Please visit our MS learning channel on YouTube, which provides hundreds of MS related topics from many of our video recorded education programs and archived here: -- Be empowered with MS views and news. Opt-in with us:

~~ Scroll left side of this blog for needed resources. Also, use our 'search by topic' tool, to find specific information.

Disclaimer: 'MS Views and News' DOES NOT endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.


Tuesday, June 2, 2015

A PPMS patient's request

June 1, 2015

Dear Readers,

            My name is Audrey Greenfeld and I have PPMS (primary progressive multiple sclerosis). As anyone with an incurable, chronic disease knows, the out-of-pocket cost of available treatments is prohibitive because the drugs used to fight these conditions are classified as “specialty drugs”. What is perhaps less well known is the fact that current law prohibits Medicare from negotiating directly with drug companies to obtain these medications at a lower cost.

            I was inspired by an Op-Ed piece in the NY Times (May 5, 2015) to finally do something about this. I have begun a campaign to send letters to Congress urging them to pass a budget that includes a provision allowing Medicare to use its formidable clout as the largest single payer of prescription drugs to negotiate for lower prices of specialty drugs on which I and millions of others with serious chronic illnesses depend.  
            It will only take a minute of your time to generate the letter. Here’s how: 
                     1.     Click on this link:
         2.     Click "Send Message," and it will automatically send the message to your   state’s Senators and Congressmen.
3.     Once you click "Send Message" and register, you will have the ability to share to Facebook and email. Please do that!! Share to Facebook and encourage friends to do the same. 

            To be effective, this campaign must be national.  The goal is to send 50,000 letters to Congress in order to get noticed. Please forward this letter to people you know in as many different states as possible. With your help, I believe we can make a difference for millions of Americans.

Thank you so much!
DEAR READERS:  Please help Audrey with her mission. 
This will take less than 5 minutes and might benefit thousands

 Keep CURRENT with MS Views and NewsOPT-IN here

No comments: