Please visit our MS learning channel on Youtube, which provides hundreds of topics from our education programs, that were video-recorded and archived here: www.youtube.com/msviewsandnews

joomla ecommerce template -- Scroll left side of this blog for needed resources. Also, use our 'search by topic' tool, to find specific information.

Disclaimer: 'MS Views and News' DOES NOT endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.

=================

Saturday, August 23, 2014

www.cafepress.com/msviewsandnews




Sweatshirts, t-shirts and with so much more, we invite you 

to visit our store: www.cafepress.com/msviewsandnews

Each purchase will benefit MS education





~~~~~~~~~~~~~~~~~~~~
 Keep CURRENT and up to date, with MS News and Information
Sign-up for emails 
.

WATCH OUR MS EDUCATIONAL VIDEOS by Topic, 

.


The Optimist and the Pessimist

“Attitude is Everything”

August 6, 2014
I am an optimist. My husband is a pessimist. If I say “wow, the sky is so blue”, he’ll say “I hate the sun, I like it cloudy.”
They say opposites attract but sometimes I don’t know how I have survived 36 years of marriage with a person who is a pessimist.
My husband and I just got back from a mini camping trip in our RV and truthfully, it really was frustrating. It rained constantly for almost the entire trip, so we were confined to stay in the RV. For me, it was cozy listening to the rain while reading a novel and watching movies. For him, he seemed to complain about everything and didn’t even want to play cards with me.
After being in this situation, I started writing a post about why the need to vent from time to time is essential to your health. This morning I was going to finish it when I came across this article about optimism and pessimism in the newspaper. I felt like it was written for me.
This article is so important, I once again decided to postpone my post-in-process and share this. Not only is optimism necessary to survive life, it is necessary to survive MS. Pessimistic people drag you down, something that is not good if you are trying to cope with a chronic illness.
Optimism trumps pessimism in workplace, life
President Harry S. Truman once said, “A pessimist is one who makes difficulties of his opportunities, and an optimist is one who makes opportunities of his difficulties.”
Which do you think will reach their goals, live a happy life and achieve their dreams?
Imagine interviewing two people who have identical skills, but one is always grumbling about how unfair life can be, while the other one talks about what wonderful possibilities exist.
Naturally, you would gravitate toward the optimist. If you choose the pessimist, you would be setting yourself up for plenty of aggravation and disappointment, not to mention the negative impact on your staff and customers. Pessimism can bring everyone down, not just the person with the negative attitude.
Pessimism is nothing more than self-sabotage. Expecting only the worst is not being realistic. Realists hope for the best but prepare for the worst. Pessimists can’t imagine the best, so they prepare for the worst. And then if the worst never happens? Pessimists often find the worst possible result simply to prove that their concerns were right.
The question becomes, would you rather be right than be happy? That’s not being realistic, either. That’s being self-defeating. Pessimism can rob you of your energy, sap you of your strength and drain you of your dreams.
Optimism is the remedy. Optimism doesn’t mean pre¬tending life is always wonderful. Optimism means embracing reality. You accept that there will be bad days, but also good days. When you’re grounded in reality, you know where you are and how far you need to go. Once you know how far your goal may be from where you are, optimism can give you the motivation to make plans to get to where you want to go.
Pessimists see life as one problem after another. Optimists see life as one opportunity after another.
How you look at life can drastically affect how much you enjoy your life. Optimists expect the best out of life.
Does it make sense that pessimists tend to blame others or circumstances for their failures?
Optimists help create some of the good they come to expect, so they are probably right more often than not — and they don’t waste time worrying about what they’re not right about. Optimism relaxes people. When we’re relaxed, there is better blood flow to the brain, which results in more energy and creativity in your life.
There is virtually nothing that you can’t do if you set your mind to it. You cannot control events in your life, but you can control how you react.
Do you want to be a pessimist and have no hope for a better future? Or would you rather be an optimist and believe you can achieve a better future?
Mackay’s Moral: Attitude is the mind’s paintbrush — it can color any situation.
Harvey Mackay is the author of the New York Times best-seller “Swim With the Sharks Without Being Eaten Alive.” He can be reached through his website, harveymackay.com, or by e-mailing harvey@mackay.com.
In my situation, I learned years ago how to ignore or escape my husband’s negativity. While I succeeded most of the time, the times that I couldn’t get away from it caused tremendous stress. Not only did the stress impact my MS symptoms negatively, it would make me moody and stifle my motivation to move forward. Fortunately, I am a strong-willed person and almost always found alternative sources of optimism (e.g. friends, enjoyable interests/activities…) to lift me up before I got dragged into the depths of an abyss.
Now, in all fairness, my husband is a great guy and has many positive attributes. None of us is perfect. I am a sensitive person who cries easily or pouts. Personality traits are difficult to change; a person has to recognize a change needs to be made and then take great effort to make the changes. But this is a slow process that requires much patience.
If you don’t live with a pessimistic person, it’s easy to get away from him/her. An optimist living with a pessimist will be a lethal combination if coping mechanisms can’t be accomplished.
I know from experience. And I know that one of main reasons I have survived managing my MS is because I am an optimist. Attitude is everything.
www.DebbieMS.com
Author/MS Counselor/Living with MS


~~~~~~~~~~~~~~~~~~~~
 Keep CURRENT and up to date, with MS News and Information
Sign-up for emails 
.

WATCH OUR MS EDUCATIONAL VIDEOS by Topic, 

.


A Zombie Goes Down the MRI Tube


ARE YOU AN MS ZOMBIE TOO?

Written by: Yvonne deSousa

ms zombie
Earlier this week, someone posted the above picture in one of my FacebookMS groups.
(Sorry, fellow MS’er and poster.  I didn’t want to steal your pic but I really liked it and was desperate for a blog post idea.)
I laughed out loud at the picture and immediately commented that I loved it.  Some of my fellow MS friends agreed.
Some did not.
They respectfully brought up the fact that images like this one can diminish MS, appear to make fun of MS or give people a false sense of what we go through.
I had never thought of it this way and since I respect all opinions, and have a tendency to ponder, I sat with the opposing opinions for a while.  I sat with them right into the next afternoon as I was about to get my 25th MRI.
MRI_scanner
(Kidding- I haven’t had that many MRIs although it often feels like it.  If it really was my 25th I would be expecting a big present from the technologists.  I think the 25th anniversary is silver which the technologists could NOT give me as no metal is allowed in the MRI room.  Damn, MS got me again!)
Anyway, I did get a little surprise at my MRI place-I have no idea what the official name is- as they have added music to the MRI experience.
People had told me over and over that they have been able to listen to music during their MRIs but I didn’t believe them.  I figured they were just trying to make me jealous.
music
But apparently it’s true as I was able to listen to music during both days this past week when I was stuck in the tube.
CONTINUE READING by clicking here



~~~~~~~~~~~~~~~~~~~~
 Keep CURRENT and up to date, with MS News and Information
Sign-up for emails 
.

WATCH OUR MS EDUCATIONAL VIDEOS by Topic, 

.


Doctors say hot weather can worsen the symptoms of MS

Doctors say hot weather can worsen the symptoms of MS story image

Doctors say hot weather can worsen the symptoms of MS --

 Imagine that? Doctors telling us what most of us, actually already know



RENO, Nev. -- 

"People become heat intolerant when they have Multiple Sclerosis because the nervous system doesn't work as well when you're hot," said Renown Clinical Professor of Neurology Doctor Melissa Bloch.

Bloch said the effects are intensified because MS patients already have compromised nervous systems. "Getting overheated when you have a disease like Multiple Sclerosis can make you feel worse. It doesn't necessarily cause the disease to progress, but it can make you feel weaker, it can make your vision less clear and can increase your fatigue."

So Bloch advises her patients with MS to avoid going outdoors during the hottest parts of the day. "Stay inside in air conditioning. Exercising in water can be helpful, in a pool or Lake Tahoe is a very nice, cool lake."

She also wants people who have not been diagnosed to pay attention to their bodies and look out for symptoms. "If you've ever suddenly lost vision, had pain behind the eye, if you have a sudden onset of numbness and weakness in one side of your body, those would be signs that perhaps you should get checked out."

Early diagnosis is key for treatment, but Bloch said many people miss the signs. "It's easy if you're a young person who has a little numbness and tingling to sort of write it off as I did too much at the gym, or I slept funny or I sat on my leg funny. A lot of people can explain away their early symptoms."

If you are experiencing any of the symptoms of MS, Bloch said you should contact your primary care physician to get checked.

Source: Fox11 - Reno, NV




~~~~~~~~~~~~~~~~~~~~
 Keep CURRENT and up to date, with MS News and Information
Sign-up for emails 
.

WATCH OUR MS EDUCATIONAL VIDEOS by Topic, 

.


Friday, August 22, 2014

The Incredible Pressure To Be Well - a patient's story

written by: 

Shared publicly  -  
I'm am motivated to write this post because a wonderful MS friend of mine is going through a relapse. My friend had a life saving autologous bone marrow transplant about 2 years ago. 

Before transplant she was paralyzed. After transplant she got back to living a pretty normal life. Walking, exercising, even running down her hallway, traveling, moving to a new house, etc....

She has, "malignant MS." Only 5% of MS patients have this particular type. I happened to check on her 2 days ago and heard this difficult news. She proceeded to tell me that she had a relapse, and didn't want to tell anyone for fear of upsetting her friends, family and followers online.

 It was then and there that I thought about what she said. THERE IS THIS HUGE PRESSURE TO BE WELL. Especially after you've had stem cell treatment. For some, a stem cell treatment may be a final hope. Most patients feel pressure to tell everyone around them that they're good! 

I don't think that's always the case. It's a pressure that drains precious energy and causes anxiety. Speaking up, sharing with friends and family is so necessary. 

There's something about "getting it out there," that will relieve and release.  There's freedom in speaking "your" truth in EVERY situation! So please don't worry about raining on someone else's parade. 

Multiple Sclerosis and other chronically ill patients speak up freely! Whether a stem cell treatment works for you, whether a certain drug treatment does or doesn't work for you, every patients' experience is different and adds another important piece to this crazy disease puzzle. 

Every experience is vital information for other patients to have. Share your story! The good, the bad or somewhere in-between and enjoy the freedom that truth brings! 

((((HUGS)))) 


===============================================









~~~~~~~~~~~~~~~~~~~~
 Keep CURRENT and up to date, with MS News and Information
Sign-up for emails 
.

WATCH OUR MS EDUCATIONAL VIDEOS by Topic, 

.


Thursday, August 21, 2014

Insurance Companies, Health Care Costs, and the Chronically ill

Written by:  Debbie Petrina

“The Need to Fight Back”
Medical insurance companies are out of control because they have too much control. The same can be said about pharmaceutical companies and other large health organizations like hospitals.
Getting coverage, keeping coverage, being able to afford coverage are huge headaches for us. We need them and they know it. These greedy companies have tremendous power and resources, leaving us at their mercy. They decline truly needed things that our specialists recommend for us.
A fellow MS Blogger, Dave Bexfield, recently won a claim against a large insurance company that wrongfully denied payment for his life-saving stem cell procedure.http://nyti.ms/1oUQ5ZK  His 4-year persistent battle that included the help of NY Times’ The Haggler finally ended with his victory.
A victory that hopefully will inspire many others to follow his lead and fight for their rights. More people need to do this; there is strength in numbers. We are the buyers of their products; our voices and actions against their wrongdoings as a group can impact their control. Especially if we get our victories publicized by all types of media and large organizations; like Dave’s involvement with the New York Times and his social media bombardment that followed.
Fighting for your rights from insurance companies is hard work, especially when you are ill. It requires a tremendous amount of energy, time, patience and often money; things that people—especially the chronically ill–don’t have much of. The frustration and stress that one endures with the phone calls alone can turn the sanest person insane–long hold waits, dropped calls, rerouted calls, not being able to talk to a person… Most people who take on the fight with these big guns eventually give up; these companies count on it.
Those of us who are truly sick and trying to have quality in our lives are getting doors slammed in our faces for things that could help provide more quality or relief. We pay big bucks for our insurance coverage with our limited incomes that suffer because of our disabilities/illnesses.
Give us the benefits we pay for or are entitled to! Blow the whistle when something is just wrong.
WHAT TO DO?
 If your doctor recommends a drug, procedure, equipment, etc., make sure you get it.
An insurance company should NOT be the one who determines what’s best for your health—it should be your doctor and you!
 Read your claim statements carefully to make sure they are accurate.
Continue reading



~~~~~~~~~~~~~~~~~~~~
 Keep CURRENT and up to date, with MS News and Information
Sign-up for emails 
.

WATCH OUR MS EDUCATIONAL VIDEOS by Topic, 

.


MS in the News: Invisible Symptoms, a New MS FDA approved med, explaining MS and more

Stu's Views and MS News
 e-Newsletter
a Publication of MS Views and News
August 21, 2014..
.
.
Visit our website at: www.msviewsandnews.org...
========
If you are having trouble viewing this message, please Click Here


OUR Every Other Week MS  e-Newsletter

This issue Features (28) Articles -  
Including: Video about how it feels like to have MS, New FDA Med Approval, Finding a Care Provider, Catheter Useage, Optic Dysfunction,  Invisible MS Symptoms and so much more
=================================
 WATCH OUR MS education Program archived Video-Recordings  

================================
* Pharmaceutical/ Patient Resource  information, found at the lower left of this e-Newsletter
=================================
 * Sponsors for our eNewsletter series publications are found on lower right
 * For Complete information see OUR Calendar of Events Found on Our Website: www.msviewsandnews.org
 ============================
Founded in 2008
"Providing You with
'MS Views and News',
IS What We Do"
____________________________
YOUR TAX DEDUCTIBLE
Contribution IS Needed to
Help Us to Educate the
MS Community
Use Credit Cards, PayPal or
mail a check

$$$$$$$$

Ask that your donation be used for education or research.
This year, we are helping to fund an
MS Stem Cell research study

THANK YOU


------------------------------------------------------------------------------------------------------------------ 
Use OUR website for a wide scope of resources and information: www.msviewsandnews.org
=====================================================
MS in THE NEWS:
August 7th thru 20th, 2014  (28 Articles
Providing you with Education, Information and Resources 
   FIND the Article(s) you want to Read, then CLICK that link
===================================================

MS Views and News (MSVN) UPCOMING Education PROGRAMS:
See Our Website calendar :
for Program Topics, locations, dates and times for all of our upcoming programs 
Pembroke Pines, Fl.   - August 27th - Office of Dr. Seliger
ATLANTA, GA.            - September 22nd - Marriott Atlanta Airport
Melbourne, Fl.          - September 30th - Hilton Rialto
Punta Gorda, FL.     - Oct 6th - Laishley's Marina
Conyers, GA.          - Oct 14th  Location to be announced
Marietta, GA.         - October 16th, Location to be announced
Miami, FL.              - Oct 25th - Annual MS Symposium - Intercontinental Hotel
Miami, Fl.               - November 8th - Tentative
Decatur Ga.            -  Nov 5th - Location TBA
Orlando, Fl.            - Nov 22nd - a Q&A Session - Holiday Inn Orlando Int'l Airport
Winter Park, Fl.      - December 8th - TBA
South Carolina      - (Tentative) Early December?  2014 - TBA
====================================


       BACK-To-SCHOOL MADNESS beginning again, soon followed by Holidays
        Shop at AMAZONSMILES 
         Select MS Views and News as your choice of Charity
          Visit AmazonSmiles to shop and support MSVN
          For our Educational and Alternative Therapy programs


             
MS Views and News needs your help:
In an effort to grow our organization and bring our information, services and live educational programs to more people throughout the continental United States,  we would like to grow our database
Several opportunities are available which require hardly any movement on your part.  Mostly you will need a computer, a telephone and the desire to get involved and assist.
Please contact Jill at jill@msvn.org  
Thanking you in advance for your interest.  We appreciate your volunteer involvement.

 ===========================
BOOKMARK AND VISIT:
our Website’s Calendar of events to keep informed of our location information, dates and times concerning our MS education programs. Register for any of the above programs by using the Registration Section on the right side of our website.


Find an MS research Study in South Florida:MS Research Studies in Pompano Beach, Florida.    Click here  for more details


Questcor Pharmaceutical's  IS NOW MALLINCKRODT



http://www.mallinckrodt.com/questcor
 =========================

Search MS Relapse programs in Florida : 
Click here to find a program near you
=======================================

Learn of a different option for treating MS Relapse click here to register.



LEARN ABOUT MS RELAPSE
also known as an Exacerbation or Flare-up:
Questcor Programs anywhere in the USA can be accessed here
USA RESIDENTS - Click the Yellow Banner to find an MS Relapse program

  Now MALLINCKRODT


.PLUS:  NEW Patient Website: RETHINKMSRELAPSES.COM


.LISTEN to us on StuMS Radio - our Blog Talk Radio show
Multiple interviews covering multiple topics
LISTEN to our archived shows:
CLICK: #Multiple Sclerosis-Unplugged 


SOCIAL MEDIA  - Twitter and FACEBOOK

Find us on Twitter:   http://twitter.com/MSViews_andNews

Find us on Facebook at our primary   page: facebook.com/msviewsandnews
.


CHAT With Peers when using one of OUR (3) FACEBOOK CHAT ROOMS:

·         Friends of Stu's Views & MS News - Click HERE    
·         Caregiver chat: Click HERE 
·         For those with a Progressive form of MS, communicate with others on Facebook: click here 



Changing your email address?
Remember to write us, to give us your new email information, to remain informed and up-to-date with important MS News and Information


PLEASE share what you are learning from this e-Newsletter with others and ask them to share with their listings

Ask them to register with us at our website:
www.msviewsandnews.org

Simply Copy and paste this message and provide to those that have not been seeing our informational e-Newsletters or other benefits from our Website, Blog, Social media pages, Youtube channel or Live MS Seminars to just name a few...



Why wait for a newsletter to be published to keep informed with information? 
Register to receive the information as we post it to our site.  
     Visit our Blog 

Find this on the left side of Our Blog-Page

REGISTER TO RECEIVE OUR INFORMATIONAL POSTINGS BY EMAIL- ENTER YOUR EMAIL ADDRESS HERE:
Enter your email address and then you will receive information from us each day about articles that are posted each day.


READ Articles from our ASK the MS Nurse


For the many who ask medical questions to Stuart, please know that Stuart is not a doctor. If you have medical questions, please speak with your medical doctor. If asking Stuart his opinion, he can only answer with regards to how something may have affected his life, with His Multiple Sclerosis.


TO RECEIVE our Bi-Monthly MS e-Newsletter in your email inbox,
   click here to Sign-Up!!


Our Mission:
MS Views and News (MSVN), is dedicated to the global collection and distribution of information concerning Multiple Sclerosis (MS).  Through partnering relationships, MSVN provides education, advocacy and service to empower and enhance the quality of life of the MS community.


Pharmaceutical -
Patient Resources

 Acthar GEL
 Patient Information
(888) 435-2284
------------------
------------------

AVONEX -
MS ActiveSource
(800) 456-2255

www.avonex.com

---------------------

Genzyme - Aubagio (Oral)

---------------------

Novartis Gilenya (Oral)
Patient Support
(877) 408-4974

www.gilenya.com
---------------------
Tecfidera Information
---------------------

Tysabri -TOUCH Program
(800) 456-2255
:::::::::::::::::::::::

Have questions?

Write to:

 

This e-Newsletter, Our Website,
Information Blog, Podcast series
and Blog Talk Radio,
are sponsored by:
undefined
.
.
.
.
.

Keep KOOL 

Click above banner

-



-
 MS Views and News /Stu's Views and MS News, appreciates your continued support and interest, in our vision and goals.


                                
HELP US TO EDUCATE by providing Wellness programs
Donate PLEASE:     
http://www.msviewsandnews.org/index.php?option=com_content&view=article&id=141&Itemid=99
outbind://235-00000000EBDCF4E43ED0D511850800105A0510E1C46CB000/index.php?option=com_jdonation&view=jdonation&Itemid=102
.
"MS Views and News" (MSVN) is a 501©(3) Not-For-Profit organization as recognized by the Internal Revenue Service. All contributions are tax deductible to the fullest extent allowed by law
=========================================================

Our Mission:
MS Views and News (MSVN), is dedicated to the global collection and distribution of information concerning Multiple Sclerosis (MS).  Through partnering relationships, MSVN provides education, advocacy and service to empower and enhance the quality of life of the MS community.



Mailing Address: 777 NW 72nd Ave. * Suite 3005 * Miami, Fl. 33126  
===========================


Newsletter Disclaimer:
***Editor's Note: The intent of this newsletter is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly. Click here to Update Profile / Unsubscribe 
.




~~~~~~~~~~~~~~~~~~~~
 Keep CURRENT and up to date, with MS News and Information
Sign-up for emails 
.

WATCH OUR MS EDUCATIONAL VIDEOS by Topic, 

.