americas Committee for Treatment and Research in Multiple Sclerosis (ACTRIMS; May 28 – May 31 in Dallas, Texas); and the Joint Congress of the European Federation of Neurological Societies (EFNS) and European Neurological Society (ENS; May 31 – June 3 in Istanbul, Turkey).
“Our research and development efforts over the past 30 years have positioned Biogen Idec at the forefront of MS innovation, and the scope of data we are presenting at CMSC/ACTRIMS and EFNS/ENS underscores our commitment to improving the lives of people living with MS,” said Katherine Dawson, M.D., vice president, global medical neurology at Biogen Idec. “Beyond discovering new treatments, we are also focused on innovating across the spectrum of MS care, investigating different approaches to advancing disease management.”
The data at CMSC/ACTRIMS and EFNS/ENS include results from studies of Biogen Idec’s currently marketed products -- TECFIDERA® (dimethyl fumarate), TYSABRI® (natalizumab), AVONEX® (interferon beta-1a) and FAMPYRA® (prolonged-release fampridine tablets) in markets outside of the U.S. -- as well as findings from the clinical programs of its MS pipeline candidates PLEGRIDY™ (peginterferon beta-1a), daclizumab high-yield process ([DAC HYP], EFNS/ENS presentation only) and Anti-LINGO-1 ([BIIB033], EFNS/ENS presentation only).
Details and Biogen Idec data presentations listings for the 2014 annual CMSC/ACTRIMS Meeting and 2014 Joint Congress of the EFNS and ENS can be found by visiting:
About Biogen Idec   - read more


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MS Bladder Problems Show Up Early and Often

Published: May 30, 2014








MS Bladder Problems Show Up Early and Often

Published: May 30, 2014

DALLAS -- Nearly 80% of multiple sclerosis patients in a large registry reported overactive bladder symptoms, and more than one-third of newly diagnosed patients in a different cohort also had urinary dysfunction, researchers reported here.
Analysis of questionnaires returned by 8,380 participants in the registry operated by the North American Committee on MS (NARCOMS) indicated that 6,392 of them reported overactive bladder -- including 5,159 who said they had urgency-related leakage, according to Stacey S. Cofield, PhD, of the University of Alabama at Birmingham, and colleagues.
However, barely half had ever seen a urologist for their symptoms, the researchers reported during a poster session at the joint meeting of the Consortium of Multiple Sclerosis Centers and the Americas Committee for Treatment and Research in Multiple Sclerosis (CMSC-ACTRIMS).
In part because a recent history of urinary tract infections was relatively common in patients with "wet" overactive bladder -- who had a mean of 0.85 infections in the past 6 months, compared with 0.56 on average among those with "dry" symptoms and 0.47 without any -- Cofield and colleagues suggested that patients with urgency-related leakage "may benefit from more specialty care."
In the study of newly diagnosed patients, Emily Riser, MD, and colleagues at the Tanner Center for MS in Birmingham found that 38% (13 of 34 recruited at initial MS diagnosis) had post-voiding urinary retention (at least 50 mL after urinating) as measured by ultrasound scan.
The same 13 patients all showed some degree of ambulatory impairment as well, with 25-foot walk times greater than the "normal" of 2.2 seconds. Four of these patients had 25-foot walk times in excess of 5 seconds, indicating significant impairment, Riser and colleagues reported.



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Realizing the Promise, Avoiding the Pitfalls, of Stem Cell Therapy in MS

May 2014

Stem cell therapies hold out the promise of repairing
Mark S. Freedman, BSc, MSc, MD, CSPQ, FRCPC
Mark Freedman, MD
 the damage done by multiple sclerosis (MS), but realizing that promise will require a rigorous approach that steers clear of lurking pitfalls and ensures that patient safety remains the paramount concern, Mark Freedman, MD, told attendees at a "Meet the Professor" dinner yesterday at the 2014 Cooperative Meeting of CMSC and ACTRIMS in Dallas, TX...









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Converging Trends Assure Vital Role for NPs in MS Patient Care, Research

Stephanie Agrella, RN, MSN, APRN, ANP-BC, MSCN
Stephanie Agrella, RN, MSN, APRN, ANP-BC, MSCN
May 2014

Several trends are converging to enhance the centrality of nurse practitioners to the management of patients with multiple sclerosis (MS) and to MS research, Stephanie Agrella, RN, MSN, APRN, ANP-BC, MSCN, told attendees at a Clinical Course yesterday at the 2014 Cooperative Meeting of CMSC and ACTRIMS in Dallas, TX...










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Different Goals, But a Continued Role, For Neurologists In Late Secondary Progressive MS

R. Philip Kinkel, MD
 R. Philip Kinkel, MD


Neurologists can and should continue to play an important role in the care of patients with late secondary progressive multiple sclerosis (MS), albeit with different goals and interventions than those that mark their management of patients in earlier stages of MS, R. Philip Kinkel, MD, said yesterday at the 2014 Cooperative Meeting of CMSC and ACTRIMS in Dallas, TX... 








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Diet and MS: Guiding Smart Patient Choices By Encouraging a Broad Focus, Simple Steps

While patients often are intensely interested in whether a specific food 
Denise Nowack, RD
or diet can alter the course of their multiple sclerosis (MS), they ultimately are best served by a broader approach to nutrition that takes into account their overall health, including ameliorating or avoiding co-morbidities, reducing the impact of MS symptoms, and promoting the self-efficacy needed to make sound dietary 
choices...








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Tolerance-Directed Immunotherapies: The Future of MS Treatment?


Stephen D. Miller, PhD
Stephen D. Miller, PhD

Precisely targeted therapies that establish immune cell tolerance of specific antigens may enable clinicians to move in coming years from managing the symptoms of MS and other autoimmune diseases via immunosuppression to shutting down the underlying disease processes on a long-term or even permanent basis.

That was the message Stephen D. Miller, PhD, delivered to health-care professionals in his keynote lecture that opened the 2014 Cooperative Meeting of CMSC and ACTRIMS in Dallas, TX yesterday. Dr. Miller, the Judy Guggenheim Research Professor of Microbiology-Immunology at Northwestern University Feinberg School of Medicine, added that the ability to deliver tolerance-directed immunotherapies via biodegradable polymer-based nanoparticles – rather than through complex and costly procedures that extract, treat, and then re-infuse a patient’s white blood cells – offers the prospect of the therapies being widely accessible.

“The implications for immune-mediated diseases such as multiple sclerosis (MS), Type 1 diabetes, arthritis, asthma, and food allergies are profound,” Dr. Miller said in an interview previewing his lecture. “Our current approach to autoimmune disease treatment generally involves suppression of the immune system, with all the attendant risks of making a person more susceptible to infections, cancer, and other conditions. Tolerance-directed therapies affect only the pathogenic autoreactive T cells that react to a specific antigen, and work to ‘re-set’ those cells to avoid a response rather than to suppress a response. The precision of this targeting means that we would not have the broad impact on the overall immune system that current immunosupression approaches do. Further, if we can establish tolerance to the antigen, we can stop the autoimmune disease process rather than having to content ourselves with dealing with its symptoms.”

Intriguing research
Dr. Miller, who has researched autoimmune diseases for more than 30 years, hopes to launch a Phase 1 trial of a tolerance-directed immunotherapy delivered via poly (D,L-lactide-co-glycolide) (PLG) nanoparticles within the next year to year and a half. Last year, he and colleagues at Northwestern and in Hamburg, Germany published the results of a 9-patient study which found that a tolerance-directed immunotherapy for MS was safe and reduced the patients’ immune systems’ reactivity to myelin by 50 to 75 percent. However, that study employed a sophisticated method for extracting patients’ white blood cells (WBCs), processing them to deliver myelin antigens into the patients’ bodies in a way that would help develop tolerance for the antigens, and then re-infusing the WBCs. Dr. Miller’s planned Phase 1 study, for which he is securing funding, would avoid the complicated extraction/re-infusion process by delivering antigens via biodegradable nanoparticle. In a murine study reported in 2012, Dr. Miller and colleagues found that polymer nanoparticles were an effective vehicle for delivering antigens in a way that prompted the immune system to stop attacking myelin. That approach halted a model of relapsing-remitting MS in mice.

An opportunity to stop the disease process



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PLASMA EXCHANGE FOR TREATING NEUROLOGIC DISORDERS: AMERICAN ACADEMY OF NEUROLOGY GUIDELINE

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The American Academy of Neurology is an association of more than 22,500 neurologists and neuroscience professionals.  A neurologist is a doctor with specialized training in diagnosing, treating and managing disorders of the brain and nervous system such as Alzheimer’s disease, stroke, migraine, multiple sclerosis, brain injury, Parkinson’s disease and epilepsy.

A new guideline from the American Academy of Neurology recommends using plasma exchange to treat people with severe relapses in multiple sclerosis (MS) and related diseases, as well as those with certain kinds of nerve disorders known as neuropathies. The guideline is published in the January 18, 2011, print issue of Neurology, the medical journal of the American Academy of Neurology.  Evidence-based guideline update: Plasmapheresis in neurologic disorders; Report of the Therapeutics and Technology Assessment Subcommittee of the American Academy of Neurology, I. Cortese, MD, V. Chaudhry, MD, Y.T. So, MD, PhD, F. Cantor, MD, D.R. Cornblath, MD, A. Rae-Grant, MD, Neurology 2011;76:294–300.

The objective was to reassess the role of plasmapheresis in the treatment of neurologic disorders.  The authors evaluated the available evidence based on a structured literature review for relevant articles from 1995 through September 2009.

Plasma exchange, also known as plasmapheresis, is the process of taking blood out of the body, removing constituents in the blood’s plasma thought to be harmful, and then transfusing the rest of the blood (mainly red blood cells) mixed with replacement plasma back into the body.  Plasma is the liquid part of blood. The solid parts are white and red blood cells.  In plasma exchange, blood is drawn from the person.  The plasma is separated from the solid parts of the blood.  It is then replaced with plasma from a plasma donor.  The donor plasma is pumped into the person. A machine sends the plasma through a tube into the body.  If no donated plasma is available, albumin solution can be used. Albumin is an important protein in plasma.  Like any medical procedure, plasma exchange poses some risks.  It is invasive. This means it involves an object—in this case, a tube—entering the body. Side effects of plasma exchange include infection and blood-clotting issues. You should discuss the benefits and risks of this treatment with your doctor.

The guideline recommends doctors consider using plasma exchange as a secondary treatment for severe flares in relapsing forms of MS and related diseases. The treatment was not found to be effective for secondary progressive and chronic progressive forms of MS. According to the guideline, doctors should offer plasma exchange for treatment of severe forms of Guillain-BarrĂ© syndrome and for temporary treatment of chronic inflammatory demyelinating polyneuropathy. Plasma exchange may also be considered for treatment of some other kinds of inflammatory neuropathies.  These types of neurologic disorders occur when the body’s immune system mistakenly causes damage to the nervous system. Plasma exchange helps because it removes factors in the plasma thought to play a role in these disorders.  The guideline authors also looked at the use of plasma exchange for other neurologic disorders, including myasthenia gravis and pediatric autoimmune neuropsychiatric disorders (PANDAS), but there was not enough evidence to determine whether it is an effective treatment.





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